REQUEST FOR APPLICATIONS FOR ACT EARLY STATE SYSTEMS GRANTS Application Deadline: Friday, November 2, 2012

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REQUEST FOR APPLICATIONS FOR ACT EARLY STATE SYSTEMS GRANTS Application Deadline: Friday, November 2, 2012 LEARN THE SIGNS ACT EARLY: PROJECT OVERVIEW The National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC) launched the Learn the Signs. Act Early. (LTSAE) campaign in 2004 to educate parents, health care professionals and child care providers about developmental milestones, and the importance of early identification and intervention for children with signs of autism spectrum disorders and other developmental disabilities (ASD/DD). The LTSAE campaign has created tools and resources that have enhanced the quality and effectiveness of communication between parents and their children s health care and child care providers. The Act Early Regional Summit Project (Summits) held in 2008-2010 in conjunction with the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) and the Association of University Centers on Disabilities (AUCD) furthered the LTSAE campaign by convening teams of key state early intervention leaders, including parents, state public health agencies, medical providers, educators and personnel from academic institutions. The Summits were designed to strengthen the capacity of states to respond to the increasing demand for coordinated systems to promote early identification and intervention for children with ASD/DD. The Summits further the mission of the LTSAE campaign and enhance collaborations among stakeholders and state systems to create effective systems for the early identification, assessment, diagnosis, and provision of services for children with ASD/DD and their families. ABOUT AMCHP The Association of Maternal and Child Health Programs is a national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs. AMCHP supports state maternal and child health programs and partners by helping states build successful programs through such efforts as providing capacity building and technical assistance, disseminating best practices, convening leaders to share experiences and ideas, and advising states about involving partners to reach our common goal of healthy children, healthy families and healthy communities. At the completion of each Summit, state teams developed a state plan outlining resources, activities, outputs, outcomes and vision to improve coordination and awareness of early identification and early intervention service systems for children with ASD/DD within their states. The Association of Maternal and Child Health Programs (AMCHP) in conjunction with AUCD, NCBDDD, and MCHB seeks to maintain and build upon the momentum from the collaborative state team work to carry out action steps within the state plan, which is designed to strengthen state and community systems for early identification and intervention for children with signs of ASD/DD. Requirements: All states and territories that have received funding from both a State Autism Implementation Grant (HRSA) and a Learn the Signs Act Early Systems Grant (CDC) are not eligible to apply. All states that have received funding from only one, either a State Autism Implementation Grant (HRSA) or a Learn the Signs Act Early Systems Grant (CDC), are eligible to apply. Special consideration will be given to states applying who have not received any HRSA or CDC autism funding. 1

PURPOSE OF ACT EARLY STATE SYSTEMS GRANTS In order to support the collaboration of these summit teams, and to further the activities initiated by state teams during the Act Early Summits, AMCHP will award grants to state teams in the amount of up to $15,000 for a twelve-month period. Keeping in mind both the opportunities and limitations associated with this relatively modest amount of funding, the state team will use this funding to build on and complement other state activities as outlined in their state plan, which are designed to strengthen state and community systems for early identification and intervention for children with signs of ASD/DD. AMCHP will provide ongoing technical assistance, disseminate resource materials, and link grantees to other states and experts in ASD/DD. To access your state materials or find information about the Act Early Regional Summit Project, please refer to the AUCD website at: http://www.aucd.org/template/page.cfm?id=547. ACT EARLY STATE SYSTEMS GRANT REQUIREMENTS State Lead: All applications should identify both a state lead, who will serve as the lead contact for AMCHP, and a co-lead who can serve as a secondary contact should the state lead not be available, and to ensure continuity in the event of leadership changes. The responsibilities of the state lead will include coordination, support and communication with state team members, AMCHP and other partner organizations. The state lead will also submit progress reports to AMCHP as requested. Requirements: When reviewing the below requirements, please recognize that reviewers are aware of the limitations in project scope associated with the relatively small size and short timeframe for the grants. As you develop your team and activities, please focus on realistic, achievable goals. Requirement 1: Partnerships and Collaboration Involve the state team, as outlined in the state plan. In addition, consider the inclusion of other relevant partners when possible and when applicable to the goals and scope of the proposed project. Suggested partners could include the following: o Early Intervention/Part C, and Section 619/Part B, Dept of Education, ECCS if available, Maternal and Child Health/Title V, Head Start/Early Head Start, Child Care Resource and Referral Program, Home Visitation Programs, UCEDD, WIC, state programs, health/medical care providers, parent organizations, advocacy organizations, families and foundations as appropriate. o Letters of support must be submitted from participating agencies. Support the state team in its effort to improve coordination and awareness of early identification and early intervention services for children with ASD/DD as outlined in the state plan developed at the Act Early Regional Summit. Some examples of partnerships and collaboration are: o Florida is developing a plan to support and educate Early Learning Coalition providers on the availably of developmental milestone materials for parents and child care providers. Coalition will then integrate the education and distribution of information for the LTSAE into their current program and regular meetings with Family Childcare Home providers. o Wisconsin is working to integrate LTSAE materials into statewide prenatal care coordination and home visiting programs serving parents of infants and young children in at-risk families through a coordinated system of early identification, screening and referral. o Indiana is working to provide LTSAE materials to Home visiting program staff, Care coordinators, Head Start and Early Head Start, and other programs that impact young children and their families and to provide training to Home Visiting, Early Head Start and 2

First Steps and WIC program staff regarding LTSAE materials and early screening and diagnosis. o Nebraska is working with the seven regional Early Learning Connection Partnerships to customize and disseminate information about the NE State Team and LTSAE campaign, including the incorporation of LTSAE materials into Child Line (free Child Care Resource and Referral hotline). Requirement 2: Implementation of Activities Implement activities included in state plans developed at the Act Early Regional Summits or additional activities added since the summits. You may choose one, two, or more activities relevant to your team and state that are realistic, achievable, and practical to be implemented within the time frame and limitations of the modest size of this grant. Examples of potential activities: o Collaborate with relevant partners to coordinate, promote, and implement developmental screening and early identification efforts within their state. o Increase public awareness by designing a system of dissemination and integration of the LTSAE campaign materials into systems of care within the state. o Develop a roadmap/flowchart of services for families and providers that includes awareness of developmental milestones, screening, referral, service provision, transition and exiting the system. o Identify and expand use of training resources for providers and families on evidencebased services for treatment and education of children with ASD/DD. o Improve screening resources for underserved and minority populations. Provide training and technical assistance on developmental screening practices. o Create a collaborative statewide technical assistance network plan. Requirement 3: Evaluation Develop and implement an evaluation plan to monitor progress (outputs) and outcomes for the proposed activities. Examples of outputs are given for each example above: o Collaborate with relevant partners to coordinate, promote, and implement developmental screening and early identification efforts within their state. Examples of outputs: a description of the collaboration and proposed activities. o Increase public awareness by designing a system of dissemination and integration of the LTSAE campaign materials into systems of care within the state. Examples of outputs: a description of new dissemination activities (channels, strategies, audiences and reach of campaign materials). o Develop a roadmap/flowchart of services for families and providers that includes awareness of developmental milestones, screening, referral, service provision, transition and exiting the system. Examples of outputs: a description of the roadmap, how it has been tested and disseminated. o Identify and expand use of training resources for providers and families on evidencebased services for treatment and education of children with ASD/DD. Examples of outputs: increased training offerings, increased use of training, numbers trained. o Improve screening resources for underserved and minority populations. Examples of outputs: documented increased screening services for targeted population. 3

o Provide training and technical assistance on developmental screening practices. Examples of outputs: a description of the types of technical assistance developed or coordinated, number of technical assistance offerings. o Create a collaborative statewide technical assistance network plan. Examples of outputs: existence of new or modified plan reflecting increased collaboration and commitment. Reporting Requirements: A Mid-Year Progress Report will be due on May 22, 2013 and a Final Report will be due on November 22, 2013, both of which will include a budget update. Reporting guidance will be provided to grant recipients upon award notification. Fiscal Agent: The grant application must clearly identify the fiscal agent, ideally either the state Title V program or a member of the AUCD network such as a UCEDD or LEND. A letter of commitment is required from the fiscal agent. Other fiscal agents can be considered and designated on an as needed basis. If another fiscal agent is requested, the application should include the name of, and contact information for, the fiscal agent (as well as an additional contact). Grant Funds: Grant funds will be awarded in one award of up to $15,000. Grant funds cannot be used to pay for salaried employees, equipment, software, individual trainings, conference or course registration, primary research, publications, personnel or indirect expenses. WHAT CAN YOU EXPECT FROM AMCHP? Ongoing technical assistance via a variety of methods, including telephone, e-mail, online discussion boards and webinars from AMCHP staff and partners. Structured peer support, a forum to network, share ideas and problem-solve with colleagues nationwide working on similar issues. Technical expertise and consultation, information from leading national experts in the field of ASD/DD. ACT EARLY STATE SYSTEMS GRANTS TIMELINE RFA Announcement: Monday, September 17, 2012 Applicant Informational Conference Call: Wednesday, September 26, 2012 from 2:30-3:30 pm (ET) Call-in Information: Tel: 1-800-689-9374 // Passcode: 645016 Note: Please send an RSVP to mjarvis@amchp.org if you plan to participate on the conference call. Applications Due: Friday, November 2, 2012 at 5:00 pm (ET) Grantees Announced: Monday, November 19, 2012 Grantee Orientation Call: Early December 2012 (exact date TBD) Mid-Grant Progress Report Due: May 22, 2013 On-going Support & Technical Assistance: November 2012-November 2013 (and beyond) Final Reports Due: Friday, November 22, 2013 APPLICATION PROCEDURE Applications need to address Components I-VII (described below). 4

The page limit for Components I-IV is four pages single-spaced, 11 minimum font size; Components V, VI & VII are stand alone one-page documents. To be considered eligible, applicants are required to complete and submit all required pieces via e-mail by 5:00 pm (ET) on Friday, November 2, 2012, to mjarvis@amchp.org. Applications received after the deadline will not be considered for review and will be returned to the applicant. Please Note: You will receive notification of receipt of application no later than one week following submission. If you have not received a notification of receipt, please contact Michelle Jarvis at mjarvis@amchp.org. For additional questions, contact Treeby Brown, Senior Project Manager for Children and Youth with Special Health Care Needs, via e-mail at tbrown@amchp.org or by phone at (202) 775-0436, or Michelle Jarvis, Program Manager, Family Involvement via e-mail at mjarvis@amchp.org or by phone at (202) 775-1472. APPLICATION COMPONENTS I. STATEMENT OF NEED AND OVERALL GOAL a. Overview of the Problem: This section should include a brief overview of the status of your state system for early identification and intervention for children with signs of ASD/DD. Please include any relevant information included in your state s Act Early State Plan. b. Rationale: This section should articulate the need your team plans to address with this opportunity. This need should be articulated in your state s most current Act Early State Plan. II. EXPECTED BENEFITS a. Project Goals, Objectives and Strategies: Provide a specific goal for the project. Specify one or more objectives for the goal(s) and one to four activities to achieve the objective. Again, this goal should be linked to goals and action steps included in your state s most current version of the Act Early State Plan and address the three requirements of this opportunity: Partnerships and Collaboration, Implementation of Activities and Evaluation. b. Project Outcomes: This section should include your team s thoughts on potential outcomes of undertaking this project. A key question to consider in this section is: what will be different in your state if your team meets your goal? III. OPPORTUNITIES AND CHALLENGES a. Current Efforts: Include a description of current state activities related to the proposed goal(s) to improve early identification and intervention for children with signs of ASD/DD. Describe how your proposed goal(s), objectives and strategies will improve current efforts. Describe factors or capacity in your state/program that can facilitate your efforts, e.g. resources, pending legislation, programmatic work, relationships, etc. b. Current Collaboration: Identify existing or potential partnerships and community allies that you believe will be key to your planning and implementation efforts. Consider the question of the benefits of collaboration on these issues. c. Current Capacity: Explain the specific assets/capacity of your team members to address your proposed strategy. 5

d. Barriers: Explain any challenges, specific to your state, that you think your team might experience in implementing this project, how you plan to address them, and thoughts on how AMCHP might support you in addressing them. Please be specific; e.g. if time or money are barriers, discuss specifics about how they are barriers to this work. IV. SUSTAINABILITY a. Impact: Describe your team s long-term plans to sustain the activities and efforts originally supported by the grant. b. Resources: Identify resources needed (including partnerships, issue champions, financial resources, training and dissemination) and resources that might be available to sustain your team s long-term efforts. V. BUDGET a. Include a Proposed Budget: Grant funds may be used for the following: consultant fees, instate travel support for state team members, and participation of parents and/or family members of a child with ASD/DD. Acceptable expenses are also those related to meetings, teleconferences or production of materials, including supplies, printing, copying and postage. Grant recipients are strongly encouraged to identify cash matches and/or in-kind supports from centers (e.g. staff time in project coordination), state agencies and other partner organizations. Provide a short budget following the below example. Budget Categories Item Description (include per unit prices where applicable, e.g. $10 supplies X 20 participants) Cost Estimate ($) Trainer/Consultant Stipend ($100/hr maximum) Travel/Lodging (staff) (ground: $75/person/day maximum; air: $500 r/t maximum; hotel: $165/night/room plus tax) Meeting Expenses (room rental, AV) Teleconference/Webinar Expenses 6

Production of Materials Materials Other Total Estimated Cost Total Grant Request (may not exceed $15,000) Note: Grant funds may not be used in any amount to pay for equipment, software, individual trainings, conference or course registration, primary research, publications, personnel or indirect expenses. Any remaining grant funds unused by November 22, 2013 must be returned to AMCHP. VI. TEAM ROSTER a. Provide a team roster. Clearly identify the Project Lead, Co-Lead and Fiscal Agent. b. Provide detailed contact information of each team member, their expertise and/or role relevant to your team s proposed work, and their role(s) and responsibility(s) on the team. VII. LETTER OF COMMITMENT AND SUPPORT a. Provide a letter of commitment written from the fiscal agent/convening organization clearly indicating commitment to the team requirements and the length of the project. Letters of support are required from team members indicating support from their organizations and a willingness to participate in the activities as presented in the Act Early State Plan. Additional letters of support from other relevant organizations are encouraged but not required. Please attach each Letter of Commitment and Support as a 1-page PDF. APPLICATION CHECKLIST Does your application have the following required pieces and meet the criteria? I. STATEMENT OF NEED II. EXPECTED BENEFITS III. OPPORTUNITIES AND CHALLENGES IV. SUSTAINABILITY V. BUDGET VI. TEAM ROSTER VII. LETTER OF COMMITMENT Does your team include all appropriate team members? SELECTION PROCESS Applications will be rated on the following evaluation criteria: Statement of Need (Sections I & II): 20 points Has applicant clearly identified key areas of need and link to state plan? Are overall goals and benefits appropriate to the scope of this project? 7

Opportunities/Challenges/Sustainability (Sections III & IV): 40 points How well does the applicant address current early identification and intervention issues and collaborations? How well does the applicant address current opportunities related to these issues? Team Roster (Section VI): 30 points Does application include all required and appropriate team members? Does application identify team members roles and responsibilities? Are there letters of commitment from team members and partner organizations? Budget: 5 points Are costs clearly outlined? Is the fiscal agent clearly identified? Checklist: 5 points Does application have all the required pieces (I VII)? Does application address all the required criteria? RFA: Application for Learn the Signs. Act Early State Systems Grants To Be Released on September 17, 2012 Through funding from the Centers for Disease Control and Prevention (CDC) s National Center for Birth Defects and Developmental Disabilities (NCBDDD), AMCHP will provide 10-15 grants of up to $15,000 each to public health entities such as: Title V, Early Childhood Comprehensive Systems, WIC, Early Head Start, Home visiting programs, or Other public health programs for 1. Integrating Learn the Signs. Act Early. (LTSAE) materials and messages into programs that serve parents of young children and 2. Supporting the collaboration of Act Early state teams. AMCHP will provide ongoing technical assistance, disseminate resource materials, and link grantees to other states and experts in autism spectrum disorders and other developmental disabilities (ASD/DD). Requirements: All states and territories that have received funding from both a State Autism Implementation Grant (HRSA) and a Learn the Signs Act Early Systems Grant (CDC) are not eligible to apply. All states that have received funding from only one, either a State Autism Implementation Grant (HRSA) or a Learn the Signs Act Early Systems Grant (CDC), are eligible to apply. Special consideration will be given to states applying who have not received any HRSA or CDC autism funding. The funding announcement will be released on September 17, 2012 and applications will be due on November 2, 2012. An informational call for interested applicants will be held on September 26, 2012. 8

Grant applicants will be required to conduct specific activities related to partnerships and collaboration, implementation of activities and evaluation. Possible activities include: supporting the state team in their effort to improve coordination and awareness of early identification and early intervention services for children with ASD/DD; improve early identification by systematizing dissemination and integration of LTSAE materials in state public health programs; develop and implement an evaluation plan to assess the outcomes and impacts of outreach and education activities. Background: The goal of the Learn the Signs. Act Early. health education campaign is to improve early identification of autism and other developmental disabilities so children and their families can get the services and support they need. The campaign educates parents, health care professionals and child care providers about developmental milestones, the importance of monitoring developmental milestones in young children, and the importance of acting early on developmental concerns. Milestone checklists, parenting tips, and other materials and resources are available free for download. These materials can be customized with state or local contact and resource information for use in state programs. Act Early Summits, held in collaboration with HRSA and AUCD in 2008-2010 around the country, furthered the LTSAE campaign by convening teams of key state early intervention leaders, including parents, state public health agencies, medical providers, educators and personnel from academic institutions. The Summits were designed to strengthen the capacity of states to respond to the increasing demand for coordinated early childhood systems to address the needs of children with ASD/DD. To access your Act Early State Plan or find information about the Act Early Regional Summit Project, visit the AUCD website and click on the Learn the Signs. Act Early. icon. The funding announcement will be posted on the AMCHP and AUCD websites and will be distributed through relevant listservs, or you can contact AMCHP directly for a copy. For more information, please contact Treeby Brown at tbrown@amchp.org or Michelle Jarvis at mjarvis@amchp.org. 9