Worcestershire Hospices Our lives are a story and the ending matters. Dr Atul Gawande
Worcestershire Hospices our year in numbers Support over 4,638 patients & loved ones Employ over 300+ staff Cost 10.2m to run Rely on donations for 72% of income Helped by 1,650 volunteers 2
Hospice care and support, for good days, difficult days and last days Who we are The Worcestershire Hospices are St Richard s, KEMP and Primrose. What we do Every year the three hospices provide free, expert care and support to around 2,000 adults living with life-limiting illnesses and another 2,000 family members and loved ones. We aim to improve patients quality of life and wellbeing, helping them live as fully as they can to the end of their lives, however long that may be. Each one has care tailored to their own needs. This care and support is based on the belief that everyone matters all the way through their life until the moment they die, and that no one should die in avoidable pain, suffering or emotional distress. Those we support are cared for with compassion, kindness, dignity and respect in a range of locations. The majority of hospice care is in people s own homes, but patients are also supported in other places such as in-patient units and day centres or nursing homes. We also have an important role in supporting families, carers, friends and loved ones both during a person s illness and into bereavement. We still have a way to go too many people in our community are not receiving the care they want or need at the end of their life. Our vision is for everyone facing the end of life, whoever they are and wherever they might be, to have the best possible care and we believe that hospices are critical to achieving this. Hospices are independent charities and rely on donations to continue their care 3
How we do it We offer wide-ranging, personalised care which is provided by a versatile team of different professional staff and volunteers. As well as taking care of people s physical needs, we also look after their emotional, spiritual and social needs. Hospice care is free for everyone, and is provided for however long it is needed, which could be days, weeks or even months. Hospice at home care 24HR Worcestershire Hospices services include: pain and symptom control psychological and social support Nurse Specialists and Hospice at Home where the patient lives in-patient beds (St.Richard s Hospice) specialist clinical support such as lymphoedema nurses physiotherapy occupational therapy complementary therapies, such as massage and aromatherapy creative therapies counselling spiritual care practical and financial advice support during a person s illness and into bereavement. Where is care provided? A hospice is not just a building it is a way of caring for people. Worcestershire Hospices provide care in a number of different places including people s own homes, in day services, care homes and even by telephone if that is preferred. Most people want to be looked after in their own home and we can make this possible with our Community Nursing and Hospice at Home teams. A hospice is not just a building it is a way of caring for people. 4
It s just very honest and helps you put your life back into perspective. Hospice care changes lives Sheila explains how the Family Support Team at St Richard s helped her cope before and after the death of her husband Patrick: With the shock of everything I literally fell apart, there s no other way of putting it. My husband, Patrick, was diagnosed with cancer of the oesophagus in the February. The first connection we had with St Richard s was through the hospice nurse and she introduced us to all the other services. It was not long after that I started one-to-one counselling while Patrick was still alive, which really helped us to get through. In the May Patrick came into the In-patient Unit, and I came in with him; he was here for a week and then passed away. The Family Support Team makes it perfectly clear that whatever you say is confidential and that it s totally nonjudgmental so you feel safe and secure so that you can speak about anything. It s just very honest and helps you put your life back into perspective. It s taken me a long while and I couldn t have done it without the counsellor I see. I also had a bereavement course which was a life saver. That sounds pretty dramatic but I was really going under. I m so grateful the support started when Patrick was here. I was never aware of the care that the hospice has for the family. My perception was the fact that if someone was at the end of life then that was what the hospice was there for. But it s so much more than that. It s almost as though once you re involved with the family support team they will say we ve got this it s absolutely amazing. 5
6 it is a vibrant, warm friendly place that provides a great many services to people with life limiting illness. Hospice care changes lives Hagley resident, Joanne, was diagnosed with multiple Myeloma in October: At the beginning of my journey, I wondered how I was going to face the prospect of chemotherapy and losing my hair. How would I feel emotionally? Was I going to be able to cope with it all? The period before starting chemotherapy, I began to get very tired, my joints ached and I found that the one hundred and ten per cent I normally put into my job as a Teaching Assistant was reducing very fast. I needed a life line. KEMP was a lifeline. I spoke to my GP and I can t thank him enough because it opened a door to KEMP Hospice. The word hospice had always conjured up in my mind, elderly men and women lying silently in hospital beds or sitting asleep in old high back chairs waiting for their next meal. This couldn t be further from the truth. In reality KEMP Hospice was my lifeline - it is a vibrant, warm friendly place that provides a great many services to people with life limiting illness in the Wyre Forest. I am so grateful to everyone at KEMP, without them, I think I would have reached rock bottom. I know that the money to provide the services comes mainly from voluntary donations, so I ve started raising money. I want other people who are going through tough times either with a life limiting illness or experiencing bereavement to be able to have a lifeline just like me. I know what an amazing difference the hospice services make and I want others to benefit.
Even now, I can pick up the phone and call my support worker, or come in and see them whenever I need to. Hospice care changes lives Kevin had been looking after his wife Pat for 12 years. Pat had severe chronic obstructive pulmonary disease (copd) and Chrone s disease. Primrose Hospice gave them peace of mind. Kevin recalls, When you mention a hospice to people, they automatically think you have cancer, but Pat and me soon realised that there are many different categories of illness and patients that go to a hospice. Pat loved Primrose, the company, meeting others, reassurance about her illness and being able to do things at her own pace. With her illness it was very important that she wasn t rushed or stressed, as this would make her panic and her breathing would get worse. Whenever we arrived at Primrose there was someone there to greet Pat and check immediately what she needed in terms of care, if it was oxygen, she was given oxygen. When Pat needed care at home, the Primrose at Home Health Care Assistant (HCA) came to the house for 4 hours every Tuesday and Thursday. At first this was meant to be for 4-8 weeks, but in the end it carried on for 8 months. It was such a relief to know that Pat was in safe hands when I went out and that I could trust the nurse to call me if Pat s condition changed, or if there was anything I needed to be concerned about. Close to the end Pat was frightened of dying on her own and this way I knew that she was being looked after. During Pat s illness and since she died I have had support too from the Family Support Team. Throughout Pat s illness it was so reassuring to know there was always someone on the end of a phone that could support me and give me advice. Even now, I can pick up the phone and call my support worker, or come in and see them whenever I need to. I was married to Pat for 41 years, we met when I was 17. Whenever I get bogged down my support worker helps me to look at things differently. Primrose gave Pat and me peace of mind. 7
Who do we care for Hospices care for people with a wide range of conditions including cancer, motor neurone disease, cardio-vascular diseases, respiratory disease, multiple sclerosis and Parkinson s disease. Hospices are also increasingly supporting people with multiple life-limiting conditions including dementia. Caring for others in bereavement The death of a loved one or close friend is one of the most difficult times in each of our lives. Whether this is expected, following a long term illness, or sudden and unexpected the grieving process is deeply personal. All three hospices also offer a comprehensive bereavement service supporting adults and children facing the death of a loved one by any cause, including traffic accidents and suicide. One in three people in the UK are touched by hospice care Bereavement support Medical care Physical therapies Counselling Hospice care supports the whole person Complementary therapies Financial advice Practical support Spiritual support 8
Worcestershire Hospices how the sums add up Volunteer value 2.56m saving in equivalent wages 28% funded by NHS 72% comes from the local commmunity Support 2,219 patients Plus 2,419 loved ones With 300 staff and 1,648 volunteers 9
You can make a difference Here are three reasons why we believe you should choose to support Worcestershire Hospices One in three people in the UK are touched by hospice care. It could be your mum, your granddad, or your friend. It could be you. You will make a difference to the lives of thousands of people in your community at a time when they most need it. Without donations our hospices would not be able to care for patients and families in the future. On average three quarters of our funding comes from voluntary donations. Funding voluntary donations One in three people in the UK are touched by hospice care Almost 50% of people say they are concerned there won t be enough hospice care available in future 10
How you can help UK aging population (aged 65 and over) Whether you make a donation, take part in an event, get your company involved, make a regular donation or consider leaving a gift in your Will; your support will help us to make a difference to people s lives. Future demand for hospice care in Worcestershire: 5,644 people die in Worcestershire each year and 4,200 are likely to need palliative care. 19% 28% There are an estimated 6,000 people aged over 65 living with cancer in the county. Worcestershire has a higher proportion of older people in the population aged over 65 (19.3% compared to 16.3% nationally.) The older population in the county is forecast to grow considerably in the next 20 years with the proportion of those aged 65 and over growing from 19% to 28% by 2030. 2010 2030 The number of people aged 85 and over is expected to double in the next 20 years 11
Hospice care changes lives I m Caroline, I m 42 and I m a mum, wife, sister and daughter. When you come to a hospice you look at your life differently, you question what s important. As I walked through the hospice doors I really didn t know what to expect but I was immediately put at ease, here I feel good about myself, I can be Caroline and not just an illness. The illness is put to the back of my mind and I laugh a lot. The staff are wonderful at managing and treating my pain but to be honest it s the little things that make the biggest difference like having a gentle hand massage, getting into the bath with no fuss or looking at the beautiful gardens, it makes me feel alive. And there s the comfort of knowing that my family are supported too. I don t know how I would ve managed without the hospice. The illness is put to the back of my mind and I laugh a lot. St Richard s Hospice, Wildwood Drive, Worcester WR5 2QT 01905 763963 www.strichards.org.uk Reg Charity number 515668 KEMP Hospice, 41 Mason Road, Kidderminster DY11 6AG 01562 756000 www.kemphospice.org.uk Reg Charity number 1146310 Primrose Hospice, St. Godwalds Road, Bromsgrove B60 3BW 01527 871051 www.primrosehospice.org Reg Charity number 700272 April 2016