Community-Based Population Health Research: A Report from the Field

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Community-Based Population Health Research: A Report from the Field Sharon L Larson, PhD Professor Executive Director Trina Thompson, DrPH, MPH, BSN Research Associate Professor Executive Director Norma Padron, PhD, MPH Assistant Professor Associate Director Main Line Health System Center for Population Health Research Marquita Decker-Palmer, MD,PhD Research Assistant Professor Associate Director 1889 Jefferson Center for Population Health

Learning Objectives Describe two innovative models for population health research centers List three benefits of partnering with a University when establishing a population health center Characterize challenges associated with the development of community-engaged and health system embedded, population health research centers 2

Population Health and the Learning Health Approach Knowing Characterizing the groups of people we serve Learning What are the needs of our populations? What are the recommended best practices for addressing health, wellness, and prevention? Doing Developing relevant strategies and interventions to improve the quality of care and outcomes for our populations in partnership with health care consumers, communities, providers, health care organizations, payers and others Learning some more Assessing what is working, why it is working, what didn t work and how to remove barriers to success refine and continue the work 3

Who are we? Main Line Health Center for Population Health Research 1889 Jefferson Center for Population Health 4

Conemaugh Health System (CHS) established a philanthropic arm Conemaugh Health Foundation 1889 Jefferson Center for Population Health Duke LifePoint Healthcare acquired CHS became for-profit Executive Director hired, opened the 1889 Jefferson Center for Population Health 1993 August 2014 2014 March 2015 Mar. 2016 - Q3 & Q4 Feb. 2017 2017 2018 Foundation received $110M from hospital sale Became independent Community Health & Wellness Foundation Renamed 1889 Foundation, Inc. 1889 Foundation announced partnership and 5- year commitment of $7.5M to Thomas Jefferson University to establish 1889 Jefferson Center for Population Health Selected team 120+ community interviews Hub for PA PUBH 3.0 Strategic plan RFP 5

1889 Jefferson Center for Population Health Priorities Diabetes Obesity & inactivity Tobacco (drug & alcohol) Mental Health 6

Strategic Direction Community 7

County Demographics 2016 Variable Cambria Somerset Population 134,700 75,000 Male Female 49% 51% 52% 48% % Poverty 15.6% 14.1% Central Pennsylvania Median Income $43,614 43,938 Population Density sq/mile 200 70 Health Systems 3 for-profit 1 nonprofit https://factfinder.census.gov/faces/tableservices/jsf/pages/productview.xhtml?src=bkmk https://www.census.gov/datatools/demo/saipe/saipe.html?s_appname=saipe&map_yearselector=2016&map_geoselector=aa_c&s_state=42&s_county=42021,42111&menu=grid_proxy 8

What are we doing at 1889 Jefferson? 9

Mountains we are climbing 1889 Jefferson Partnerships with community organizations For-profit hospital Transforming silos to collaboration changing culture and territorial conflicts Kid in the candy shop syndrome selecting the focus Staffing challenges External matching funds to 1889 Foundation funding Frequent target of funding requests Focus: data vs. community story 10

Main Line Health Center for Population Health Research

12 About our Health System Main Line Health Founded in 1985, Main Line Health is a not-for-profit health system serving portions of Philadelphia and its western suburbs. Four of the region s most respected acute care hospitals Lankenau Medical Center, Bryn Mawr Hospital, Paoli Hospital and Riddle Hospital Bryn Mawr Rehabilitation Hospital Mirmont Treatment Center for drug and alcohol recovery Main Line Health Centers including primary care doctors, specialists, laboratory, radiology, rehabilitation and other outpatient services Lankenau Institute for Medical Research, a non-profit biomedical research organization

13 The Center for Population Health Research in the Main Line Health System Represents a Partnership with Jefferson College of Population Health Joint steering committee of Main Line Health executive leadership and Jefferson leadership Significant study prior to the development of the center by an outside consultancy Dr. Norma Padron, Associate Director 2016 Dr. Sharon Larson, Executive Director 2017

14 LMC Social Needs Survey: Affording Meds MLH Acute Hospital 19473 19475 19403 I 476 US 1 19406 19428 19150 Difficulty with Affording Meds 17.9% -- Other Phila County 20.0% -- Other 20.8% -- UW-19131 30.8% -- UW-Other 35.3% -- UW-19151 42.9% -- Suburban-LP 46.2% -- UW-19139 US 30 Paoli US 1 19073 Riddle 19087 19141 19120 19144 19149 Bryn Mawr 19072 19010 19129 19124 19004 19140 19003 19096 Other Phila County 19066 19132 Lankenau 19131 19121 19083 19151 19122 19008 Suburban-LP 19082 19139 19104 I 676 19026 UW-Other 19050 19146 19143 19147 19064 19018 19142 I 676 19013 I 476 I 95 19036 19079 19128 19153 19138 19111 US 30 I 95 Source: LMC Social Needs Survey V1 9-21-15

15 LMC Social Needs Survey: Taking Care of Home MLH Acute Hospital 19473 19475 19403 I 476 US 1 19406 19428 19150 Difficulty with Taking Care of Home 16.2% -- UW-19151 16.7% -- Other 18.5% -- Suburban-LP 29.6% -- Other Phila County 30.9% -- UW-19131 34.6% -- UW-19139 40.7% -- UW-Other US 30 Paoli US 1 19073 Riddle 19087 19141 19120 19144 19149 Bryn Mawr 19072 19010 19129 19124 19004 19140 19003 19096 Other Phila County 19066 19132 Lankenau 19131 19121 19083 19151 19122 19008 Suburban-LP 19082 19139 19104 I 676 19026 UW-Other 19050 19146 19143 19147 19064 19018 19142 I 676 19013 I 476 I 95 19036 19079 19128 19153 19138 19111 US 30 I 95 Source: LMC Social Needs Survey V1 9-21-15

16 LMC Social Needs Survey: Personal Stress MLH Acute Hospital 19473 19475 19403 I 476 US 1 19406 19428 19150 Difficulty with Personal Stress 38.6% -- UW-19131 & 19151 42.3% -- UW-Other 42.9% -- Suburban-LP 44.8% -- Other 53.6% -- Other Phila County 57.7% -- UW-19139 US 30 Paoli US 1 19073 Riddle 19087 19141 19120 19144 19149 Bryn Mawr 19072 19010 19129 19124 19004 19140 19003 19096 Other Phila County 19066 19132 Lankenau 19131 19121 19083 19151 19122 19008 Suburban-LP 19082 19139 19104 I 676 19026 UW-Other 19050 19146 19143 19147 19064 19018 19142 I 676 19013 I 476 I 95 19036 19079 19128 19153 19138 19111 US 30 I 95 Source: LMC Social Needs Survey V1 9-21-15

17 What are we doing at Main Line CPHR? Harm reduction among opioid substance abusers Depression care pathways Human trafficking a project developed by a group of nurse residents Emergency department utilization Women s heart health Cancer and the value of care coordination Promoting health professions among under represented minority students Building partnerships with clinicians and clinical departments

18 Mountains we are climbing CPHR New tools for research Identifying the silos and potential partners Partnerships with the clinical enterprise Data access Data development Kid in the candy shop syndrome Figuring out the questions Staffing Funding internal and external

Meeting Challenges Through Population Health Science Main Line Health Center for Population Health Research 1889 Jefferson Center for Population Health 19

Identifying Health Priorities Publically-reported disease prevalence data Community Health Needs Assessments Stakeholder engagement Priorities of average community residents?

Identifying Health Priorities Assess community-reported health priorities to inform our strategic plan Surveys? Focus groups? Free Listing Interviews Qualitative research method Relatively easy to conduct, low response burden Analysis less time-consuming than focus group, less extraneous data Limitations: interpretation bias, response bias, selection bias, assumption that order of terms matters

Identifying Health Priorities Using Free Listing Interviews to Assess Community-Reported Health Priorities (n = 98) List the things that improve your health List the health problems that affect you List the things that make it hard for you to stay healthy Demographic data: Year of birth Gender Race Zip code Health insurance status Analysis: Group terms Domains Saliency index

Identifying Health Priorities Salient Factors that Improve Health in adults under 65 versus 65+ ADULTS 18 to 64 ADULTS 65+ Exercise & Physical Activity Sleep & Rest Eating Healthy Food Healthcare & Health Services Smoking Cessation Stress Reduction & Relaxation Medications & Medical Devices

Identifying Health Priorities Salient Health Problems in adults under 65 versus 65+ ADULTS 18 to 64 Weight, Activity, & Dietary Concerns ADULTS 65+ Smoking Cancer Mental Health Conditions Anxiety Asthma & Lung Disease Cardiovascular Disease Spine & Joint Disease Diabetes Allergies

Identifying Health Priorities Salient Barriers to Health in adults under 65 versus 65+ ADULTS 18 to 64 Weight, Activity, & Dietary Concerns ADULTS 65+ Occupational Concerns Time constraints Aging Stress & Fatigue Lack of Motivation Financial Constraints Barriers to Healthcare Smoking Cessation

Interim Summary Assessment of community-reported health priorities is important for informing a strategic plan Focus future health interventions to address community needs and wants Tailoring interventions to community preferences Community buy-in

27 Leveraging large datasets for population health Population health dashboard Applications to understand social determinants of health and ED utilization

28 CPHR Research and Data Products Background: A strong system-wide agenda to address disparities The MLHS 2013 and 2015 CHNAs for each hospital 2015 Social Needs Survey Diversity, Respect and Inclusion Agenda Background: A strong system-wide agenda to address disparities The MLHS 2013 and 2015 CHNAs for each hospital 2015 Social Needs Survey Diversity, Respect and Inclusion Agenda

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31 CPHR Research and Data Products How can publicly available data assets be aggregated and maintained a resource across the system? Who would the users be? What questions are relevant and to what groups across the system?

Our Process Data gathering (csv, shp) Data cleaning & Analysis Prototype tool Knowledge repositories Data, and informed design Aggregating Data and iterating design Summarizing all relevant information Prototypes, Interactive Visualizations All-team access, lessons learned shared Reuse, reuse, reuse 32

Population Health Dashboard View only zip codes whose income is in the selected range Select one of these tabs Select one factor Additional tabs for more details Additional information Definitions and Evidence Base from Academic Literature Interactive map https://cphratlimr.shinyapps.io/cphr_populationhealthdashboard/ 33

Population Health Dashboard Legend. Colors may represent quintiles, bins or categories Regions where MLH operates RWJF Health scores for each county When you select a Social determinant of health, this information changes Main Line Health Hospitals Planning Districts from Philadelphia Community Health Assessment and centers https://cphratlimr.shinyapps.io/cphr_populationhealthdashboard/ 34

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Data aggregated from PA Department of Health, Annual Hospital Questionnaire (2014-2015) [14] 22500 Number of Hospital Physicians, Nurses, and PAs, by County 17500 12500 7500 2500-2500 Bucks Chester Delaware Montgomery Philadelphia Total Hospital Physicians Total Physician Assistants Total Hospital Nurses Total SEPA ED Visits by County, 2012-2015 1,200,000 1,000,000 800,000 600,000 400,000 200,000 0 Cheste Delaw Montg Philad Bucks r are omery elphia Visits to Ed (2014-2015) 196,178 153,889 203542 353,251 1,055,755 Visits to ED (2013-2014) 194,121 153,169 202,578 348,312 1,018,263 Visits to ED (2012-2013) 196,242 156,188 194,041 352,482 1,045,021 36

Final Comments Models like ours at CPHR at other health systems and organizations Huge opportunities for multi-sectoral collaborations Need remains to disseminate lessons learned and iterate to design best practices to different settings 37