Blue Button Use to Access and Share Health Record Information

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Blue Button Use to Access and Share Health Record Information Carolyn L. Turvey, Ph.D. 1. Comprehensive Access and Delivery Research and Evaluation Center Iowa City VA Health Care System Department of Veterans Affairs; Carolyn.Turvey@VA.Gov 2. Health Services Research and Development ehealth Quality Enhancement Research Initiative; 3. Department of Psychiatry University of Iowa Carolyn-Turvey@UIOWA.Edu

Acknowledgements This study was funded by the VA HSR&D ehealth QUERI- RRP 11-407 and conducted in collaboration with the My HealtheVet Program Office, Veterans and Consumers Health Informatics Office- Department of Veterans Affairs. CO-AUTHORS: Dawn Klein M.S.W., Gimmae Fix Ph.D., Timothy P. Hogan Ph.D., Susan Woods Ph.D., Steven R. Simon M.D., Mary Charlton Ph.D., Mary Vaughan-Sarrazin Ph.D., Donna Zulman M.D., Lilian Dindo Ph.D., Bonnie Wakefield Ph.D. Gail Graham Ph.D., Kim Nazi Ph.D. FACHE

Background Institute of Medicine identified care coordination as one of 20 national priorities to improve the quality of healthcare. Priority Areas for National Action; Transforming Health Care Quality 2003 Sharing of health information between providers and health care systems is a core component of care coordination

2005 Commonwealth Fund International Health Policy Survey- Schoen et al. Health Affairs 2005 35 Percent Reporting Care Coordination Problem 30 25 United States 20 Canada Germany 15 Australia United Kingdom New Zealand 10 5 0 Information Not Received or Duplicate Tests Ordered

Poor Communication for Primary Care/Specialist Referral - O Malley et al. Archives of Internal Medicine 2011 Primary Care/Specialist Consultation 62% PCPs Received Consultation Results 69% PCPs Send Referral Information 80% Specialists Send Consultation Results 35% Specialists Receive Referral Information

View online, download, and transmit their health information Promotes EHRs to address gaps in communication and care coordination Stage 2 promotes PATIENT meaningful use

The Blue Button? I wonder what on earth the Blue Button is!

The Blue Button Registered service mark of the US Department of Health and Human Services Clickable blue circle on online patient portal page Provides patient access to view, download, or print their information to share with trusted others Will soon allow patients to transmit electronically their health summary

Blue Button Pledge VA, Department of Defense, Medicare offer the Blue Button Hundreds of other organizations, including hospitals, providers, and medical application providers, and pharmacies have adopted the Blue Button. Blue Button Pledge We pledge to make it easier for individuals and their caregivers to have secure, timely, and electronic access to their health information. We further encourage individuals to use this information to improve their health and their care. http://www.healthit.gov/patients-families/pledge-members

What is My HealtheVet? VA s combined personal health record and patient portal Launched in November 2003 VA Blue Button deployed in August 2010

My HealtheVet Allows viewing of medical record, online prescription refill, secure messaging, appointment viewing. As of May 31 st 2014 there were 2,826,395 registered users Blue Button Feature Provides a quick executive summary of veterans VA health care and information As of May 31 st 2014, there were 1,037,273 unique users of the Blue Button As of May 31 st 2014, 7,044,171 files have been downloaded

METHODS VA Health Services Research and Development- ehealth Quality Enhancement Research Initiative Online American Customer Satisfaction Index (ACSI) Survey Qualitative Interviews 22,756 MHV Users Fielded March through May 2012 Boston and Iowa key stakeholders Conducted July 2012-January 2013

Unified Theory of Acceptance and Use of Technology- Venkatesh et al. MIS Quarterly 2003 Performance Expectancy Relative Advantage Perceived Usefulness Use of Blue Button Effort Expectancy Perceived Ease of Use Complexity Social Influence Subjective Norm Facilitating Conditions Perceived Behavioral Control

Key Research Questions What proportion of My HealtheVet Users are using the Blue Button? For those who aren t using the Blue Button- Why not? Low Knowledge Perceived Ease of Use Relative Advantage What user characteristics predict use of the Blue Button? How are Blue Button users using the Blue Button? What do Blue Button users value in the Blue Button? Perceived Value Are Blue Button users using it for information sharing? What value do Blue Button users perceive in using it for information sharing with non-va providers? What predicts use of the Blue Button for information sharing with non-va providers?

American Customer Satisfaction Index Sampling conditions Loyalty Factor: 4 pages Sampling Percentage: 4% Acceptance rate about 38% Time period March 12. 2012 May 21, 2012 Number of completed surveys 18,398

What Proportion of My HealtheVet Users Use the Blue Button? 4 33 Current Users Never Used Tried Only Once or Twice 63

Why My HealtheVet Users did not Use the Blue Button? 61% Did not know what the Blue Button is Of those who were aware of the Blue Button: 34% did not know how to use it 26% said they only use portal for prescription renewal 11% said they prefer other methods to keep track of health information

User Characteristics and Their Association with Blue Button Use Self-rated computer ability, having a system for organizing one s health information, and male gender were associated with Blue Button use. Age and self-rated health WERE NOT associated with Blue Button use.

What information were you interested in? 80 70 60 % 50 40 30 20 10 0 My Laboratory Results My Current VA Medications My VA Medication History A list of my Providers

Veteran-Reported Impact of the Blue Button The Blue Button Feature Helps me understand my health history better because all the information is in one place 73% Makes it easier to monitor lab results 72% Makes it easier for me to give others, such as healthcare providers or family members, important medical information 68% Helped me better manage my health in general 65% Helped me to go to my medical appointments at the appropriate time 56% Understand better which medications I need to be taking 54%

Care outside the VA- 44% of Blue Button Users have Providers who are not Affiliated with the VA How do your Providers Communicate? 60 50 52 40 30 % 20 10 0 I Share Information 15 15 13 I Don't Know They Don't M.D.s Mail or Fax 2 M.D.s Phone

Blue Button Sharing and Helpful/Usefulness 21% of Blue Button Users Shared their Blue Button print out with a Non-VA provider. How helpful do you think your care provider found the Blue Button information in making decisions about your care?

What did your provider do with the Blue Button print out? 50% Review recent laboratory results 37% Filed it in my medical record 37% Reviewed my complete medication list 9% Did not look at it

What predicted use of Blue Button for Care Coordination with non-va providers? Predictor Odds Ration (95% C.I.) Self-Rated Internet Ability 1.5 (1.2-1.9) Values having their own copy of their medical record Has a system to organize their health information 1.1 (1.0-1.3) 1.6 (1.3-2.0) Diabetes 1.4 (1.1-1.7) Lung Disease 1.5 (1.2-1.9)

Qualitative Interviews Non-VA Providers Communication with VA providers is unsystematic, highly variable, and relies primarily on the patient. With VA, we get nothing. With we need something we have to call the VA or have the patient acquire it. We have nothing is ever sent automatically from the VA. And most of the time I don t even know that they see the VA.....I don t know they re a VA patient.

Non-VA providers Review of the Blue Button Print Out It s not that the information is not useful, it s just that it s, it s displayed over too many pages. Would like to receive the information electronically before the clinic visit with the veteran. Desired content features: medication, lab results, problem list, allergies, immunizations. Would like most recent clinic note. Laboratory and vital information presented in trending format.

Conclusions Approximately 1 in 3 My HealtheVet Users use the Blue Button. Biggest barrier to use of the Blue Button was low awareness, not low perceived value. Usability was still a barrier for those who tried the Blue Button. Self-Rated Computer Ability was one of the strongest predictors of full Blue Button use.

Conclusions Most valued feature for Blue Button was having all of one s health information in one place. Viewing laboratory information and medication history was also highly valued.

Conclusions 1 in 5 Blue Button users who had non-va providers used it to share health information. Most providers found this information helpful.

Next Steps: Veteran Initiated Electronic Care Coordination Veterans Health System (VHA) Office of Rural Health (ORH) Gina Capra, M.P.A. Director, VHA Office of Rural Health Health and Human Services (HHS) Office of the National Coordinator for Health Information Technology (ONC) Leila Samy, MPH Department of Veterans Affairs (VA) My HealtheVet Program Office Kim Nazi, Ph.D., FACHE

VA Blue Button Within the Blue Button, Veterans can now choose to create a custom data report or Continuity of Care Document (CCD) The Continuity of Care Document summarizes information taken directly from the VA medical record. The CCD is available in PDF or XML format. 31

Step One: Training 10- Minute Training video - step-by-step how to generate a Continuity of Care Document (CCD) and importance of sharing with non-va providers http://www.ruralhealth.va.gov/media/bluebutton/story.swf Written Training Materials

Step Two: Veteran Initiated Health Information Exchange Paper-based or electronic transfer of CCD to critical access hospital and/or non-va points of care Eventually, most transfers will be electronic Veterans can choose how to transfer Planned outpatient visit with non-va rural community provider Provider survey of impact of information on visit Veteran satisfaction survey Complete medical records

Step Three: Evaluation of Patient Outcomes Medication Reconciliation Duplicate Laboratories Therapeutic Duplication Cost Impact

Questions? Who said I wanted to be the center of things?