IPRO ESRD Network of New York Transplant Coordination QIA 2018 Kickoff Webinar

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IPRO ESRD Network of New York Transplant Coordination QIA 2018 Kickoff Webinar January 25, 2018

Welcome/Opening Remarks Jeanine Pilgrim, Quality Improvement Director

Meet the NW2 Quality Improvement Team Improving Quality of Care for ESRD Patients Jeanine Pilgrim, Quality Improvement Director Anna Bennett, Quality Improvement Coordinator and Emergency Manager John Cocchieri, Quality Improvement Support Coordinator

Housekeeping Reminders All phone lines muted upon entry to eliminate background noise/distractions Be mindful of muting your phone when not speaking Please don t place the call on hold, instead disconnect your line and rejoin the call when able We ll be monitoring our WebEx chat board throughout the webinar for questions or comments Be present and engaged in our topic presentations Please be prepared for sharing and actively participating in the open discussion 4

Agenda Overview of IPRO ESRD Network Program Review 2018 Transplant QIA Goal/Measures Discuss project interventions and tools Demonstration on Root Cause Analysis (RCA) and Monthly Collection Tool Provide Facility reporting requirements Outline of Upcoming Timelines Open Forum Q&A Closing Remarks/Next Steps 5

Learning Objectives Hear about the history of IPRO ESRD Network Program and Network role/responsibilities Understand project purpose, goals, interventions, and available educational resources Learn how to complete a Root Cause Analysis (RCA)/Corrective Action Plan (CAP) using online surveys and monthly data collection tool Review reporting requirements and important timeline deadline dates 6 6

IPRO ESRD Network Program Overview

Island Peer Review Organization Founded in 1984, IPRO, a national independent, not-for-profit organization, holds contracts with federal, state and local government agencies as well as private-sector clients nationwide. Provides a full spectrum of healthcare assessment and improvement services that enhance healthcare quality to achieve better patient outcomes and foster more efficient use of resources. Headquartered in Lake Success, NY and also has offices in Albany, NY, Hamden, CT, Camp Hill, PA, Morrisville, NC, Princeton, NJ, San Francisco, CA and now, Beachwood, Ohio. 8

IPRO ESRD Network 2017 Service Area (2016 Network Annual Reports) Network 2 NY Patients: 29,607 Facilities: 286 Transplant: 13 NW2 NW1 Network 1 CT, MA, ME, NH, RI, VT Patients: 14,417 Facilities: 194 Transplant: 15 Network 9 OH, KT, IN Patients: 33,417 Facilities: 599 Transplant: 14 Network 6 NC, SC, GA Patients: 47,856 Facilities: 707 Transplant: 10 Network 9 IN, KY, OH Network 6 GA, NC, SC IPRO ESRD Program 125,297 ESRD Patients 1,786 Dialysis Facilities 52 Transplant Centers 9

IPRO ESRD Network 2 Service Area by Facility Ownership Ownership ESRD Patient Census # of Dialysis Facilities FKC 6106 57 DaVita 6575 61 Dialysis Clinic Inc. 1508 14 Independents 20269 149 Other 449 10 350 Facilities 20,161 Patients 4 Transplant Ctrs 148 Facilities 9,849 Patients 1 Transplant Ctrs 215 Facilities 17,232 Patients 5 Transplant Ctrs 10 10

ESRD Network Role/Responsibilities Improve quality of care for ESRD patients Encourage patient engagement Support ESRD data systems and data collection Provide technical assistance to ESRD patients and providers Evaluate and resolve patient grievances Support emergency preparedness and disaster response 11

CMS National Priorities and ESRD Program Goals HHS Priorities are interpreted for purposes of this SOW as: Priority 1: Reform, Strengthen, and Modernize the Nation s Health Care System Priority 2: Protect the Health of Americans Where They Live, Learn, Work, and Play Priority 3: Strengthen the Economic and Social Well-Being of Americans Across the Lifespan Priority 4: Foster Sound, Sustained Advances in the Sciences Priority 5: Promote Effective and Efficient Management and Stewardship CMS Goals are interpreted for purposes of the SOW as: Goal 1: Empower patients and doctors to make decisions about their health care Goal 2: Usher in a new era of state flexibility and local leadership Goal 3: Support innovative approaches to improve quality, accessibility, and affordability Goal 4: Improve the CMS customer experience 12

ESRD 2018 Statement Of Work Requirements Decrease to 4 QIAs/Increased number of facilities in each QIA 2023 AIM Goals Established Emphasis on Patient Engagement Use of interventions aimed at reducing disparities. Focus on innovative approaches and rapid cycle improvement that incorporates boundariliness, unconditional teamwork, are customer-focused and sustainable Collaborative meetings with FKC and DaVita to strategize on facility selection, intervention design, and data collection National Learning and Action Networks (LANs) for each project

Chat Check-In Questions/Comments? 14

2018 QIA Overview Improve Transplant Coordination

Increase Rates of Patients on a Transplant Waitlist Purpose: Promote early referral to transplant Improve referral patterns by addressing barriers to the steps of waitlist National Goal: By 2023 increase the percentage of ESRD Patients on the transplant waitlist to 30% from the 2016 national average of 18.5% Criteria: Goal: Identify 30% of dialysis facilities to participate 10 percentage point increase of patients placed on the waitlist for transplant by September 30, 2018

CMS Focus on tracking the 7 Steps Leading to Receiving a Transplant Tracking the movement of patients through the steps to transplant waitlist placement, reporting to CMS the number of patients in each step: 1) Patient suitability for transplant 2) Patient interest in transplant, 3) Referral call to transplant center, 4) First visit to transplant center, 5) Transplant center work-up, 6) Successful transplant candidate, 7) On waiting list OR evaluate potential living donor.

CMS Required Interventions Facility staff to address the kidney transplant process including: Transplant referral process and center criteria Kidney allocation system Patient self-referral per transplant facility Tracking and reporting the 7 steps leading to a transplant Patient SME s and/or family/caregivers included at facility level monthly QAPI meetings Patient education and activation partnering with stakeholders LDO Leadership Assembly of Transplant Coalition DOH: NYC and NYS QIN-QIO National Kidney Foundation(NKF) American Association of Kidney Patients (AAKP)

Chat Check-In Questions/Comments? 19

Planned Project Interventions

Network Planned Interventions Facility Rollout, Training, and Monitoring Identification of Project Lead/Transplant Coordinator Facility Completion of Root Cause Analysis (RCA) Facility Kickoff Webinar/Training and Mid-Point Webinar Peer Mentorship Training Program Technician Training Program PAC Representative Lobby Days/Mentoring Formation of Transplant Coalition/Stakeholder Partnerships

Identified Tools and Resources Facility/Patient Educational Materials Monthly Data Collection Tool New Poster on 7 Steps and Kidney Allocation System Resource Toolkit on Website and Available in Print Dedicated Education Station Photo Contest Development of new Standardized Communication Toolkit to support information exchange between facilities and centers

Overview of Interventions and Resource Tools

How Patient Subject Matter Experts (SME) Support QIA Projects Emphasis engaging patients to be involved in the development of QIA interventions Focus on encouraging facilities to include patients in their QIAs SMEs are asked to: Consider becoming a Peer Mentor Joining the Network Patient Advisory Committee Sharing their ESRD journey success story with others Attend meetings led by Network project needs Attend NCC led LANs based on their chosen project of interest Participate in national meetings and technical expert panels

Peer Mentorship: A proven approach on kidney care health outcomes Structured patient-centered training curriculum Network-hosted webinars and provided welcome kits for facilities Available in multiple formats, including both audio and visual components Supplemental resource toolkits developed with patients, for patients Patient developed role-playing scenarios to support patients practice mentoring 25

Technician Training for Patient Coach Program Hemodialysis Technicians CEU Accredited program Effective communication strategies Coaching techniques Promoting active patient involvement in care Discussing transplant and Home Dialysis as modality options Helping patients plan for a vascular access Reducing Blood Stream Infections

Participate in NCC National Learning and Action Networks (QIA Specific) CMS has established a LAN for each QIA, coordinated by ESRD NCC Create a diverse forum (patients, organizations, and stakeholders) for addressing problematic issues Utilize measurable and clear goals with proven effective practices to drive decision making Set the pace and tone for goal related activities and to create an open sharing of practice and data Initiate change methodology which rapidly tests small quality improvement changes specific to the area of work. All Facilities are invited to participate in LAN events

Network-Compiled Resource Toolkit Transplant Center Referral Guide Conditions of Coverage Excerpt External Organization Article Sampling Patient Education Materials Staff Education Resources Peer Mentoring Training Program Patient Story Sampling

Toolkit: Resource Examples

Education Stations Ideas from the field: Colorful bulletin board Bright posters in waiting area Resource booth on the floor Video streamed on education station Dedicated peer mentor counseling area Monthly feature of newsletter patient stories Multiple tables - information on different stages in process Bronx Dialysis Center (Bronx, NY) Engaging Bulletin Board Featured Toolkit Resources Mobile Education Cart A. Holly Patterson/NUMC (Uniondale, NY) Visual poster board with excerpts from toolkit resources Pictures and quotes from patients

Chat Check-In Questions/Comments? 31

Tool Demonstration

Live Demonstration: Root Cause Analysis (RCA) and Corrective Action Plan (CAP) Tool

Live Demonstration: Transplant Step Tracking Monthly Collection Tool

Monthly Tool Instructions Instructions for Entering Monthly Step Data Monthly Data: Please include the total number of patients who during the month have entered the step for the first time or have not progressed to the next step. (Each patient should only be counted in ONE Step) Year-to-Date Data: Include all patients who have achieved the step from January to current month. Note: Not all patients will begin at step 1. If a patient has attained more than one step in a month, only count them in the highest numbered step attained. i.e. Patient expressed interest and attends education session in the month would be counted in step 2.

Chat Check-In Questions/Comments? 36

Reporting Requirements

Project Reporting Requirements: Upcoming Timeline Key Facility Contact Collection Tool Overdue Complete ASAP Begin Monthly Reporting Tool First Tool due February 10, 2018 Root Cause Analysis (RCA) and Corrective Action Plan (CAP) Tool due February 12, 2018 Monthly reporting on patient movement between transplant process steps due last day of the month Submission of competency assessment of Network monthly educational article/resource Interventions with required submission to the Network as requested Assessment on educational resources distributed to facilities as requested 38

Facility Role/Responsibilities Educate staff members on QIA requirements Understand outcomes of RCA, CAP, and disparity forecasting tools Review and utilize Network-compiled resource toolkit Develop Education Station and identify Peer Mentor program candidate(s) Share monthly educational resources from the Network with staff members Submit completed assessments to the Network upon request Communicate with the Network regularly Submit monthly tracking tool and respond to information requests Participate in conference calls with Networks as requested Mandatory attendance at Webinars Share best practice models and lessons learned with peers Participate in National Learning and Action Network (LAN) 39

Closing Remarks/Next Steps p. 40

We need your feedback and suggestions! Please complete our Webinar Evaluation to share your thoughts and comments. We welcome and value your input!

Next Steps/Actions Submit webinar evaluation survey to share your feedback Ensure facility has identified project lead and back-up lead Complete Monthly Data Collection Tool First Tool Due February 10 th Complete RCA/CAP Survey Tool by February 12 th Review transplant educational resource toolkit Solicit interested patients for success story collection and peer mentorship training program Join CMS National Transplant LAN 42

Stay in Touch! Subscribe to receiving Provider Insider, Emergency Messaging, Kidney Chronicles, and PAC Speaks https://tinyurl.com/esrdnw2-6 Facebook https://www.facebook.com/iproesrdprogram Website http://network2.esrd.ipro.org/

ESRD Network of New York Staff Sue Caponi CEO, ESRD Program scaponi@nw2.esrd.net Carol Lyden (Retiring 2/1/18) Director, Quality Improvement clyden@nw2.esrd.net Jeanine Pilgrim Quality Improvement Director jpilgrim@nw2.esrd.net Ariana Lucido Information Management Director alucido@nw6.esrd.net Erin Baumann Patient Services Director ebaumann@nw2.esrd.net Laura Wright Administrative Coordinator lwright@nw2.esrd.net Anna Bennett Quality Improvement Coordinator Emergency Manager abennett@nw2.esrd John Cocchieri Quality Improvement Project Support Coordinator jcocchieri@nw2.esrd.net Sharon Lamb Data Coordinator slamb@nw2.esrd.net Nigisty Lulu Community Outreach Coordinator nlulu@nw2.esrd.net 1979 Marcus Avenue, Suite 105, Lake Success, NY 11042 Phone: (516) 209-5578 Fax: (516) 326-8929

Thank You! IPRO ESRD Network of New York 1979 Marcus Avenue, Suite 105 Lake Success, NY 11042 http://network2.esrd.ipro.org/ p. 45