Implementation in Health Care and Social Service Systems: REACH VA

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Implementation in Health Care and Social Service Systems: REACH VA Linda Olivia Nichols, PhD Jennifer Martindale-Adams, EdD VA Medical Center at Memphis, University of Tennessee Health Science Center

Resources for Enhancing Alzheimer's Caregivers Health R E A C H II II Multi-component 6 month, randomized clinical trial, 6/02 to 12/04 Funded by NIA and NINR, additional support from VA Five sites and Coordinating Center Recruited 642 caregiver dyads African Americans/Blacks Hispanics/Latinos Caucasians/Whites

Intervention R E A C H II II Twelve individual sessions over six months in home and via telephone Five telephone support group sessions Intervention addressed: Education Safety Emotional well being Self-care Social support Patient problem behaviors/caregiver skills

Outcomes Primary outcome - multivariate quality of life R E A C H II II Depressive symptoms Burden Self-care Social support Patient problem behaviors/caregiver skills Secondary outcomes Caregiver clinical depression Patient institutional placement Vigilance

Findings R E A C H II II Improvement in quality of life for intervention, compared to control: Hispanic/Latino caregivers (p <.001) White/Caucasian caregivers (p =.037) Black/African American spouse caregivers (p =.003) Lower prevalence of clinical depression (p =.001) for intervention caregivers Belle et al., Ann Int Med, 2006, 145,727-738 738

Hours/Day Task On Duty R E A C H II II 2 1.5 1 0.5 0-0.5-1 -1.5 Control.6 -.5 Intervention 2 1.5 1 0.5 0-0.5-1 -1.5 Control.6.2 Intervention -2 Change in Hours Over 6 Months -2 Change in Hours Over 6 Months F = 7.02 F = 2.98 P =.008 P =.085 Nichols et al., JAGS, 2008, 56:413-420 420

R E A C H II II One additional hour of non-caregiving time per day at a Cost of $4.96 per day per caregiver Nichols et al., JAGS, 2008, 56:413-420 420

REACH II implemented into a clinical setting R E A C H II II VHA Setting Caregiver Assistance pilot program Home Based Primary Care Psychologist, Social Worker, or Nurse Added to normal duties

REACH II implemented into a clinical setting R E A C H V A VHA Setting Caregiver Assistance pilot program Home Based Primary Care 120 caregivers Added to normal duties

Intervention Goals R E A C H V A Identify and reduce modifiable risk factors Enhance quality of care of care recipient Enhance emotional and physical wellbeing of caregiver

Intervention R E A C H V A Twelve individual sessions over six months in home and via telephone Five telephone support group sessions Intervention addresses: Education Safety Emotional well being Self-care Social support Patient problem behaviors/caregiver skills

Materials R E A C H V A Training Manual Interventionist Manual Support Group Leader Manual Caregiver Notebook

Behavioral Topics R E A C H V A Activities Bathing Combativeness Communication Confusion Dental Care Depression (patient) Dressing Driving Early Stage Dementia Eating Environment Feelings (patient) Grief Hallucinations/Delusions Holidays (patient) Hospitalization Incontinence Medications Nutrition Repeated Questions Safety Sexuality (patient) Shadowing Sleeping Sundowning Telling the Patient/Others Traveling Visiting Wandering

Stress and Coping Topics R E A C H V A Adult Day Care Asking for Help Communicating Depression (Caregiver) Early Stage Dementia Feelings (Caregiver) Financial/Legal Issues Getting Help (Resources) Grief Healthy Lifestyle Holidays (Caregiver) Making New Friends Positive Thinking Problem Solving Sexuality (Caregiver) Stress Management Signal Breath Music Stretching Pleasant Events Visiting

Risk Areas, Treatments, and Outcomes Caregiver Risk Area Intervention Options Outcomes Safety (driving, access to weapons, medications, household obstacles) Wandering Home assessments and alterations; patient monitoring devices; removing access Securing doors, developing safe paths, ID bracelet Reduction or elimination of targeted risk area Decreased or safer wandering Schulz et al. Am J Geriatr Psychiatry. 2004;12:240-249. 249.

Certification R E A C H V A Readings Central training Learning Process Worksheets Coaching

R E A C H V A Sites Albany, NY Bath, NY Syracuse, NY Wellsville, NY Elmira, NY Rome, NY New York City, NY Northport, NY Butler, PA Pittsburgh, PA Philadelphia, PA Durham, NC Atlanta GA Augusta, GA Memphis, TN Mt. Home, TN Huntington, WV Cincinnati, OH Ann Arbor, MI Battle Creek, MI Grand Rapids, MI Houston, TX Salt Lake City, UT Minneapolis, MN Albuquerque, NM Denver, CO Newington, CT Westhaven, CT Sacramento, CA

REACH VA implemented in a social service setting R E A C H V A AoA evidence-based demonstration grant Rosalynn Carter Institute, Georgia Southwestern State University AAA aging network service partners delivering intervention and groups Targeting 150 caregivers in rural Georgia 2 interventionists 1 group leader

G E O R G I A R E A C H REACH VA implemented in a social service setting AoA evidence-based demonstration grant Rosalynn Carter Institute, Georgia Southwestern State University AAA aging network service partners delivering intervention and groups 150 caregivers in rural Georgia 2 interventionists 1 group leader

Memphis REACH Coordinating Center R E A C H V A Materials Central training Coaching Certification Evaluation or Evaluation consultation

Memphis REACH Y O U R R E A C H Coordinating Center Materials Central training Coaching Certification Evaluation or Evaluation consultation

Staff Robert Burns, MD Celeste Bursi, MSSW Marshall Graney, PhD Barbara Higgins, MA Sarah Kennedy, BA Jennifer Martindale- Adams, EdD Pat Miller, MA Linda Nichols, PhD Jeff Zuber, MA