NHS England (London region) End of Life Care Commissioners Checklist King s Fund

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Date NHS England (London region) End of Life Care Commissioners Checklist King s Fund 22.9.16 Caroline Stirling, Clinical Director, End of Life Care, NHS England (London region) EOLC Lead, UCLPartners Consultant, Camden, Islington ELiPSe and UCLH & HCA Palliative Care Service

NHS England Clinical Networks Initiated in 2013 4 key themes chosen (those in which large scale coordinated change and improvement required, complex pathways of care, multiple professionals / organisations involved) Cardiovascular (including cardiac, stroke, renal, diabetes) Cancer Mental health (including dementia, neurological conditions) Maternity, Children and Young people Other cross cutting themes developed according to local need

NHS England Clinical Networks Principles: work in partnership with commissioners, work cross boundary, be a vehicle for improvement for patients, carers, public in order to Reduce unwarranted variation in health and well being services Encourage innovation in service provision Provide clinical advice and leadership to support decision making and strategic planning.

NHS England (London region) EOLC Clinical Network March 2014 Clinical Leadership Group formed - following 5 roadshows to establish local priorities ~25 members representing primary, secondary and third sector health care, social care, generalists and specialists, commissioners and providers, patients / carers June 2014 - four workstreams initiated: Workforce and training Community Good care, good death, good bereavement Engagement and social strategy

Good care, good death, good bereavement Co-chairs Dr, Luke Howard (Respiratory Physician, Imperial College), Mr. Brian Andrews (Lay member representative, London EOLC Alliance) Supported by Ruth Evans, Senior Project Manager Definition of a good death published Spring 2015 Commissioners checklist project initiated Autumn 2014 Supported, and reviewed / edited by CCG commissioners from around London London ADASS EOLC commissioners

Challenges to commissioning End of Life Care Spans health and social care Spans generalist and specialist services e.g. Community nursing, equipment, pharmacy provision, OOH services Spans NHS and third sector funded health care Patient and those important to him/her e.g acute hospital care, hospice & hospice at home care, Macmillan provision Commissioning and service provision is nonuniform

End of Life Care Commissioners Checklist Aimed at Achieving excellent quality care All Health and Social Care settings All diagnoses Use throughout commissioning cycle Use alongside other key publications / assessments Published April 2016 12 pages

End of Life Care Commissioners Checklist foundations for excellence 22/09/ 2016

End of Life Care Commissioners Checklist

Dissemination April 2016 onwards London CCG EOLC commissioning leads 5 STP Strategic Planning Group leads EOLC Clinical Leads across London National EOLC lead Presentation and discussion at meetings with individual commissioners

Use of the EOLC commissioners checklist Welcomed by commissioners Used alongside Ambitions document, SPC specification, NHSIQ commissioning toolkit etc. Links are vital. Used to support creation of commissioning papers Used to guide EOLC workstream within STP Feedback: useful components Brevity and outcomes Clear and logical in approach Spans breadth of services required to deliver EOLC

NHS Mandate 2016-17 - EOLC 2.2-2020 goals: Significantly improve patient choice, including end-of-life care ensuring an increase in the number of people able to die in the place of their choice, including at home 2016-17 deliverables: produce a plan with specific milestones for improving patient choice by 2020 particularly in end of life care (to ensure more people are able to achieve their preferred place of care and death) NHS Business Plan 2016-7 - EOLC Promote and support the implementation of the Choice commitment to improve choice in EOLC CCG improvement and assessment framework 2016/17 Indicator 105c percentage of deaths which take place on hospital

Engagement with London STPs May 2016 - presentation at London STP SPG meeting Paper summarising case for change in EOLC for London, and 5 asks: 1. Increase in the number of people identified as being in the last year of life No. of patients entered onto an EPaCCS 2. Reduction in % of people who die in hospital Reported quarterly by CCG via the National EOLC Intelligence Network 3. Provision of 24/7 community nursing, community pharmacy, Specialist Palliative Care Services in all settings 4. Use of an interoperable communications system to document and share care plans for patients approaching the end of life. Adoption of the Resuscitation Council (UK)/RCN - led ReSPECT process. 5. Improvement in patient and carer experience - decision-making, coordination of care and access help and advice when needed. Single point of contact and or access to a care coordination centre.

Priorities of EOLC SCNs for 2016-17 Support better commissioning of EOLC, through championing amongst STPs, commissioners, providers and clinical teams, through the use of Commissioning toolkit / SPC guidance SPC currencies, and datatset Support implementation of Transforming EOLC programme in acute hospitals and communities including use of five enablers ACP, AMBER Care bundle / other identification tool (TEP ReSPECT), rapid discharge home checklist, care in the last days of life, EPaCCS

NHS England End of Life Care workstreams 2016-17 1. Enhancing physical and mental wellbeing of the individual To optimise the person s mental and physical wellbeing so that they can live as well as they wish until they die To optimise support for their families, carers and those important to them to maximise their wellbeing before and after the person s death 2. Transforming experience of End of Life Care in hospitals and the community To significantly improve the experience of end of life care in hospitals, at home, and in care homes, hospices and other institutions 3. Commissioning quality services that are accessible to all when needed To support commissioners and service providers to design and implement models of care which promote integration and care that feels coordinated to those using, and delivering, end of life care services