HappyAir for Chronic Respiratory Disease Registered in EIP AHA Integrated Care B3 Action Group
INDEX 1. Lovexair and Industry - Our vision - Our team - Our ICT partner - Our partnering network - Connected with partners priorities - Our heritage with Industry, Pharrma & established projects EducaxAir Para pacientes 2. respiratorios crónicos Service Model: HappyAir - What is & Where is HappyAir now? - When & Where? - HappyAir: areas of engagement - HappyAir in each stage Proyecto Educaxair dentro del EIP AHA Integrated Care B3 Action Group - FAQs
1. Lovexair and Partners
OUR VISION The Foundation actively participates and is working focused on the 2020 strategy, helping to supply solutions and tools to improve health and quality of life for people with chronic respiratory disease. We are working for the community affected which includes: patients, familymembers, care-givers, doctors and healthcare professionals who are interested in new roles in m-health care. Lovexair aims to complement the healthcare services from a patients perspective, reinforcing areas that need closer attention. The challenge is to implement a strategy that supports the medical profession through programs and activities developed for different stages in the detection, prevention and management of respiratory disease. Generate value in chronic -care: respiratory disease EIP Active & Healthy Ageing FP7/Horizons2020
OUR TEAM CEO & Founder Shane Fitch established Lovexair Foundation to offer umbrella support to the community affected by respiratory disease (patients, care-givers and healthcare professionals). Works transversally in international networks (EIP AHA, Alpha-1 & COPD Global, the PAC of the ELF/ERS & the European COPD Coalition). Institutional Relations & Media Rosa Siles Moreno amongst other posts, has served as Director Institutional Relations in the Ministry of Health, Social Services and Gender Equality & as an advisor to vice-presidential government dept..natalia Quintela has more than 10 years experience in communications in various sectors: finance, tourism,business. & event organization, nationally & internationally in the healthcare sector. Physiotherapists Jordi Vilaró & Begoña Jiménez: support researchers; Eva Maroto, Raúl Escudero,Anna Ferrán & Cecilia Fueyo: physiotherapists specialised in cardio respiratory, pediatric and occupational therapy. IT Department Aurora Ferrándiz: advisor and expert in ICTs & Integral solutions for Healthcare providers, has participated in the definition, production and operation for a wide variety of IT projects in Telecoms, Electronic & Administration. Communication Department Leonor Pérez,Victor Gascón & Jose María Barandarián: consultants specialised in business & Institutional communication, media and social networks, graphic design- supporting organisations in the healthcare sector. Lovexair also relies on the expert guidance of members in their Advisory Board & Patient Advisory Group.
OUR ICT PARTNER SPECIALISTS IN e-health SOLUTIONS For the platform and m-solution we have been working with Persei Healthcare in Spain. Their experience in IT health, trusted networks, choice of arquitecture, security, ecosystems and vision for m-health with patient participation fitted with our requirements. MOBILE HEALTH: Persei Apps facilitate the patient follow-up, support the physician in decision-making processes & allows for improved management of each pathology through educational Programs and Big Data algorithms.
CONNECTED WITH PARTNERS PRIORITIES We want to make a significant impact on healthcare delivery with patient centricity: Providing solutions and co-creating innovative m-health products to prevent and help to improve the quality of life and wellness of those affected by respiratory diseases. Supporting healthcare professionals and public services, collaborating with industry to provide low-cost solutions for this community. Creating awareness in Society, expanding health education to empower patients and offering other solutions close to home, in the community, for people affected by chronic disease.
OUR HERITAGE WITH INDUSTRY, PHARMACIES & ESTABLISHED PROJECTS Identifying patients with COPD in Primary Care Centres in the IDEPOC Campaign Co-design and development for a nationwide education campaign to raise awareness, build an informed network of educators to support families and deliver materials to improve diagnosis and management in children with asthma. Sharing HappyAir program across patient organization networks to encourage best practices and help support newly developing organizations who may benefit from shared resources and disease-management tools, understanding ethics, patient engagement and future clinical benefits in the m-health era. Raising awareness internationally in COPD through the 1st Global Summit held in Spain. Aim to improve understanding of the impact of lung disease, build patient leadership capabilities, connect with KOLs and partnership networking across the international community in new countries across the globe. Raising awareness in Pharmacy networks for spirometry testing, education on disease management, and support training to improve outreach to local communities affected by respiratory disease.
2. Service Model: HappyAir
WHAT IS HAPPYAIR? A new web-based service which enables: Patients to share their progress or outcomes with their clinician and educator/coach Clinicians to make quicker decisions regarding care pathway priorities/interventions Patients to be more involved in their care, make more informed choices and enhance adherence levels Our partners network to support the healthcare system, improving safety, reducing costs and aiding in the delivery of better chronic care management Future R&D resource base based on clinical data input by patients for patients with their consentment
WHERE IS HappyAir NOW? Portfolio of education materials + training manual for educators ( in production) Dedicated micro-web with access to information on the service, downloadable education materials +app, communication amongst the community of users (soft launch) Training program for first-wave of educators drafted Contactcenter solution for tele-care guidance due for launch 20162017 IT solution for clinical study in 3 leading Hospitals in Madrid & App (betaversion in progress) Clinical study launched February 2016. First phase results due November 2016 Program ready to implement in regional pilots + engaging partnering with pharmacy network +HCP support We will begin to offer the service directly to users in 2017 and are now looking for partners for scaling-up the service.
WHEN & WHERE CLINICAL STUDY AND POST-PILOT SERVICE DELIVERY RESEARCH TEAM CENTRES Begoña Jiménez Reguera (principal researcher: Doctorate) Qualified in Physiotherapy specialised in respiratory care Teacher in University CEU San Pablo, Madrid Hospital Universitario Fundación Jiménez Díaz (Madrid) Pulmonary Physician Dr. Luis Seijo Macías Rehab team Dra. Gloria Bermejo Fernández Jordi Vilaró Casamitjana (Director of the Thesis) Qualified in Physiotherapy, specialised in Respiratory Care Researcher in Pulmonary Rehabilitation & Resp. Physiotherapy & ICTs Teacher at University of Ramón Llull, Barcelona Coordinator SEPAR University Hospital La Princesa (Madrid) Pulmonary Physician Dr. Julio Ancochea & Emma Vázquez, Masters (resident) Rehab team Eva Maroto López (Fundación Lovexair) Qualified in Physiotherapy, specialised in Respiratory STRUCTURE Hospital Clínico San Carlos Pulmonary Physician: Dr Miriam Callé Hospital XII de Octubre (Madrid) Pulmonary Physician Dra. Virginia Pérez Rehab team Dra. Lourdes Juarros & Marta Sánchez OBJECTIVES Control Group Conventional rehab program Rotuine controls post-rehab Monitor adherence in patients using ICTS & App who have received a rehab and education program based on HappyAir model and using HappyAir platform Intervention group Conventional Rehab HappyAir program presential & virtual complementary to rehab Monitoring using the Lovexair App & Educator service Routine controls post-rehab Evaluate if use of ICTS in the service model of HappyAir improves patients adherence to a daily care plan post rehab and lengthens the positive effects by receiving this service. MEASURABLE VARIABLES Adherence. Physical Capacity-Building. Reduced Number exacerbations & Quality of Life Quality of Life
HappyAir A COMPLEMENTARY SERVICE AREAS OF ENGAGEMENT
CARE SUPPORT IN EACH STAGE Self-care management Prevention HC professionals can design & deliver specific prevention programs via the platform+ educator network Improved clinical care Monitoring & Follow-up Education Direct communication via educator network +platform+telecare support allows more effective and efficient patient self-management Improves integral treatment & medication capabilities across chronicdisease, comorbidities and diagnosis specifics. Gives a better picture of the patients overall health status.enables new therapies+treatment interventions Direct access to patient activity. Interconnected HC professionals & educators for better patient evaluation, feedback and adjustment on specific programs.doctor s recommendations to improve response to patient events. Educators + care-givers guide patient in personal program with disease specifics: presential + virtual, workshop Sessions, home-visits, tele-care services + CRM tools Generate value in chronic -care: respiratory disease EIP Active & Healthy Ageing FP7/Horizons2020
FAQs HOW DOES HappyAir HELP YOU? HappyAir offers a service which benefits patients in their disease management through a structured network of healthcare professionals to provide real-time data on patient outcomes in self-management & biomonitoring Partnering with IT Companies expert in clinical data management facilitates the data collection and storage to contribute to a pool of high quality data for BigData analysis supported by additional research advice+ education in the patient environment through the educator network. Benefits insights of this real time data in an anonymised format in line with data protection regulations NEUTRALITY: WHY USE OUR PLATFORM? We can bridge the gap that exists between the patient community with healthcare authorities public and private, HCP and third parties in different industries to ensure the communication and engagement with patients is: transparent appropriate satisfies ethical standards in codes on conduct brings about positive results for all mutual benefit