Does patient engagement in patient safety and quality committees advance safe care or is it a myth?

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Does patient engagement in patient safety and quality committees advance safe care or is it a myth? February 24, 2016

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Does patient engagement in patient safety and quality committees advance safe care or is it a myth? February 24, 2016

Introductions Virtual conference room: Chat Mute/unmute Hand up (not for mobile devices) Getting to know each other: City Country Role

Your Questions Emerging evidence, success stories, struggles How can patients contribute How to select & prepare patients How do we prepare the committee How do we evaluate the impact Patient engagement: models, initiatives, examples Patient and family centred care: shared decisions

Program Overview Welcome Engaging Patients and Families to Improve Quality and Safety Malori Keller Q&A/ Discussion Patient Safety and Quality Committees in Low and Middle Income Settings - Alethse De la Torre Rosas Q&A/ Discussion Group discussion Wrap up, evaluation

Theresa Malloy Miller Moderator Member Patients for Patient Safety Canada

Engaging Patients & Families to Improve Quality & Safety Malori Keller mkeller@hqc.sk.ca

Engaging Patients & Families Patient-and family-centred care seeks to create partnerships between patients, families, staff and physicians to promote: Respect & dignity Collaboration Information sharing Meaningful participation www.ipfcc.org

Three Levels of Engagement Direct Care Open Family Presence Interdisciplinary Rounds at the Bedside Whiteboards Organization PFCC Steering Committees Quality & Safety Committees Quality Improvement Teams System Safety Alert System/ Stop the Line Patient portal http://content.healthaffairs.org/content/32/2/223.abstract

Direct Care Level: Open Family Presence Isolating patients at their most vulnerable times from the people who know them best can place them at risk for adverse events, emotional harm and inconsistent care (Maureen O Neil, President, Canadian Foundation of Healthcare Improvement http://www.cfhi-fcass.ca)

CFHI: 5 Reasons to Take the Better Together Pledge http://www.cfhi-fcass.ca/whatwedo/better-together/pledge

Organization Level Quality & Safety Committees Cypress Health Region 4 advisors on committee Review staff and patient incident reports including root cause analysis Quality Improvement Events All Health Regions in SK Minimum of 1 advisor on every Rapid Process Improvement Workshop Advisor is a full participant on the team to co-design processes Examples available at: www. betterhealthcare.ca

System Level Safety Alert System/ Stop the Line Provincial & regional initiative 2 advisors on provincial steering committee 8 advisors on working group focused on engaging patients and families in reporting The Safety Alert/Stop the Line initiative encompasses processes, policies, and behavioural expectations that support patients, staff, and physicians to be safety inspectors, to identify and fix potentially harmful mistakes in the moment, or to stop the line and call for additional help to restore safety. http://hqc.sk.ca/improve-health-care-quality/safety-alert-stop-the-line/

Keys to Successful Engagement Leadership commitment to PFCC and patient engagement is vital as it takes time to engage and to create partnerships. Recruitment includes two-way interview Patient and Family Advisor Orientation On-going mentorship PFCC leads -- staff liaison Online forum for Patient/Family Advisors to share their learnings and to network.

Feeling safe is knowing that no harm will come. Each and every encounter with a health care worker regardless of where there work or what their job is important. Acknowledging me and my family member with a simple hello really says a lot. Taking the time to listen to me or my family member is also very important. You may not have the answers and that is okay but being open and honest with me is very important. Tell me what you know and how you can help. And if you can not please be open and point me to where I need to go. You will not always have all the answers. I know that your time is limited but don't ignore me and don't rush me. Engage me. Educate me. Hear my voice. Explain to me as best you can what your role will be in helping me. How long it will take. Where I need to go. How to get there. What to expect. The more I know the safer I will feel. (Brenda Andres, Family advisor, Cypress Health Region.)

Does patient engagement in patient safety and quality committees advance safe care or is it a myth?

Discussion

Patient Safety and Quality Committees in Low and Middle Income Settings Alethse De la Torre Rosas

Overview About Gap Barriers The context of Patient Safety and Quality Committees in low and middle income countries. The gap between creation and implementation of Safety and Quality policies. The social context and the imbalance of power: a barrier for patient engagement.

Context of the challenges faced in Low and Middle Income Countries About Gap Barriers Social Levels of literacy, inequality and bureaucracy Language and common beliefs Vulnerable populations Healthcare System Uncoordinated and fragmented Severe healthcare worker shortages Centralized and difficult to access Surveillance and Data Not registered, reliable or public Scarce published information for policy makers

Case Study - Mexico About Gap Barriers Official National Regulation Infection Control and Prevention committees Monthly meetings Report their surveillance results to the National System Are there really zero infections? Reduction of healthcare associated infections

Mexican National Survey, 2012 About Gap Barriers Evaluation of Infection Control and Prevention Committees and National regulations implemented 53 hospitals Establish the rate of Healthcare associated infections (HCAI) in hospitalized patients

Challenges to the Committee s function - Surveillance and Data- About Gap Barriers Scarce personnel Multiple reports Lack of training and recognition Not all events were registered. Personnel overwhelmed. Different interpretation of what was required. Information biased and unreliable for policy makers + Redundant work + Unsatisfied Personnel

Challenges to the Committee s function - System Structure- About Gap Barriers Hierarchical Information discussed Low attendance rate. No inclusion of patients. Not available for the general public and sometimes for healthcare workers. Status quo Slow/ No improvement

About Gap Barriers Consequences of Poor Implementation

The Importance of Patient Engagement for Policy Implementation About Gap Barriers POLICY To engage patients in the surveillance of the hospital hand hygiene program Plan Act Do Study

The Importance of Patient Engagement for Policy Implementation About Gap Barriers Plan Act Do Study All patients and healthcare workers were trained on the importance of hand hygiene and invited to participate. Availability of resources was checked every day.

About Gap Barriers Plan The Importance of Patient Engagement for Policy Implementation Act Do Study No change in the adherence! Survey: 150 patients ALL received information ALL had resources available (alcohol gel hand rub and posters) 40% identified at least one opportunity missed by HCW to perform hand hygiene. NO PATIENT asked the HCW to sanitize their hands before their contact.

They are the professionals they know About Gap Barriers If I say something they will be angry or stop my treatment I have no time or money to participate Imbalance of Power I am embarrassed to point out their errors I haven t been invited to participate I didn t know The information is very technical

Where to start for Patient Engagement? -Stop the Power Imbalance- About Gap Barriers Committees flexible with reliable data Raise Healthcare workers awareness of patient safety Facilitate patient participation Patient inclusion Invitation Open door policy for patients Health literacy Ask for patient s feedback Plan Act Do Study

Positive Results Through Comprehensive Engagement About Gap Barriers

Conclusions Aside from the patient safety policy itself - it is the structure of the healthcare system and the involvement of the patient that determines policy success: Without proper committee structure gaps emerge between creation and implementation of patient safety policies. Without the involvement of the patient there is no independent check that policies are properly embedded. Work together: patients are essential actors to redirect the implementation of policies. Middle and low income countries can NOT AFFORD to delay practices that improve the safety of patients.

Discussion

Resources Canadian Foundation for Healthcare Improvement. Patient Engagement Resource Hub. Accreditation Canada. Required Organizational Practices Handbook 2016. Ontario Hospital Association. Governance Toolkit. Section 1.4. Quality Committee Terms of Reference. Section 1.5. Recommendations for an Effective Quality Committee. Agency for Healthcare Research and Quality. Guide to Patient and Family Engagement in Hospital Quality and Safety. Proceedings from past webinars: Tips for Partnering with Patients and Families on Committees. How can we make the partnership with patients and families more impactful? Learning from the best: A webinar with the Patient Safety Champion Awards Finalists Health Quality Council Saskatchewan www.hqc.sk.ca and http://blog.hqc.sk.ca/

Wrap up, Evaluation, Next Steps Theresa Malloy-Miller patients@cpsi-icsp.ca

Mulţumesc Shukria Asante Thank You Dhanyaawaad Contactez-nous : info@cpsi-icsp.ca; 1 866 421-6933