The Acute Kidney Pathfinder Project

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The Acute Kidney Pathfinder Project Dr Richard Fluck National Clinical Director UK Renal Registry 2014 Annual Audit Meeting

National Acute Kidney Injury (AKI) Programme

The clever (nice) approach Build a blender with rubber blades. Install a kitty detector The simple (implementation) approach Don t stick a kitty in a blender Don t press the start button if you see a kitty in the blender What you might need A chart to help you tell the diference between a kitty and food Education 16/10/14 What we all need Measurement!!!!! 3

NHS Outcomes Framework

reducing avoidable death, long-term disability and chronic ill health VTE prevention: estimate 25,000 deaths pa Data derived from: Hospital Episode Statistics Annual Report 2010, DoH VTE Prevention Programme 2010 and Selby et al 2012

Who is most at risk? Two patients are admitted via accident and emergency on a Friday night. George, an 86 year old man has crushing chest pain and ECG changes consistent with a large heart attack. Julia, a slim 56 year old, with long standing diabetes, has not been feeling right - the GP did a blood test and her serum creatinine is 456 umol/l. Who should we most be worried about?

Why is it important? Associated with other serious illness Force multiplier for poor outcomes Potential to improve care Reduce avoidable harm - death and morbidity Reduce cost Important marker of illness

Who is at greatest risk? For George, his risk of death is 32.2% For Julia, her risk of death is 53.1% Data adapted from Chawla et al Clin J Am Soc Nephrol 2013

One in five emergency admissions to hospital will have AKI "AKI is 100 times more deadly than MRSA infection Around 20 per cent of AKI cases are

NCEPOD report published in 2009 Poor assessment of risk factors for AKI and acute illness Delays in recognising AKI Most patients with AKI are not cared for by nephrologists Post admission AKI

Design principles for national programme Measurement underpins evidence Simplify data flows Use to evidence change Global Social, primary and secondary care Multiprofessional with patients and across specialties Inclusive Strategy not tactics

Who Who is at risk? Determining the vulnerable population

When When do people sustain AKI? How is early diagnosis supported

16

How How should AKI be managed? Prevention Treatment Recovery

What What do people need to know? Education for the public Education for patients and carers Education for professionals

NHS England Patient Safety Steering Group AKI National Programme Board Risk Advisory Group Education Detection Algorithm SubGroup Software Implementatio n Sub-Group Best Practice in E-alert Group Expert Reference Group Hydration Sub-Group Intervention Implementatio n Measureme nt

AKI National Programme Recover y T r eat ment Di ag nosi s At Ri sk + E vent At Ri sk Gr oup Wel l Gr oup Acute Kidney Injury Patient Pathway

AKI National Programme The Patient Characteristics / Group is demonstrated with this diagram

AKI National Programme Patient Group Well Size Impact Priority Largest Small 4 At Risk Large Large 1 At Risk + event Diagnosis Medium Large 2 Small Large 2 Treatment Small Medium 3 Recovery Small Medium 3

AKI National Programme WHO - General population/public Wel l Gr oup ACTIONS Education raising awareness/publicity campaign/website Risk low involvement Intervention Possible screening interventions Measurement Demographic information demonstrating the size of the problem Detection no involvement Implementation - evidence Acute Kidney Injury Patient Pathway 23

AKI National Programme At Ri sk Gr oup WHO - At Risk previous AKI, multi-morbidities (patients on registers), frail/elderly, dementia, those patients with mental health issues ACTIONS Education Patients, carers, health professionals particularly primary care Risk Identify at risk communities, map existing tools, look at the current structures for identifying risk, risk tools for primary care Intervention No involvement Measurement Demographic information demonstrating size of at risk group Detection Algorithm agreed and in place Implementation - evidence Acute Kidney Injury Patient Pathway

AKI National Programme At Ri sk E vent + Primary Care WHO - At risk + Event (either planned or unplanned) Unplanned Event D+V Feeling Unwell Infection Medication Trauma ACTION Education Information for healthcare professionals, information for patients and carers, specific information for primary care about whether to hospitalise or not Risk Identify key events that could impact on AKI, identification of risk tools in secondary care Intervention Care Bundles designed around such things as medicines management, hydration, decision tree for what action to take Measurement Demographic information demonstrating size of actual AKI problem Detection messaging for primary care Implementation - evidence Planned Event Contrast/Ima ging Operation Testing/Scan ning Acute Kidney Injury Patient Pathway

AKI National Programme WHO Diagnosed patients Di ag nosi s Unplanned Event A&E Planned Event Secondary Care ACTION Education Education for Healthcare professionals so they know what AKI is and so they know what to do when Education for patient so they are aware of what AKI is and what is likely to happen to them Risk Low involvement Intervention What actions need to be taken hydration, medicines management, tests and retesting, refer to specialist Measurement Low involvement Detection Urine, AKI test, NEWS Implementation - evidence Acute Kidney Injury Patient Pathway

AKI National Programme T r eat ment WHO Treatment those patients receiving treatment for AKI ACTIONS Education Patients and carers on how to manage their condition and what to look out for in any reoccurrence. Professionals on how to treat and help the patient manage their condition. Risk No involvement Intervention Develop appropriate care bundles Measurement Adherence of acute sector to care bundles Detection No involvement Implementation - evidence Acute Kidney Injury Patient Pathway 27

AKI National Programme WHO Recovery those patients who are recovering from AKI Recover y ACTIONS Education Patients and carers on how to avoid reoccurrence. Risk Identify what the future risks could be triggered by, identify existing structures for identifying risk Intervention Letter to GP, suggested follow up, medicines review Measurement Downstream harm - CKD Detection No involvement Implementation - evidence Acute Kidney Injury Patient Pathway 28

AKI Programme workstream priorities Risk Education Intervention Detection Measuremen Implementati t on Priorities 1.Identify at risk groups 2.Gain an understanding of at risk communities from existing data stores 3.Identify events that mean AKI is more likely to happen 4.Develop a matrix around the risk and the event 5.Identify risk tools in use are they fit for purpose or are Priorities 1.Identify educational tools in use are they fit for purpose or are new ones commissioned 2.Specific education materials for GPs 3.Educational materials for patients and carers on what AKI is and how to manage condition and any reoccurrences 4.Educational Priorities 1.Design a range of Care Bundles designed around such things as medicines management, hydration etc 2.Develop a decision tree for what action to be taken by healthcare professionals ie hydration, medicines management, tests and retesting, refer to specialists Priorities 1.Algorithm agreed and in place 2.Education re algorithm 3.Communicati ng with LIMS providers 4.Messaging for primary care and the impact Priorities 1.Demographic information demonstrating the size of the AKI problem 2.Demographic information demonstrating size of at risk group 3.Adherence of acute sector to care bundles 4.Downstream consequences Priorities 1.Provide evidence that tools work 2.Collect baseline data from the pilot projects 3.Develop commissioning tools CQUINs, enhanced service agreements

Education Workstream Stakeholders Care Homes Allied Health Professional s

National algorithm for adoption ACB scientific committee Met July 2013 Biochemists, nephrologists and software providers Initial algorithm and minutes available online http://www.acb.org.uk/docs/default-source/guidelines/e-alerts-for-aki-meeting-statement.pdf 31

Care bundles

Master patient index Message Regional National Patient management system Research AKI Registry LIMS level result QI Local systems Other data systems Alert Response

What it is not about Bad doctors or nurses There is poor practice but AKI needs robust systems at the individual level to support care education to underpin risk assessment, improved diagnosis and reliable therapy It is not a failing of the NHS This is a global healthcare issue

AKI National Programme Key Milestones 2013 2014 Compl ete a l l progra mme ma na gement documentati on and a ccounta bi li ty Devi s e a reporting proces s for Identi fy Works trea ms the Progra mme to UKRR a nd NHS Engl a nd Identi fy Works trea m Chai rs a nd Es ta bl i sh workstrea ms and Co-Cha i rs defi ne scope a nd outputs La unch event for key Recrui t a Progra mme Ma na ger sta kehol ders Es ta bl i sh Websi te a nd progra mme col l atera l s uch a s leaf ets/pos ters etc Es ta bl i sh AKI a lgori thm on NHS Engl a nd webs i te a nd Ma s ter Pati ent Index Es ta bl i sh Ma s ter Pati ent i ndex vi a l a bora tory feeds Es ta bl i sh mea ns to l i nk to HES and other da ta s ets Ma i nta in programme pla ns and outputs Es ta bl i s h Progra mme Board 16/10/14 2015 2016 Hold ma jor nati onal AKI conference Tra ns fer progra mme to s ui ta bl e owner Es tabl i s h publ i ci ty ca mpa ign Tra ns fer a l l Progra mme col l a tera l to new owner Mai nta i n progra mme pl a ns a nd outputs Report on epi demiol ogy a nd va riati on of AKI a cros s Engla nd Link to HES a nd other rel eva nt da ta s ets Forma l l y cl os e progra mme down Publ i s h res ul ts devel op AKI reporti ng Publ i s h res ul ts devel op AKI reporti ng Pl a n to ma i ns trea m a nd crea te a n AKI regi s try 35

Summary The NHS England AKI programme is well established It will deliver change in 2-3 years by offering leadership but developing local solutions A national system of measurement will be commenced in summer 2014

AKI Programme How to find out more Karen Thomas, AKI Programme Manager Karen.Thomas@renalregistry.nhs.uk Teresa Wallace, AKI Programme Coordinator Teresajane.Wallace@renalregistry.nhs.uk www.england.nhs.uk/akiprogramme Follow us on Twitter : @ActKidneyInjury Thanks to Ron Cullen, Joan Russell and the team 16/10/14 37