NHS Kidney Care. enabling consistent implementation of the Renal National Service Framework. A Strategy for 08/09 and beyond..

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enabling consistent implementation of the Renal National Service Framework A Strategy for 08/09 and beyond..

Who are we? NHS Kidney Care as it is part of the NHS Diabetes and Kidney Care NHS Diabetes and Kidney Care has a primary function of developing a small national team with significant local presence to enable successful implementation of the Renal and Diabetes NSFs

To create capacity and capability to improve patient outcomes To enable equitable, effective and efficient kidney services.

The Listening Exercise... From April to June 2008 the Kidney Care team initiated a Listening Exercise to understand what our stakeholders felt were important issues for a national team driving local excellence in service delivery

The Listening Exercise... We drew on : The expertise already available Listened to language that the kidney community uses Heard about the quick wins, the local priorities and the key national issues to get right

The Listening Exercise We set out to identify: What results we are trying to deliver? What Impact we are trying to achieve? What are the core functions of the team? What key drivers and principles that should underpin the local infrastructure? What accountability arrangements are required to set the kidney care agenda What lessons can be learnt from existing improvement teams?

The Listening Exercise Responses were received from: Professionals Regulators Influencers Public

The Listening Exercise... Knowledge Management is key Don t create meetings for the sake of meetings Choice Capacity and Empowermen t are key drivers A framework for Kidney Networks is needed There is already good practice out there. some things are better done nationally rather than fragmented Organisationa l boundaries shouldn t determine patient care we shouldn t reinvent the wheel

National deliverables Co-ordinating implementation of current priorities within the Renal NSF Support the development of metrics based on patient experience and outcomes Translate the implications and opportunities within the Next Stage Review

Local deliverables Link local kidney communities with SHA work streams enabling the Next Stage Review be a reality for kidney care Putting clinical quality at the heart of our work programme, reflecting Darzi principles Building local alliances of professional and patients to work collaboratively to improve the care of people needing kidney care; Energise service transformation and improvement through shared learning;

NHS Kidney Care

Medical Board CHAIR: Sir Bruce Keogh NHS Diabetes and Kidney Care Executive Team Chair: Gerard Hetherington NHS Diabetes Programme Board NHS Kidney Care Programme Board Chair: Donal O Donoghue

Renal Policy Team and NHS Kidney Care SRO Gerard Hetherington National Clinical Director Donal O Donoghue Policy Lead Anne Macleod Programme Director Bev Matthews Workstreams Quality and Safety x Service Development x Informatics x Patient Experience x Information Technology x Commissioning x

Milestone Plan NHS Kidney Care - Milestone Plan September 2008 - March 2012 CODING: Scoping Development Implementation Embebbed PROGRESS: TIMELINE: PROGRAMMES OF WORK 2008 2009 2010 2011 2012 S O N D J F M A M J J A S O N D J F M A M J J A S O N D J F M A M J J A S O N D J F M The NHS-KC Team Developing the structure Benchmarking Benchmarking Implementation of the RNSF Establishing Kidney Care Networks West Midlands East Midlands North West North East Yorkshire and The Humber London South Central East of England South East Coast South West Service Development PbR for Kidney Dialysis Shadowing of PbR for Kidney Dialysis PbR for Kidney Transplantation PbR for Supportive Care PbR for Advanced Kidney Disease Kidney Transport costs Impact of Early Intervention Autonomous Kidney Services Peadiatric Home Haemodialysis Acute Kidney Injury project Information and Technology Dialysis Capacity Modelling Tool Neoerica (Identification of 'At Risk' people) SystmOne (Shared decision-making tool) Kidney Care Dashboards Renal Datasets 18 Week Pathways Patient Experience Care Planning Kidney Supportive and End of Life Project Safety - Prescribing Safety - Line Infections Picker Project Development of Renal Patient View Transfer from Peadiatric Services to Adult Primary Care CKD Roadshows Practice Nurse Training Modules SystmOne (Shared decision-making tool) Kidney Care Dashboards Renal Datasets 18 Week Pathways

Innovations in Kidney Care - ACTIVITIES (DRAFT) Project Management National Leads National Projects Care Plans PbR for Kidney Dialysis AKI Audit Adolescent Transfer Knowledge Management role Kidney Informatics Support Kidney Desmond Needs Assesment Investment Model for Early Intervention Access for Transplant Listing Project b project c project d project e project f project g project h 18 Week Pathways Acute Kidney Injury PbR for Supportive Care Adolescent Transfer CKD Management Tools SHA 1 SHA 2 SHA 3 SHA 4 SHA 5 SHA 6 SHA 7 SHA 8 SHA 9 SHA 10

Organisational Structure ADMINISTRATION PA to Director Programme Support Programme Managers 1. Vacant 2. Vacant 3. Vacant 4. Vacant Rotational Project Post 1. Vacant SHARED FUNCTIONS: HR Support Business Support Finance management Commissioning Organisational Development Research and Evaluation Project Coordination Event Management (Max Jones*) OUTSOURCED POSTS: Knowledge Management (NLfH) Information Manager (IC) SpR in Green Nephrology (S. Unit) SpR in Kidney Care (tba) NHS Kidney Care Project Managers 1. Chris Emerton* 2. Graham Roberts* 3. Dawn Roach* Communications Officer Katrina Gill Writers 1. Susan Mayor** 2. Andrew Cole** SLWG CLINICAL LEADERSHIP: 3. Sue Hawkett** 4. Innove** PD Lindsey Barker 5. Vicki Lush** AKI Andrew Lewington IT James Medcalfe Audit Damien Fogarty PROMs Fergus Casey E of Life Ken Farrington & Stephanie Gomm HCAI Richard Fluck * = Consultancy

Developing Local Kidney Care Networks: EXISITNG: West Midlands East Midlands North West SUPPORTING: North East Yorkshire & The Humber South West East of England South East Coast Priorities for 09/10: London South Central

WORK PROGRAMME: Service Development: PbR for Kidney Dialysis PbR for Kidney Transplantation Impact of Organs for Transplant Recommendations Service Specification for PD Acute Kidney Injury Care Initiative Evaluation of increasing Dialysis Capacity (ScHARR) Toolkit for establishing Autonomous Kidney Services Systematic Early Intervention for Kidneys

WORK PROGRAMME: Patient Experience: Template Care Plans Kidney Chapter for National EoL Strategy Implementing the Kidney Chapter PROMs in Kidney Care Transition to Adult Care from Paediatric Services Educational DVD for Black and Afro- Caribbean people with CKD Patient and Carer Strategy

WORK PROGRAMME: Co-Production: Launch Kidney Care Plans on WKD Kidney Edition of the BJ Primary Care Nursing Kidney Edition of Primary Care Cardiovascular Journal E-Consultations Primary Care CKD Training LCP Pharmacology Report Green Nephrology NSF Supplement to BJRM Renal Technologists Development Programme

WORK PROGRAMME: Being considered: Benchmarking Implementation of NSF Home Haemodialysis Programme for Children Improving access to RPV Tool to measure economic impact of early intervention

Any Questions?