interrai Assessment Systems for Mental Health: Informing cross-sector decision-making

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interrai Assessment Systems for Mental Health: Informing cross-sector decision-making John P. Hirdes, PhD FCAHS Professor School of Public Health and Health Systems University of Waterloo

Introduction to interrai Agenda Use of interrai systems in Canada Need to think at system level Three points of contact in mental health Police Hospital Community Mental Health

3 Who interrai International, not-for-profit network of ~100 researchers and health/social service professionals What? Comprehensive assessment of strengths, preferences, and needs of vulnerable populations How? Multinational collaborative research to develop, implement and evaluate instruments and their related applications

4 interrai Countries North America Canada US Europe Iceland, Norway, Sweden, Denmark, Finland, Netherlands, France, Germany, Switzerland, UK, Italy, Spain, Czech Republic, Poland, Estonia, Belgium, Lithuania, Russia Portugal, Austria, Ireland Central/ South America Brazil, Chile Peru South Asia, Middle East & Africa India, Israel, Lebanon, Qatar South Africa, Rwanda Pacific Rim Japan, China, Taiwan, Hong Kong, South Korea, Australia, New Zealand Singapore

interrai Network for Mental Health (inmh) interrai organized into three main networks Mental health; aging & integrated care (Chair: Declercq); acute care (Chair: Gray) Mental health network Chair: John Hirdes Addictions leads: Chris Perlman, Duncan Laurenson Child/Youth lead: Shannon Stewart Forensics/criminal justice leads: Howard Barbaree, Greg Brown, Ron Hoffman Intellectual disability lead: Lynn Martin Homeless: Coline van Everdingen Countries Canada, United States, Brazil, Chile, Iceland, Finland, Netherlands, Belgium, Spain, South Africa, Rwanda, Japan, China & Hong Kong, New Zealand, Australia, Israel

6 interrai: Systems Approach to Mental Health Assessments

Why do we need to think at the system level? People with comparable needs receive services in different sectors of health care system Especially true for persons with complex needs Elderly Persons with mental illness End of life care System-level implication: May be able to fine-tune who gets what services where Person-level implication: Must deal with multiple providers Continuity of care important

8 Mental Health Inpatient Community Emergency Screener Forensic Supplement Addictions Supplement Correctional Facilities Brief Mental Health Screener Child & Youth Intellectual Disability Nursing Homes The interrai Family of Instruments Home Care Primary Care + Contact Assessment + Clinician version Community Health Assessment + Self-report Functional supplement MH supplement Community Rehabilitation Deafblind supplement AL supplement Carer Needs Acute Care Subjective Quality of Life + ED Screener Long term care Post-Acute Care-Rehabilitation Home and community care Mental Health Palliative Care Adult Child/Youth

9 Use of interrai Instruments in Canada RAI 2.0/ interrai Long Term Care Facilities RAI-Home Care RAI-Mental Health interrai Community Mental Health interrai Emergency Screener for Psychiatry interrai Brief Mental Health Screener interrai Child/Youth Mental Health interrai Intellectual Disability interrai Palliative Care interrai Acute Care/Emergency Department interrai Contact Assessment interrai Community Health Assessment Solid symbols refer to implentations that have been mandated or recommended by government Hollow symbols refer to research, pilot studies, or implementation planning underway interrai Subjective Quality of Life Over 9.6 million assessments Over 3.3 million Canadians

10 National Reporting Systems Canadian Institute for Health Information (CIHI) acts as national data repository Older reporting systems Continuing Care Reporting System (CCRS) Based on RAI 2.0 Home Care Reporting System (HCRS) Based on RAI-HC and interrai Contact Assessment (incl ED Screener) Ontario Mental Health Reporting System (OMHRS) Based on RAI-MH Also supports interrai CMH in NFLD New reporting system Integrated interrai Reporting System Single system for all new interrai instruments Starting with HC, LTCF, ChYMH

11 Applications of interrai s Assessment Instruments: One assessment multiple applications Case-mix Single Point Entry Care Plan Resource Allocation Evaluation Best Practices Risk Management Assessment Balance incentives Outcome Measures Patient Safety Quality Improvement Public Accountability Accreditation Quality Indicators

12 Three Points of Contact for Persons with Mental Health Needs Police Community Mental Health Hospital

Suicide Prevention ROP Accreditation Canada ROP-Suicide Multiple sectors required to assess and monitor for suicide risk Identify clients at risk of suicide Risk of suicide assessed at regular intervals Immediate safety needs addressed Treatment and monitoring strategies Implementation of those documented in record How can interrai help?

Assessment of suicide risk Directly measured Emergency screener for psychiatry (ESP) Mental health (MH) Community mental health (CMH) Child/Youth Mental Health (ChYMH) Intervention and Monitoring Clinical Assessment Protocol: Purposeful Self Harm Less directly measured Long term care facility (LTCF) Home Care (HC) Community Health Assessment (CHA)

Emergency Screener for Psychiatry Severity of Self-harm (SoS) scale Self-injury Ideation Severity of Self-harm scale 0-2 5+ 3-4 Items and scales used: History of suicide attempt History of suicide attempt History of suicide attempt Self injury ideation History of suicide attempts no yes no yes no yes Family concerned re: self injury Positive Symptoms Scale - Short Depressive Severity Index Depressive Severity Index Depressive Severity Index Depressive Severity Index 0-2 3+ 0-3 4+ <6 6+ <6 6+ Positive Symptoms Scale Cognitive Performance Scale Family concerned re: self-injury Cognitive Performance Scale 1 4 3 4 Family concerned re: self-injury Suicide Plan 5 6 yes 0-2 3+ no yes no yes no 2 2 3 2 4 3 5 Cognitive Performance Scale 0 1+ 0 1

So what do we know about the self-harm CAP? It predicts Clinical opinion of risk Reason for admission Inpatient self-harm attempts Inpatient deaths by suicide CAP guidelines developed by multinational team of experts Demonstrated predictive validity of triggers International best practice guidelines for intervention and monitor

interrai Emergency Screener for Psychiatry (ESP) Design parameters for interrai ESP Compatible with interrai MH and CMH 24 hour observation period Additional response categories for presence of indicator now Emphasis on risk appraisal Care planning focuses on safety (e.g., harm to self, others) Decision support for placement, bed utilization Twitter: @interrai_hirdes @interrai_hirdes

interrai Brief Mental Health Screener (BMHS) Design parameters for interrai BMHS Compatible with interrai ESP, MH and CMH 24 hour observation period Used by police officers to record observations related to mental health apprehensions Standardized Terminology consistent with mental health professionals Twitter: @interrai_hirdes @interrai_hirdes

Using All Sources of Information to Complete Person Family Neighbours Witnesses interrai Assessments Person Family Chart Other staff

20 Risk Scales for the BMHS Scales for same three dimensions as used in ESP Used by police to determine need to bring person to hospital/divert to CMH BMHS has more limited set of items and compressed response set Key issues for police: Will hospital will take responsibility for person? Should we divert to community MH services? Risk scales should: Predict reasons for admission Help police communicate urgency to clinical staff Be consistent with clinician s risk appraisal Initial scale derivation for BMHS Used 160,602 inpatient admissions Convert MH data to match BMHS item set and response levels Modelled reasons for admissions using decision tree analyses

% Admitted for that Reason 21 100 90 Rates of Corresponding Reasons for Admission by BMHS Scale (n=160,602) * based on RAI-MH completed by hospital staff 80 70 60 50 40 30 20 10 0 1 2 3 4 5 6 7 8 9 10 1 2 3 4 5 6 7 8 9 10 1 2 3 4 5 6 7 8 9 10 BMHS Scale Score Harm Self Harm Others Self Care Twitter: @interrai_hirdes @interrai_hirdes

22 Performance of BMHS algorithms compared with clinician-derived risk measures BMHS_Harm Self (0-10) Comparisons with Full MH/CMH Risk Scales BMHS_Harm Other (0-10) BMHS_Self Care (0-10) MH/CMH Scale Severity of Self Harm (SoS) Risk of Harm to Others (RHO) Self Care Index (SCI) Correlation w/ full scale 0.74 0.77 0.78 Association with reason for admission Odds Ratio 1.55 1.71 1.37 c Statistic 0.80.84 0.71 Twitter: @interrai_hirdes @interrai_hirdes

Percentage distributions of age, gender & diagnosis by mental health care setting Variable Age Group 18-24 25-44 45-64 65+ Hospital Admissions (n=301,093) 14.8 38.0 34.5 12.8 Community Mental Health (n=3,899) 6.6 38.0 43.5 11.9 Male 50.4 58.7 Provisional Diagnosis Schizophrenia Mood Substance Use Cognitive 37.6 51.2 24.0 6.2 65.9 38.7 13.8 4.8

Variable Percentage distributions of previous contact with mental health services by care setting Lifetime psychiatric admissions 0 1-3 4-5 6+ Hospital Admissions (n=301,093) 27.4 36.6 14.6 21.4 Previous Contact with CMH 38.9 18.4 42.7 Community Mental Health (n=3,899) 19.1 40.2 16.8 23.8 Hospitalization last 90 days 22.4

% 70 Percentage distribution of recency of contact with police, by mental health setting 60 50 40 30 20 10 0 None >1 yr 31 days-1 yr 8-30 days 4-7 days Last 3 days Last 3 days both types Most recent police involvement Hosp Admission CMH

% Distributions of risk scale scores by mental health setting 50 40 Severity of Self-harm Risk of Harm to Others Self Care Index 30 20 10 0 0 1 2 3 4 5 6 0 1 2 3 4 5 6 0 1 2 3 4 5 6 Scale Score Hosp Admission CMH

Mean Composite Risk Score 60 50 Mean Composite Risk scores by gender and recency of contact with police by mental health care setting Hospital Admissions Community Mental Health 40 30 20 Female Male 10 0 None >1 yr 31 days-1 yr 8-30 days 4-7 days Last 3 days Last 3 days x2 Most Recent Police Involvement None >1 yr 31 days-1 yr Last 30 days

Mean Composite Risk Score Mean Composite Risk scores by recency of contact with police AND hospitalization in last 90 days, community mental health 60 50 40 30 20 No Hosp Hosp 10 0 None >1 yr 31 days-1 yr 8-30 days Most Recent Police Involvement

Mean Scale Score 7 6 5 4 3 2 1 Mean clinical scale scores by recency of contact with police AND hospitalization in last 90 days, community mental health Positive Symptoms Aggressive Behaviour Scale Mania Scale Depressive Severity Index 0 None >1 yr 31 days-1 yr Last 30 days None >1 yr 31 days-1 yr Last 30 days Recency of Police Contact None >1 yr 31 days-1 yr Last 30 days None >1 yr 31 days-1 yr Last 30 days No Hosp Hosp

Summary Substantial percentage of persons with mental health needs come into contact with all three services Patient safety risks higher in hospital admissions than CMH Contact with police strongly associated with mental health symptoms and severity of patient safety risks True for both inpatient and community Recent hospitalization associated with higher severity Less clear for depressive symptoms Next steps Longitudinal modelling of outcomes with linked data

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