List of Nationally Funded Services The services listed below, at the locations listed below, are funded for residents of Scotland at an all- Scotland or all-uk level through National Services Division as at 14 February 2014 Key White Scottish Government designated Scottish national specialist health services. In addition the following are listed Orange national screening service; Green national orphan drugs risk share scheme or recombinant risk share scheme; Blue English prescribed highly specialist services commissioned by the NHS Commissioning Board (NHS England) to which Scottish residents have access through reciprocal funding arrangements between NHS England and NHS Scotland. Purple Service funded via National Services Division from pooled NHS Board funds includes other English prescribed specialised services, and medium secure forensic LD. Service Abdominal Aortic Aneurysm Screening All NHS Boards from October 2013 Adult Cystic Fibrosis services Advanced Heart Failure in adults (includes heart transplantation) Advanced interventions service for severe mental illness Alkaptonuria Alstrom syndrome service for adults and children Alternative donor stem cell (bone marrow) transplantation in adults Amyloidosis (diagnosis and advice on management - not drug costs) Ataxia telangiectasia service for children Ataxia telangiectasis service for adults Autoimmune paediatric gut syndromes Autologous Ear Reconstruction Bardet-Biedl syndrome (adults and children) Barth syndrome Bechets Beckwith-Wiedmann Syndrome Aberdeen Royal Infirmary Western General Hospital, Edinburgh Western Infirmary, Glasgow Golden Jubilee National Hospital, Glasgow Ninewells Hospital, Dundee Royal Liver & Broadgreen University Hospitals NHS Trust Birmingham Children's Hospital South Devon Healthcare NHS Foundation Trust Glasgow Royal Infirmary Royal Free Hospital, London Nottingham University Hospital NHS Trust Papworth Hospital NHS Foundation Trust Newcastle Upon Tyne NHS Foundation Trust Royal Hospital for Sick Children, Edinburgh & St Johns Hospital, Livingston Guy s & St Thomas NHS Foundation Trust University Hospitals Birmingham NHS Foundation Trust University Hospitals Bristol NHS Foundation Trust Aintree University Hospitals NHS Foundation Trust Barts & the London NHS Trust Bechets Society Sandwell & West Birmingham NHS Trust 1
Bladder Extrophy Scottish Bowel Screening Programme Brachial plexus injury Breast Cancer Screening Programme Chronic Pulmonary Aspergillosis Cryopyrin associated periodic disorder (CAPS) Cervical screening cytopathology EQA Cervical Cytology Training School Choriocarcinoma (see also hydatidiform mole): - Diagnosis and follow up - Treatment services Chronic pulmonary aspergillosis Central Manchester Children and Manchester Children Hospital NHS Trust Screening Centre - Kings Cross Hospital, Dundee Victoria Infirmary, Glasgow Ayrshire Central Hospital, Irvine (SW) Forresterhill, Aberdeen (NE) Nelson Mandela Place, Glasgow (W) Raigmore Hospital, Inverness (N) Ardmillan House, Edinburgh (SE) Ninewells Hospital, Dundee (E) University Hospital of South Manchester NHS Foundation Trust Royal Free Hampstead NHS Trust NHS Tayside (co-ordinating NHS Board, elements of scheme based at Aberdeen Royal Infirmary, Ninewells Hospital and Wishaw Hospital) NHS Lothian Ninewells Hospital, Dundee Imperial College Healthcare NHS Trust Sheffield Teaching Hospital NHS Foundation Trust University Hospital of South Manchester NHS Foundation Trust Cleft Lip and Palate Surgery service Cochlear Implantation Complex Airways Management in Children (complex tracheal disease in England) Congenital Hyperinsulinism Craniofacial surgery RHSC Glasgow & RHSC Edinburgh. (RHSC Aberdeen -OP service only) Crosshouse Hospital, Kilmarnock (Adult and Child) Great Ormond Street Hospital, London Alderhey Children s NHS Foundation Trust Central Manchester University Hospital NHS Foundation Trust Alderhey Children s Hospital NHS Foundation Trust Great Ormond Street Hospital, London Oxford Radcliffe NHS Trust Cryopyrin Associated Periodic Fever Syndrome (CAPS) Diabetic Retinopathy Screening Collaborative Donor Transplant Co-ordination Royal Free Hampstead NHS Trust Raigmore Hospital, Inverness DRS Collaborative Donor co-ordinators are based in Aberdeen, Dundee, Glasgow, Edinburgh and Inverness, but work throughout the country employed by NHS BT (England) 2
Ehlers Danlos Syndrome Encapsulating Sclerosing Peritonitis surgical service Epidermolysis Bullosa services Extra Corporeal life support (ECLS) (Children) Extra Corporeal Life Support (for Adults) Ex-vivo Partial Nephrectomy (EPN) Gender Identity Development (children and adolescents) Gender Reassignment Specialist surgery Heart, heart /lung and lung transplantation (including ventricular assist devices) Histopathology EQA Hydatidiform mole (see also Choriocarcinoma) Hyperbaric medicine Inpatient psychiatry for children (up to age 12) Insulin-resistant diabetes service Interventional fetal therapy Intestinal Failure Liver transplantation (adult) Liver transplantation (children) Lymphangioleiomyomatosis North West London Hospitals NHS Trust Sheffield Children s NHS Foundation Trust Cambridge University Hospitals NHS Foundation Trust Central Manchester and Manchester Children s Hospitals NHS Trust Guy s & St Thomas Hospital NHS Foundation Trust Great Ormond Street Hospital for Children Heart of England NHS Foundation Trust Newcastle Upon Tyne Hospital NHS Foundation Trust University Hospital of Leicester NHS Trust Great Ormond Street Hospital for Children University Hospital of Leicester NHS Trust Oxford Radcliffe Hospitals NHS Trust The Tavistock and Portman NHS Foundation Trust (Outreach clinic to RHSC Yorkhill, Glasgow) Male to female genital surgery Brighton Nuffield Hospital Female to male genital surgery St Peter s Andrology Centre, London Specialist construction of a male chest for transmen Manchester NHS Trust Freeman Hospital, Newcastle (Adult and child) Papworth Hospital, Cambridge (Adult) Royal Brompton & Harefield Hospital, London (Adult) Wythenshaw Hospital, Manchester (Adult) Queen Elizabeth Hospital, Birmingham (Adult) Great Ormond Street Hospital, London (Child) Ninewells Hospital Diagnosis - Ninewells Hospital, Dundee Aberdeen Royal Infirmary Cambridge University Hospital NHS Foundation Trust St Mark s Hospital, London Salford Royal NHS Trust,( Hope Hospital) Cambridge University Hospital NHS Foundation Trust King s College Hospital NHS Foundation Trust Leeds Teaching Hospital NHS Trust Nottingham University Hospital NHS Trust 3
Lysosomal storage disorders (LSDs) (diagnosis and management funded by NSCT, drug costs where included in national orphan drugs risk-sharing arrangements funded through NSD) McArdle s disease Mental health services for deaf adults (inpatient only) Molecular pathology, molecular genetics and cytogenetics Neurofibromatosis Type 1 Neurofibromatosis Type 2 Neuromyelitis optica (NMO) Newborn blood spot screening Obstetric brachial plexus surgery Ophthalmic oncology (includes ophthalmic pathology and referral for low intensity proton beam treatment where necessary) Osteo odonto keratoprothesis for corneal blindness Paediatric bone marrow transplantation Paediatric cardiac services (cardiac surgery, interventional cardiology, neonatal cardiology) Paediatric Epilepsy Surgery Paediatric Intensive Care [PICU] Paediatric renal transplantation Paediatric & young adult spinal surgical services Pancreas and simultaneous pancreas / renal transplantation Pancreas Islet Cell Isolation and Transplantation First contact should be through Scottish NMCN for metabolic services Yorkhill Hospital / Edinburgh Sick Children s Hospital Birmingham Childrens Hospital NHS Foundation Trust Cambridge University Hospitals NHS Foundation Trust Central Manchester and Manchester Children s Hospitals NHS Trust Royal Free Hampstead NHS Trust Salford Royal NHS Foundation Trust University College Hospital NHS Foundation Trust University College London Hospital NHS Foundation Trust John Denmark Unit, Manchester Aberdeen Royal Infirmary Ninewells Hospital, Dundee Western General Hospital, Edinburgh RHSC, Yorkhill, Glasgow Central Manchester and Manchester Children s University Hospitals NHS Trust Guy s & St Thomas NHS Foundation Trust Cambridge University Hospital NHS Foundation Trust Central Manchester Hospital for Children NHS Trust Guy s & St Thomas NHS Foundation Trust The Walton Centre for Neurology and Neurosurgery NHS Trust (Liverpool) Oxford Radcliffe Hospitals NHS Trust Southern General Hospital, Glasgow (Scottish Neonatal Screening Laboratory) RHSC, Yorkhill, Glasgow Gartnavel Hospital, Glasgow (proton beam therapy at Clatterbridge Centre for Oncology, Merseyside) Brighton & Sussex University Hospital NHS Trust Birmingham Children s Hospital NHS Lothian Royal Hospital for Sick Children, Glasgow Royal Hospital for Sick Children, Edinburgh Royal Hospital for Sick Children, Glasgow Royal Hospital for Sick Children, Edinburgh (Adult) 4
Paroxysmal nocturnal haemoglobinuria (diagnosis and management funded, drug costs not included Eculizumab is not SMC recommended) Persistent hyperinsulinaemic hypoglycaemia of infancy Leeds Teaching Hospital NHS Trust Kings College Hospital NHS Foundation Trust Alderhey NHS Foundation Trust/Central Manchester Children's Hospital (joint centre) Photobiology Porphyria Pregnancy screening Ninewells Hospital, Dundee Cambridge University Hospital NHS Foundation TrustCardiff & Vale University Local Heatlh BoardKings College Hospital NHS Foundation Trust Western General Hospital, Edinburgh Southern General Hospital, Glasgow (Scottish Neonatal Screening Laboratory) Pre-implantation genetic diagnosis Primary malignant bone tumours (where not covered by Scottish regional muscoloskeletal sarcoma service) Primary Ciliary Dyskinesia (diagnostic and management service) Primary pulmonary hypertension service - adults and children Prostate Cryotherapy Proton Beam Therapy (high intensity) Glasgow Royal Infirmary and RHSC, Yorkhill, Glasgow Newcastle Upon Tyne NHS Trust, (Freeman Hospital) Nuffield Orthopaedic Centre NHS Trust Robert Jones & Agnes Hunt Orthopaedic and District Hospitals NHS Trust Royal Orthopaedic Hospital NHS Trust Royal National Orthopaedic Hospital NHS Foundation Trust; Leeds Teaching Hospital NHS Trust Royal Brompton & Harefield Hospital, London University Hospital of Leicester NHS Trust Southampton General Hospital (Adults) Golden Jubilee National Hospital, Glasgow (Service provided in conjunction with Gartnavel General Hospital, Glasgow ) (Children) Yorkhill Hospital, Glasgow provided in conjunction with Great Ormond Street Hospital for Children NHS Trust, London Gartnavel General Hospital, Glasgow Currently obtained abroad, NHS England developing UK centre(s) Scottish Access via panel contact Clinical lead - Sara Edridge, NHS Lothian St James University Hospital, Leeds Pseudomyxoma peritonei of the appendix Pulmonary thromboendarterectomy Rare Mitochondrial diseases service for adults and children Rare neuromuscular disease Recombinant and commercial coagulation factors for haemostasis disorders Christie Hospital NHS Foundation Trust Basingstoke & Hampshire NHS Foundation Trust Papworth Hospital NHS Foundation Trust Newcastle upon Tyne Hospitals NHS Foundation Trust Oxford Radcliffe Hospitals NHS Trust University College London Newcastle Upon Tyne NHS Foundation Trust Oxford Radcliffe Hospital NHS Trust University College Hospital NHS Foundation Trust Glasgow Royal Infirmary 5
Reconstructive surgery for congenital malformations of the female genital tract Retinoblastoma Sacral nerve stimulation for urinary incontinence Scottish Adult Congenital Cardiac Service (SACCS) Secure forensic mental health services for adolescents Imperial College Healthcare NHS Trust Barts & London NHS Trust Southern General Hospital, Glasgow Golden Jubilee National Hospital, Glasgow Northumberland, Tyne & Wear NHS Trust, Newcastle (Ryecroft Unit) Bolton, Salford & Trafford Mental Health NHS Trust (Gardener Unit) South London & Maudsley NHS Trust (Bill Yule Adolescent Unit) West London Mental Health NHS Trust (Wells Unit) Secure (medium) forensic service for patients with learning disability Selective Internal Radiation Therapy (SIRT) for patients with metastatic colorectal cancer Severe Intestinal Disorders Severe obsessive compulsive disorder and body dysmorphic disorder service for adolescents and adults Small bowel transplantation Specialist paediatric liver disease service (including Kasai procedure) Specialist Prosthetics Service Spinal injuries (including high dependency home ventilation) Stem cell transplantation for juvenile idiopathic arthritis and related connective tissue disorders Stickler Syndrome diagnostic service Thoraco abdominal aortic aneurysm (TAAA) Transcranial Doppler Service Transport of critically ill children/ PICU retrieval Vein of Galen malformation in children Rowanbank, Glasgow and Northumberland, Tyne & Wear NHS Trust, Newcastle Royal Infirmary of Edinburgh (as part of UK Commissioning for Evaluation initiative) North West London NHS Trust Salford Royal NHS Trust South West London & St George s Mental Health NHS Trust Hertfordshire NHS Foundation Trust South London and Maudsley NHS FoundationTrust The Priory Hospital North London Oxford Radcliffe Hospitals NHS Trust(Adult) Cambridge University Hospital NHS Foundation Trust (Adult) Birmingham Children s Hospital NHS Foundation Trust (Child) Great Ormond Street Hospital for Children NHS Trust(Child) Kings College Hospital NHS Foundation Trust (Child) University College Hospital Foundation Trust King s College Hospital NHS Foundation Trust Leeds University Hospital Astley Ainslie Hospital, Edinburgh Southern General Hospital, Glasgow Queen Elizabeth National Spinal Injuries Unit, Southern General Hospital, Glasgow Newcastle Upon Tyne NHS Foundation Trust Cambridge University Hospital NHS Foundation Trust RHSC, Edinburgh and Glasgow RHSC, Yorkhill, Glasgow Great Ormond Street Hospital for Children University College Hospital NHS Foundation Trust 6
Ventricular assist devices (VADs) as bridge to heart transplant Wolfram Syndrome Golden Jubilee National Hospital Papworth Hospital NHS Foundation Trust Royal Brompton & Harefield NHS Trust The Newcastle Upon Tyne Hospitals NHS Foundation Trust University Hospital Birmingham NHS Foundation Trust University of South Manchester NHS Foundation Trust Birmingham Childrens Hospital NHS Foundation Trust University Hospitals Birmingham NHS Foundation Trust Xeroderma pigmentosum (XP) Guy s and St Thomas NHS Foundation Trust 7
National Managed Clinical and Diagnostic Networks National Managed Clinical and Diagnostic Networks are supported by National Services Division (NSD) through the National Network Management Service (NNMS). National Clinical Networks Acquired Brain Injury Care of Burns in Scotland (adult and paediatric) CoBiS Children & Young People with Cystic Fibrosis Children & Young People with Exceptional Healthcare Needs Cleft Lip and Palate CLEFTSiS Congenital Cardiac Network Congenital Diaphragmatic Hernia Network Familial Arrhythmia FANS Gender Identity Services Haemoglobinopathies Hepatobiliary and Pancreatic Cancer Inherited Metabolic Disease Paediatric Allergy Paediatric & Adult Haemoglobinopathy Paediatric Endocrinology Paediatric Immunology Deficiencies & HIV Paediatric Rheumatology Phototherapy Scottish Adult Neuro-oncology Scottish Disorders of Sex Development Scottish Muscle Network Scottish Sarcoma Network Scottish Paediatric Epilepsy Network Scottish Paediatric Renal Urology Network Visual Impairment for Children and Young People National Diagnostic Networks Scottish Clinical Biochemistry Managed Diagnostic Network (SCBMDN) Scottish Pathology Network (SPAN) Managed Diagnostic Clinical Imaging Network (MDCIN) Scottish Microbiology & Virology Network (SMVN) Other National Networks Forensic and Healthcare Services for people in Police care National Managed Service Network for Neurosurgery 8