Overview of the State Operated Developmental Centers

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Presentation to the Legislative Oversight Committee Overview of the State Operated Developmental Centers Carol Donin, Team Leader State Operated Services December 18, 2008

3 Regional Developmental Centers West J. Iverson Riddle Developmental Center, Morganton Central Murdoch Developmental Center, Butner East Caswell Developmental Center, Kinston

Census 2500 2000 2045 1660 1500 Historic High 1000 840 12/8/08 Census 500 332 495 426 0 Riddle Mudoch Caswell

General Population as of 12/8/08 Age Range Total %Population 0-21 20 2% 22-45 363 29% 46-65 726 58% 66+ 144 11% Total 1253 100%

Gender Sex Total % Population Males 740 59% Females 513 41% Total 1253 100%

Cognitive Levels Cognitive Levels Total Individuals % Population Mild 31 3% Moderate 103 8% Severe 214 17% Profound 905 72% Total 1253 100%

Activities of Daily Living Dining Level Total % Pop. Independent 463 37% Partial/total assistance 621 50% Uses assistive devices 597 48% Tube fed 169 13%

Toileting Level Total % Pop. Independent 431 34% Partial/total assistance 822 66% Adult protective briefs 569 45% Dressing Level Total % Pop. Independent 302 24% Partial/total assistance 951 76%

Ambulation Level Total % Pop. Independent 752 60% Semi-ambulatory 174 14% Non-ambulatory 327 26% Communication Level Total % Pop. Verbal - functionally indep. 173 14% Limited/Non-verbal 1,080 86%

Common Diagnoses Seizure Disorder Cerebral Palsy Dual Diagnosed (ID/DD and MI) Autism Medically Fragile Visually Impaired Hearing Impaired Diabetes

Common Medical Interventions Medication administration by mouth in food or thickened liquids by gastrostomy or jejunostomy tubes Oxygen therapy Special medical protective devices Infirmary care Mechanically altered diets

Services Medical- physician, nursing, radiology, pharmacy, etc. Dental Psychiatry* Physical Therapy Occupational Therapy Speech Therapy Dietary/Nutrition Adaptive Equipment Residential Social Work Education Psychology Recreation Therapy Vocational Advocacy Chaplaincy Transition Other *on staff or contracted

Advocacy Facility advocates report to a team leader in the DMH/DD/SAS Central Office to separate advocacy activities from facility management Total of 13 advocates, including chief advocate positions between the 3 facilities Advocates conduct investigations in accordance with Human Rights rules whenever allegation of abuse, neglect, exploitation and other rights infringements are alleged Complete independent investigations that are reported to facility management External groups are notified according to general statute as necessary Human Rights Committees review all advocacy investigations

Specialized Residential Programs Murdoch Center PATH (Partners in Autism Treatment and Habilitation) Children, ages 6-16, with autism spectrum disorder and serious behavioral challenges Unit - coed, 8 beds, plus 2 respite beds 2 Group Homes - coed, 4 beds each, located Franklin County and Granville County Length of stay - up to 2 years Number of individuals served in fy 2008 17 on the unit, 6 in the group homes

Specialized Residential Programs Murdoch Center BART ( Behaviorally Advanced Residential Treatment) Males, ages 16-25 years with mild MR and/or other developmental disorders who have a history of failed treatment placements and/or repeat criminal offenses 10 beds, plus 2 respite beds Length of stay variable Number of individuals served in fy 2008 = 13

Specialized Residential Programs Murdoch Center STARS (Specialized Treatment for Adolescents in a Residential Setting) Adolescents, ages 13-17, with dual diagnoses (developmental disability and mental illness) who demonstrate extreme and dangerous forms of aberrant behavior 18 beds, coed Length of stay - up to 1 year Number of individuals served in fy 2008 = 29

MR/MI Program Specialized Residential Programs Caswell Center Opened June 1, 2006 Males, ages 18+, with mental retardation and mental illness 10 beds Length of stay - up to 18 months Applicants must reside in eastern region Number of individuals served in fy 2008 =18

Outpatient and Other Specialized Non-Residential Services to Community FY 2008 Dental Clinics: 384 individuals served; 1,100 appointments Behavioral Consultations: 203 individuals served Behavior Medicine Clinic (JIRDC): 33 individuals served FIPP (Family, Infant Preschool Program): 250-300 young children and families in western counties served annually

Research, Education and Training Programs Murdoch Developmental Center UNC School of Dentistry - classroom instruction, clinical site UNC School of Medicine Psychiatric Residency Program - clinical site UNC Chapel Hill - OT student affiliations Durham Tech CC - COTA student affiliations, LPN program Vance-Granville CC - LPN and RN programs Watts School of Nursing - RN program UNC School of Allied Health training site for student practicum for Rehabilitation Psychology program Working with Vance-Granville CC to develop workforce programs to train direct care workers Generations-Tadpole lends & delivers low-tech assistive technology toys free to consumers, families and professionals statewide

Research, Education and Training Programs Caswell Developmental Center East Carolina University OT, PT, Recreation, Speech/Language and Education interns Caswell Center OT staff lecture at ECU ECU Medical School staff lecture at Caswell Center UNC/W research, observations at Caswell Center Russell Sage College (NY) PT interns Elon University PT interns Saginaw Valley University (MI) PT interns Mount Olive College recreation interns Lenoir CC nursing interns Martin CC LPTA interns, Caswell staff lecture at MCC Pitt CC COTA and OT interns, Caswell staff lecture at PCC Area High Schools- Allied Health students

Research, Education and Training Programs J. Iverson Riddle Developmental Center Appalachian State University Speech/Language East Carolina University Recreation Therapy Winston-Salem State OT Western Carolina - Speech/Language Lenoir-Rhyne OT Catawba Valley CC Nursing Western Piedmont CC Recreation Therapy Caldwell CC Nursing UNC-Wilmington Recreation Therapy Research Assessing Risk of Injury of People with MR Living in Intermediate Care Facilities, Improving Staff Performance, Treating Core Features of Autism, Issues of Pain Assessment for Adults with MR (From Research to Practice)

Collaboration with Other State Agencies Consultations on individuals at state psychiatric hospitals Technical assistance to state psychiatric hospitals with adaptive equipment and other services Collaboration with LMEs Statewide NC-SNAP support training, certification, training sites, technical assistance, data reporting, QA NC DHHS Assistive Technology Project with local school districts and Governor Morehead School Consultation and technical assistance with Division of Medical Assistance on ICF-MR clinical policy issues Sponsor trainings with EEO, DIRM and other agencies Exceptional Equestrian and SOAR programs with Broughton Hospital and NC School for the Deaf Assistance to CRH for facility opening and transition Technical assistance to CRH forensic unit

Responsibilities Assigned by State Statewide ICF-MR level of care determination VistA project BEACON trainers for other state agencies Supervisory training to other state agencies Statewide NCI instructors Electronic medical record committee CAP-MR waiver development & implementation Regional Performance Management Plan consultation Statewide NC-SNAP support training, certification, training sites, technical assistance, data reporting, QA North Carolina Interventions (NCI) train-the-trainer Institute of Medicine Task Force Money Follows the Person

Developmental Disabilities Consumer Advisory Committee (DD CAC) Established in 1995, per recommendation of the Mental Health Study Commission Subcommittee on Downsizing and Human Rights Annual monitoring visits to each developmental center*: Presentations by staff Notebooks with data and other relevant information Observations of residents and staff Tours of homes and various departments Interviews with staff Telephone interviews with guardians of current residents and those who have moved to the community Written report following monitoring visit with findings and recommendations *Black Mountain and O Berry Neuro-Medical Treatment Centers are included in this monitoring

Community Placements FY 2004-2008 Successful Placements General Population 66 Specialty Programs 41 Unsuccessful Placements General Population 23 Specialty Programs 11 Reasons for Readmission Behavior management and support Medication detoxification and stabilization Medical management and support Readmissions via psychiatric hospitals

Current Per Diem Rates as of 12/1/08 J. I. Riddle Developmental Center: $430.33 Murdoch Developmental Center: $448.33 Caswell Developmental Center: $532.33 Note: Includes $9.33 ICF-MR Provider Tax

Budget Reductions Fiscal Year Budget Reduction 2004-2005 $1,703,409 2005-2006 $1,406,691 2006-2007 $3,189,881 2007-2008 $2,920,705 2008-2009 (to date) $997,206

Voluntary Staff Turnover Rates Direct Care Staff Facility 2003 2004 2005 2006 2007 Riddle 15% 12% 13% 13% 12% Murdoch 15% 15% 14% 13% 21% Caswell 4% 7% 6% 6% 5%

Voluntary Staff Turnover Rates Licensed Practical Nurses Facility 2003 2004 2005 2006 2007 Riddle 0% 5% 24% 5% 41% Murdoch 19% 21% 26% 18% 12% Caswell 5% 9% 4% 5% 3%

Summary As the safety net for the community, the Riddle, Caswell and Murdoch Developmental Centers provide services and supports to one of North Carolina s most vulnerable populations. In addition, the centers provide knowledge, expertise and other valuable contributions to the community and the state.