THURSDAY, APRIL 26, 2018 New ImproveCareNow Centers that are completing QI Fundamentals & Improvement Coordinators who have joined their center team since the Fall 2017Community Conference 10:00 10:15 am Welcome, Introductions, and Agenda for the Day Cortez A Diane Eskra & Sarah Myers 10:15 11:00 am Cortez A The Importance of ImproveCareNow in Achieving Optimal Health and Care Wallace Crandall Nationwide Children s Hospital 11:00 11:25 am Navigating ImproveCareNow: Who Ya Gonna Call? Cortez A Cori Davis, Mary Havens, Melissa Mock, Kelly Olano, Michelle Spotts & Kelsey Thome 5 Minute Transition 11:30 11:50 am The ICN2 Registry: Introduction and Overview Cortez A Dan Jeffers & Kelly Olano 11:50 am 12:45 pm Cortez D Lunch Developing Effective Data Systems: Action Stations Part 1 12:45 1:30 pm Cori Davis, George Dellal, Diane Eskra, Dan Jeffers, Kelly Olano, Magen Phillips, Kimberly Shelly, Stephanie Cortez B, Cortez C Sullivan, Theresa Todd & Kendra Wiegand Nicklaus Children's Hospital, The University of Vermont Children's Hospital & Developing Effective Data Systems: Action Stations Part 2 1:30 2:15 pm Cori Davis, George Dellal, Diane Eskra, Dan Jeffers, Kelly Olano, Magen Phillips, Kimberly Shelly, Stephanie Cortez B, Cortez C Sullivan, Theresa Todd & Kendra Wiegand Nicklaus Children's Hospital, The University of Vermont Children's Hospital & 2:15 2:30 pm Break Developing Effective Data Systems: Action Stations Part 3 2:30 3:15 pm Cori Davis, George Dellal, Diane Eskra, Dan Jeffers, Kelly Olano, Magen Phillips, Kimberly Shelly, Stephanie Cortez B, Cortez C Sullivan, Theresa Todd & Kendra Wiegand Nicklaus Children's Hospital, The University of Vermont Children's Hospital & 5 Minute Transition 3:20 4:15 pm Cortez A Developing Your Quality Improvement System Steve Steiner & Kimberly Shelly 4:15 5:00 pm Community Engagement 101: Talking about ImproveCareNow Cortez A Chris Keck, Sarah Myers & Michelle Spotts 6:00 pm Verandah Reception + Engagement Fair SPRING 2018 Community Conference Agenda
FRIDAY, APRIL 27, 2018 7:15 7:55 am Wedgewood Breakfast and Check-In 8:00 8:50 am Plenary Session: Building myicnhome Together Coronado Richard Colletti & Sarah Myers 10 Minute Transition LEARN, DO, SHARE: SKILLS AND SPECIAL TOPIC BREAKOUTS I QI Fundamental/Core: The Model for Improvement Aims & Measures De Soto A George Dellal & Diane Eskra Learn how to use the Model for Improvement to structure improvement efforts Learn how to set a SMART aim and to select the right measures for your project Clinical: Partnership Among Health Care Professionals to Provide Effective Psychosocial Care Cortez A Margaux Barnes Children's of Alabama Apply research review findings and parent perspectives to identify parental psychosocial needs Help generate ideas to develop parent-focused resources, explore delivery methods, and evaluate usefulness of the resources Learn how to actively engage parents and members of the clinical team in this effort Research: Using Registry Data to Answer Clinical Research Questions Cortez B Keith Benkov & Danielle Serphos Kravis Children's Hospital at Mount Sinai Learn how one care center used ICN2 data to answer questions about patients clinical course over time, including the 9:00 10:00 am impact of individual provider practices Rooms at right Gain ideas for conducting your own local analyses using clinical data Data I: Uncovering the Yin and Yang of ICN Data Understanding Balance in the Registry Cortez C Cori Davis, Maurizio Macaluso, Kelly Olano & Steve Steiner Preview updates and changes that have been approved for the ICN registry for 2018 and are planned for 2019 Learn from the variation in centers data quality and discuss improvement opportunities Data II: Advanced Analytics Design Session Cortez D Dan Jeffers & Magen Phillips The University of Vermont Children's Hospital Review display options and discuss ideas to improve the visualization of ICN2 data and measures Community Building & Engagement: Sharing Your Personal Story as an Engagement Approach De Soto B Susan Heppler, Chris Keck & Nicki Redmond Patient Advisory Council & Parent Working Group Learn how to talk about ImproveCareNow and your center s engagement work as well as how to use personal experiences to motivate others to get involved Leave with a plan for how to incorporate storytelling into your engagement work; tools to help others develop their story; and information on how patients, parents, and clinical staff can participate in similar training in the future SPRING 2018 Community Conference Agenda 2
FRIDAY, APRIL 27, 2018 10:00 10:15 am Break and Transition LEARN, DO, SHARE: SKILLS AND SPECIAL TOPIC BREAKOUTS II QI Fundamental/Core: The Model for Improvement PDSAs & PDSA Ramps De Soto A George Dellal & Diane Eskra Learn how to test improvement ideas using PDSA cycles Understand how to use ramps to sequence and scale your tests Clinical: Home Infusions State of the Art Cortez A Jon Moses & KT Park Rainbow Babies and Children's Hospital & Stanford Children's Health Contributing authors present an overview of a recently published clinical report Hear about 8 best practice recommendations to ensure quality of care for pediatric patients with IBD receiving non-hospital based biologic infusions Research: Beyond the Research Subject Engaging Patients and Parents Cortez B Catalina Berenblum & Lisa Pitch Patient Advisory Council & Parent Working Group Examine the ways that ICN undertakes research coproduction which emphasizes the partnership between patients, parents, ICN researchers, and clinicians Conclude with strategies that ICN researchers can employ to include parents and patients in research coproduction, as well as for how patients & parents can meaningfully participate in the research agenda, processes and priorities Data I: ICN2 Foundation Data Demo & Helpdesk Cortez C 10:15 11:15 am Cori Davis & Kelly Olano Rooms at right Review key ICN2 functions including data entry, how to query data using pre-visit planning or population management reports, assistance with exceptions reports, or QI measures Members of the ICN data management team will be available for support and questions Data II: Chart Adjustments Advanced Methods to Enhance Your Data Cortez D Dan Jeffers & Maurizio Macaluso Learn how to gain more insights from your ICN data Presentation and discussion on how to interpret signals from ICN charts and use the statistical process control techniques to monitor and drive your improvement effort Community Building & Engagement: Patient Engagement at ImproveCareNow Centers What Does it Look Like When it s Working? De Soto B Melissa O Doherty Patient Advisory Council Learn how to develop a care center mentorship program Leave with tested tools for effective engagement and mentorship within individual ICN centers Other: Across the Miles Optimizing Collaboration with Satellite Clinics De La Salle Rana Ammoury, Kaileen Fei, Jennifer Firth, Leslie Higuchi & Marc Tsou Boston Children's Hospital & Children's Hospital of the King's Daughters Hear examples of how several different ImproveCareNow centers are ensuring reliable and effective spread of ICN practices (e.g. registration and pre-visit planning) at their satellite clinics Leave with concrete ideas and tools that you can test with your satellite clinics 5 Minute Transition SPRING 2018 Community Conference Agenda 3
FRIDAY, APRIL 27, 2018 11:20 11:55 am Plenary Session: Growing Our Community Updates and Calls to Action Coronado Facilitators: Chris Keck & Sarah Myers 12:00 1:00 pm Lunch Wedgewood 12:00 1:00 pm COMBINE Lunch Meeting: A meeting for COMBINE investigators, project managers, coordinators, dietitians Lunch served in De La Salle Role-Specific Breakouts Clinical Session Cortez A Discussion 1: Iron Deficiency Anemia Management Jessica Breton The Children's Hospital of Philadelphia Discussion 2: Surgical Pathway for Acute Severe Colitis in the Hospitalized Patient Jeremy Adler & Shehzad Saeed 1:05 2:15 pm University of Michigan - C.S. Mott Children's Hospital & Dayton Children's Hospital Rooms at right Psychosocial Professionals Cortez D Registered Dietitians De La Salle Nurses Cortez C Improvement Coordinators Cortez B Parent Working Group De Soto A Patient Advisory Council Suite 5 Minute Transition Breakouts: Every Visit, Every Improving Our Reliability Together Building Reliable Pre-visit Planning and Other Core Chronic Care Processes Cortez A Facilitator: Esther Israel MassGeneral Hospital 2:20 3:05 pm Taking Your Chronic Care Processes to the Next Level Coronado Rooms at right Facilitators: Wallace Crandall, Jennifer Dotson, Emily Homan & Melanie Oates Nationwide Children's Hospital Parents & Patients: Pre-visit Planning and Population Management 101 Cortez B Facilitator: John Grunow Oklahoma University Medical Center 3:05 3:25 pm Break 3:25 4:00 pm Team : Summary of Learnings & Commitment to Next Steps Coronado Facilitators: Cori Davis, George Dellal, Diane Eskra, Julie Massie & Sarah Myers 5 Minute Transition 4:05 4:55 pm Community Collaboration Activity: Building myicnhome Together Seating is noted on name tags Facilitators: Cori Davis, George Dellal, Diane Eskra, Julie Massie & Sarah Myers 4:55 5:00 pm Coronado 6:00 pm Wedgewood Wrap Up & Evaluation Community Dinner + Talent Show SPRING 2018 Community Conference Agenda 4
SATURDAY, APRIL 28, 2018 7:00 7:55 am PRODUCE Study Meeting De La Salle A meeting for PRODUCE investigators, project managers, research coordinators, dietitians, parents and patients 7:15 7:55 am Wedgewood 8:00 8:30 am Coronado Breakfast (Sponsored by Takeda) Plenary Session: Research in ImproveCareNow Are We Built For The Future? Steve Steiner 5 Minute Transition 8:35 10:00 am Learning Lab Collaboration Session Rooms for Learning Labs will be announced Facilitators: Cori Davis, George Dellal, Diane Eskra, Julie Massie & Sarah Myers 10:00 10:15 am Break Learn, Do, Share: Skills and Special Topic Breakouts III QI Fundamental/Core: Tying it All Together Building Your Theory with Key Driver Diagrams De Soto A George Dellal Learn how to use a Key Driver Diagram to develop and communicate your theory of change QI Advanced: Quality Improvement Journal Club Cortez D Jeremy Adler University of Michigan - C.S. Mott Children's Hospital Engage in a facilitated discussion about a current advanced topic in quality improvement from the literature Clinical: Complementary & Alternative Medicine Partnering with Health Care Providers to Improve Clinical Outcomes Cortez A 10:15 11:30 am Rooms at right Mark Integlia, Alex Jofriet, Sandy Kim, Sindu Vellanki & Ann Ming Yeh New Hampshire Hospital for Children, Children's Hospital of Pittsburgh of UPMC, Patient Advisory Council & Stanford Children s Health Hear about the practical use of complementary/alternative therapies in practice Explore the potential for Mind Body Interventions (MBI) as adjunctive treatment for IBD Discuss how to address potential alternative therapy questions from patients and families Research: Developing the ImproveCareNow Clinical Trials Network Cortez B Richard Colletti & Steve Steiner Understand the ICN vision for becoming a clinical trials network Understand potential opportunities this will provide for ImproveCareNow care centers and community members Ask questions and give feedback on the proposed vision and approach continued on next page SPRING 2018 Community Conference Agenda 5
SATURDAY, APRIL 28, 2018 Learn, Do, Share: Skills and Special Topic Breakouts III (cont d) Data: ICN2 Improving ICN2 Data Bundles and Leveraging the Exceptions Reports Cortez C Kelly Olano & Magen Phillips The University of Vermont Children's Hospital Learn best practices for how to use ICN2 exceptions reports Learn how to use ICN2 data bundles to drive improvement in your data quality Community Building & Engagement: Building Your Local ImproveCareNow Community Volunteer Recruitment at Your Care Center De Soto B Deborah Ostiguy, Michelle Spotts & Becky Woolf 10:15 11:30 am Patient Advisory Council & Parent Working Group Rooms at right Learn about best practices and gain skills related to identifying and approaching parent and patient partners to participate in QI and other activities at your care center Leave with a Toolkit for Engagement, which contains examples of community engagement, information on best practices, and templates to use in building parent and patient partnership efforts at your center Community Building & Engagement: Patient Empowerment and Community Building through Local Events De La Salle Michelle Clark, Stacy Hawkins, Sharon Pan & Elizabeth Rogers Monroe Carell Jr. Children's Hospital at Vanderbilt & Seattle Children's Hospital Hear examples of how several different ImproveCareNow centers have planned and carried out local events aimed at building a community of clinicians, parents, and patients Leave with concrete ideas and tools that you can test as you create community-building events 11:30 am 12:00 pm Wrap-Up, Evaluation & Happy Trails Coronado Richard Colletti & Sarah Myers 12:00 pm Boxed Lunch Available SPRING 2018 Community Conference Agenda 6