Information Memorandum

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Information Memorandum Originating Cluster: Seniors and People with Disabilities Oregon Department of Human Services Authorized by: Elizabeth Lopez IM Number: SPD-IM-04-005 Signature Date: January 15, 2004 Subject: In-Home Services Survey Applies to (check all that apply): All DHS employees Area Agencies on Aging Children Adults and Families Community Human Services Other (please specify): County DD Program Managers County Mental Health Directors Health Services Seniors and People with Disabilities Message: The Disability Employment Policy Unit (DEPU) will be disseminating a survey regarding In-Home Services on January 20, 2004. This survey is an activity under the Medicaid Infrastructure Grant. We will send the survey to a sample of 1,000 clients who currently use In- Home services. An additional "IC Section" will be sent to those in the Independent Choices program. We will send a pre-notification letter on January 16th, and a 2nd mailing on January 30th. The pre-notification will be a short letter introducing the survey. The 2nd mailing will contain a cover letter stressing the importance of the client's opinions, and another copy of the survey. We have attached copies of these notices and the survey for your information. We will have a central phone number and person to answer questions about the survey. However, questions regarding an individual's services will be directed to that person's Case Manager. If you have any questions about this information, contact: Contact(s): Melanie Clark Phone: 503-947-5281 Fax: 503-373-7902 E-mail: melanie.r.clark@state.or.us SDSD 0080 (08/03)

January 14, 2004 Dear Name, Name Address City, State Zip The Department of Human Services (DHS) will be conducting a survey to measure satisfaction with the In-Home Services program. You will be receiving this survey in the mail in about one week. The In-Home Services Program is the service that allows a person with a disability to receive assistance by a service provider in his/her home or at work. This survey is your chance to let us know how the program is doing. Your privacy will be protected. Your name will not appear on the survey. The information you provide is confidential. Replying will not affect your benefits. If you have any questions about the survey, please call Melanie Clark at 1-800-282-8096. Thank you in advance for your time. Melanie Clark Department of Human Services Disability Employment Policy Unit

January 20, 2004 Name Address City, State Zip Dear Name, The Department of Human Services (DHS) is conducting a survey to measure satisfaction with the In-Home Services program. The In-Home Services Program is the service that allows a person with a disability to receive assistance by a service provider in his/her home or at work. This survey is your chance to let us know how the program is doing. We define Service Provider as someone who comes into the home or work place and helps with activities such as: mobility, cognition, hygiene, toileting, dressing and eating. These activities are referred to in the survey as Activities of Daily Living (ADLs). You are one of a few people chosen to fill out this survey. It is very important that you return your completed survey. The input you provide is crucial to our evaluation of this program. The survey should be filled out by the person it is sent to, but if you need help, please feel free to ask a friend or a family member. Just make sure the answers are about you. Please complete the survey and return it to us in the postagepaid envelope provided. Respondents will receive a report on survey results. The information you provide is confidential. There is a number on this survey that allows us to track our mailings. The file matching your name to this number is kept locked and will be destroyed when the research is complete. Your responses will not affect your benefits. If you have any questions about the survey, please call Melanie Clark at 1-800- 282-8096. Thank you for your time. Melanie Clark Department of Human Services Disability Employment Policy Unit

January 30, 2004 Name Address City, State Zip Dear Name, The Department of Human Services (DHS) recently sent out a survey to measure satisfaction with the In-Home Services program. We have not yet heard from you and would appreciate your feedback. If you have already completed and returned the survey, please accept our sincere thanks. If you have not yet mailed your survey, we have provided another copy of for your convenience. Please complete the survey and return it to us in the postage-paid envelope provided. Respondents will receive a report on survey results. The information you provide is confidential. There is a number on this survey that allows us to track our mailings. The file matching your name to this number is kept locked and will be destroyed when the research is complete. Replying will not affect your benefits. If you have any questions about the survey, please call Melanie Clark at 1-800-282-8096. Thank you for your time. Melanie Clark Department of Human Services Disability Employment Policy Unit

In-Home Services Survey If you are not sure of an answer or the question does not apply, mark the Unsure or (N/A) option. Overall Satisfaction with the In-Home Services Program 1. How satisfied are you with the In-Home Services you receive? Very Satisfied Somewhat Satisfied Somewhat Dissatisfied Very Dissatisfied 2. Please think about all of the help you receive, paid and unpaid. Do you need more help with Activities of Daily Living (ADLs) than you are now receiving? (ADLs are activities such as eating, hygiene, etc.) A lot more help Somewhat more help more help 3. Do you feel more independent with your service provider than without? A lot more independent Somewhat more independent more independent 4. Please think about the help you receive, both paid and unpaid. What amount of service is paid? All paid service Mostly paid service Some paid service paid service In-Home Services Survey Page 1 of 1

5. How much do you rely on each of the following sources for your physical care? Help from unpaid sources such as A) Family or relatives B) Friends or neighbors C) Volunteer programs Help paid for by D) You using your own funds E) State funds F) Others (not you and not the State, e.g. n- Profit Organization) Heavily Rely Somewhat Rely Don t Use N/A 6. Did you have any trouble finding someone to hire as a service provider? A) If yes, what problems did you encounter? (Check all that apply) Unavailable at the times I need them Hiring process takes too long Few available/qualified workers My location Pay is too low for Provider Couldn t meet my need Other 7. If your service provider cancels/quits at the last minute, can you find a backup quickly? Unsure In-Home Services Survey Page 2 of 2

8. Please rate how comfortable you are with the following tasks. A) Hiring your service provider B) Training your service provider C) Supervising your service provider Comfortable Neutral Un-comfortable N/A 9. Think about your service provider. Please rate this person in each of the following: A) Timeliness B) Trustworthy C) Respectful D) Agree on job duties E) Amount of help provided F) Availability Nights, Weekends, Holidays G) Availability Urgent needs Excellent Good Fair Poor N/A 10. How would you rate the service provided by your Case Manager or Worker in each of the following areas? A) Availability B) Knowledge of programs C) Returns phone calls D) Courtesy Excellent Good Fair Poor N/A In-Home Services Survey Page 3 of 3

Employment 11. Did you know that the state would pay for a service provider when you are at work? Unsure 12. Are You Employed?, for employer, self-employed A) If no, now that you know service providers are available at work, will you seek employment? Already Employed Unsure A) At work, do managers or coworkers assist you with tasks usually done by a service provider? Managers Coworkers Both Neither 13. Is the service level you receive adequate to enable you to work? Unsure If you are not employed, skip to Question #21 14. On average, how many hours do you work per week? 10 or fewer 11 to 20 21 to 30 31 to 40 More than 40 15. If you received more services, could you work more hours? Unsure In-Home Services Survey Page 4 of 4

16. Do you now or have you ever used a service provider at work? Skip to Question #19 Skip to Question #19 17. How do people you work with respond to your use of a service provider at work? Very Favorably Somewhat Favorably Somewhat Unfavorably Very Unfavorably 18. Please rate how easy or difficult it was to arrange for a service provider at work. Very Easy Somewhat Easy Somewhat Difficult Very Difficult 19. What else would help you be more independent? (Check all that apply) Help with transportation Changes in the home Changes in the workplace Service provider in the workplace Vocational/job training Interpreter services Mechanical Devices/Assistive Technology Service provider for recreation Social activities Community Involvement Other: In-Home Services Survey Page 5 of 5

20. What other comments or suggestions do you have? 21. Who completed this survey? Client Family or Friend of client Service Provider of client Other Thank you for completing this survey. The information you ve provided will be used to evaluate the In-Home Services program. In-Home Services Survey Page 6 of 6

Independent Choices (IC) Program 1. Have you hired any service providers in the last six months? A) If yes, have you generally found it easy or hard to find paid service providers? Very Hard Somewhat Hard Neutral Somewhat Easy Very Easy 2. Please let us know which features of Independent Choices (IC) you like the most. (Check all that apply.) More control over who helps with in-home services More control over the kind of in-home services you receive Ability to pay someone that may not have been eligible as a service provider in other programs Receiving and managing the money yourself Other 3. Please let us know the features of the IC program you like the least. (Check all that apply.) Payroll responsibilities Figuring out and paying payroll taxes Making your cash benefits last for a month Other 4. When you signed up for the IC program, did you think the cash benefit would allow you to get More Services Same Services Fewer Services 5. How much service do you feel you are getting in the IC program? More than the regular program Same as the regular program Less than the regular program Personal Assistance Services Survey Page 1 of 1

6. What is the effect of Independent Choices on your level of independence? Increase ne Decrease 7. What is the effect of Independent Choices on your satisfaction? Increase ne Decrease Personal Assistance Services Survey Page 2 of 2