ESPEN Congress Madrid 2018

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ESPEN Congress Madrid 2018 Best practices to improve the quality standards in nutrition therapy Quality indicators (and standards) in nutrition support M. Elia (UK)

Quality indicators (and standards) in nutrition support Marinos Elia Emeritus Professor of Clinical Nutrition & Metabolism University of Southampton, U.K.

Learning objectives Procedures for developing quality indicators (and certification) Advantages and disadvantages of quality indicators (and certification) Practical challenges Conflict of interest: none declared

Health and Social Care Act ACT OF PARLIAMENT A law, enforced in all areas of the UK where it is applicable HEALTH AND SOCIAL CARE ACT 2012 In discharging its duty, the NHS England/Secretary of State must have regard to the quality standards prepared by NICE (section 2 (4)). Organisations providing health and adult social services must have regard to the information standards [quality standards prepared by NICE].

National Institute of Health and Care Formation Excellence (NICE) 1999 as a special Health Authority (arms length from Dept Health) Mission To provide patients, health professionals and the public with authoritative, robust and reliable guidance on current practice Includes health economics - Cost impact analysis of guidelines and standards - Cost-effectiveness analysis, bringing it into active use into one of the largest European markets Quality Standards Programme (with quality indicators) Established in 2009 (first quality standard (QS) in 2010)

NICE Quality Standards with Quality Indicators (Annual checks; still up to date - endorsed May 2018) Data from NICE website https://www.nice.org.uk/guidance/published?type=q s&fromdate=january 2002&todate=April 2018

The NHS operating framework 2012-13 (David Nicholson 2011 Developing the NHS Commissioning Board on DH website) Duty of quality Duty of quality COMMISIONING NICE* OUTCOMES 7 1 2 3 Domain 1 Domain 1 Preventing people from people from dying prematurely dying prematurely Duty of quality NHS OUTCOMES FRAMEWORK NHS OUTCOMES FRAMEWORK Domain 2 Domain 3 Domain 4 Enhancing the Recovery Ensuring a the quality from positive quality of life of for life from episodes episodes positive of patient people for people with ill health of ill / patient with LTCs LTCs health/injury experience Ensuring a experience NICE Quality Standards (Building a library of approx 150 over 5 years) Domain 5 Safe environment environment free from avoidable free from harm 3 4 5 Commissioning Provider payment mechanisms Commissioning Outcomes standard Framework Guidance Tariff tariff contract Tariff CQUIN QOF Framework NICE Quality Standards Building a library of approx. 150 over 5 years 4 6 Commissioning / Contracting NHS Commissioning Board - Specialist services and primary care GP Consortia all other services Duty of quality Domain 5 avoidable harm * NICE Quality Standards: ~5-10 short statements on crucial parts of care pathway, each backed by measureables (performance indicators)

National Health Service (NHS) Operating Framework NHS Outcomes Framework Incentivised Commissioning NICE Quality Standards (with quality indicators) Facilitate high quality care on crucial parts of the management pathway

Complementary outcome frameworks and NICE quality standards NHS (Healthcare) Public Health Social Care In developing NICE quality standards for health care social care and public health outcome framework the principles are the same, but the process may differ.

What is a NICE quality standard? Evidence Guidance Quality standard A comprehensive set of recommendations for a particular disease/condition, need or service A concise set of statements, designed to drive and measure priority quality improvements in a particular area of care (5-10 statements max 15) MEASURED USING QUALITY INDICATORS

NICE quality standard A set of concise statements designed to drive and measure priority quality improvements* in a particular area of care (5-10 statements max 15) Developed collaboratively between NICE and NHS and social care and (for QS24): BAPEN British Dietetic Association National Nurses Nutrition Group Royal College of Nursing PINNT statements Statements Markers of high quality cost-effective clinical care across a pathway or clinical condition ( best practice based on best evidence) Measures measure High level quality indicators *care/ service provision in need of improvement and reduction in inappropriate variation

Characteristics of a quality indicator CLEAR unambiguous VALID well-founded IMPORTANT priority

Quality standards & indicators are produced independently and transparently Independently produced in collaboration with NHS and social care along with partners, service users and carers Evidence-base typically derived from NICE guidance (generally includes independent systematic reviews with meta-analyses) or NICE accredited guidance NICE line management - parliament rather than government Public access (i) meetings of the Quality Standards Advisory Committee open to members of the public and press (ii) documents publicly available: topic overview, briefing paper, equality analyses, consultation comments and summary reports (iii) Minutes of meetings Subject to Freedom of Information Act

Who are quality standards (& indicators) for? Anyone wanting to improve the quality of health and care services e.g.: Commissioners Service providers Health, public health and social care practitioners Service users, carers and the public Regulators like the Care Quality Commission and Ofsted NHS England integral part of plans to improve quality (2016-21) Quality standards (and indicators) include a description of what they mean for a variety of audiences, including service users

What quality standards are NOT: NOT comprehensive statements of service specification They address: (i) priority areas for quality improvement (ii) inappropriate variation in care by focusing on crucial parts of care pathways NOT specific targets but used to secure continuous improvement in quality NOT mandatory but can be used to plan and deliver the best possible care. Can also be used for career development and regulation.

Quality standards with indicators can contribute to: Certification (Care certificate National) (healthcare support workers and adult social care workers) Professional career development/validation (doctors nurses etc.) Certification (Rating by Care Quality Commission (health and social care services) Specific certification (and/or demonstration of competency) (various health and social care workers)

Hospital Inpatient Outpatient CARE SETTING Community Care Home GP RECOGNISE TREAT Food ONS ETF PN MONITOR REVIEW ONS = Oral nutrition supplement ETF = Enteral tube feeding PN = Parenteral nutrition OPERATIONAL INFRASTRUCTURE Documentation Education and Training Communication Multidisciplinary Team Continuity of Care (Nutr. Steering Comm.) * Clinical + investigations

First Quality Statement People in care settings are screened for risk of malnutrition using a validated screening tool

Quality measure (indicator) Structure a) Evidence of local arrangements to ensure that people in care settings are screened for the risk of malnutrition using a validated screening tool b) Evidence of local arrangements to ensure that screening for the risk of malnutrition is carried out by health and social care workers, who have undertaken training (can be certified) to use a validated nutrition screening tool c) Evidence of local arrangements to ensure that care settings have access to suitably calibrated equipment to enable accurate screening to be conducted (certified)

Quality measure (indicator) Process The proportion of people in care settings who are screened for the risk of malnutrition using a validated screening tool Performance indicator = Number of people screened Number of people in a care setting

Quality measure (indicator) Outcome Incidence of risk of malnutrition Prevalence of malnutrition

Source of Clinical guideline references NICE clinical guideline 32 recommendations 1.2.2, 1.2.3 (key priorities for implementation), 1.2.4, 1.2.5

Definitions Settings The term settings refers to any care setting where there is clinical concern about risk of malnutrition. These include, but are not limited to the following settings /situations that are set out in NICE clinical guideline 32: - hospitals, care homes General Practices Validated screening tool As set out in NICE clinical guideline 32 recommendation 1.2.6 Screening should assess body mass index (BMI) and percentage unintentional weight loss and should also consider the time over which nutrient intake has been unintentionally reduced and/or the likelihood of future impaired nutrient intake. The Malnutrition Universal Screening Tool ( MUST ), for example, may be used to do this.

Equality and diversity* Nutritional screening should be available to everyone for whom it Quality Statement 2: people who are malnourished or at risk of malnutrition have a is appropriate, including people who are unconscious, sedated, management care plan that aims to meet their complete nutritional requirements unable to speak or communicate (because of language problems or People s because special of their dietary condition), requirements, and those including who cannot those be that weighed are or consistent have their with height religious measured. and cultural Some beliefs, screening should tools be (such taken as into MUST ) account cater for irrespective all of these of people. the underlying reason for these requirements Quality statement 4: self management of artificial nutrition support Training and education should be accessible to people who have difficulties in reading or speaking English and those who need information in non-written form. *In line with Equality Act 2010 (eliminating unlawful discrimination, advancing equality of opportunity and fostering good relations for people with the protected characteristics)

Quality statements 1 People in care settings are screened for the risk of malnutrition using a validated screening tool. 2 People who are malnourished or at risk of malnutrition have a management care plan that aims to meet their nutritional requirements. 3 All people who are screened for the risk of malnutrition have their screening results and nutrition support goals (if applicable) documented and communicated in writing within and between settings. 4 People managing their own artificial nutrition support and/or their carers are trained to manage their nutrition delivery system and monitor their wellbeing. 5 People receiving nutrition support are offered a review of the indications, route, risks, benefits and goals of nutrition support at planned intervals. RECOGNISE TREAT MONITOR REVIEW

Other considerations Field testing may be commissioned Consultation stakeholders but comments from nonregistered stakeholders are also considered Reviewing feedback Validation and consistency checking Publication Reviewing and updating e.g. Annual review Other: dissemination of information, links with stakeholders; shared learning database (case studies); Uptake of QS Economic considerations

C o s t im p a c t p e r 1 0 0,0 0 0 p o p u la tio n (x 1 0 0 0 ) 5 0 0 fe e d c o s t a s s e s s m e n t s c re e n in g cost -5 0 h e a lth c a re u s e cost saving NET COST SAVING -1 0 0-1 5 0 NICE 2012 QS24 C o s ts a n d c o s t s a v in g s N e t e ffe c t 1 2

Summary Quality standards (QS) with indicators set out the priority areas for quality improvement in health and social care. In England QS24 on Nutrition Support in adults, like other QS in health and social care, are produced independently using standardised procedures and evidence-based criteria. QS with indicators are not comprehensive guidelines, but they can be used for multiple purposes including contribution to career development and certification. A major challenges is to establish a national operational infrastructure, to develop QS independently in collaboration with key partners, using clear, evidence-based criteria that can apply within and between care settings.

References NICE. Quality standards, Process guide published by NICE; 2016 pp 51 NICE: standards and indicators (NICE website)(https://www.nice.org.uk/standards-andindicators) NICE. QS24 Quality Standard for nutrition support in adults: https://www.nice.org.uk/guidance/qs24/chapter/abou t-this-quality-standard The MUST Report (bapen website) https://www.bapen.org.uk/pdfs/must/must-report.pdf