Access to Health Records Procedure

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Access to Health Records Procedure Version: 1.0 Ratified by: Date ratified: 11/03/2015 Name of originator/author: Name of responsible individual: Information Governance Group Medical Records Manager, Jackie Robinson Jackie Robinson Date issued: 01/04/2015 Review date: 01/04/2016 Target audience: Intranet: Related procedures: All trust staff who deal with patients health records http://freenet/trustpolicies.asp Complaints Policy and Procedure.

Version Control Sheet Version Date Author Status Comment 0.1 23/06/ 2014 0.2 31/07/ 2014 0.3 21/08/ 2014 0.4 16-10- 2014 0.5 14-11- 2014 0.6 13-01- 2015 0.7 26-01- 2015 0.8 27-01- 2015 0.9 27-02- 2015 1.0 23-03- 2015 Jackie Robinson Draft New procedural document Jackie Robinson Draft Amendments following review with policy author Jackie Robinson Draft Further amendments following review with Medical Records Dept. Jackie Robinson Draft Amendments following ICO recommendations Jackie Robinson Draft Inclusion of redaction Jackie Robinson Draft Inclusion of price tariff changes Jackie Robinson Draft Change to charges Jackie Robinson Draft Addition of access to x- rays and scans Jackie Robinson Draft Minor modifications to the forms Jackie Robinson Live Issued The Royal Free London NHS Foundation Trust is committed to creating a positive culture of respect for all individuals, including job applicants, employees, patients, their families and carers as well as community partners. The intention is, as required by the Equality Act 2010, to identify, remove or minimise discriminatory practice in the nine named protected characteristics of age, disability (including HIV status), gender reassignment, marriage and civil partnership, pregnancy and maternity, race, religion or belief, sex or sexual orientation. It is also intended to use the Human Rights Act 1998 to treat fairly and value equality of opportunity regardless of socio-economic status, domestic circumstances, employment status, political affiliation or trade union membership, and to promote positive practice and value the diversity of all individuals and communities. This document forms part of the trust s commitment, you are responsible for ensuring that the trust s policies, procedures and obligation in respect of promoting equality and diversity are adhered to in relation to both staff and service delivery Access to Health Records Procedure V1.0 2

Contents Section Page 1 Introduction 4 2 Procedure objective 4 3 Definitions of terms used 4 4 Responsibilities 4 5 Application for access to records 5 6 Time limits 7 7 Subsequent action 7 8 Monitoring 7 9 References 8 10 Associated documentation 8 Appendices Appendix A Charges 9 Appendix B Patient Form 10 Appendix C Personal Representative/ Executor/Administrator Form 12 Appendix D Checklist for the review and approval of procedural document 14 Access to Health Records Procedure V1.0 3

The trust is committed to the delivery of world-class care and expertise to both staff and patients, and our values of positively welcoming, actively respectful, visibly reassuring and clearly communicating are fundamental to the delivery of this. This procedure has been developed with our values in mind, and is intended to be implemented within the spirit of these values. 1. Introduction Individuals have a right to apply for access to health information held about them and, in some cases, information held about other people. The trust has a responsibility to ensure that requests are processed in a manner that is compliant with the Data Protection Act 1998 and the Access to Health Records Act 1990. 2. Procedure objective This document describes the procedure for accessing health records for both living and deceased patients. 3. Definitions of terms used Access - the availability of, and permission to, consult health records. Redaction the separation of disclosable from non-disclosable information by blocking out individual words, sentences or paragraphs or the removal of whole pages or sections prior to release of the record. Processing - includes everything done with that information, i.e. holding, obtaining, recording, using, disclosure and sharing. Using includes disposal, i.e. closure of the record, transfer to an archive or destruction of the record. 4. Responsibilities 4.1 Health Records Manager 4.2 Staff Responsible for planning and documenting the health records department's policies & procedures. Collate, organise, retrieve and archive the record of a patient, for the purpose of recording and informing their care. Understand their rights and obligations, legal or otherwise, with regard to protecting the confidentiality and security of patient information throughout and after employment with the trust. Challenge and verify where necessary the identity of any person who is making a request for confidential information and determine the validity of the reason for requiring that information. Report actual or suspected breaches of confidentiality to their line manager and complete an incident report form. Ensure the security of confidential personal information whilst it is in their possession and when being transferred from one person or organisation to another. Ensure all legal, audit and governance requirements are adhered to. Participate in basic records handling training as part of staff induction. Partake in annual information governance training. Please refer to the full list of staff responsibilities in the Overarching Information Governance Policy. Access to Health Records Procedure V1.0 4

Failure to apply controls in handling personal data and/or failure to follow the guidelines and legislation as outlined in this procedure could result in a member of staff facing disciplinary action. A copy of the disciplinary procedures is available on freenet and from the workforce department. 5 Application for access to records 5.1 Access to a patient s own records Requests must be made in writing and signed and dated by the patient. The trust needs to be satisfied as to the identity of the patient to ensure that the patient is entitled to the records they are seeking. If identity is requested, this must be photographic in the form of a passport or photo card driving licence. Check with the applicant what information is required. Once the medical records department receives the request for access to records, the request is entered onto the trust s risk management database, Datix. Request appropriate fee. Refer to Appendix B for the list of charges. Release the record, upon payment of fee. 5.1.1 Viewing records only If the patient just wishes to view their records, the patient needs to contact the medical records department, where a representative of the team will arrange to meet with the requestor within two weeks of the original request and be present when they view the notes in a private setting. Patients are advised in advance that clinical questions cannot be answered. Viewing of the record is supervised at all times to ensure the safety and completeness of the notes. 5.2 Access by a patient representative If a patient has authorised a representative to access their health records on their behalf, the request must be made in writing; clearly identifying the patient in question and the records required, together with the patients written authorisation. Photographic identification of the requestor may also be requested. 5.3 Requests for Access to Records for deceased patients In the case of deceased patients, when the person has died, their personal representative, usually the executor or administrator of the estate, or anyone having a claim resulting from the death, has the right to apply for access to the deceased s health records. Proof of entitlement, in the form of letters of administration, grant of probate, or a certified copy of the will, from the person making the request must be sought. All templates can be located in Appendix C. 5.4 Recording Access Requests All access requests will be logged upon receipt onto the trust s risk management database Datix. When a request is entered against a patient s name, date of birth or the patient s unique identification number (MRN), the database will flag up if there are any previous access requests. Access to Health Records Procedure V1.0 5

Note, Datix isn t in use at Barnet and Chase Farm Hospitals. Excel spreadsheets are utilised until Datix is implemented. 5.5 Authorisation At the Royal Free hospital not all healthcare records will be reviewed and authorised by a clinician before release. The following exceptions apply: Psychiatric case notes Children under the age of 18 In these circumstances, the relevant department will be contacted and the notes reviewed by the clinician prior to release of the record. At Barnet and Chase Farm Hospitals all clinical notes are checked before release. 5.6 Redactions The process of redaction must be followed as information may be withheld if: the information is supplied by or relates to another individual or third party e.g. family members the information is likely to cause serious harm to the mental or physical health of any individual 5.6.1 Principles of redaction Redaction should be carried out on a copy of the original record, whether paper or electronic, never on the record itself. This ensures that while the redacted information is permanently removed from the copy of the record (which can then be made accessible providing the redacted information is not reversible) the original text remains in the original format. Redaction should never result in the complete removal of text or information from a record. Reviewers should check indexes and earlier statements in a document to ensure that they do not suggest or contain details of the redacted material. Redaction should only be performed or overseen by staff that are knowledgeable about the records and can determine that material is exempt. 5.7 Release of information Prior to the release of information, the access team will issue an invoice for the photocopying/viewing of records. Information released to solicitors: An automatic fee of 50 will be charged. Upon receipt, notes will be sent via an electronic portal. Information released to patients A fee of 25p per copy will apply for the photocopy of records (see charges in Appendix A). Upon receipt of payment: o Patients can choose whether to receive the notes electronically or in paper. Access to Health Records Procedure V1.0 6

o o o Paper copies of records will be sent to the applicant via recorded delivery, enclosed in a tyvek sealed envelope clearly marked Private and Confidential, to be opened by addressee only. Records collected by the applicant or authorised collector will be released on presentation of photographic identification and the appropriate forms signed. The signature should be checked before the records are released. All responses to the request for clinical notes including documents released, exempted information and copies of any redactions must be logged. Release of X-rays and scans For patients requiring access to X-rays and scans: Photocopy the patient access form and send to the diagnostic imaging department via internal mail. After the request has been evaluated and cleared for release, a CD will be produced and sent out to the patient directly. The imaging department charge a 20 flat fee per request. Barnet and Chase Farm Hospitals are piloting sending notes via an electronic portal. Following implementation, it is proposed that the Royal Free Hospital will also implement the same process. 6. Time limits Requests for access to health records are to be processed in a prompt and efficient manner, and copies provided as soon as possible but within a period of: 40 calendar days following receipt of a valid request. If for any reason the trust is unable to meet this deadline, the applicant will be informed. 7. Subsequent Action 7.1 Complaints The organisation has procedures in place to enable complaints to be addressed. Please refer to the trust s Complaints Policy and Procedure. 7.2 Requests to rectify / delete data If, after accessing the record, the patient feels that information recorded on their health record is incorrect, the verbal or written request needs to be passed for the immediate attention of the health records manager. The patient must make clear his/her identity, the personal data to which he/she refers and what should be done to correct that personal data. a) If the health record is perceived to be inaccurate or the patient disagrees with the content the clinician will usually cross the record in a way that makes it clear an alteration has been made and why. b) The trust suggests, in line with good practice, that the patient is allowed to include a statement in their record that they disagree with specific parts of their record. 8. Monitoring The implementation and subsequent revision of this procedure will be maintained and reviewed by the health records department and ratified by the IGG. Access to Health Records Procedure V1.0 7

9. References The Data Protection Act 1998 Guidance for Access to Health Records Requests, Department of Health, February 2010 10. Associated documentation 10.1 Related policies Access to Health Records Policy. Access to Health Records Procedure V1.0 8

Appendix A Charges The following charges will apply: 1. Solicitors Charges The following charges will be made if a solicitor requests a copy of the health record A flat fee of 50 This is the maximum fee as prescribed by the Secretary of State. All requests from solicitors must be communicated with a password. Following receipt of a password, the record will be released with a unique reference number. This will serve as the password to enable access to the electronic record. 2. Patient Charges Where a copy of the record is requested: Health records held manually, in part or full: a minimum charge of 10 with copies of up to A4 size charged at 25 pence a copy up to a maximum of 50. Where the patient wishes to view their record (where no copy is required) the charges are: Health records which have been amended during the last 40 calendar days preceding the request: no charge Health records which have not been amended during the last 40 calendar days preceding the request: no charge if the record is readily available within the services current records, 5 if the records are available from a local archive facility and 10 if the record has to be retrieved from the corporate archive. If, as a result of viewing the record the patient requests a copy, this should be treated as a single access request and the fees above applied: 10 minimum fee with copies charged at 25 pence a copy up to a maximum of 50. 3. Addresses for payment Fees are to be made payable to: The Royal Free London NHS Foundation Trust and sent to whichever hospital the access request was directed to. Addresses are as follows: The Access Team, Medical Records Department, Royal Free Hospital, Pond Street, London, NW3 2QG. Medical Records Department, Barnet Hospital, Wellhouse Lane, Barnet, Hertfordshire, EN5 3DJ. Medical Records Department, Chase Farm Hospital, 127 The Ridgeway, Enfield, Middlesex, EN2 8JL. Access to Health Records Procedure V1.0 9

Appendix B Patient Form Application for Access to Health Records by a Patient/ Patient Representative If you are completing on behalf of a third party e.g. solicitor and/or their agents, please refer to the solicitors own access to health records form. Applicant details (please print all details) Full Name: Address to which a reply should be sent: Telephone Number: Email: Relationship to patient: Details of patient (if different from above) Full Name (including any former names): Current Address: Former Address: Telephone Number: Date of Birth: NHS Number (if known): Records to be accessed. Please tick all that apply: Also include the period or part of the health record required. This may include specific dates, consultant name, location, written diagnosis or certain reports. Dates requested: From: To:. X-rays* Blood results * Scans * Physiotherapy notes/reports Report from A&E attendance All of the record (including the above) *Not normally held in the record FEES I am applying for access to my health records under the Data Protection Act 1998. I understand that under the Data Protection Act [Fees and Miscellaneous Provision] Regulations 2001, there may be a charge for me to view, or to be provided with, a copy of Access to Health Records Procedure V1.0 10

my health record. I understand that any fee is payable before access to my records will be granted. Please tick the appropriate box: Payment on collection Post on receipt of payment Applying for Access Please tick the appropriate box below: I am the patient and am applying for access to view my health record I am the patient and am applying for a copy of my health record I represent the patient; consent has been granted and I attach written authorisation I have parental responsibility for the patient and am acting in loco parentis. The patient is under the age of 18 and is either incapable of understanding the request or has consented to my making the request. The trust is not obliged to comply with your request unless we receive sufficient information to identify you and are able to locate the information held about you. There may also be limited occasions upon which the trust may refuse to provide you with details contained within the health record. Authorisation: I authorise the family representative, named below to apply for access to my health record under the Data Protection Act 1998. Name of representative: Representatives signature: Relationship to Patient: Date: Declaration: I declare that the information given by me is correct to the best of my knowledge and that I am entitled to apply for access to the health record referred to above under the terms of the Data Protection Act 1998. Name: Signature of Patient: Date: Please send the completed application to the Hospital where the access request was made: Royal Free London NHS Foundation Trust Access Team Medical Records Department Royal Free Hospital Pond Street London NW3 2QG Royal Free London NHS Foundation Trust Medical Records Department Barnet Hospital, Wellhouse Lane Barnet Hertfordshire EN5 3DJ. Royal Free London NHS Foundation Trust Medical Records Department Chase Farm Hospital 127 The Ridgeway Enfield Middlesex EN2 8JL. Access to Health Records Procedure V1.0 11

Appendix C Access to a Deceased Persons Health Record Application for Access to a Deceased Persons Health Records This form is only to be used for access to a deceased person s health record under the terms of the Access to Health Records Act 1990. If you are completing on behalf of a third party e.g. solicitor and/or their agents, please refer to the solicitors own access to health records form. Applicant details (please print all details) Full Name: Address to which a reply should be sent: Telephone Number: Email: Relationship to patient: Details of patient Full Name (including any former names): Date of Birth: Date of Death: NHS Number (if known): Last Address: Former Address(es): Records to be accessed. Please tick all that apply: Also include the period or part of the health record required. This may include specific dates, consultant name, location, written diagnosis or certain reports. Dates requested: From: To:. X-rays* Blood results * Scans * Physiotherapy notes/reports Report from A&E attendance All of the record (including the above) *Not normally held in the record Access to Health Records Procedure V1.0 12

FEES I am applying for access to a deceased person s health records under the Access to Health Records Act 1990. I understand that there may be a charge for me to view, or to be provided with, a copy of the record. I understand that any fee is payable before access to my records will be granted. Please tick the appropriate box: Payment on collection Post on receipt of payment Applying for Access Please select one of the following: I am the deceased patient s personal representative and attach confirmation of my appointment. A personal representative is formally appointed to administer an estate of someone who has died. The trust will need to see evidence of an appointment to be a personal representative, which would include documents such as grants of probate, grants of letters of administration or a certified copy of the will. I have a claim arising from the patient s death and wish to access information relevant to my claim. There is no definition of what will be classed as a claim, and the trust will consider each request on a case-by-case basis. In order to assist the trust, it would be of assistance if as much information as possible, relating to the claim and its circumstances, could be set out below. The trust is not obliged to comply with your request unless we receive sufficient information to identity you and to locate the information held about you. Declaration: I declare that the information given by me is correct to the best of my knowledge and that I am entitled to apply for access to the health record referred to above under the terms of the Health Records Act 2010. Print Name: Signature: Date: Please send the completed application to the Hospital where the access request was made: Royal Free London NHS Foundation Trust Access Team Medical Records Department Royal Free Hospital Pond Street London NW3 2QG Royal Free London NHS Foundation Trust Medical Records Department Barnet Hospital, Wellhouse Lane Barnet Hertfordshire EN5 3DJ. Royal Free London NHS Foundation Trust Medical Records Department Chase Farm Hospital 127 The Ridgeway Enfield Middlesex EN2 8JL. Access to Health Records Procedure V1.0 13

Appendix D - Publication and Communication checklist Title of document: Access to Health Records Procedure Date finalised: 11/03/2015 Dissemination lead: (print name and contact details) Previous document Yes already being used? Jackie Robinson Ext 36982 If yes, in what format and where? Proposed action to retrieve out-of-date copies of the document: Electronic on freenet Remove out-dated policy from trust intranet To be disseminated to: How will it be disseminated, who will do it and when? Paper or electronic Comments Information Governance Group Email, hand delivered committee papers Both For approval IGG 11/03/2015 Staff Available on freenet policies and procedures Electronic Once approved policy will be available for intranet download Date put on register / library of procedural documents 1 April 2015 Date due to be reviewed 1 April 2016 Disseminated to: (either directly or via meetings, etc.) Format (i.e. paper or electronic) Date dissemi nated No. of copies sent Contact details / comments Simon Stewart Electronic 06/03/15 1 For ratification by IGG Sue Cleiff Electronic 23/03/15 For upload to freenet Access to Health Records Procedure V1.0 14