KANSAS GUARDIANSHIP PROGRAM

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KANSAS GUARDIANSHIP PROGRAM 2003 Annual Report July 1, 2002 June 30, 2003...a partnership involving the State of Kansas and its citizen volunteers.

A Report to Governor Kathleen Sebelius Chief Justice Kay McFarland the 2004 Legislature the People of Kansas Prepared Pursuant to K.S.A. 74-9601 et seq., as amended. 2003 ANNUAL REPORT 1

2 2003 ANNUAL REPORT

The Vision The goal of the Kansas Guardianship Program (KGP) is to provide that qualified, caring, willing and trained persons are available throughout the State to serve as court appointed guardians and/or conservators for those program eligible persons in need of this level of protection and advocacy, and those non-adjudicated persons who elect to have a voluntary conservator, and who do not have family members willing or able to assume such responsibilities. The Kansas Guardianship Program was initiated in 1979 under the administration of Kansas Advocacy and Protective Services, Inc. The 1995 Kansas Legislature established the program as a separate public instrumentality pursuant to K.S.A. 74-9601 et seq., as amended. The KGP is governed by a seven member board of directors, six of whom are appointed by the Governor and one by the Chief Justice. Funds are provided by the State of Kansas. BOARD OF DIRECTORS The Honorable Frank Yeoman, Jr., Chair Topeka Senator Janis K. Lee Vice Chair Kensington James Maag Topeka Eloise Lynch Salina Jack E. Dalton Dodge City John D. Bennett Pittsburg Senator Donald Betts, Jr. Wichita Executive Director M. Jean Krahn 2003 ANNUAL REPORT 3

The Purpose Every year many Kansans are declared legally unable to manage their lives and financial affairs. Most of the people have family members who are appointed by the courts to serve as guardians and/or conservators. There are, however, a significant number of adults who have been abandoned by families, or who have families unable or inappropriate to provide the necessary care involved in guardianship/ conservatorship. Kansas is unique in the country in that, on a statewide basis, citizen volunteers are appointed guardians/conservators for those program eligible persons adjudicated by the court and in need of this level of protection and advocacy. The Kansas Guardianship Program serves persons who are, essentially, the adult wards of the State. The program strives to... encourage respect for the rights and dignity of all Kansans. Kansas is unique in the country... The KGP recruits volunteers willing to advocate for and protect the rights of these vulnerable, at-risk people. We maintain that, if a guardianship and/or conservatorship is imposed, the ward/conservatee should be assured the benefits of positive efforts by the guardian/conservator - efforts (relationships) that will assure the person of someone to act as an advocate and protector. The program strives to advocate for and protect the rights of persons with disabilities in ways that recognize the interdependence of all individuals and encourage respect for the rights and dignity of all Kansans. 27% of the volunteers have served 10 or more years and 60% have served 5 years or more. 4 2003 ANNUAL REPORT

The Process It is a significant matter to ask volunteers to accept both legal and moral responsibility for the well-being of a person unrelated and, probably, previously unknown to them. Nonetheless, the KGP does ask for this considerable personal commitment from the individuals who agree to become KGP volunteers. Volunteers maintain regular contact with the ward and conservatee through personal visits, phone calls and other efforts. In their legal capacity as guardians and conservators, volunteers advocate for or take action on behalf of the ward/conservatee to access services including physical, psychological and emotional care and treatment. They also monitor the quality of those supports and services. Additionally, they provide consents and maintain communication with service providers such as case managers, facility staff and medical providers; and assume responsibility for the paperwork necessary in accessing appropriate benefits such as Social Security and Veteran s pensions. Finally, they are required to provide the court with annual documentation on the status of the ward and the finances of the conservatee. Volunteers in the program are asked to make a long-term commitment to their ward/conservatee. For some individuals that may extend to the rest of their life or the life of the ward/ conservatee. Caring and loving relationships develop and the guardian becomes, many times, the one person with long-term involvement in the ward s life. In reviewing our records over the year, we find that approximately 27% of the volunteers have served in the program for 10 or more years and 60% have served for 5 years or more. That represents an outstanding commitment to their wards/conservatees and to the program. This model involves a collaborative working relationship with The Kansas Department of Social and Rehabilitation Services (SRS). Persons served by the KGP are identified by SRS. Adult Protective Services and State hospital social workers make formal requests to the KGP for an approved volunteer who may be nominated to the court for appointment as guardian/conservator or voluntary conservator. The individuals served generally are dependent upon public support. Referrals to the KGP are considered after all other less restrictive alternatives have been exhausted. The needs of the potential ward and conservatee are matched with the abilities and interests of the volunteer. SRS legal services petitions the court for the hearing to determine the need for guardianship and/or conservatorship. The District Court determines the need for and level of guardianship and/or conservatorship services and makes the appointment of the guardian/conservator. After a KGP volunteer is appointed as the guardian/conservator, the KGP contracts with the volunteer to provide a high level of advocacy and protection to the ward/conservatee; requires a written monthly report of activities undertaken on behalf of the ward/conservatee; provides a small monthly stipend to the volunteer to offset outof-pocket expenses for services provided on behalf of the person(s); and, provides ongoing training of and support to the volunteer in order to enhance the quality of life of the persons they serve. AGE OF WARDS/ CONSERVATEES SERVED 35% 35% 30% 27% 25% 20% 18% 15% 12% 10% 8% 5% 0% 18-39 40-59 60-79 80-89 90+ 2003 ANNUAL REPORT 5

The Achievements Guardians and conservators provide a check and balance on the services system. The more than 825 guardians and conservators currently volunteering with the KGP, through their legal authority, have access to group homes, nursing facilities, public institutions or residences of their wards and conservatees. Their advocacy and protective efforts frequently extend to a roommate or another resident. A guardian s very presence can afford a sense of safety, protection and security. OF SIGNIFICANCE IN 2003 During fiscal year 2003, the KGP volunteers provided guardianship/conservatorship services to 1617 wards and conservatees. On June 30, 2003, approximately 825 volunteers were serving in the program. Over the years, approximately 3276 Kansans have been recruited to serve as volunteers in the program. It is estimated that, on the average, a volunteer spends at least ten hours or more each month working on issues related to the ward/ conservatee. A large bed, private IMR (Intermediate Mental Retardation Facility) closed. This means an additional 20 individuals with KGP guardians/conservators moved, into community living....the KGP volunteers provided...services to 1617 wards and conservators. 80% 70% 60% 50% 40% 30% 20% 10% 0% KEY TYPES OF GUARDIANSHIP/ CONSERVATORSHIP 70% G&C G ONLY C ONLY 22% 8% G&C G Only C Only Guardian & Conservator Guardian Only Conservator Only The KGP provides information, consultation and referral to service providers, family members and other interested groups and individuals upon request. The KGP also provides information and training programs. During the past year, the KGP provided such assistance to more than 3500 persons and agencies. Budget allotments due to reduced state revenues resulted in the closure of the Kansas City office and the elimination of a staff position. The KGP Board of Directors actions included, approval of the FY 2004 budget proposal for submission to the Governor and the performance of the annual audit required pursuant to K.S.A. 74-9601 et seq. The KGP publishes and disseminates A Guide To Kansas Laws on Guardianship and Conservatorship. The KGP provides The Guide and other guardianship information at the new website www.ksgprog.org. 6 2003 ANNUAL REPORT

The Future Adult protection concerns, of which guardianship plays a major part, are receiving increased attention throughout the country. Studies done on the national level point out that we are experiencing the aging of a nation. As advances in medical technology prolong life, more people are living longer and many will need some form of protection through substitute decision makers such as guardians and conservators. In addition, young adults with conditions that severely limit their ability to manage their lives and financial affairs are receiving services in a wide variety of programs operated by public and private providers throughout the State. Guardianship and conservatorship is an important part of protective services, but must always be viewed with caution since it represents the most restrictive and intrusive of the possible interventions available. There are situations in which guardianship is pursued without consideration of alternative measures. At times we see attempts to use guardianship/conservatorship as a mechanism for bill collecting, to address fears of liability, and, sometimes, to control disruptive or uncontrolled behavior (usually unsuccessfully). While such basic problems may need to be addressed, often reasonable alternatives to guardianship/conservatorship are not considered. Kansas statutes provide for advance directives and durable and health care powers of attorney; however, there is a need, on a statewide basis, for other community based interventions that may reduce the need for guardianship and conservatorship. These may include bill paying services, representative payee programs, and crisis intervention alternatives such as respite care and mediation services. RECOMMENDATIONS Medical and other service providers need to be informed of the responsibilities of and limitations of guardians and conservators. This could include information on when guardianship is appropriate. As services for persons with developmental disabilities, mental illness and aging related illnesses become more widely dispersed in community settings throughout the State, attention should be focused on assuring that formal mechanisms are in place to provide for protection of these individuals from abuse, neglect and exploitation. 60% 50% 40% 30% 20% 10% 0% DISABILITY OF WARDS/ CONSERVATEES SERVED 58% 17% 16% 8% DD MI AGING DD/MI OTHER RESIDENCE OF WARDS/ CONSERVATEES SERVED 40% 38% 35% 30% 30% 25% 20% 17% 15% 10% 6% 5% 5% 4% 0% 1% OH NF CR NF/MH SH ICF/MR KEY DD Developmental Disability MI Mental Illness AGING Aging DD/MI Developmental Disability/Mental Illness OTHER Other KEY OH Own Home NF Nursing Facility CR Community Residence NF/MH Nursing Facility for Mental Health SH State Hospital ICF/MR Nursing Facility for Mental Retardation 2003 ANNUAL REPORT 7

The People A TRIBUTE TO KGP VOLUNTEERS On behalf of the State of Kansas, we express our appreciation to the hundreds of Kansans who have volunteered to become legally responsible for the wellbeing of their neighbors in need. As guardians and conservators, these individuals exemplify commitment to their community as well as respect and dignity for all Kansans. Volunteers Assume Legal Responsibility and Duties KGP volunteers as guardians and conservators take on the responsibility of making decisions and advocating on behalf of another person in both the personal and financial aspects of their lives. They become an advocate, a voice, a friend. They take an active role in accessing and monitoring the quality of needed supports and services. Advocacy and protective efforts often extend to a ward s roommate or another resident, their presence can afford a sense of safety, protection and security. Volunteers Make a Difference Volunteers often form deep bonds with the person in their care and many times include them in family and holiday celebrations, and other activities. KGP volunteers, on many occasions, extend themselves beyond the legal responsibilities. The volunteers choose to be there for the person. Frequently they are the one constant in the individual s life. The following are a few examples of what guardians have chosen to do: Used their own funds to purchase clothing or needed items when the ward s resources were insufficient Stayed by the person's bedside during hospitalization or when the person was dying Traveled across the state to take a ward to visit family - at the guardian s own expense Sewn and mended clothing for the person Planted a tree and installed a bird bath at the nursing home in memory of the ward Long Term Commitment The KGP would not be possible without the dedication of their volunteers. KGP volunteers donate many hours and often their own resources in helping the people they serve. Approximately 825 volunteers are currently serving through the KGP 27% of the volunteers have served 10 or more years 60% have served 5 years or more There is a special group of 15 volunteers that KGP wishes to recognize. These volunteers have served for 20 or more years as guardians and conservators through the program. They are: Marian E. Arrington, Douglass Penny Berry, Fort Scott Lois Blad, Belleville Richard Briggs, Milford Catherine Burns, Wichita Pat Jordan, Goodland Nikki Kasjaka, Pittsurg Ladonna Knight, Lebo Thomas Leising, Topeka Donald Mather, Overland Park Mary C. McBratney, Wichita Ethelbert Payne, Wichita Anne B. Romig, Topeka Wayne Stalnaker, Leavenworth Susanne Thole, Marion 8 2003 ANNUAL REPORT

The Budget KANSAS GUARDIANSHIP PROGRAM FISCAL YEAR 2003 BUDGET Expenditures By Object Salaries and Wages...$516,338.00 Contractual Services...465,813.00 Commodities...15,519.00 Capital Outlay...0.00 Total Expenditures $997,670.00 Expenditures by Fund State General Fund... $997, 670.00 FTE Positions...12.0

Kansas Guardianship Program Main Office 3248 Kimball Avenue Manhattan, KS 66503-0353 (785) 587-8555 1-800-672-0086 www.ksgprog.org Wichita 1333 N. Broadway Suite B Wichita, KS 67214 (316) 269-2525