Advancing Cultural Competence in the Era of Healthcare Reform. NYAPRS Cultural Competence Committee Webinar Series December 2, 2015

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Advancing Cultural Competence in the Era of Healthcare Reform NYAPRS Cultural Competence Committee Webinar Series December 2, 2015

Presenters Lenora Reid-Rose Coordinated Care Services, Inc. 1099 Jay Street Rochester, NY 14611 Phone: (585) 613 7615 E-mail: lreid-rose@ccsi.org Harvey Rosenthal Executive Director New York Association of Psychiatric Rehabilitation Services (NYAPRS) harveyr@nyaprs.org

New York Association of Psychiatric Rehabilitation Services (NYAPRS) A peer-led statewide coalition of people who use and/or provide community mental health recovery services and peer supports that is dedicated to improving services, social conditions and policies for people with psychiatric disabilities by promoting their recovery, rehabilitation, rights and full community inclusion. harveyr@nyaprs.org www.nyaprs.org 3

Impact of a Broken System Very high health, social and criminal justice costs with very low outcomes Early mortality: cardiovascular, respiratory and infectious diseases, diabetes and hypertension Highest rates of avoidable readmissions High rates of violence victimization, incarceration, homelessness and suicide

Impact of a Broken System High rates of poverty: unemployment and idleness Stigma and discrimination: isolation Loss of hope, purpose, dignity Magnified exponentially for communities of color and other underserved groups

Elements of a Broken System Fragmented, Siloed and Uncoordinated Unresponsive: Reactive vs Preventive and Diversionary Unaccountable: who can we turn to? Wrong Incentives: volume over value Illness over Wellness? Wellness over Illness? Chronic Patienthood over Personhood

The N eed for Healthcare Reform N YS Example $60 billion Medicaid program with 5+ million beneficiaries 20 percent (1 million beneficiaries) use 80 percent of these dollars o Hospital, emergency room, medications, longtime chronic services o Over 40 percent with behavioral health conditions NYS avoidable Medicaid hospital readmissions: $800 million to $1 billion annually 70 percent with behavioral health conditions; 3/5 of these admissions for medical reasons Thousands of adult and nursing home residents with psychiatric disabilities who can successfully live in the community with appropriate individualized supports 85 percent unemployment, high homelessness, incarceration rates 7

Fundamental Overhaul: National Healthcare Reform Triple Aim: improving outcomes and quality while reducing cost and paying attention to consumers experiences Integrating physical and behavioral healthcare Emphasis on upstream prevention and diversion

Fundamental Overhaul: National Healthcare Reform Accountable integrated care Coordinated care networks using electronic healthcare records Culturally relevant and appropriate person-centered engagement and care Increased Medicaid flexibility, waivers Value based payment

Fundamental O verhaul: N YS M anaged Care Redesign Care management for all Integration of physical and behavioral health services Develop adequate and comprehensive networks Focus on improved health and recovery outcomes Tie payment to outcomes Reinvest savings to improve services for behavioral health populations

NYS Medicaid Waiver Health and Recovery Plans Health Homes Home and Community Based Services Delivery System Reform Incentive Payment Performing Provider Systems Value Based Payment Eliminate racial disparities in healthcare

Health and Recovery Plans Medicaid managed care plans that coordinate health and pharmacy benefits for New Yorkers with serious BH conditions are now responsible for integrating and managing their BH services as well. These include an expanded array of previously non- Medicaid funded HCBS

NYS Home and Community Based Services Option Medicaid Will Now Pay for: Rehabilitation Psychosocial Rehabilitation Community Psychiatric Support and Treatment (CPST) Residential Supports/Supported Housing Habilitation Crisis Intervention Short-Term Crisis Respite Intensive Crisis Intervention Mobil Crisis Intervention Educational Support Services Support Services Family Support and Training Non- Medical Transportation Individual Employment Support Services Prevocational Transitional Employment Support Intensive Supported Employment On-going Supported Employment Peer and Family Supports Self Directed Services

Beyond HEDIS Outcome Measures 7 days from inpatient discharge to outpatient appointment 30 days to filled prescription Depression screening and follow up 14

HCBS Outcome Measures: Social Determinants of Care Participation in employment Enrollment in vocational rehabilitation services and education/training Improved or Stable Housing status Access to and use of Peer Support Longer Community tenure, Decreased Hospital Readmissions Decreased Criminal justice involvement Improvements in functional status Cultural & Linguistic Competence, Engagement

Health Homes Health homes provide: ocare managers who assure that enrollees receive all needed medical, behavioral, and social services from their assembled networks of treatment, housing and social services oin accordance with a single care management plan othat is shared with all providers via an electronic healthcare record

NYS Health Home Model Managed Care Organizations (MCOs) New York State Designated Lead Health Home Administrative Services, Network Management, Health IT Support/Data Exchange Medicaid Analytics Performance Portal (MAPP) Health Home Care Management Network Partners (includes former Total Care Management Providers) Comprehensive Care Management Care Coordination and Health Promotion Comprehensive Transitional Care Individual and Family Support Referral to Community and Social Support Services Use of Health Information Technology to Link Services (Electronic Care Management Records) Regional Health Information Organizations (RHIOs) Access to Required Primary and Specialty Services (Coordinated with MCO) Physical Health, Behavioral Health, Substance Use Disorder Services, HIV/AIDS, Housing, Social Services and Supports October 23, 2015

Delivery System Reform Incentive Payment Overarching goal is to reduce avoidable hospital use ED and inpatient by 25% over 5+ years of DSRIP This will be done by developing integrated delivery systems, removing silos, enhancing primary care and community-based services, and integrating behavioral health and primary care.

25 Performing Provider Systems Performing Provider Systems are networks of providers that collaborate to implement DSRIP projects Each PPS must include providers to form an entire continuum of care Hospitals Health Homes Skilled Nursing Facilities (SNF) Clinics & FQHCs Behavioral Health Providers Home Care Agencies Other Key Stakeholders Community health care needs assessment based on multi-stakeholder input and objective data Building and implementing a DSRIP Project Plan based upon the needs assessment in alignment with DSRIP strategies Meeting and Reporting on DSRIP Project Plan process and outcome milestones October 23, 2015

CCHL Relationship with Key Mental Health Projects in DSRIP Each PPS had the opportunity to choose the best projects to support their community based on identified healthcare gaps, however, over and above the projects there is a governance piece that includes Cultural Competence and Health Literacy that every PPS must infuse into the fabric of their work to create an effective, sustainable Integrated Delivery System DSRIP PPS Organizational Application Overall DSRIP and local PPS success hinges on all facets of the PPS achieving cultural competency and improving health literacy. Each PPS must demonstrate cultural competence by successfully engaging Medicaid members from all backgrounds and capabilities in the design and implementation of their health care delivery system transformation. The ability of the PPS to develop solutions to overcome cultural and health literacy challenges is essential in order to successfully address healthcare issues and disparities of the PPS community.

Key Mental Health Projects in DSRIP Project Description PPSs Involved 3.a.i Integration of primary care and behavioral health services 25 3.a.ii Behavioral health community crisis stabilization services 11 3.a.iii Implementation of Evidence-Based Medication Adherence Program (MAP) in Community Based Sites for Behavioral Health Medication Compliance 2 3.a.iv Development of Withdrawal Management (e.g. ambulatory detoxification, ancillary withdrawal services) capabilities and appropriate enhanced abstinence services within community-based addiction treatment programs 4 3.a.v Behavioral Interventions Paradigm (BIP) in Nursing Homes 1 4.a.i Promote mental, emotional and behavioral (MEB) well-being in communities 2 4.a.ii Prevent Substance Abuse and other Mental Emotional Behavioral Disorders 1 4.a.iii Strengthen Mental Health and Substance Abuse Infrastructure across Systems 13 October 23, 2015

Value Based Payment What are Value Based Payments (VBPs)? An approach to Medicaid reimbursement that rewards value over volume Incentivizes providers through shared savings and financial risk Directly ties payment to providers with quality of care and health outcomes A component of DSRIP that is key to the sustainability of the Program

Value Based Payment By DSRIP Year 5 (2019), all Managed Care Organizations must employ value based payment systems that reward value over volume for at least 80 90% of their provider payments If VBP goals are not met, overall DSRIP dollars from CMS to NYS will be significantly reduced

VBP Advocacy & Engagement Subcommittee on Culturally Competent Consumer Incentives Creating an Expert Group for Achieving Cultural Competence in Incentive Programs The Subcommittee recommends that the State should convene a group of experts and consumers to create more detailed guidance for the development of incentive programs. Programs need to incorporate respect for autonomy; consideration of variables influencing comprehension and learning; and understanding of cultural, religious and socioeconomic factors (e.g. race, ethnicity, language, urban/rural, LGBT)..

NYAPRS Advocacy on Value Based Payment Work Groups Recovery outcomes (beyond HEDIS): improvements in functioning, quality of life, social determinants. Parity for community providers with hospitals; e.g. the State should join PPSs and MCOs in offering TA, Infrastructure Dollars for Community Recovery Providers Attribution of beneficiaries to provider with greatest contact and connection Include non-medicaid costs in benchmarking calculations Culturally competent incentives for beneficiaries Statewide education campaign

DSRIP Governance DSRIP PPS Organizational Application Overall DSRIP and local PPS success hinges on all facets of the PPS achieving cultural competency and improving health literacy. Each PPS must demonstrate cultural competence by successfully engaging Medicaid members from all backgrounds and capabilities in the design and implementation of their health care delivery system transformation. The ability of the PPS to develop solutions to overcome cultural and health literacy challenges is essential in order to successfully address healthcare issues and disparities of the PPS community.

Cultural Competence and Health Literacy Culture: A way of life of a group of people that encompasses behaviors, values, and symbols that are accepted and passed along, by communication from one generation to the next. Culture is: Dynamic influenced by time, place and circumstances Determines the way we think, feel, act, perceive and respond to situations etc. Consists of attitudes, beliefs, values and rules of conduct Is shaped by factors as proximity, education, gender, age and sexual preference Learned it Is not innate or biological Is a group phenomenon it must be shared Reflects tradition, having been passed from one generation to another

Cultural Competence and Health Literacy Cultural Competence Definitions: Cultural Competence in an individual or organization implies having the capacity to function effectively within the context of the cultural beliefs, behaviors, and needs presented by consumers and their communities A set of congruent behaviors, attitudes, and policies that come together in a system, agency, or among professionals and enables that system, agency, or those professionals to work effectively in cross-cultural situations. Cross et al The ability of systems to provide care to patients with diverse values, beliefs, and behaviors, including tailoring delivery to meet patients social, cultural and linguistic needs. (HRET) The ability of an individual or organization to accommodate the needs presented by consumers and communities with diverse languages, modes of communication, customs, beliefs, and values. (Cancer Action Network) Leads to better communication, medication adherence, improved health status, and fewer emergency visits and hospitalization. The integration and transformation of knowledge, behaviors, attitudes and policies that enable policy makers, professionals, caregivers, communities, consumers and families to work effectively in cross-cultural situations. A developmental process that evolves over an extended period of time.

Cultural Competence and Health Literacy Health Literacy is defined in the Institute of Medicine report, as "the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions."

Cultural Competence and Health Literacy Health Literacy in a Cultural Context Recognizing that culture plays an important role in communication helps us better understand health literacy. For people from different cultural backgrounds, health literacy is affected by belief systems, communication styles, and understanding and response to health information. Even though culture is only one part of health literacy, it is a very important piece of the complicated topic of health literacy. The United States Department of Health and Human Services (HHS) recognizes that "culture affects how people communicate, understand and respond to health information."

Cultural Competence and Health Literacy Diversity of the New York State Population The rational for the promotion of cultural competence in health care reform in NYS is clear. NYS is an increasingly multicultural state. According to the 2010 Census, the NYS population is comprised of: 18% Hispanic/Latino 16% African American 7% Asian American 11% other than non-white, non-hispanic race or two or more races The above groups comprise 52% of the state's population

NYSDOH DSRIP Milestones Milestone 1 - Due December 2015: Finalize Cultural Competence / Health Literacy Strategic Plan Milestone 2 Due June 2016: Develop a training strategy focused on addressing the drivers of Health Disparities (beyond the availability of language appropriate material)

NYS Operationalized Cultural Competence and Health Literacy in DSRIP Approach To Achieving Cultural Competence & Health Literacy Finalize Cultural Competency/Health Literacy Strategy Identify Priority Groups Experiencing Health And Health Care Disparities (Based On Your Community Needs Assessment - CNA And Other Analysis) Identify Key Factors To Improve Access To Quality Primary, Behavioral Health, And Preventative Health Care. Key Factors To Define Access Must Be Culturally Driven. Definitions Will Consider Cultural, Linguistic, Geographic Health Literacy And Illiteracy. Key Factors Relating To Social Determinants Must Be Accounted For In This Analysis

NYS Operationalized Cultural Competence and Health Literacy in DSRIP Approach to achieving Cultural Competence & Health Literacy Define plans for two-way communication with the population and community groups through specific community forums Identify assessments and tools to assist patients with self-management of conditions (considering cultural, linguistics and literacy levels) Identify community-based interventions to reduce health disparities and improve outcomes Develop a training strategy focused on addressing the drivers of health disparities (beyond the availability of language-appropriate material)

NYS Operationalized Cultural Competence and Health Literacy in DSRIP Cultural competency is critical to reducing health disparities and improving access to highquality health care. As a framework, cultural competence enables systems, agencies, and groups of professionals to function effectively to understand the needs of individuals accessing health information and health care Competency 1: Describe the identified and/or known cultural competency challenges which the PPS must address to ensure success. Competency 2: Describe the strategic plan and ongoing processes the PPS will implement to develop a culturally competent organization and a culturally responsive system of care. Particularly address how the PPS will engage and train frontline healthcare workers in order to improve patient outcomes by overcoming cultural competency challenges. Competency 3: Describe how the PPS will contract with community based organizations to achieve and maintain cultural competence throughout the DSRIP Program.

How an upstate PPS is operationalizing this Finger Lakes Provider Performing System (FLPPS) To transform the way health care is delivered to more than 300,000 Medicaid beneficiaries in the Finger Lakes region through: Improved Access To Quality Primary, Behavioral Health, And Preventative Health Care Reduction In Unavoidable Emergency Room Visits Addressing And Eliminating Health Disparities

FLPPS Operationalizing CC and HL FLPPS Cultural Competency and Health Literacy at the Executive Level of the organization Creation of Cultural Competence and Health Literacy Committee. CC and HL budget An in-house FTE was charged with Managing internal and external CCHL initiatives as well as being the liaison with a CCHL vendor. Ensuring the CC and HL strategic plan is fully operationalized Contracting with the CCHL vendor brings a CCHL richness to the overall project. Assemble Project Team

Activities to achieve Milestone 1 and Milestone 2 Identify Priority Groups/Vulnerable Populations Conduct CC and HL Assessment of the PPS Provider Network Establish Meaningful Performance Metrics and Outline Strategy for Assessing Progress Encourage and work with providers to implement a continuous quality improvement (CQI) process that addresses the identified disparities and publicly report on progress Identify community-based interventions to eliminate disparities and improve outcomes Develop Two-Way Community Communication / Engagement Strategy Identify and Assemble Tools and Resources to Support CLC and HL Priorities Develop CLC/HL Training Strategy

Activities to achieve Milestone 1 and Milestone 2 Identify Priority Groups/Vulnerable Populations using FLPPS DSRIP Community Needs Assessment County-Level Community Needs Assessment NYS Prevention agenda NYS Medicaid Redesign Health Disparities Team workgroup report Regional Data Reports Census/Public Databases Salient Databases

Activities to achieve Milestone 1 and Milestone 2 Vulnerable Populations Individuals w/behavioral Health Conditions Individuals w/developmental Disabilities Homeless Individuals Living in Poverty Maternal & Child Health African Americans Hispanics/Latinos American Indians/Alaska Natives Migrant and Seasonal Farmworkers Lesbian, Gay, Bisexual, Transgender & Questioning/Queer (LGBTQ) Deaf and Hard of Hearing

Activities to achieve Milestone 1 and Milestone 2 contd. Conduct CC and HL Assessment of the PPS Provider Network CC and HL Assessment Designed to: Serve as a Self-Assessment: Guide and an Evaluation of Cultural Competence and Health Literacy Within Your Organization Provide Essential Information Concerning The Organization s Structure and Function Serve as a Data Collection Tool Which Will Allow Database Development Provide Organizations With a Series of Questions That Can Help Continue the Performance Improvement and Management Journey Serve as a Roadmap for Organizations to Improve the Organization s Cultural Competency and Health Literacy Serve as a Process Document to develop a Cultural Competence Strategic Plan Short, Medium, and Long Term Goals

Activities to achieve Milestone 1 and Milestone 2 contd. CC and HL Organizational Self-Assessment Tool COMPONENT PARTS OF THE TOOL ARE: General Information Organizational Profile Cultural Competency Information Needs Assessment Information Exchange Services Human Resources Organizational Policies and Plan Outcomes Regarding Cultural Competency Health Literacy Information

Activities to achieve Milestone 1 and Milestone 2 contd. CC and HL Organizational Self-Assessment Tool THE FINDINGS CAN BE USED TO: Establish baseline measure, current state Inform Cultural Competence and Health Literacy training interventions and staff development activities Recognize and promote best clinical and administrative practices Identify hidden cross-cultural resources and talents that currently exist within a given workforce Identify strengths and assets of an organization Identify areas for improvement

Activities to achieve Milestone 1 and Milestone 2 contd. Establish Meaningful Performance Metrics and Outline Strategy for Assessing Progress Encourage and work with providers to implement a continuous quality improvement (CQI) process that addresses the identified disparities and publicly report on progress Identify community-based interventions to eliminate disparities and improve outcomes

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Health literacy Low reading ability Language Format Choice Administration and presentation Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Validated for this culture Follow up assessment Other questions, methods, formats Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Community influence Presentation at intake Include important others Trust Depression screening NYS Goals: Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Demographics Social determinants of health Community influence Engage patient Transportation Appointment hours Wait list Insurance coverage Present treatment alternatives Patient participation in treatment Depression screening and follow up measure NYS Goals: Improve Outcomes Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Want a PCP? History with health care system Distrust, suspicion Preference for providers from similar cultural groups Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Demographics Social determinants of health Community influence Engage patient Cultural identity Health seeking behaviors Privacy Perceived resiliency Stigma Present treatment alternatives Patient participation in treatment Depression screening and follow up measure NYS Goals: Improve Outcomes Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Impact on screening score, symptoms, treatment plan Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Impact on screening score, symptoms, treatment plan Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Increased suicidality risk Individual stressors Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Homelessness Education SES Others Poverty Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Follow up check in Ongoing conversation What does denial mean? Connect to cultural brokers, faith healers, family members, peer supports, social networks of others with shared experiences Respect patient s decision Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Community influence Who answers questions? Who makes treatment decisions? Depression screening NYS Goals: Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Sensitive to health literacy Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Include important others Culturally appropriate assessment Presentation of diagnosis and treatment Patient denies care Adherence to antidepressant medication measure

Data Activities Outcomes Have a PCP Engage patient Effective screening tool Trauma Access to PCP Complete screen Depression screening NYS Goals: Community influence Improve Outcomes Demographics Social determinants of health Engage patient Present treatment alternatives Patient participation in treatment and follow up measure Reduce avoidable ER visits Co-occurring conditions, SUDs, chronic conditions Provider understanding and awareness of community Needs assessment Cultural nuances Culture as stressor/barrier Patient denies care Adherence to antidepressant medication measure

Activities to achieve Milestone 1 and Milestone 2 contd. Develop two-way communication/engagement Strategy Will be hosting a series of community engagement forums forums will be held both in urban and rural settings

It is much more important to know what sort of a patient has a disease, than what sort of disease a patient has. William Osler