Sexual expression in residential aged care - A person-centred approach. Education and policy

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Sexual expression in residential aged care - A person-centred approach Education and policy Michael Bauer PhD Linda McAuliffe M. Psych Rhonda Nay PhD

Background

What do we know about sexuality? Sexuality and older people? Sexual behaviours reported in aged Sexuality care -Australian is multi-dimensional and overseas Component of research quality of life and wellbeing flirting intercourse holding Wide hands range of behaviours masturbation reported in residential aged care facilities cuddling talking dirty intimate Sexuality touch remains sadomasochism meaningful for many residents fondling kissing and other displays of affection sexual identity the use of sexual materials and sexual services

The expression of resident s sexuality can be problematic Sexuality is usually not talked about unless it s the butt of humour, or perceived to be a problem by staff

Some of the problems The attitudes, skills & education of staff Not seen to be part of the role It s not our job to clean up semen Staff (and residents) are not comfortable Staff do what they think is best (act as moral guardians) Absence of good role models Some facility managers think this is an inappropriate & intrusive and/or not applicable topic

Some of the problems There is no assessment of residents needs/there is no consultation Not a part of routine care Environment not conducive- no privacy The family Behaviours are easy to dismiss if there is dementia

What information related to sexuality is provided to residential aged care consumers? Survey of all 826 residential aged care facilities in Victoria, Australia -content analysis (Neunendorf, 2002)

Sexuality - an information void Response rate poor after 3 reminders (<20%). Less than 3% addressed the topic of sexuality, love, intimacy, or relationships in the text or images used. Reminder asked for reason for nonresponse. 64% reported having no information available for staff or residents! (Bauer, Nay & McAuliffe, 2009)

Residential care survey- qualitative data Strategies employed Developing a policy (17) We address it verbally as part of our assessment (17) Allow double beds from home Allow some private time Connect adjoining rooms Contact a sex worker Referral to a social worker/psychologist if needed

Residential care survey- qualitative data cont. Strategies employed cont. Do nothing it s not relevant- dementia specific facility, nursing home, religious orientation, facility for priests/nuns too sensitive to discuss lack of staff education/training one less thing to document

Changing the culture amongst care staff Education for staff (and where relevant residents & family) Sexuality, myths & stereotypes Dealing with inhibitions Responsibilities, supporting staff/residents/family The need for assessment, life history, medical review Sexuality & dementia Understanding/interpreting residents behaviours Residents rights Consent & legal issues The need for a decision making framework

Workshop data Modified ageing sexuality knowledge & attitudes questionnaire pre/post White (1982) and Kuhn (2002) 3 hour workshops Victorian rural & regional aged care staff Pre-test n=98 Post-test n=96

Participant characteristics Female: Male: 95% 5% RN1: RN2: PCW: Other: 65% 25% 5% 5% Age 18-30: 7% 31-40: 12% 41-50: 31% 61-60: 44% 61+: 6%

Pre-test/Post-test % ** p<0.05 96 94 92 90 88 86 84 Series1 Series2 82 80 78 76 1. **Aged people have little interest in sexuality (aged = 65 + years of age). [disagree] 2. An aged person who shows sexual interest brings disgrace to himself/herself. [disagree]

100 90 80 70 60 50 40 30 Series1 Series2 20 10 0 3. Institutions such as nursing homes ought not to encourage or support sexual activity of any sorts in its residents. [disagree] 4. Male and female residents of nursing homes ought to live on separate floors or in separate wings of the nursing home. [disagree] 5. Nursing homes have no obligation to provide adequate privacy for residents who desire to be alone, either by themselves or as a couple. [disagree]

100 90 80 70 60 50 40 Series1 Series2 30 20 10 0 6. As one becomes older (say past 65 years of age) interest in sexuality inevitably disappears. [disagree] 7. If a relative of mine, living in a nursing home, was to have a sexual relationship with another resident I would complain to the management. [disagree] 8. If a relative of mine, living in a nursing home, was to have a sexual relationship with another resident I would move my relative from this institution. [disagree]

100 90 80 70 60 50 40 Series1 Series2 30 20 10 0 9. If a relative of mine, living in a nursing home, was to have a sexual relationship with another resident I would stay out of it as it is not my concern. [agree] 10. If I knew that a particular nursing home permitted and supported sexual activity in residents who desired such, I would not place a relative in that nursing home. [disagree] 11. It is immoral for older persons to engage in recreational sex. [disagree]

100 90 80 70 60 50 40 Series1 Series2 30 20 10 0 12. **I would like to know more about the changes in sexual functioning in older years. [agree] 13. **I feel I know all I need to know about sexuality in the aged. [disagree] 14. I would complain to the management if I knew of sexual activity between any residents of a nursing home. [disagree]

100 90 80 70 60 50 40 Series1 Series2 30 20 10 0 15. **I would support sex education courses for aged residents of nursing homes. [agree] 16. **I would support sex education courses for the staff of nursing homes. [agree] 17. **Masturbation is an acceptable sexual activity for older males. [agree]

120 100 80 60 40 Series1 Series2 20 0 18. **Masturbation is an acceptable sexual activity for older females. [agree] 19. Institutions such as nursing homes ought to provide large enough beds for couples who desire to sleep together. [agree] 20. Staff of nursing homes ought to be trained or educated with regard to sexuality in the aged and/or disabled. [agree]

100 90 80 70 60 50 40 Series1 Series2 30 20 10 0 21. Residents of nursing homes ought not to engage in sexual activity of any sort. [disagree] 22. Institutions such as nursing homes should provide opportunities for the social interaction of men and women. [agree] 23. Masturbation is harmful and ought to be avoided. [disagree]

100 90 80 70 60 50 40 30 Series1 Series2 20 10 0 24. **Institutions such as nursing 25. If family members object to a homes should provide privacy so aswidowed relative engaging in sexual to allow residents to engage in relations with another resident of a sexual behaviour without fear of nursing home, it is the obligation of intrusion or observation. [agree] the management and staff to make certain that such sexual activity is prevented. [disagree] 26. Sexual relations outside the context of marriage are always wrong. [disagree]

80 70 60 50 40 30 Series1 Series2 20 10 0 27. Residents who have dementia are not capable of making sound decisions regarding participation in sexual relationships. [disagree] 28. A married couple with one spouse living in the community and the other one with dementia residing in a care facility is entitled to be sexually intimate in a private place within the facility. [agree] 29. Two residents, both of whom have dementia, are entitled to an exclusive and consensual relationship but should not be sexually intimate if one of them is married to another person. [disagree]

90 80 70 60 50 40 30 Series1 Series2 20 10 0 30. **Two residents, one with Alzheimer s disease and the other who is cognitively intact, are entitled to be sexually intimate as long as they are both single and their relationship appears consensual. [agree] 31. **Two residents who are of the same sex are entitled to be sexually intimate with one another as long as their relationship appears consensual. [agree] 32. Staff should provide a private place so as to allow a male and female resident to engage in sexual activity, even though both of them are mildly impaired due to dementia. [agree]

80 70 60 50 40 30 Series1 Series2 20 10 0 33. No one should interfere in the sexual lives of residents as long as no civil or criminal laws are broken. [agree] 34. **A resident displaying hypersexual behaviour should be transferred out of the facility. [disagree]

Thank you