Undergoing a Percutaneous Endoscopic Gastrostomy (PEG) Tube procedure

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Page 1 of 7 Undergoing a Percutaneous Endoscopic Gastrostomy (PEG) Tube procedure Introduction This leaflet only contains information regarding a PEG tube and includes important information about the procedure. It is essential that you read this if you are having a PEG tube inserted, replaced or removed. What is a Percutaneous Endoscopic Gastrostomy (PEG)? PEG stands for: Reference No. GHPI1117_09_15 Department Endoscopy Review due August 2018 Percutaneous which means through the skin Endoscopic an endoscope is a flexible instrument used to examine the inside of your stomach Gastrostomy an opening into your stomach into which a small tube is inserted so that you can receive nutrition, fluid and medication. A PEG tube allows liquid feed, water and medication to go directly into the stomach. A PEG tube can be used for short term or long term use and it is often used for patients who are experiencing swallowing difficulties due to illness or medical treatment. A PEG tube is designed to remain in place for many years before it may require replacement. It is normal practice to have a PEG insertion in the Endoscopy Unit. Occasionally a gastrostomy tube is inserted surgically or radiologically. If your doctor thinks that this is the best option, it will be discussed with you. Any medication that thins your blood will need to be stopped OTHER THAN ASPIRIN (which you can remain on) prior to the insertion of a PEG. Please contact the Endoscopy Unit on the Medication Advice Line (answer machine) telephone number found at the end of this leaflet.

Page 2 of 7 What happens during the PEG procedure? You will be asked not to have anything to eat or drink for at least 6 hours before the procedure You will be seen by a nurse who will check your personal details You will be asked a series of questions including any history of operations or illness that you may have had or are presently suffering with. The nurse will also ask about any known allergies or if you have had a bad reaction to any medications in the past. Please bring a list of the medications you are taking with you You will be offered sedation for the procedure if you are having a PEG inserted or a PEG traction removal. If you do have sedation, you will need to ensure that you have a responsible person to take you home and stay with you overnight Please note: If you are having a PEG tube placed for the first time you will be admitted to a ward after the procedure and will require at least an overnight stay so that staff can teach you and/or your carers how to use and take care of your PEG tube A hospital stay of 2 to 5 days may be required if you need to be established on a feeding regime through your PEG tube If you are having your tube replaced then you should not require an overnight stay but you should have a responsible adult with you at home for 24 hours. For the time that you are in the unit we want to provide a safe, supportive and pleasant environment so please do not be afraid to ask if you have any worries or questions at this stage. Please note that your appointment time is your arrival time within the unit and not the time you will have your procedure. There will be a waiting time between your arrival and having your procedure done. Before the procedure The procedure and potential complications will be explained to you so that you understand what will happen and any risks You will be asked to sign a form called a consent form. When you have signed this form, it means you have agreed to have the procedure done and you understand why it is needed. This does not take away your right to ask for the procedure to be stopped at any time For this procedure you may need to remove your clothes and wear a hospital gown.

Page 3 of 7 When it is time for your procedure, a nurse will escort you into the theatre and will stay with you throughout In the theatre room any dentures will be removed and a local anaesthetic spray will be applied to the back of your throat to make it feel numb You will then be made comfortable on a couch Your pulse and blood oxygen levels will be monitored throughout the procedure and your blood pressure will be checked as necessary. If you have requested sedation, this will be the time it is given To protect your teeth and the endoscope, a plastic mouth guard will be placed between your teeth or gums when dentures are removed. The endoscope will then be inserted through the mouth piece. When it reaches the back of the throat you will be asked to swallow to help the endoscope go down into the stomach. This will not interfere with your breathing. Some air will be passed through the endoscope to inflate the stomach and allow a clearer view. You may feel wind like discomfort and belch some air up during the test, but please do not be embarrassed as this is normal At the point where your PEG tube is to be placed into your stomach, some local anaesthetic will be injected into the skin and a small hole will be made. A guide wire is passed through the small hole and pulled up through your mouth using the endoscope. The PEG tube is attached to the guide wire and pulled back to the stomach and out through the small hole. If you have had sedation and local anaesthetic for the procedure, then this shouldn t be painful but it may be a little uncomfortable Any saliva in your mouth will be removed by the nurse caring for you using a small suction tube When the endoscope is taken out, most of the remaining air in the stomach will also be removed The PEG procedure will normally take about 20 minutes. After the procedure After the procedure, the nurse caring for you will take you from the theatre to the recovery area where your pulse and blood pressure will be monitored as required. This is called the recovery period. You may feel a little bloated or have some discomfort in your stomach after the procedure

Page 4 of 7 Your throat will still feel a little numb from the throat spray, but this will wear off gradually. Your throat may then feel a little sore, which could last for the rest of the day After your stay in the recovery area, you will be taken back to a ward. You will be kept Nil By Mouth/ Nil via PEG tube for 6 hours after insertion There are a variety of ways you can be fed via your PEG tube. A dietitian will tailor this to your needs whilst you are in hospital The PEG tube will not interfere with normal eating and drinking. Your eating and drinking will depend on your swallow function which will be monitored by your speech and language therapist if appropriate. Potential complications/risks As with all procedures there may be complications that could occur. These may include: Infection Haemorrhage Perforation of an internal organ Aspiration pneumonia Peritonitis. If relevant to you these will be discussed with you before you sign the consent form. How to care for the PEG tube? You will be provided with information and training on how to care for and manage your PEG and feeding equipment, by the ward staff caring for you, prior to going home (this will not be the endoscopy staff that supported you throughout your procedure). Following discharge, you will be supported at home by the home enteral feeding team based at Gloucestershire Royal Hospital or the head and neck specialist dietitian. Tube removal If you have been referred to the Endoscopy Unit to have your Corflo PEG tube removed, this may be done by traction (steady firm tension applied to the tube) in the majority of cases or it may have to be endoscopically removed if complications are foreseen.

Page 5 of 7 You will need to be Nil By Mouth/Nil by Tube for 6 hours prior to your appointment time Report to endoscopy reception at the time stated on your appointment letter. Please note that this is your arrival time and not the time that the procedure will take place You will meet with 1 of the endoscopy nurses who will explain the procedure to you, complete the necessary paperwork and record your blood pressure, pulse and respiratory level You will be asked if you would like to have sedation for the procedure. Some patients manage without sedation and others choose to have it. If you choose to have sedation, you must have someone responsible to take you home and stay with you for 24 hours afterwards You will be asked to sign a consent form before going into the endoscopy room An endoscopy nurse will escort you to the room and you will be made comfortable on the couch You will have a local anaesthetic gel applied around your stoma site (the hole your tube goes into) and you will be offered sedation at this stage Your tube clamp and adaptors are removed at this stage After 3 to 5 minutes, you will be asked to take a deep breath and the tube will be pulled out. s have described the feeling as a sharp pain which only lasts for a few seconds. You may need to take a pain relief if the stoma site is sore or uncomfortable after the procedure If traction removal as described above is not possible, then you will have the tube removed endoscopically while in the theatre room. Once your feeding tube has been removed the stoma site (the hole the tube has come out from) should heal internally, within approximately 24 hours, but externally, the stoma may take a few days to heal completely. The stoma site will be covered by a gauze pad. It is normal for the stoma site to bleed a little after your tube has been removed. You will need to be collected from the Endoscopy Unit and have a responsible adult with you at home for the next 24 hours Remove the gauze pad after 24 hours After the procedure it is usual to wait for 4 hours before you can eat and drink

Page 6 of 7 Please refrain from submerging in water for 48 hours after the removal of PEG. No bathing or swimming for 48 hours. It is perfectly safe to shower. Leakage could be expected for 1 to 2 days from your stoma site. If you notice any leakage from the stoma approximately 3 days following removal, then please seek advice from your GP. Tube replacement Your feeding tube has been replaced and the previous stoma site (the hole the tube has come out from) has been used to insert a new one. The site may feel tender and sore for the next few days. For tube replacement, patients do not always need sedation as it is generally a painless procedure. However, you do have a choice and if you would like sedation you will need to be collected from the Endoscopy Unit and have someone with you at home for the next 24 hours Remove gauze pad after 24 hours Do not eat, drink or use your new tube for at least 4 hours following the procedure The following morning, you should return to caring for the tube and site as normal (such as: clean site daily, advance and rotate tube daily/weekly) If you have had a balloon gastrostomy tube placed then you will be given a leaflet on care of the tube, a spare tube and 5ml syringes and 5ml plastic bottles of sterile water (for checking the balloon) by the endoscopy nurses. The nutrition nurse specialists will contact you at home to arrange a visit to explain how to check the water in the balloon and arrange a date for the tube to be replaced at home in 3 months. Contact information Endoscopy Unit Gloucestershire Royal Hospital Tel: 0300 422 8222 Monday to Friday, 8:00am to 6:30pm Endoscopy Unit Cheltenham General Hospital Tel: 0300 422 3593 Monday to Friday, 8:00am to 6:30pm

Page 7 of 7 Enteral Nutrition Nurse Specialists Tel: 0300 422 6338 Further information s on Intravenous and Nasogastric Nutrition Therapy (PINNT) Website: www.pinnt.com Content reviewed: August 2015