All Children s Hospital Guild, Inc.

All Children s Hospital Guild, Inc. SUMMARY Mission To advocate, volunteer, and fundraise for children and families of Johns Hopkins All Children's Hospital. Contact Information Primary Address PO Box 3142 St Petersburg, FL 33731- Alternate Address 5881 Rand Blvd. Sarasota FL 34238 Phone 727 767-3879 Email adebows1@jhmi.edu Website www.achgsarasotamanatee.com Facebook achgsarasotamanatee General Information nprofit Supported Organization Tax Exempt Status All Children s Hospital Guild, Inc. All Children's Hospital Foundation Public Supported Charity Incorporation Year 1952 State Charitable Solicitations Permit July 2017 State Registration 0 1

BACKGROUND & NEEDS Impact Statement In June 2015, the Guild completed a three-year $900,000 pledge, acatually raising $1,000,000, for Palliative Care. The Pediatric Palliative Care Program at All Children's Hospital helps provide a coordinated, comprehensive, and compassionate approach to caring for children with life-limiting or potentially lifethreatening illnesses and injuries. The Guild's gift will create an endowment to expand and sustain the multidisciplinary Palliative Care Program. In addition it will establish a Palliative Care Fellowship to provide training, enhance direct patient care and provide much need medical research and education in Palliative Care. As of July 2015 the Guild embarked on a four-year $1,350,000 Pledge to achieve Magnet Status - a gold standard for Nursing Excellence - and a state of the art Hospital Transport. In addition, each Branch has a Legacy Fund where monies support timely and urgent needs of the hospital and the ACH Outpatient Care Sarasota. This includes research funding, program or clinical support, and advocacy or educations support. In addition, the Voice Lab with Visi-Pitch and Nasometer equipment has been funded at ACH Outpatient Care Sarasota. Fundraisers in 2015-2016 including 3rd party: Miracle Ball - February 21, 2015 Kids for Kids Dash - April 11, 2015 Give Back Nite for Kids at Grasshoper Restaurant - May 4, 2015 19th Annual Luncheon - October 3, 2015 Miracle Ball - February 27, 2016 All donations raised will fund the NAS program, special requests from the Outpatient Care Sarasota,the Nursing Magnet Program and a new state of the art Ambulance Transport at All Children's Hospital. Needs Statement Needs for 2016-2017: 1.Four year $1,350,000 Pledge for Excellence in Nursing Program and a Hospital Transport. 2.Neonatal Abstinence Syndrome (NAS) program 3.Outpatient Center in Sarasota: special requests include... MOTOmed Gracile 12 movement trainer. 4.Others related to ABA or other programs Background Statement All Children's Hospital Guild is a volunteer service organization which advocates, volunteers, and fundraises for children and families of All Children's Hospital. It was formed in 1949 in St. Petersburg, Florida and has grown to more than 450 members and nine Branches. The nine Branches cover four counties, with further expansion plans across Florida in the works. Our current Branches are St. Petersburg Day, St Pete Beach, Seminole/Largo, rth Pinellas, St. Petersburg Evening, Pasco, Sarasota/Manatee, Tampa, and Brandon. The Branches host more than fifty fundraising events throughout the year in our effort to support this mission. Events include galas, golf tournaments, fashion shows, polo event, bunco parties and much more.our vision is supporting healthy tomorrows for one child, for All Children. Our history of caring The Sarasota/Manatee Branch was organized in 1997 by a handful of dedicated, energetic volunteers and it has continued to grow since then. The funds raised support not only the Hospital but also the All Children s Hospital Outpatient Centers here in Sarasota. 100% of the funds raised go to benefit local children of our community. Over the years, our local Sarasota/Manatee Branch has provided philanthropic support for All Child Hospital Outpatient Center in our community and the Hospital. Some of the projects that we have funded since 1997 include: A Therapeutic Playground for the Outpatient Center in Sarasota 2

Wheelchair & premature scales, other specialized equipment for newborns The Neonatal Abstinence Syndrome (NAS) clinical study and follow up care of babies born addicted to drugs in the Sarasota community The Applied Behavior Analysis (ABA) Program which assists children with challenging behavior problems through treatment at the Outpatient Centers of Sarasota and Lakewood Ranch At the Hospital our branch along with the other 8 branches have funded the Neonatal Intensive Care Unit (NICU) in the new All Children s Hospital, as well as a Palliative Care Program Statement from the Board Chair Statement from the CEO/Executive Director Areas Served FL- Sarasota FL- Manatee FL-Pinellas FL- Hillsborough The All Children s Hospital guild branches; St. Petersburg Day, St. Petersburg Beach, Seminole/Largo and St. Petersburg Evening offer support to the hospital directly for these branches are located in Pinellas County. The other branches, rth Pinellas, Pasco, Sarasota/Manatee, Brandon and Tampa offer outreach support to the All Children's Outpatient Care Locations. These OCC locations bring high quality pediatric services closer to home for children and families in the Tampa Bay region and beyond. More children and their families get the care that they need close to home with the help of the All Children's Outpatient Care Locations. Service Categories Primary Organization Type Secondary Organization Type Tertiary Organization Type Health Care Health Care Human Services 3

PROGRAMS Neonatal Abstinence Syndrome Program Description Neonatal Abstinence Syndrome (NAS) is a growing problem among infants in Sarasota County. There has been an increase of approximately 700% of babies exposed prenatally to addictive drugs who exhibit physical and behavioral symptoms of NAS after birth. Most end up in the Neonatal Intensive Care Unit (NICU) at Sarasota Memorial Hospital. A new Follow-Up Clinic at All Children's Outpatient Care Center in Sarasota will give these babies, discharged from the NICU at Sarasota Memorial, access to a variety of special services to help them overcome NAS. The clinic is being funded by a $70,000 grant from the All Children's Hospital Guild Sarasota/Manatee Branch. "We are concerned about the impact of NAS on babies," said Shirley Jankelevich, M.D., an All Children's Hospital physician who will lead the clinic. "The Follow-Up Clinic will help us provide support for these infants and their families." The Follow-Up Clinic will offer a variety of services, including: Occupational and Physical Therapy, Speech Therapy, Feeding Therapy and Applied Behavior Analysis. The Healthy Start Coalition of Sarasota will supply a social worker to assist families in the program. "This program will help give babies a new lease on life," said Kay Aidlin, President of the All Children's Hospital Guild Sarasota/Manatee Branch. "We are happy to provide the funding to support such a needed program in the Sarasota community." Budget $70,000.00 Category Program Linked to Organizational Strategy Health Care, General/Other Maternal & Infant Care Population Served Infants to Preschool (under age 5) Infants to Preschool (under age 5) Infants to Preschool (under age 5) Short Term Success Long Term Success Infant needs identified through early assessment during clinic visits: 36% of new patients received PT evaluation referral 60% of these patients continued to receive physical therapy treatment 43% of new patients received SLP evaluation referrals for feeding 71% of all patients seen received a recommendation for sub-specialty evaluation (neuroly, urology, ent, pulm, cardiology, etc.) 43% of new patients received a referral recommendation for diagnostic testing or labs Assist in maintaining safety and wellbeing of the infant or child Secure relationships with infant, mother or caregiver Promote progress in motor, cognitive, speech and language skills and development Promot ability to self-regulate activity, attention and affect Research findings will assist in developing treatment intervention for infants, children and caregivers during critical developmental years 4

Program Success Monitoring Program Success Examples Statistacl data is collected to determine outcomes related to maintaining safe and secure caregiver relationships Periodic surveys of parents and caregivers will determine program effectiveness and need for implementation of additional services or education See above statistics We are the only clinics serving the NAS population in our area. This unique team and community approach is serving the multiple needs of NAS infants and their families to utilize the expertise of highly specialized pediatric professionals, that is not found in a non-clinic type of medical setting 5

Palliative Care Description The Palliative Care Program at All Children's Hospital is designed to provide an active and comprehensive interdisciplinary approach to serving children who are our patients with life-threatening or life-limiting conditions. The interdisciplinary team includes physicians, a nurse practitioner, a social worker, a child life specialist, and a chaplain. The team focuses on enhancing the quality of life for the child and family throughout the trajectory of the child s illness. In addition to dealing with medical issues surrounding chronic illness, the team addresses the emotional, psychological, and spiritual needs of the child and family. Budget $72,756,200.00 Category Program Linked to Organizational Strategy Population Served Health Care, General/Other Patient & Family Support Children and Youth (0-19 years) Children and Youth (0-19 years) Children and Youth (0-19 years) 6

Short Term Success The program is 2.5 years old. Our measure of success is based upon growing the program and increasing the number of patients referred to the Palliative Care Program. Our referrals have shown good growth since the program s inception: FY New Consults Readmitted Consults Total Feb 2012-Jun 2012 (4 mos.) 15 9 24 Jul 2012-Jun 2013 (12 mos.) 57 24 81 Jul 2013-Jan 2014 (6+ mos.) 40 37 77 TOTAL 112 70 182 We are on track for an annualized volume of 150+ total patient consults. Long Term Success The Palliative Care Team is able to follow the child throughout the trajectory of the child s illness and provide consistency throughout the child s multiple admissions to the hospital. The consistent follow-up allows for clarity of communication regarding the child s and family s goals of care to the usually multiple sub-specialists involved in caring for the child. The team is also able to identify what is the family s definition of quality of life for their child. We work in partnership with palliative care providers in the community. Program Success Monitoring We are in the process of developing a family satisfaction survey to measure our long-term success. We currently are monitoring the number of consults requested, the length of stay, referrals to community palliative care programs, and deaths that occur outside of the ICU setting. We will begin to look at other outcome monitors as our program matures. 7

Program Success Examples BENEFITS The Palliative Care Team provides consistency of care by following the patient during multiple hospitalizations throughout the illness. The Team is an extra support for the patient,family,and health care team; available to have in depth conversations on a daily basis if needed. The Team can develop care goals consistent with the patient s and family s definition of quality of life and advocates for the patient and family. Scenario: Jim was a 5-month old baby,in NICU since birth,with a large tumor in his neck, when he was referred to Team Hope for palliative care services. Despite all the physicians efforts,nothing could stop the tumor s growth. He had breathing and feeding tubes,and on a ventilator. Team Hope was consulted to work with the parents to determine what their goals were. The family wanted to bring Jim home for what time he had left. Although hospice care was discussed,they did not want him to go to an inpatient hospice. The family learnt how to care for Jim at home, including breathing tube and ventilator care. Team Hope and the primary care team worked with community resources for home nursing care and home visits from a pediatrician. Team Hope provided support to the family to help them understand his condition and what to expect when he got home. The health care team did not think that his life expectancy would be very long. The child life specialist helped with memory-making,the chaplain helped the family discuss spiritual values and the social worker helped get services in place in the home. He was discharged at the end of vember. As of today, Jim is still with us. His mother says he is happy,interacts with his family and is walking. While we don t know how long Jim will be with us,we think he has continued to survive because of the positive experience of being at home. Without Team Hope s involvement, Jim may have lived out his life in the hospital. Quality of life is what palliative care is all about. 8

MOTOmed Gracile 12 movement trainer Description The trainer gently moves the child's legs or arms. It will be used with children with cerebral palsy, stroke, cardiac surgery, cancer and other acute and chronic diagnoses. Either passive, motor assisted or active resistive training is used with the child's own muscle strength, as selected by the occupational or physical therapist. Movements are smoothly controlled, like bicycling. Children can train from a chair, wheelchair or lying down. Movement is critical for children to learn, interact with peers and play, and this equipment will help them to achieve their goals. Budget $9,345.00 Category Program Linked to Organizational Strategy Health Care, General/Other Occupational Therapy Population Served Children Only (5-14 years) Children Only (5-14 years) Children Only (5-14 years) Short Term Success Long Term Success Program Success Monitoring Program Success Examples There is a specially developed MOTOmed game which can make the game character Max jump up, by engaging the right and left side of the child's body. Due to the simple and fun principle of the game, physical activity is rewarded and the user is motivated to train for a longer time. Many children who need physical therapy may be coming for long period of time and equipment like the MOTOmed helps them to enjoy therapy as well as participate longer in the strengthening exercises. The passive MOTOmed movement can lead to a reduction in muscle tone for children with spasticity and it prevents the shortening of muscles and the occurrence of contractures. In addition, it allows children to develop strength in their arms and legs through fun and motivating exercise. This strength will translate over to functional gains with things like standing, walking and climbing stairs. Success is measured on a case by case basis for each child. Therapists determine specific functional goals for children and the MOTOmed help them to meet these goals. Success of using the MOTOmed will be determined by how long children participate on the trainer compared to typical therapeutic exercise, their satisfaction with the equipment as well as their success with meeting their functional goals. Comments Program Comments by Organization The MOTOmed Movement Trainer still requires $6,000.00 which can be given in increments of $1,000.00. 9

MANAGEMENT CEO/Executive Director CEO/Executive Director CEO Email Exec Director llanda@comcast.net Staff & Volunteer Statistics Full Time Staff 0 Part Time Staff 0 Staff Retention Rate % Professional Development N/A Contractors 0 Volunteers 450 Management Reports to Board CEO/Executive Director Formal Evaluation Senior Management Formal Evaluation nmanagement Formal Evaluation N/A N/A N/A N/A Collaborations All Children's Hospital and Johns Hopkins Medicine: Founded in 1926 as the American Legion Hospital for Crippled Children, All Children s Hospital in St. Petersburg, FL has grown into a leading pediatric referral center for children with some of the most challenging medical problems. More than 250 pediatric specialty physicians provide state-of-the-art care in 43 medical and surgical programs. In April 2011, All Children's Hospital became part of the Johns Hopkins Health System (JHHS) as a fully integrated member of Johns Hopkins Medicine (JHM). All Children's becomes the first US hospital outside of the Baltimore/Washington DC region to achieve membership within JHM, which includes The Johns Hopkins University School of Medicine and the Johns Hopkins Hospital and Health System. All Children's Hospital and Johns Hopkins are working together to expand pediatric medical education and research opportunities in St. Petersburg while providing world-class care for all of Florida s children. 10

GOVERNANCE Board Chair Board Chair Mrs Pat Ballance Company Affiliation Chairman Board Term July 2015 to June 2016 Board Chair Email patballance@yahoo.com Board Co-Chair Board Co-Chair Ms. Judy Keyak Company Affiliation Chair-Elect Board Term July 2015 to June 2016 Board Co-Chair Email jkeyak@tampabay.rr.com Board Members Name Affiliation Status Mrs. Pat Ballance Chair-Elect Voting Jennifer Greene Treasurer Elect Voting Judy Keyak Treasurer Voting Paula Keyser Corresponding Secretary Voting Lydia H Landa Treasurer Elect Voting Rachael Russell Recording Secretary Voting Board Demographics - Ethnicity African American/Black 0 Asian American/Pacific Islander 0 Caucasian 4 Hispanic/Latino 1 Native American/American Indian 1 Other 0 0 Board Demographics - Gender Male 0 Female 6 t Specified 0 Governance Board Term Lengths 1 Board Term Limits 1 11

Board Orientation Number of Full Board Meetings Annually 9 Board Meeting Attendance % 79 Board Self-Evaluation Written Board Selection Criteria Percentage of Board Making Monetary Contributions 100 Percentage of Board Making In-Kind Contributions 100 Constituency Includes Client Representation Standing Committees Board Governance Executive Finance Membership minating Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala) Strategic Planning / Strategic Direction Technology Communications / Promotion / Publicity / Public Relations 12

FINANCIALS Current Financial Info Fiscal Year Begins 2015 Fiscal Year Ends 2016 Projected Revenue $37,452,500.00 Projected Expenses $2,317,500.00 Endowment Value $0.00 Spending Policy N/A Spending Policy Percentage 0 Capital Campaign In a Capital Campaign Campaign Goal 0 IRS Form 990s 990 2013-2014 Form 990 2012-2013 Form 990 Form 990 Form 990 Form 990 Form 990 Solvency Short Term Solvency Fiscal Year 2014 2013 2012 Current Ratio: Current Assets/Current Liabilities -- -- -- Long Term Solvency Fiscal Year 2014 2013 2012 Long-Term Liabilities/Total Assets 0% 0% 0% Historical Financial Review Revenue and Expenses Fiscal Year 2014 2013 2012 Total Revenue $749,331 $630,458 $686,240 Total Expenses $747,479 $669,027 $653,541 Revenue Sources 13

Fiscal Year 2014 2013 2012 Foundation and Corporation $0 $0 $0 Contributions Government Contributions $0 $0 $0 Federal $0 $0 $0 State $0 $0 $0 Local $0 $0 $0 Unspecified $0 $0 $0 Individual Contributions $0 $0 $0 Indirect Public Support $0 $0 $0 Earned Revenue $749,331 $630,458 $686,240 Investment Income, Net of Losses $0 $0 $0 Membership Dues $0 $0 $0 Special Events $0 $0 $0 Revenue In-Kind $0 $0 $0 Other $0 $0 $0 Expense Allocation Fiscal Year 2014 2013 2012 Program Expense $689,790 $619,858 $598,323 Administration Expense $48,056 $40,585 $45,895 Fundraising Expense $9,633 $8,584 $9,323 Payments to Affiliates $0 $0 $0 Total Revenue/Total Expenses 1.00 0.94 1.05 Program Expense/Total Expenses 92% 93% 92% Fundraising Expense/Contributed Revenue -- -- -- Assets and Liabilities Fiscal Year 2014 2013 2012 Total Assets $65,290 $63,438 $102,007 Current Assets $65,290 $63,438 $102,007 Long-Term Liabilities $0 $0 $0 Current Liabilities $0 $0 $0 Total Net Assets $65,290 $63,438 $102,007 Top Funding Sources Fiscal Year 2014 2013 2012 Top Funding Source & Dollar Amount Evening Branch $247,198 Evening Branch $262,837 Evening Branch $221,090 Second Highest Funding Source & Dollar Amount Third Highest Funding Source & Dollar Amount Sarasota Branch $152,494 Net Income from Sales of Inventory $111,759 Net Income from Sales of Inventory $118,628 Seminole/Largo Branch $76,911 Net Income from Sales of Inventory $124,240 Sarasota Branch $112,566 Comments Financial Comments by Organization ALL revenues received by All Children's Hospital Guild, Inc. are donated to the appropriate Outpatient Care Centers, and needed programs at All Children's Hospital through All Children's Hospital Foundation. Financial Comments by Foundation Financial information taken from IRS Form 990. 14

PLANS, POLICIES & LICENSES Plans Fundraising Plan Communication Plan Strategic Plan Strategic Plan Adopted Aug 2012 Years Strategic Plan Considers 3 Management Succession Plan Continuity of Operations Plan Policies Organizational Policies and Procedures Written Conflict of Interest Policy ndiscrimination Policy Directors and Officers Insurance Policy Whistle Blower Policy Document Destruction Policy Government Licenses Is your organization licensed by the Government? Planning & Policies Comments Planning & Policies Comments by Organization Planning & Policies Comments by Foundation Created 05.12.2018. Copyright 2018 15