SNOMED CT in action in Belgium First implementation approaches and examples

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SNOMED CT in action in Belgium First implementation approaches and examples A. D Havé Chief of terminology, classification, grouping & audit Member of the General Assembly of IHTSDO Paris Ministère de la Santé 13/10/2015

Presentation Overview Introduction National Action Plan e-health 2013-2018 National Release Center Terminology Center Support effective implementation of SNOMED CT First implementation results, some examples Conclusion

Introduction Belgium joined the International Health Terminology Standards Development Organisation (IHTSDO ) in September 2013 following a strategic decision to adopt SNOMED CT as the main Belgian health system s clinical terminology. http://www.ihtsdo.org/member/belgium terminologie@health.belgium.be http://www.terminology-center.be

National Action Plan e-health 2013-2018 Actionplan e-health: healthcare infomatization 2013-2018 (www.rtreh.be) Organisation of a Round Table Conference at the end of 2012 with regards to the healthcare informatization process Approved by the Interministerial Conference of April 29th 2013 Brought up to date in 2015 Validation of the updated plan on October 14th 2015.

National Action Plan e-health 2013-2018 The action plan is structured around five pillars The exchange of information by health care providers based on a common architecture; The increase of the involvement of the patient and his knowledge on e-health; The realization of a national terminology policy; The administrative simplification and efficiency; The introduction of a flexible and transparent governance structure in which all relevant authorities and stakeholders are involved.

National Action Plan e-health 2013-2018 Develop a national terminology policy Installing a national terminology center Providing the necessary tools The development of a reference thesaurus, primarily based on SNOMED-CT Mapping with various coding systems Development of an electronic platform with Evidence Based Practice guidelines and information Providing a standard user interface Incremental implementation plan tailored to different users

National Release Center Terminology Center National Release Center is a part of the FPS of Health, Food Chain Safety and Environment

National Release Center Terminology Center Primary contact point for IHTSDO regarding all aspects of management of SNOMED CT Support effective implementation and deployment of SNOMED CT Optionally produce and distribute a National SNOMED CT Extension National distribution and licensing of SNOMED CT Primary contact point for Affiliates in the country National Release Center (NRC) Document, report and support requests for proposed updates and enhancements to SNOMED CT

National Release Center Terminology Center IHTSDO National Release Center (NRC) Users IHTSDO Governance Bodies General Assembly Management Board Other IHTSDO Members (other NRCs) - Clinical users - System owners - Health Information Managers - System developers - Researchers - Etc.

Support effective implementation Chosen with a view to deployment Potential Use Case (5) Planned Use Case (10) Use case prepared for deployment Use cases developped to be deployed Use Case in Progress (10) Deployed Use Case Different degrees of maturity are possible

Support effective implementation Proactive: an active search of use cases is performed, based on the needs/demands of the potential users. It may occur that these needs/demands do not necessarily involve the explicit request for the use of SNOMED CT. It is the role of the Terminology Centre to explore the potential of each of these applications and, if possible, to incorporate SNOMED CT. Level of activity: the model must maintain a minimum level of activity and has to have a constant input/output. The arbitrarily determined minimum level of activity: 5 "potential use cases" 10 "planned use cases" 10 "use cases in progress"

Distribution and licensing of SNOMED CT Usage of SNOMED CT starts with a licence Anyone who uses SNOMED CT needs a license The NRC provides a licensing and distribution system Check on https://mlds.ihtsdotools.org/#/landing/be?lang=en Immediate access to International Release of SNOMED CT and to the National Extension in the near future What is your use case? Importance of this system for implementation and implementation support

Distribution and licencing of SNOMED CT Potential implementors, potential sharing of results, sharing of approaches, sharing of lessons learned, Agreement Type Count % Individual - Research 5 8.2% Individual - Personal 2 3.3% Individual - Healthcare Provider 3 4.9% Individual - Educational 2 3.3% Academic - Educational 0 0.0% Academic - Research 4 6.6% Academic - Development 4 6.6% Academic - Healthcare Provider 17 27.9% Commercial - Vendor 5 8.2% Commercial - Development 11 18.0% Commercial - Research 1 1.6% Commercial - Healthcare Provider 0 0.0% Other 5 8.2% Application not completed 2 3.3% Total Affiliates 61

Distribution and licensing of SNOMED CT Implementation workshops: bringing together people with the same planned usage, with the same goals

Produce and distribute a National Edition IHTSDO NRC National Edition International Edition National Extension Reference Sets (used to refer to existing SNOMED CT components): To represent subsets To indicate language/dialect preference for terms To represent maps to other code systems or classifications

Produce and distribute a National Edition Alpha release: BE_Extensie_1507_Alpha.zip Has been distributed to the Afflilates Consists of Snapshot release file types: contain the current version of every component Simple Reference Sets ( Subsets ) Language Reference Sets (translated terms) National Extension National Edition International Edition

Produce and distribute a National Edition Simple type reference sets Contains a list of references to one or more components Subsets for clinical specialties and disciplines Can be used for problem lists or care plans Hematology/ Oncology History Orthopedics Extremities Orthopedics Non-Extremities Cardiology Common Lab Procedures Injuries Sample taking Mental Health Orthopedics Emergency Sample taking site Musculoskeletal Pediatrics Endocrino/Uro/ Nephro Neurology Primary Care Gastro/Entero/ InfectiousDiseases OBGYN Skin/Dermato/ Repiratory Nursing Ophtalmology Injuries Combined Functioning

Produce and distribute a National Edition Subsets for procedures Auditory System Urinary System Mediastinum And Diaphragm Female Genital System Cardiovascular System Hemic And Lymphatic System Muskuloskeletal System Maternity And Delivery Digestive System Integumentary System Nervous System Endocrine System Intersex Neuro And Neuromusc Eye And Adnexa Male Genital System Respiratory System

Produce and distribute a National Edition Dutch Language Reference Set First alfa release available Distributed to Affliates French Language Reference Set First alfa release under construction Validation and review of translation according to IHTSDO guidelines is ongoing: Dutch: Netherlands French: France and Switzerland IHTSDO: supervision and coordination

Produce and distribute a National Edition Complete the Language Referense sets: 30,000 Dutch concepts are being reviewed Dutch concepts prepared by the Netherlands Add Map reference sets for local systems SNOMED CT to VG-MZG Maps developped internationally will be distributed through IHTSDO channels. Important: National Extension is dynamic, open to input and responsive to the needs of the users.

First implementation results, some examples Three examples Implementation of SNOMED CT in a structured EHR Hôpital Erasme, Brussels Belgium In-house development Implementation of SNOMED CT in the EHR: secondary use of data for ICD-10-BE Ziekenhuis Netwerk Antwerpen (ZNA), Antwerp Belgium Commercial product Mapping of SNOMED CT to Belgian Nursing Minimal DataSet: proof of concept University Hospitals Leuven, Leuven Belgium In-house development for several hospitals

Implementation of SNOMED CT in a structured EHR Hôpital Erasme, Brussels Belgium Timing Deployment ongoing in Gastroenterology, Digestive Surgery, Nephrology, Urology From October 1, Anesthesiology, Cardiology, Cardiac Surgery, Vascular Surgery, Thoracic Surgery, End scheduled April 2016 Lessons learned Use of a SNOMED CT structured EHR is feasible and opens many perspectives in the portability of Health data We still need to improve our terminology services (synonyms, relationships, refsets) A continuous information and communication of the future benefits is mandatory to end-users Adequate training before deployment already allows to fine-tune the terminology and the user interface.

Implementation of SNOMED CT in a structured EHR Hôpital Erasme, Brussels Belgium Access to precoordinated terms (blue buttons) Precoordinated terms Possible to add free text Source: Hôpital Erasme, Brussels Belgium

Implementation of SNOMED CT in a structured EHR Hôpital Erasme, Brussels Belgium Access to attributes for further post-coordination Source: Hôpital Erasme, Brussels Belgium

Implementation of SNOMED CT in the EHR: secondary use of data for ICD-10-BE Problemlists (English) Source: ZNA, Antwerp Belgium

Implementation of SNOMED CT in the EHR: secondary use of data for ICD-10-BE SNOMED CT based rapid selection problem lists Source: ZNA, Antwerp Belgium

Implementation of SNOMED CT in the EHR: secondary use of data for ICD-10-BE Access to attributes for further post-coordination ICD-10-BE codes not visible for physicians only for coders Possible to add free text Source: ZNA, Antwerp Belgium

Implementation of SNOMED CT in the EHR: secondary use of data for ICD-10-BE POC for general surgery, vascular surgery and gastroenterology rule based mapping from SNOMED CT to ICD-10-CM One-to-one mapping from SNOMED CT to ICD-10-PCS (ZNA) Information can be added using attributes and free text Result: meaningful and structured SNOMED CT data available for coding ICD-10-BE Serves as input for the coding team Machine-readable for coding software 28

Implementation of SNOMED CT in the EHR: secondary use of data for ICD-10-BE Prerequisites: Dutch Language Reference Set is needed for further implementation Complex map Reference Set is needed from SNOMED CT to ICD-10-PCS Software to interpret Rule Based Maps is needed Last but not least: SNOMED CT Supports care process Supports administrative process by simplifying it 29

Mapping of SNOMED CT to Belgian NMDS http://www.nexuzhealth.be/en/partners

Mapping of SNOMED CT to Belgian NMDS Source: University Hospitals Leuven, Leuven Belgium

Mapping of SNOMED CT to Belgian NMDS Difficult and slow start Support in IHTSDO E-learning Common language = solid and powerful foundation Step-by-step process Incremental implementation approach Statutory registrations are prioritized Yardstick for current clinical documentation Useful for validation of SNOMED CT nursing subset Advanced decision support (Q)-indicators Results are immediately transferable to other hospitals: broad implementation range

Conclusions Implementation needs to be driven from different angles at the same time Start immediately with small implementation projects Learning curve for implementers as well as users Training is needed Put translation high on the agenda, but keep in mind that not all implementation approaches require translation and that implementation project can start before translation is completed Cooperation and sharing on international level is useful Start with the NRC as soon as possible, when human resources are limited, prioritize the responsability areas

Conclusions Responsability area Manage licenses (manually or automatically) 1 Distribute International Releases 2 Manage Extensions: reference sets, mappings, translations Tooling Authoring Release Distribution Maintenance As user service: To enable users to access and explore SNOMED CT As NRC tool: Support SNOMED CT management 7 Manage change requests for organizations in the country Offer education, promotion and training 4 Engage stakeholders 3 Implementation consultancy 5 6 8