Harnessing Community Engaged Scholarship for Collective Action t o Improve Population Health

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University of Kentucky From the SelectedWorks of Glen Mays Spring April 11, 2014 Harnessing Community Engaged Scholarship for Collective Action t o Improve Population Health Glen P. Mays, University of Kentucky Available at: https://works.bepress.com/glen_mays/148/

Harnessing Community Engaged Scholarship for Collective Action to Improve Population Health Glen Mays, PhD, MPH University of Kentucky glen.mays@uky.edu UNC-Wilmington Health & Human Services Research Day Wilmington NC 11 April 2014 National Coordinating Center

Failures in population health WHO 2010

Failures in population health Premature Deaths per 100,000 Residents Commonwealth Fund 2012

Drivers of population health failures Schroeder SA. N Engl J Med 2007;357:1221-1228

Missed opportunities for prevention Less than 50% of the population at risk is reached by: Smoking cessation Aspirin use Influenza vaccination Hypertension control Nutrition and physical activity programming HIV prevention Family planning Substance abuse prevention Interpersonal violence prevention

Vicious cycles in population health Limited public understanding & political support Incoherence in missions, responsibilities & expectations Complex, fragmented, variable financing & delivery systems Large inequities in resources & capabilities Variable productivity and efficiency Resources incongruent with preventable disease burden Lack of coordination Gaps in reach & implementation of efficacious strategies Difficulties demonstrating impact, value & ROI

Vicious cycles to learning systems Translate evidence for policy, programs & advocacy Discover causes & consequences of variation in population health

What are Population Health Strategies? Designed to achieve large-scale health improvement: neighborhood, city/county, region Target fundamental and often multiple determinants of health Mobilize the collective actions of multiple stakeholders in government & private sector - Usual and unusual suspects

Population Health vs. Public Health Organized programs, policies, and laws to prevent disease and injury and promote health on a population-wide basis Epidemiologic surveillance & investigation Community health assessment & planning Communicable disease control Chronic disease and injury prevention Health education and communication Environmental health monitoring and assessment Enforcement of health laws and regulations Inspection and licensing Inform, advise, and assist school-based, worksitebased, and community-based health programming and roles in assuring access to medical care

What Makes Population Health Strategies So Hard? Incentive compatibility public goods Concentrated costs & diffuse benefits Time lags: costs vs. improvements Uncertainties about what works Asymmetry in information Difficulties measuring progress Weak and variable institutions & infrastructure Imbalance: resources vs. needs Stability & sustainability of funding

Complexity in population health strategies Health System Resources & expertise Participation incentives Needs Preferences Risks Threats Resources Population & Environment Perceptions Mays et al 2009 Scope of Breadth of activity organizations Division of responsibility Compatibility of missions Scale of operations Distribution of effort Nature & intensity of relationships Strategic Decisions Scope of services Staffing levels & mix Public Health Agency Legal authority Funding levels Governing & mix structure Leadership Intergovernmental relationships Outputs and Outcomes Reach Effectiveness Timeliness Decision Support Accreditation Performance measures Practice guidelines Quality improvement Adherence to EBPs Efficiency Equity

Population health delivery systems National Longitudinal Survey of Public Health Systems, 2012

Organizations engaged in local public health delivery % Change 2006-2012 Scope of Delivery 2012-50% -30% -10% 10% 30% 50% Local health agency Other local government State health agency Other state government Hospitals Physician practices Community health centers Health insurers Employers/business Schools CBOs National Longitudinal Survey of Public Health Systems, 2012

Seven types of population health delivery systems % of communities 50% 45% 40% 35% 30% 25% 20% 15% 10% 5% 0% 1998 2006 2012 1 2 3 4 5 6 7 Scope High High High Mod Mod Low Low Centralization Mod Low High High Low High Low Integration High High Low Mod Mod Low Mod Comprehensive Conventional Limited Source: Mays et al. 2010; 2012

Fixed-effects models control for population size, density, age composition, poverty status, racial composition, and physician supply Changes in health associated with delivery system Percent Changes in Preventable Mortality Rates by System Typology 0.4 0.3 0.2 0.1 0.0 Infant Deaths/1000 Live Births Births 8.0 6.0 4.0 2.0 0.0-2.0-4.0-6.0 2.0 1.0 0.0-1.0 Cancer deaths/100,000 population Clusters Systems 1-3 3 Clusters Systems 4-5 System Cluster 6 System Cluster 77 Influenza Deaths/100,000-0.1 10.0 8.0 6.0 4.0 2.0 0.0 4.0 3.0 2.0 1.0 Clusters Systems Cluster 1-3 1-3 3 Clusters Systems 4-5 4-5 System Cluster 6 System Cluster 7 Heart Disease Deaths/100,000 Clusters Systems 1-3 1-3 3 Clusters Systems 4-5 4-5 Cluster System 6 System Cluster 7 Infectious Disease Deaths/100,000-2.0 0.0 Clusters Systems 1-3 3 Clusters Systems 4-5 System Cluster 6 System Cluster 7 7 Clusters Systems 1-3 1-3 3 Clusters Systems 4-5 4-5 System Cluster 6 System Cluster 7

Mortality reductions attributable to spending on public health, 1993-2008 2 1 0-1 Infant mortality Heart disease Diabetes Cancer Influenza All-cause Alzheimers Injury Percent change -2-3 -4-5 -6-7 -8-9 Hierarchical regression estimates with instrumental variables to correct for selection and unmeasured confounding Mays et al. 2011

Medical cost offsets attributable to spending on public health, 1993-2008 For every $10 of public health spending, $9 are recovered in lower medical care spending over 15 years Public health spending/capita ($). 120 100 80 60 40 20 0 Public health spending/capita Medicare spending per recipient 7200 7000 6800 6600 6400 6200 6000 5800 Medical spending/person ($). Quintile 1 Quintile 2 Quintile 3 Quintile 4 Quintile 5 Mays et al. 2009, 2013 Quintiles of public health spending/capita

Why population health now? Next Generation Population Health Improvement

How Can Community-Engaged Research Help? Identify common interests, incentives & problems Mitigate asymmetries in power & information Use theory, evidence & experience to design strategies with high probability of success Measure progress & provide feedback - Fail fast - Continuously improve Evaluate health & economic impact

Toward a rapid-learning system in population health Green SM et al. Ann Intern Med. 2012;157(3):207-210

What is Practice-Based Research? Research that tests effectiveness & impact of public health practices in real-world public health settings Research designed to address uncertainties and information needs of real-world public health decision-makers Research that evaluates the implementation and impact of innovations in practice Research that uses observations generated through public health practice to produce new knowledge

PBRNs as Mechanisms for Community-Engaged Scholarship Identify Common questions of interest Translation & application Engaged practice settings Research partner Apply Rigorous research methods Analysis & interpretation Data exchange

Diffusion of Public Health PBRNs First cohort (December 2008 start-up) Second cohort (January 2010 start-up) Affiliate/Emerging PBRNs (2011-14)

Studying PBRNs as Mechanisms Roles played by participants in PBRN activities

Studying PBRNs as Mechanisms Perceived benefits of PBRN participation

Examples: Studying PBRNs as Mechanisms Baseline network analysis with 14 PBRNs to examine network structures for evidence production and translation

Examples: Studying PBRNs as Mechanisms Network Structures Associated with Perceived Benefits Perceived Benefit Rating Characteristic Coeff. S.E. Network density 0.341 0.112 ** Network centrality -0.521 0.227 ** History of collaboration 0.148 0.108 Practice orientation 0.283 0.144 * Estimates from ordered logit model controlling for PBRN random effects **p<0.05 *p<0.10

PBRNs and Delivery System Change Local Health Departments Engaged in Research Implementation & Translation Activities During Past 12 months PBRN Agencies National Sample Activity Percent/Mean Percent/Mean Identifying research topics 94.1% 27.5% *** Planning/designing studies 81.6% 15.8% *** Recruitment, data collection & analysis 79.6% 50.3% ** Disseminating study results 84.5% 36.6% ** Applying findings in own organization 87.4% 32.1% ** Helping others apply findings 76.5% 18.0% *** Research implementation composite 84.04 (27.38) 30.20 (31.38) ** N 209 505

Key elements of success with community engaged scholarship & collective action Clear goals Congruence between resources & objectives Explicit incentives & constraints Monitoring mechanisms Small wins Conflict resolution mechanisms Effective communication and information flow Nested & embedded activities By John Kania & Mark Kramer 65 Winter 2011

More Information - Always Open National Coordinating Center Supported by The Robert Wood Johnson Foundation Glen P. Mays, Ph.D., M.P.H. glen.mays@uky.edu Email: publichealthpbrn@uky.edu Web: www.publichealthsystems.org Journal: www.frontiersinphssr.org Archive: works.bepress.com/glen_mays Blog: publichealtheconomics.org University of Kentucky College of Public Health Lexington, KY