Youth Transition Program Symme W. Trachtenberg, MSW, LSW Director, Community Education and LEND Outreach Social Work Leadership Liaison University of Pennsylvania Clinical Associate in Pediatrics, School of Medicine Lecturer, School of Social Policy and Practice Lecturer, Graduate School of Education
PA DOH HRSA TBI Grant 15 to 19 years old PA Residents Only Traumatic Brain Injury mild/concussion to severe
CHOP s Three-Pronged Approach Healthcare Guidelines, Programs and Tools Education and Vocation CHOP Career Path Relationships and Psychoeducation REACH
Youth Transition Program Criteria Social Worker (1 day/week) Request and review healthcare and school records Provide Intensive Care Coordination - Point person to provide navigation and support individuals and families Health Care Transition Care Binder: comprehensive healthcare plan Pages in English and Spanish Medical Summary Needs assessment with youth and parents/caregivers Collaborate with BrainSTEPS Team Concussion Support Group
Transition Materials www.chop.edu/transition Care Binder www.chop.edu/binder
Skills for Transition for Youth Take charge of your health Have a person who will help with health care decisions, if a family member cannot Know who to call in case of an emergency Have a one page medical summary Emergency Information sheet Learn how to coordinate your healthcare
Healthcare Youth-Provider Collaboration Spend time alone with health care provider(s) at each visit Call the doctor s office to make an appointment Call the doctor about unusual changes in your health (e.g., allergic reactions) Follow up on any referrals for tests or check-ups and labs Call in your own prescriptions
Healthcare Providers Assure that the youth learns independent healthcare to the greatest degree possible Self care and self advocacy Discuss transfer to adult care after stable medically stable Find qualified adult providers to meet specific needs Recognize the lack of multi-and inter-disciplinary care in adult world Find adult services to meet psychosocial needs
Insurance and Resources Know what medical insurance you have In PA Medicaid Managed Care Organizations utilize Special Needs Units Continue or know how to apply for and keep health insurance Get or re-establish SSI at 18, if eligible Use community support services and advocacy services Office of Developmental Programs, Office of Vocational Rehabilitation, Disability Rights Network
Community Resources for Families www.chop.edu/crf
School or Work Request and get the accommodations and support you need at school or work Job Accommodation Network (800)526-7234 (Voice), (877)781-9403 (TTY) askjan.org Get financial help with school, if needed Find out if eligible for Vocational Rehabilitation Know how to apply for a job or vocational services
REACH A program for teens and young adults (ages 12 to 24) with special healthcare needs created by teens and young adults with special healthcare needs. Supported by a grant from the Dept. of Health & Human Services, Health Resources & Services Administration, Maternal Child Health Bureau, MCH Grant T73MC00051,
REACH for Youth with TBI and Parents Self Care Self Advocacy Care Coordination Wellness Relationships Sexual health Eligibility for insurance and Federal programs Navigating the medical system Advocating for support services Networking, socializing and learning transition skills
CHOP Career Path: Services Offered Comprehensive Outpatient Rehabilitation Evaluation Collaboration with the youth s medical team Vocational interest assessments - standardized tests Vocational counseling: career planning and mapping. Vocational training through internships Communication with agencies, schools and potential employers Job finding Job coaching at CHOP place of employment Video: www.chop.edu/transition
For More Information Symme W. Trachtenberg, MSW, LSW Director, Community Education The Children s Hospital of Philadelphia trachtenberg@email.chop.edu 215-590-7444 Formally funded by TBI Implementation Grant #H21MC17232 from the U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA). Contents are the responsibility of the authors and do not necessarily represent the official views of HRSA.