CANADIAN SYRINGOMYELIA AND CHIARI MALFORMATION CONFERENCE Sheraton Parkway Toronto North Hotel November 11 th, 12 th & 13 th,2004 WHY YOU SHOULD ATTEND Meet with others who have Syringomyelia and Chiari Malformation Exchange information and experiences Meet new members and renew old friendships Great speakers Learn new methods of pain control PRESENTERS Keynote Speaker James T. Rutka, MD, Ph D, FRCSC, FACS, FAAP, Dan Family Chair in Neurosurgery, Professor and Chairman, Division of Neurosurgery, University of Toronto We are thrilled to announce that Dr.James Rutka, pediatric neurosurgeon at Toronto Sick Children s Hospital will be the keynote speaker at our CSN 2004 Conference. We look forward to Dr. Rutka bringing us up to date on what is happening in the research world with respect to Syringomyelia and Chiari. Be sure to bring your questions for the question and answer session following his presentation. We encourage all of our members to join us at this conference. We know that you will come away with a better understanding of Syringomyelia and Chiari. Future directions in spinal cord injury research will be discussed. Alexander A. Velumian, PhD, DSc., Research Neuroscientist, Asst. Professor, Division of Neurosurgery, Toronto Western Hospital "The basic cellular mechanisms of spinal cord white matter in health and disease" Sub-topics: - cellular and functional architecture of spinal cord white matter: axons, oligodendrocytes and astrocytes. - functional differences between myelinated and non-myelinated axons - the role of white matter myelinated axons in brain-spinal cord communications - basic mechanisms of maintaining the functions of myelinated axons
Dr. David Greenberg, B.A, M.D., Member Of Executive, Dept. Family & Community Medicine, St. Joseph's Health Centre Dr. Greenberg has a practise in Toronto, Ontario that he shares with his father, a fellow practioner. His presentation will focus on how to better communicate with your own doctor. Also, how to maximize the time allotted for your visit. Come and get great tips from a great speaker! Lorraine Mehltretter, MS, Genetic Counsellor "Genetic Studies of Chiari Type I Malformation and Syringomyelia" We are delighted to welcome Lorraine Mehltretter of the Centre for the Study of Inherited and Neurological Disorders, Duke University Medical Center, Durham, North Carolina, USA. The presentation with include a brief overview of the potential etiologies of Chiari Type I Malformation and subsequent syringomyelia, evidence of a genetic component in a subset of families, and our work thus far on candidate gene analysis and genome screening. Dr. Ian Horseman BSc, DC Dr. Horseman s presentation will cover the following: Basic Biomechanics of the Spine, Dynamics of Posture, Scoliosis Etiology from a chiropractic perspective, Concept of Spinal Cord Tension and how this would affect patients with SM Treatment of Scoliosis using the Pettibon System. Examples of treatment and success using pre and post x-rays and posture Katherine and Russ Loader, Canada's Leading Feng Shui experts. Katherine and Russ are experts at translating the complex principles of Feng Shui into a language which we can all understand and readily apply to our homes and business environment. As experts at making eastern concepts easily accessible, they have spent the last eight years showing people how to makes simple life changes that dramatically improve their health, wealth and happiness. They have appeared on Canada's HGTV, Toronto's Breakfast TV and are regular guests on CFRB radio. Pain Management: to be confirmed FAMILY AND FRIENDS ARE INVITED TO ATTEND On Thursday there will be a separate workshop for family and friends only. This is an opportunity for family and friends to come together to talk about coping with a loved one living with chronic illness. At the same time there will be a separate workshop for members. Note: There will be a question/answer period at the end of each presentation, however, you can send your questions in advance to Barb Forrestall, 50 The Boardwalk Way #105, Markham, ON L6E 1B6 OR email: csn@passport.ca
WHAT TO BRING Dress is casual for all sessions at the convention. You will probably be most comfortable in loose, layered clothing. We try to have the temperature set to a comfortable level, but if necessary, you can make adjustments to heat and cold with clothing. Dress for the Dinner/Dance is semi-formal. HOTEL INFORMATION Guest Room Rates: Sheraton Towers $ 139.00 Best Western $ 109.00 The above rates are based on single or double occupancy and are subject to Hotel Ontario Provincial Sales Tax, which is currently 5%, and Goods and Services Tax, which is currently 7%. All rates are quoted in Canadian funds. Additional persons are $15.00 per night in the Sheraton and $10.00 per night in the Best Western, to a maximum of four people per room. Children 1 16 stay free. Wheelchair members who are booking a room at the Best Western should tell the hotel at the time of booking that they are in a wheelchair and would like to be upgraded to the Sheraton at the same rate, dependent on availability. Check-in time is 3:00 p.m. and check-out is 12:00 p.m. For reservations call: Toll Free: (800) 668-0101 or (905) 881-2121. Please mention that you are part of the CSN Convention to obtain these special nightly rates. The hotel is offering us these rates on all rooms booked before October 18, 2004. Directions to Hotel: Take Highway 401 to Highway 404. Go North on Highway 404 to Highway 7. Go 1 kilometer West on Highway 7. The hotel is located on the North side of Highway 7.
CANADIAN SYRINGOMYELIA & CHIARI MALFORMATION CONFERENCE ITINERARY THURSDAY, November 11, 2004 9:00 a.m. - 11:00 a.m. Welcome Reception - Name Tags and Information Kits 11:00 a.m. 12:00 a.m. Alexander A Velumian, Research Neuroscientist 12:00 p.m. 1:30 p.m. Lunch 1:00 p.m. 3:00 p.m. Member Workshop/ Family & Friend Workshop 3:00 p.m. 3:15 p.m Break 3:15 p.m. 4:15 p.m. Pain Management Specialist to be confirmed 4:15 p.m. 5:15 p.m. Dr. David Greenberg, M. D. FRIDAY, November 12, 2004 9:00 a.m. - 10:00 a.m. Ian Horseman, Chiropractor 10:15 a.m. 10:30 a.m. Break 10:30 a.m. - 11:45 a.m. Lorraine Mehltretter, Genetic Counsellor 11:45 a.m. 1:00 p.m. Lunch 1:00 p.m. 3:00 p.m. Dr. James Rutka, Pediatric Neurosurgeon 3:00 p.m. 3:30 p.m. Break 3:30 p.m. 4:30 p.m. Katherine & Ross Loader, Feng Shui 4:30 p.m. 5:30 p.m. General Meeting SATURDAY, November 13, 2004 9:00 a.m. - 10:00 a.m. Workshop 6:00 p.m. Cocktails/ Dinner, Dance & Auction
REGISTRATION FORM The registration fee for the conference is $ 70.00 per person. The registration fee covers the following: 1) Welcome reception, including refreshments. 2) Meetings and workshops 3) Continental breakfasts 4) Coffee breaks For those wishing to attend the dinner/dance on Saturday evening the price for the Fundraiser tickets is $100.00 per person for members attending the conference plus $70.00 for the conference. Transportation to and from the hotel will be arranged for members attending conference. For non-members and those not attending the conference the price is $125.00 per ticket.the fundraiser is being held at Angus Glen Golf & Country Club in Markham. - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - Please make your cheque payable to Canadian Syringomelia Network and return to us along with the completed registration form in the self-addressed envelope we have provided. For your convenience we accept Visa. Please register the following people (include your address and phone number): 1) 2) 3) I have enclosed my cheque in the amount of $. If paying with Visa: Name: Card #: Expiry date: Look forward to seeing you at the Conference!!!