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Transcription:

MEDWAY NHS FOUNDATION TRUST FINAL REPORT FEBRUARY 2013 Trust ID: RPA UKINP2012/14

Contacting Picker Institute Europe How to contact us: Picker Institute Europe Survey Team: Amanda Attwood Grace Baker Josianne Breeden Stephen Bough Sarah-Ann Burger Matt Cadby Andrew Cameron Lucas Daly Harriet Hay Thomas Hodson Bridget Hopwood Yasmin Jennings Tim Markham Amy Tallett Lisa Yorke Picker Institute Europe Buxton Court 3 West Way Oxford OX2 0JB Tel: 01865 208 100 Fax: 01865 208 101 Email: Website: Results website: surveys@pickereurope.ac.uk www.pickereurope.org www.picker-results.org Charity Registration No: 1081688 Copyright 2013 Picker Institute Europe. All rights reserved. Page 1

Copyright 2013 Picker Institute Europe. All rights reserved. Page 2

Section 1 Introduction Section 2 Section 3 Section 4 Section 5 Section 6 Section 7 Appendix 1 Appendix 2 Survey Response survey activity Problem Score Summary overview of results by section Ranked Problem Scores where most patients report room for improvement Historical Comparisons comparing results with previous years External Benchmarks comparing results with other trusts Internal Benchmarks comparing results within the trust Frequency Tables a detailed breakdown of your results Questionnaire Copyright 2013 Picker Institute Europe. All rights reserved. Page 4

SECTION 1 Introduction Copyright 2013 Picker Institute Europe. All rights reserved. Page 6

Background to the survey The results presented here are from the, carried out by Picker Institute Europe on behalf of the. This survey is part of a series of annual surveys required by the Care Quality Commission for all NHS Acute trusts in England. The Picker Institute was commissioned by 69 UK trusts to undertake the. The survey is based on a sample of consecutively discharged inpatients who attended the Trust in June, July or August 2012. The purpose of the survey is to understand what patients think of healthcare services provided by the Trust. used a standard survey methodology and standard questions, as specified by the NHS Patient Survey Co-ordination Centre, based at Picker Institute Europe. The questionnaire reflects the priorities and concerns of patients and is based upon what is most important from the patient's perspective. The questionnaire was developed through consultation with patients, clinicians and trusts. A copy of the questionnaire is provided in Appendix 2 of this report. The questionnaires used for the were developed by the NHS Patient Survey Co-ordination Centre. Further information about how the questionnaire for this survey was developed can be found on the NHS Surveys website www.nhssurveys.org.uk. Survey methodology The survey was undertaken by a postal questionnaire, sent to patients home addresses. Patients were sent a questionnaire, a covering letter from the Trust's Chief Executive, a multiple language sheet offering help with the survey, and a freepost envelope. Patients wishing to complete the survey filled it in and returned it to the Picker Institute in the freepost envelope. Non-responders were sent a reminder card after 2-3 weeks and another questionnaire after a further 2-3 weeks. The Picker Institute ran a freephone helpline for patients who had any queries or concerns about the survey. This included links to Languageline with immediate access to interpreters in over 100 languages. For a detailed description of the survey methodology, see the published guidance for this survey: About your respondents A total of 850 patients from your Trust were sent a questionnaire. 792 were eligible for the survey, of which 368 returned a completed questionnaire, giving a response rate of 46%. The response rate for your Inpatient survey in 2011 was 49%. Key facts about the 368 inpatients who responded to the survey: 31% of patients were on a waiting list/planned in advance and 61% came as an emergency or urgent case. 60% had an operation or procedure during the stay. 45% were male; 54% were female and 1% did not reply. 10% were aged 16-39; 21% were aged 40-59; 23% were aged 60-69 and 43% were aged 70+; 3% did not reply. Copyright 2013 Picker Institute Europe. All rights reserved. Page 8

Your results This survey has highlighted the many positive aspects of the patient experience. Overall: 73% rated care 7+ out of 10. Overall: treated with respect and dignity 71%. Doctors: always had confidence and trust 73%. Hospital: room or ward was very/fairly clean 95%. Hospital: toilets and bathrooms were very/fairly clean 91%. Care: always enough privacy when being examined or treated 86%. Most patients are highly appreciative of the care they receive. However, it is evident that there is also room for improving the patient experience. Picker Institute Europe uses a simple summary score to show you where your patients think there is a problem or room for improvement regarding a specific aspect of care. Problem scores At the Picker Institute, we use the concept of problem scores as a summary measure, to help monitor your results over time and to show how your Trust compares to the average score for all 'Picker' trusts. We hope that you will find problem scores a helpful way of targeting areas in need of attention within your Trust this in turn can help you to bring about real quality improvement for your patients. What is a problem score? The problem score shows the percentage of patients for each question who, by their response, indicated that a particular aspect of their care could have been improved. We have found this to be the simplest summary measure that focuses on quality improvement. How are problem scores calculated? We calculate the problem scores by combining response categories. For example, for the following question Did you have confidence and trust in the doctors treating you? we have combined the responses Yes, sometimes and No, to create a single problem score. Asterisks indicate which response categories have been combined to create the problem score. Copyright 2013 Picker Institute Europe. All rights reserved. Page 9

How should we use problem scores? As the name suggests, problem scores indicate where there may be a problem within the trust, and may need further investigation. It is useful to keep in mind, that lower scores reflect better performance. Where there are high problem scores, or scores that are high in comparison with other trusts, this area should be highlighted as a potential problem area that needs to be looked at further. By targeting these areas, you can hopefully start to bring about real quality improvement for your patients. Problem scores are an interpretation of the data made by the Picker Institute. Any comparisons made within the Trust (internal benchmarks, historic comparisons) or between trusts (external benchmarks) are made using these scores. When data is provided to the Care Quality Commission, only the raw data is provided, not the problem scores. Targeted questions In response to client feedback and in the interests of accuracy we use derived questions to produce more meaningful scores for questions that may not be applicable to all respondents, but are not preceded by a filter question in other words, all those that have a response code such as I did not have any hospital food, or I did not use a toilet or bathroom. The purpose is to produce more precise indicators of where the problems lie within the Trust. For each question of this nature we have therefore re-calculated the scores, excluding those respondents to whom the question does not apply. The new calculation will be illustrated in an additional question (e.g. Q7+). Low numbers of respondents The questionnaire used includes some filter questions, whereby only relevant questions are asked of patients. So, for example, patients that have reported not having tests would not be asked subsequent questions about tests, and patients reporting not being given new medications would not be asked subsequent questions about their medicines. This means that fewer patients will answer some of the questions in the questionnaire. Where fewer than 50 patients have answered a particular question, the problem score will be shown within square brackets [43%]. If this is the case, the result should be treated with caution, as the number of patients answering is relatively small. Confidence intervals The survey undertaken was with a sample of patients. As the survey was not of all patients, the results may not be totally accurate. However, we can estimate the level of confidence we should have in the results. The table below shows the level of confidence we would have for various numbers of respondents. Number of respondents Confidence Interval (+/-) 50 12.0% 100 8.5% 200 6.0% 300 4.9% 400 4.2% 500 3.8% 600 3.5% Example: For a particular question, 300 patients responded, of which 25% answered yes. From the table above, we can see that for 300 respondents the confidence interval would be +/- 4.9%. We would therefore estimate that the true results could be between 20.1% and Copyright 2013 Picker Institute Europe. All rights reserved. Page 10

29.9%. However, if only 50 patients responded, and 25% answered yes, the confidence intervals would be +/- 12% so the true result could be between 13% and 37%. Copyright 2013 Picker Institute Europe. All rights reserved. Page 11

Significant differences In the report we have identified questions where there are significant differences between your Trust and the Picker average, or between your Trust this year and the previous survey. By 'significant' difference, we mean that the finding is statistically reliable and that the difference is 'real'. The calculation used to test the statistical significance of scores was the two-sample t- test. The report This report has been designed to be used alongside our on-line results system: https://www.picker-results.org We aim to help you to identify the key issues for improvement from the patient's perspective. We have presented the results in a number of ways to help you answer important questions about the survey results. Patients had the option of adding additional comments at the end of the questionnaire. These verbatim comments can be found on the results website under Respondent Comments. How to use this report When deciding which areas to act upon, we suggest you address each section of the questionnaire. A useful approach is to look at a particular section and follow these steps: Identify any questions where you consider the results to be unacceptable for your trust. The problem score summary is the first step to pick out any questions where the results are significantly better/worse than the Picker average. The next step is to go to the frequency tables for that question to get the detailed response from your patients. You may also wish to feed back on the issues where your trust is above average. Address the issues where you have worsened over time. Are there particular issues that are getting worse over time? Our report highlights significant changes from your previous survey and the longer term trends over the last 6 years. Our Online results system also presents these trends in graphical form. Are there issues of higher importance to your patients? Which issues are of high, medium or low importance to your patients? You may find our Discussion paper: the core domains of inpatient experience useful in identifying important issues, and results from the most important questions are set out in your Executive Summary. Please contact the survey team to request a copy of the discussion paper; it can also be found on our website: http://www.pickereurope.org/. Is there scope to improve on this issue? Look at the benchmarking charts to see the range of scores. This will give you an indication as to what is a realistic ambition. Identify departments, specialties or sites within the trust that are worse than others and areas of good practice that others can learn from. Go to the Internal benchmark section of the report, or the benchmarking sections of the online results system to see where this is the case. Are there any useful parallels with your staff data? Happy staff makes for happy patients right? For those trusts that also do the NHS Staff Survey with us, this year we have included a short analysis of the two datasets side by side. This is an area of work we will be growing for future surveys. Copyright 2013 Picker Institute Europe. All rights reserved. Page 12

Visit www.pickereurope.org to access our educational resources and for more information on how we can help you to use your survey results to improve services. Our Quality Improvement team can be commissioned to run workshops or deliver presentations and practical sessions that are tailored specifically to your Trust s needs. Our exciting new programme - Moving Beyond Measurement - offers dedicated and practical support in turning your patient and staff experience surveys into real and sustainable improvements in service quality. To contact a member of our Quality Improvement team about Moving Beyond Measurement, or to share examples of good practice from within your organisation, email quality@pickereurope.ac.uk, or telephone 01865 208100. Copyright 2013 Picker Institute Europe. All rights reserved. Page 13

Your CQC Report Introduction For each national survey your trust is provided with two final reports: one from the Picker Institute and one from the Care Quality Commission (CQC). The reports have different purposes, which require that the survey data is presented in different ways. The Picker report is designed to be used for action planning by individual trusts, to improve their performance. The CQC benchmarking report is a national overview, comparing trusts to one another and identifying the trusts that are performing out of the expected range. The Picker report is published in January, the CQC report in late April. We strongly recommend that you use the Picker Report as the starting point and evidence base for any quality improvement work you undertake. There are three key differences between the reports: 1. The survey data 2. Treatment of the survey data 3. Scoring the survey data The survey data The Picker Report includes all questions and all patients in the survey, whereas the CQC report only includes a core set of questions and data from the standard 850 sample of patients. The majority of our trusts use the Picker Institute extended questionnaire, which is four pages longer than the CQC core questionnaire. We offer this questionnaire to enable trusts to get the most from the survey. This additional data is not submitted to the CQC. Similarly, many of our trusts choose to boost their sample over the standard 850 patients. This approach makes the data more robust and provides comparative breakdowns: such as by ward, site or specialty. The CQC are only given data from the standard 850 patients when compiling the benchmarking reports. Treatment of the data Your Picker report simply presents the responses of your patients. In contrast, the CQC report is based on data that has been standardised by age, gender and route of admission. Standardisation is used to avoid penalising trusts simply because of their demographic makeup. Groups that are underrepresented compared to the national average have more weight added to their responses to even this out. We know that younger respondents are more likely to report a negative experience of care, as are females when compared to males, and emergency admissions when compared to elective patients. Trusts may well find that the picture appears more positive or negative when this standardisation is applied to the data. It can therefore be useful, if you have seen great change in your results from one year to the next, to look at the proportions of these groups within your own sample. The one most likely to change significantly from one year to the next is the route of admission. So before your CQC report is published, it is useful to know if these proportions have changed at your trust. Please contact Lucas Daly if you wish to see if these proportions have changed at your trust: lucas.daly@pickereurope.ac.uk Copyright 2013 Picker Institute Europe. All rights reserved. Page 14

Copyright 2013 Picker Institute Europe. All rights reserved. Page 15

SECTION 2 Survey Response survey activity Copyright 2013 Picker Institute Europe. All rights reserved. Page 16

Survey Response This section of the report shows the activity recorded for the survey, including: mailing dates response rates freephone calls Survey: NHS Trust: Month of Sample: Dates of Fieldwork: Initial Mailing 17 October 2012 First Reminder 07 November 2012 Final Reminder 21 November 2012 Response Rate: Initial Mailing 850 Returned completed 368 Ineligible - returned undelivered 14 Ineligible - deceased 14 Too ill/opt out 28 Ineligible - other 2 Total Eligible 792 Returned completed 368 Overall Response Rate 46.5% (total returned as a percentage of total eligible) Average Response Rate 48.0% (based on all Picker Trusts) The Picker Institute runs a Freephone Helpline for patients. The lines are open from 8am-8pm Monday to Friday and Saturdays from 9am to midday. Your Trust received a total of 22 calls to the Freephone helpline, which included 0 LanguageLine calls. Copyright 2013 Picker Institute Europe. All rights reserved. Page 18

SECTION 3 Problem Score Summary overview of results by section Copyright 2013 Picker Institute Europe. All rights reserved. Page 20

Problem Score Summary This section shows your problem score* for each question and a comparison against the average score for all Picker Institute Europe trusts. The Picker Institute worked with 69 trusts on this survey. Your results have been compared with the others that we worked with, to identify areas where your results are better or worse than the average. They help you to focus on areas where your performance is poor compared to others and where there is plenty of scope for improvement. Significant differences* between your Trust and the average are indicated as follows: scores significantly better than average Trust The problem score for your Trust scores significantly worse than average Average Average score for all 'Picker' trusts * For an explanation of problem scores and significant differences please see Section 1. Note that lower scores indicate better performance. Lower scores are better ADMISSION TO HOSPITAL Trust Average 3 A&E Department: not enough/too much information about condition or treatment 25 % 22 % 4 A&E Department: not given enough privacy when being examined or treated 27 % 22 % 5 Planned admission: not offered a choice of hospitals 71 % 62 % 6 Planned admission: should have been admitted sooner 20 % 21 % 7 Planned admission: admission date changed by hospital 19 % 18 % 8 Planned admission: specialist not given all the necessary information 4 % 4 % 9 Admission: had to wait long time to get to bed on ward 44 % 34 % THE HOSPITAL AND WARD Trust Average 11+ Hospital: shared sleeping area with opposite sex 13 % 8 % 13+ Hospital: patients in more than one ward, sharing sleeping area with opposite sex 5 % 5 % 14+ Hospital: patients using bath or shower area who shared it with opposite sex 15 % 12 % 15 Hospital: bothered by noise at night from other patients 39 % 39 % 16 Hospital: bothered by noise at night from staff 20 % 20 % 17 Hospital: room or ward not very or not at all clean 4 % 3 % 18+ Hospital: toilets not very or not at all clean 9 % 6 % 19 Hospital: felt threatened by other patients or visitors 5 % 3 % 20 Hospital: hand-wash gels not available or empty 5 % 4 % 21+ Hospital: food was fair or poor 63 % 42 % 22 Hospital: not offered a choice of food 26 % 21 % 23+ Hospital: did not always get enough help from staff to eat meals 37 % 33 % DOCTORS Trust Average 24+ Doctors: did not always get clear answers to questions 37 % 30 % 25 Doctors: did not always have confidence and trust 26 % 19 % 26 Doctors: talked in front of patients as if they were not there 26 % 24 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 22

NURSES Trust Average 27+ Nurses: did not always get clear answers to questions 37 % 30 % 28 Nurses: did not always have confidence and trust 30 % 24 % 29 Nurses: talked in front of patients as if they weren't there 25 % 19 % 30 Nurses: sometimes, rarely or never enough on duty 47 % 40 % YOUR CARE AND TREATMENTS Trust Average 31 Care: staff contradict each other 36 % 31 % 32 Care: wanted to be more involved in decisions 51 % 44 % 33 Care: not enough (or too much) information given on condition or treatment 23 % 20 % 34+ Care: could not always find staff member to discuss concerns with 66 % 60 % 35+ Care: not always enough emotional support from hospital staff 50 % 43 % 36 Care: not always enough privacy when discussing condition or treatment 30 % 26 % 37 Care: not always enough privacy when being examined or treated 13 % 10 % 39 Care: staff did not do everything to help control pain 38 % 29 % 40+ Care: more than 5 minutes to answer call button 23 % 17 % OPERATIONS & PROCEDURES Trust Average 42+ Surgery: risks and benefits not fully explained 23 % 18 % 43+ Surgery: what would be done during operation not fully explained 30 % 25 % 44+ Surgery: questions beforehand not fully answered 18 % 20 % 45 Surgery: not told how to expect to feel after operation or procedure 51 % 42 % 47 Surgery: anaesthetist / other member of staff did not fully explain how would put 16 % 14 % to sleep or control pain 48 Surgery: results not explained in clear way 39 % 33 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 23

LEAVING HOSPITAL Trust Average 49+ Discharge: did not feel involved in decisions about discharge from hospital 51 % 45 % 50 Discharge: Not given notice about when discharge would be 51 % 43 % 51 Discharge: was delayed 51 % 39 % 53 Discharge: delayed by 1 hour or more 90 % 85 % 54 Discharge: not given any written/printed information about what they should or 33 % 30 % should not do after leaving hospital 55+ Discharge: not fully told purpose of medications 26 % 23 % 56+ Discharge: not fully told side-effects of medications 70 % 59 % 57+ Discharge: not told how to take medication clearly 24 % 23 % 58+ Discharge: not given completely clear written/printed information about medicines 26 % 26 % 59+ Discharge: not fully told of danger signals to look for 62 % 55 % 60+ Discharge: Family or home situation not considered 43 % 37 % 61+ Discharge: family not given enough information to help 56 % 50 % 62 Discharge: not told who to contact if worried 23 % 20 % 63+ Discharge: Staff did not discuss need for additional equipment or home adaptation 15 % 17 % 64+ Discharge: Staff did not discuss need for further health or social care services 16 % 15 % 65 Discharge: did not receive copies of letters sent between hospital doctors and GP 23 % 34 % 66 Discharge: letters between hospital doctors and GP not written in a way that could be understood 22 % 23 % OVERALL Trust Average 67 Overall: not treated with respect or dignity 28 % 20 % 68+ Overall: rated experience as less than 7/10 24 % 18 % 69 Overall: not asked to give views on quality of care 78 % 76 % 70 Overall: Did not receive any information explaining how to complain 69 % 61 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 24

SECTION 4 Ranked Problem Scores where most patients report room for improvement Copyright 2013 Picker Institute Europe. All rights reserved. Page 26

Ranked Problem Scores This section ranks the scores from the highest problem score (most respondents reporting room for improvement) to lowest problem score (fewest respondents reporting room for improvement). Focusing on areas with high problem scores could potentially improve the patient experience for a large proportion of your patients. Significant differences between your Trust and the average are indicated as follows: scores significantly better than average Trust The problem score for your Trust scores significantly worse than average Average Average score for all Picker trusts better Problem scores 50%+ Lower scores are Trust Average 53 Discharge: delayed by 1 hour or more 90 % 85 % 69 Overall: not asked to give views on quality of care 78 % 76 % 5 Planned admission: not offered a choice of hospitals 71 % 62 % 56+ Discharge: not fully told side-effects of medications 70 % 59 % 70 Overall: Did not receive any information explaining how to complain 69 % 61 % 34+ Care: could not always find staff member to discuss concerns with 66 % 60 % 21+ Hospital: food was fair or poor 63 % 42 % 59+ Discharge: not fully told of danger signals to look for 62 % 55 % 61+ Discharge: family not given enough information to help 56 % 50 % 49+ Discharge: did not feel involved in decisions about discharge from hospital 51 % 45 % 50 Discharge: Not given notice about when discharge would be 51 % 43 % 51 Discharge: was delayed 51 % 39 % 32 Care: wanted to be more involved in decisions 51 % 44 % 45 Surgery: not told how to expect to feel after operation or procedure 51 % 42 % 35+ Care: not always enough emotional support from hospital staff 50 % 43 % Problem scores 40% - 49% Trust Average 30 Nurses: sometimes, rarely or never enough on duty 47 % 40 % 9 Admission: had to wait long time to get to bed on ward 44 % 34 % 60+ Discharge: Family or home situation not considered 43 % 37 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 28

Problem scores 30% - 39% Trust Average 48 Surgery: results not explained in clear way 39 % 33 % 15 Hospital: bothered by noise at night from other patients 39 % 39 % 39 Care: staff did not do everything to help control pain 38 % 29 % 24+ Doctors: did not always get clear answers to questions 37 % 30 % 27+ Nurses: did not always get clear answers to questions 37 % 30 % 23+ Hospital: did not always get enough help from staff to eat meals 37 % 33 % 31 Care: staff contradict each other 36 % 31 % 54 Discharge: not given any written/printed information about what they should or 33 % 30 % should not do after leaving hospital 43+ Surgery: what would be done during operation not fully explained 30 % 25 % 28 Nurses: did not always have confidence and trust 30 % 24 % 36 Care: not always enough privacy when discussing condition or treatment 30 % 26 % Problem scores 20% - 29% Trust Average 67 Overall: not treated with respect or dignity 28 % 20 % 4 A&E Department: not given enough privacy when being examined or treated 27 % 22 % 25 Doctors: did not always have confidence and trust 26 % 19 % 58+ Discharge: not given completely clear written/printed information about medicines 26 % 26 % 26 Doctors: talked in front of patients as if they were not there 26 % 24 % 22 Hospital: not offered a choice of food 26 % 21 % 55+ Discharge: not fully told purpose of medications 26 % 23 % 3 A&E Department: not enough/too much information about condition or treatment 25 % 22 % 29 Nurses: talked in front of patients as if they weren't there 25 % 19 % 57+ Discharge: not told how to take medication clearly 24 % 23 % 68+ Overall: rated experience as less than 7/10 24 % 18 % 42+ Surgery: risks and benefits not fully explained 23 % 18 % 40+ Care: more than 5 minutes to answer call button 23 % 17 % 65 Discharge: did not receive copies of letters sent between hospital doctors and GP 23 % 34 % 62 Discharge: not told who to contact if worried 23 % 20 % 33 Care: not enough (or too much) information given on condition or treatment 23 % 20 % 66 Discharge: letters between hospital doctors and GP not written in a way that could 22 % 23 % be understood 6 Planned admission: should have been admitted sooner 20 % 21 % 16 Hospital: bothered by noise at night from staff 20 % 20 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 29

Problem scores 10% - 19% Trust Average 7 Planned admission: admission date changed by hospital 19 % 18 % 44+ Surgery: questions beforehand not fully answered 18 % 20 % 47 Surgery: anaesthetist / other member of staff did not fully explain how would put 16 % 14 % to sleep or control pain 64+ Discharge: Staff did not discuss need for further health or social care services 16 % 15 % 14+ Hospital: patients using bath or shower area who shared it with opposite sex 15 % 12 % 63+ Discharge: Staff did not discuss need for additional equipment or home adaptation 15 % 17 % 37 Care: not always enough privacy when being examined or treated 13 % 10 % 11+ Hospital: shared sleeping area with opposite sex 13 % 8 % Problem scores 0% - 9% Trust Average 18+ Hospital: toilets not very or not at all clean 9 % 6 % 13+ Hospital: patients in more than one ward, sharing sleeping area with opposite sex 5 % 5 % 20 Hospital: hand-wash gels not available or empty 5 % 4 % 19 Hospital: felt threatened by other patients or visitors 5 % 3 % 17 Hospital: room or ward not very or not at all clean 4 % 3 % 8 Planned admission: specialist not given all the necessary information 4 % 4 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 30

SECTION 5 Historical Comparisons comparing results with previous years Copyright 2013 Picker Institute Europe. All rights reserved. Page 32

Historical Comparisons The Inpatient survey is currently repeated on an annual basis by looking at changes in results over time it is possible to focus on those areas where performance might be slipping. Examining areas where performance has improved will help you to measure the effects of any service improvements that have been put in place. This section shows the problem scores for this year s survey and a comparison against the scores from the previous surveys. Significant differences from the previous year's survey are indicated as follows: scores significantly better than previous survey 2004 The problem score for 2004 scores significantly worse than previous survey 2005 The problem score for 2005 2006 The problem score for 2006 2007 The problem score for 2007 2008 The problem score for 2008 2009 The problem score for 2009 2010 The problem score for 2010 2011 The problem score for 2011 2012 The problem score for 2012 ADMISSION TO HOSPITAL 3 A&E Department: not enough/too much information about condition or treatment 4 A&E Department: not given enough privacy when being examined or treated 5 Planned admission: not offered a choice of hospitals 6 Planned admission: should have been admitted sooner 7 Planned admission: admission date changed by hospital 9 Admission: had to wait long time to get to bed on ward Lower scores are better 2004 2005 2006 2007 2008 2009 2010 2011 2012 - - 32 % 24 % 33 % 28 % 27 % 27 % 25 % - 24 % 24 % 27 % 31 % 33 % 27 % 34 % 27 % - - - - - 62 % 66 % 69 % 71 % 39 % 24 % 27 % 34 % 18 % 22 % 27 % 25 % 20 % 27 % 22 % 16 % 16 % 19 % 21 % 23 % 17 % 19 % 43 % 41 % 50 % 33 % 49 % 42 % 40 % 39 % 44 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 34

THE HOSPITAL AND WARD 2004 2005 2006 2007 2008 2009 2010 2011 2012 11+ Hospital: shared sleeping area with - - 54 % 38 % - 22 % 17 % 10 % 13 % opposite sex 13+ Hospital: patients in more than one ward, - - 14 % 11 % - 6 % 5 % 8 % 5 % sharing sleeping area with opposite sex 14+ Hospital: patients using bath or shower - - 47 % 35 % 37 % 20 % 17 % 15 % 15 % area who shared it with opposite sex 15 Hospital: bothered by noise at night from 37 % 36 % 40 % 38 % 40 % 36 % 38 % 43 % 39 % other patients 16 Hospital: bothered by noise at night from 19 % 17 % 24 % 18 % 21 % 24 % 24 % 24 % 20 % staff 17 Hospital: room or ward not very or not at 10 % 10 % 9 % 7 % 5 % 4 % 6 % 4 % 4 % all clean 18+ Hospital: toilets not very or not at all clean - - 20 % 15 % 12 % 9 % 9 % 10 % 9 % 19 Hospital: felt threatened by other patients - - - 4 % 7 % 4 % 4 % 6 % 5 % or visitors 20 Hospital: hand-wash gels not available or - - - - - 2 % 2 % 3 % 5 % empty 21+ Hospital: food was fair or poor - - 57 % 63 % 57 % 55 % 58 % 60 % 63 % 22 Hospital: not offered a choice of food - - 24 % 30 % 27 % 31 % 27 % 25 % 26 % 23+ Hospital: did not always get enough help from staff to eat meals - - 47 % 53 % 43 % 45 % 38 % 37 % 37 % DOCTORS 24+ Doctors: did not always get clear answers to questions 25 Doctors: did not always have confidence and trust 26 Doctors: talked in front of patients as if they were not there 2004 2005 2006 2007 2008 2009 2010 2011 2012 - - 40 % 38 % 41 % 39 % 38 % 40 % 37 % 20 % 22 % 25 % 26 % 26 % 25 % 24 % 27 % 26 % 32 % 31 % 37 % 27 % 33 % 26 % 28 % 32 % 26 % NURSES 27+ Nurses: did not always get clear answers to questions 28 Nurses: did not always have confidence and trust 29 Nurses: talked in front of patients as if they weren't there 30 Nurses: sometimes, rarely or never enough on duty 2004 2005 2006 2007 2008 2009 2010 2011 2012 - - 40 % 41 % 39 % 35 % 38 % 39 % 37 % 28 % 27 % 33 % 37 % 26 % 26 % 29 % 29 % 30 % 23 % 23 % 25 % 25 % 25 % 24 % 25 % 21 % 25 % 52 % 50 % 58 % 57 % 57 % 46 % 45 % 49 % 47 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 35

YOUR CARE AND TREATMENTS 2004 2005 2006 2007 2008 2009 2010 2011 2012 31 Care: staff contradict each other 38 % 38 % 37 % 42 % 39 % 38 % 36 % 40 % 36 % 32 Care: wanted to be more involved in 48 % 50 % 53 % 53 % 50 % 51 % 54 % 57 % 51 % decisions 33 Care: not enough (or too much) 27 % 25 % 27 % 24 % 26 % 28 % 29 % 26 % 23 % information given on condition or treatment 34+ Care: could not always find staff member - - 62 % 63 % 66 % 61 % 64 % 66 % 66 % to discuss concerns with 36 Care: not always enough privacy when 31 % 33 % 35 % 35 % 33 % 29 % 29 % 34 % 30 % discussing condition or treatment 37 Care: not always enough privacy when 12 % 15 % 17 % 15 % 14 % 12 % 13 % 14 % 13 % being examined or treated 39 Care: staff did not do everything to help 24 % 27 % 38 % 38 % 30 % 33 % 30 % 30 % 38 % control pain 40+ Care: more than 5 minutes to answer call button - - 21 % 26 % 26 % 20 % 16 % 17 % 23 % OPERATIONS & PROCEDURES 2004 2005 2006 2007 2008 2009 2010 2011 2012 42+ Surgery: risks and benefits not fully - - 17 % 15 % 27 % 21 % 16 % 25 % 23 % explained 43+ Surgery: what would be done during - - 31 % 24 % 28 % 28 % 26 % 34 % 30 % operation not fully explained 44+ Surgery: questions beforehand not fully - - 26 % 21 % 29 % 25 % 20 % 28 % 18 % answered 45 Surgery: not told how to expect to feel - 54 % 49 % 48 % 48 % 49 % 45 % 50 % 51 % after operation or procedure 47 Surgery: anaesthetist / other member of - - - 14 % 19 % 18 % 16 % 17 % 16 % staff did not fully explain how would put to sleep or control pain 48 Surgery: results not explained in clear way - 43 % 46 % 42 % 41 % 41 % 34 % 35 % 39 % LEAVING HOSPITAL 2004 2005 2006 2007 2008 2009 2010 2011 2012 49+ Discharge: did not feel involved in decisions about discharge from hospital - - - 52 % 54 % 50 % 48 % 53 % 51 % 51 Discharge: was delayed 50 % 47 % 43 % 43 % 46 % 41 % 48 % 50 % 51 % 53 Discharge: delayed by 1 hour or more - 86 % 85 % 83 % 88 % 89 % 91 % 91 % 90 % 54 Discharge: not given any written/printed information about what they should or should not do after leaving hospital - - 41 % 33 % 37 % 38 % 38 % 40 % 33 % 55+ Discharge: not fully told purpose of - - 27 % 24 % 20 % 22 % 27 % 33 % 26 % medications 56+ Discharge: not fully told side-effects of - - 69 % 62 % 70 % 66 % 68 % 68 % 70 % medications 57+ Discharge: not told how to take medication - - - 26 % 30 % 27 % 28 % 34 % 24 % clearly 58+ Discharge: not given completely clear - 34 % 34 % 30 % 31 % 27 % 31 % 39 % 26 % written/printed information about medicines 59+ Discharge: not fully told of danger signals - - 64 % 54 % 61 % 62 % 60 % 60 % 62 % to look for 61+ Discharge: family not given enough information to help - - 60 % 56 % 59 % 58 % 60 % 58 % 56 % 62 Discharge: not told who to contact if 23 % 23 % 26 % 22 % 27 % 26 % 28 % 23 % 23 % worried 65 Discharge: did not receive copies of letters - 46 % 49 % 46 % 48 % 41 % 27 % 21 % 23 % sent between hospital doctors and GP 66 Discharge: letters between hospital doctors and GP not written in a way that could be understood - - - - - 35 % 28 % 27 % 22 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 36

OVERALL 2004 2005 2006 2007 2008 2009 2010 2011 2012 67 Overall: not treated with respect or dignity 21 % 25 % 28 % 30 % 27 % 25 % 25 % 27 % 28 % 69 Overall: not asked to give views on quality of care - 87 % 87 % 88 % 85 % 84 % 79 % 74 % 78 % Copyright 2013 Picker Institute Europe. All rights reserved. Page 37

SECTION 6 External Benchmarks comparing results with other trusts Copyright 2013 Picker Institute Europe. All rights reserved. Page 38

External Benchmarks This section shows how your Trust compared to all trusts who commissioned Picker Institute Europe for this survey (69 trusts). The range of scores are shown as a blue bar from the best score (to the left), to the worst (to the right). The average is the black line. Your Trust is shown as the yellow triangle. ADMISSION TO HOSPITAL A&E Department: not enough/too much information about condition or treatment A&E Department: not given enough privacy when being examined or treated Planned admission: not offered a choice of hospitals Planned admission: should have been admitted sooner Planned admission: admission date changed by hospital Planned admission: specialist not given all the necessary information Admission: had to wait long time to get to bed on ward UK Picker Average Copyright 2013 Picker Institute Europe. All rights reserved. Page 40

THE HOSPITAL AND WARD Hospital: shared sleeping area with opposite sex Hospital: patients in more than one ward, sharing sleeping area with opposite sex Hospital: patients using bath or shower area who shared it with opposite sex Hospital: bothered by noise at night from other patients Hospital: bothered by noise at night from staff Hospital: room or ward not very or not at all clean Hospital: toilets not very or not at all clean Hospital: felt threatened by other patients or visitors Hospital: hand-wash gels not available or empty Hospital: food was fair or poor Hospital: not offered a choice of food Hospital: did not always get enough help from staff to eat meals UK Picker Average Copyright 2013 Picker Institute Europe. All rights reserved. Page 41

DOCTORS Doctors: did not always get clear answers to questions Doctors: did not always have confidence and trust Doctors: talked in front of patients as if they were not there UK Picker Average Copyright 2013 Picker Institute Europe. All rights reserved. Page 42

NURSES Nurses: did not always get clear answers to questions Nurses: did not always have confidence and trust Nurses: talked in front of patients as if they weren't there Nurses: sometimes, rarely or never enough on duty UK Picker Average Copyright 2013 Picker Institute Europe. All rights reserved. Page 43

YOUR CARE AND TREATMENTS Care: staff contradict each other Care: wanted to be more involved in decisions Care: not enough (or too much) information given on condition or treatment Care: could not always find staff member to discuss concerns with Care: not always enough emotional support from hospital staff Care: not always enough privacy when discussing condition or treatment Care: not always enough privacy when being examined or treated Care: staff did not do everything to help control pain Care: more than 5 minutes to answer call button UK Picker Average Copyright 2013 Picker Institute Europe. All rights reserved. Page 44

OPERATIONS & PROCEDURES Surgery: risks and benefits not fully explained Surgery: what would be done during operation not fully explained Surgery: questions beforehand not fully answered Surgery: not told how to expect to feel after operation or procedure Surgery: anaesthetist / other member of staff did not fully explain how would put to sleep or control pain Surgery: results not explained in clear way UK Picker Average Copyright 2013 Picker Institute Europe. All rights reserved. Page 45

LEAVING HOSPITAL Discharge: did not feel involved in decisions about discharge from hospital Discharge: Not given notice about when discharge would be Discharge: was delayed Discharge: delayed by 1 hour or more Discharge: not given any written/printed information about what they should or should not do after leaving hospital Discharge: not fully told purpose of medications Discharge: not fully told side-effects of medications Discharge: not told how to take medication clearly Discharge: not given completely clear written/printed information about medicines Discharge: not fully told of danger signals to look for Discharge: Family or home situation not considered Discharge: family not given enough information to help Discharge: not told who to contact if worried Discharge: Staff did not discuss need for additional equipment or home adaptation Discharge: Staff did not discuss need for further health or social care services Discharge: did not receive copies of letters sent between hospital doctors and GP Discharge: letters between hospital doctors and GP not written in a way that could be understood UK Picker Average Copyright 2013 Picker Institute Europe. All rights reserved. Page 46

OVERALL Overall: not treated with respect or dignity Overall: rated experience as less than 7/10 Overall: not asked to give views on quality of care Overall: Did not receive any information explaining how to complain UK Picker Average Copyright 2013 Picker Institute Europe. All rights reserved. Page 47

SECTION 7 Internal Benchmarks comparing results within the trust Copyright 2013 Picker Institute Europe. All rights reserved. Page 48

Internal Benchmarks This type of information can help to focus quality improvement initiatives. Tel: 01865 208100 Fax: 01865 208101 Email: surveys@pickereurope.ac.uk Copyright 2013 Picker Institute Europe. All rights reserved. Page 50

Appendix 1 Frequency Tables a detailed breakdown of your results Copyright 2013 Picker Institute Europe. All rights reserved. Page 52

Frequency Tables This section shows a breakdown of responses for each question. It also shows which groups of patients responded to each question and how the problem score was calculated. The response categories that have been combined to calculate the problem score are indicated with an asterisk. ADMISSION TO HOSPITAL 1 - Was your most recent hospital stay planned in advance or an emergency? Emergency or urgent 226 61.4 16371 53.2 Waiting list or planned in advance 115 31.2 12186 39.6 Something else 13 3.5 836 2.7 Not answered 14 3.8 1365 4.4 368 30758 2 - When you arrived at the hospital, did you go to the A&E Department (the Emergency Department / Casualty / Medical or Surgical Admissions Unit)? Emergency admissions n % n % Yes 225 88.9 15466 83.3 No 17 6.7 1857 10.0 Not answered 11 4.3 1249 6.7 253 18572 3 - While you were in the A&E Department, how much information about your condition or treatment was given to you? Patients admitted via A&E department n % n % * Not enough 37 15.7 2253 13.5 Right amount 136 57.6 9922 59.4 * Too much 0 0.0 84 0.5 * I was not given any information about my treatment or condition 22 9.3 1343 8.0 Don't know / Can't remember 28 11.9 1737 10.4 Not answered 13 5.5 1376 8.2 Problem score - 25.0% 236 16715 Problem score - 22.0% Copyright 2013 Picker Institute Europe. All rights reserved. Page 54

4 - Were you given enough privacy when being examined or treated in the A&E Department? Patients admitted via A&E department n % n % Yes, definitely 146 61.9 10986 65.7 * Yes, to some extent 55 23.3 3274 19.6 * No 9 3.8 368 2.2 Don't know / Can't remember 12 5.1 765 4.6 Not answered 14 5.9 1322 7.9 Problem score - 27.1% 236 16715 Problem score - 21.8% 5 - When you were referred to see a specialist, were you offered a choice of hospital for your first hospital appointment? Waiting list or planned admissions n % n % Yes 25 17.5 3801 24.9 * No, but I would have liked a choice 23 16.1 1390 9.1 * No, but I did not mind 78 54.5 8121 53.1 Don t know / Can t remember 5 3.5 505 3.3 Not answered 12 8.4 1475 9.6 Problem score - 70.6% 143 15292 Problem score - 62.2% 6 - How do you feel about the length of time you were on the waiting list before your admission to hospital? Waiting list or planned admissions n % n % I was admitted as soon as I thought was necessary 95 66.4 10248 67.0 * I should have been admitted a bit sooner 19 13.3 2169 14.2 * I should have been admitted a lot sooner 10 7.0 1094 7.2 Not answered 19 13.3 1781 11.6 Problem score - 20.3% 143 15292 Problem score - 21.3% 7 - Was your admission date changed by the hospital? Waiting list or planned admissions n % n % No 99 69.2 10992 71.9 * Yes, once 23 16.1 2252 14.7 * Yes, 2 or 3 times 4 2.8 409 2.7 * Yes, 4 times or more 0 0.0 37 0.2 Not answered 17 11.9 1602 10.5 Problem score - 18.9% 143 15292 Problem score - 17.6% Copyright 2013 Picker Institute Europe. All rights reserved. Page 55

8 - In your opinion, had the specialist you saw in hospital been given all of the necessary information about your condition or illness from the person who referred you? Waiting list or planned admissions n % n % Yes 116 81.1 12707 83.1 * No 5 3.5 568 3.7 Don t know / can t remember 6 4.2 522 3.4 Not answered 16 11.2 1495 9.8 Problem score - 3.5% 143 15292 Problem score - 3.7% 9 - From the time you arrived at the hospital, did you feel that you had to wait a long time to get to a bed on a ward? * Yes, definitely 71 19.3 4012 13.0 * Yes, to some extent 90 24.5 6311 20.5 No 201 54.6 19466 63.3 Not answered 6 1.6 969 3.2 Problem score - 43.8% 368 30758 Problem score - 33.6% Copyright 2013 Picker Institute Europe. All rights reserved. Page 56

THE HOSPITAL AND WARD 10 - While in hospital, did you ever stay in a critical care area (Intensive Care Unit, High Dependency Unit or Coronary Care Unit)? Yes 72 19.6 6337 20.6 No 271 73.6 21990 71.5 Don't know / Can't remember 14 3.8 1515 4.9 Not answered 11 3.0 916 3.0 368 30758 11 - When you were first admitted to a bed on a ward, did you share a sleeping area, for example a room or bay, with patients of the opposite sex? Yes 56 15.2 3068 10.0 No 303 82.3 27188 88.4 Not answered 9 2.4 502 1.6 368 30758 11+ - When you were first admitted to a bed on a ward, did you share a sleeping area, for example a room or bay, with patients of the opposite sex? Patients who did not stay in critical care area n % n % * Yes 38 12.8 1944 8.0 No 250 84.5 22046 90.3 Not answered 8 2.7 431 1.8 Problem score - 12.8% 296 24421 Problem score - 8.0% 12 - During your stay in hospital, how many wards did you stay in? 1 214 58.2 19169 62.3 2 112 30.4 8287 26.9 3 or more 27 7.3 2448 8.0 Don't know / Can't remember 6 1.6 359 1.2 Not answered 9 2.4 495 1.6 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 57

13 - After you moved to another ward (or wards), did you ever share a sleeping area, for example a room or bay, with patients of the opposite sex? Patients in more than one ward n % n % Yes 12 8.6 821 7.6 No 122 87.8 9760 90.9 Not answered 5 3.6 154 1.4 139 10735 13+ - After you moved to another ward (or wards), did you ever share a sleeping area, for example a room or bay, with patients of the opposite sex? Patients in more than one ward who did not stay in critical care area n % n % * Yes 5 5.2 381 5.3 No 81 83.5 6596 91.6 Not answered 11 11.3 223 3.1 Problem score - 5.2% 97 7200 Problem score - 5.3% 14 - While staying in hospital, did you ever use the same bathroom or shower area as patients of the opposite sex? Yes 51 13.9 3625 11.8 Yes, because it had special bathing equipment that I needed 4 1.1 296 1.0 No 256 69.6 23182 75.4 I did not use a bathroom or shower 27 7.3 1577 5.1 Don't know / Can't remember 23 6.2 1429 4.6 Not answered 7 1.9 649 2.1 368 30758 14+ - While staying in hospital, did you ever use the same bathroom or shower area as patients of the opposite sex? Patients who used a bathroom or shower area n % n % * Yes 51 15.0 3625 12.4 Yes, because it had special bathing equipment that I needed 4 1.2 296 1.0 No 256 75.1 23182 79.4 Don't know / Can't remember 23 6.7 1429 4.9 Not answered 7 2.1 649 2.2 Problem score - 15.0% 341 29181 Problem score - 12.4% Copyright 2013 Picker Institute Europe. All rights reserved. Page 58

15 - Were you ever bothered by noise at night from other patients? * Yes 142 38.6 11945 38.8 No 215 58.4 18227 59.3 Not answered 11 3.0 586 1.9 Problem score - 38.6% 368 30758 Problem score - 38.8% 16 - Were you ever bothered by noise at night from hospital staff? * Yes 73 19.8 6059 19.7 No 287 78.0 24136 78.5 Not answered 8 2.2 563 1.8 Problem score - 19.8% 368 30758 Problem score - 19.7% 17 - In your opinion, how clean was the hospital room or ward that you were in? Very clean 202 54.9 20808 67.7 Fairly clean 149 40.5 8774 28.5 * Not very clean 10 2.7 672 2.2 * Not at all clean 5 1.4 196 0.6 Not answered 2 0.5 308 1.0 Problem score - 4.1% 368 30758 Problem score - 2.8% 18 - How clean were the toilets and bathrooms that you used in hospital? Very clean 160 43.5 18036 58.6 Fairly clean 158 42.9 9803 31.9 Not very clean 22 6.0 1345 4.4 Not at all clean 9 2.4 324 1.1 I did not use a toilet or bathroom 17 4.6 929 3.0 Not answered 2 0.5 321 1.0 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 59

18+ - How clean were the toilets and bathrooms that you used in hospital? Patients who used a toilet or bathroom n % n % Very clean 160 45.6 18036 60.5 Fairly clean 158 45.0 9803 32.9 * Not very clean 22 6.3 1345 4.5 * Not at all clean 9 2.6 324 1.1 Not answered 2 0.6 321 1.1 Problem score - 8.8% 351 29829 Problem score - 5.6% 19 - Did you feel threatened during your stay in hospital by other patients or visitors? * Yes 17 4.6 1006 3.3 No 345 93.8 29341 95.4 Not answered 6 1.6 411 1.3 Problem score - 4.6% 368 30758 Problem score - 3.3% 20 - Were hand-wash gels available for patients and visitors to use? Yes 335 91.0 28245 91.8 * Yes, but they were empty 5 1.4 430 1.4 * I did not see any hand-wash gels 13 3.5 740 2.4 Don t know / Can t remember 13 3.5 1058 3.4 Not answered 2 0.5 285 0.9 Problem score - 4.9% 368 30758 Problem score - 3.8% 21 - How would you rate the hospital food? Very good 37 10.1 6227 20.2 Good 88 23.9 10581 34.4 Fair 127 34.5 8550 27.8 Poor 92 25.0 3799 12.4 I did not have any hospital food 21 5.7 1265 4.1 Not answered 3 0.8 336 1.1 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 60

21+ - How would you rate the hospital food? Patients who had hospital food n % n % Very good 37 10.7 6227 21.1 Good 88 25.4 10581 35.9 * Fair 127 36.6 8550 29.0 * Poor 92 26.5 3799 12.9 Not answered 3 0.9 336 1.1 Problem score - 63.1% 347 29493 Problem score - 41.9% 22 - Were you offered a choice of food? Yes, always 262 71.2 23719 77.1 * Yes, sometimes 56 15.2 4432 14.4 * No 39 10.6 1893 6.2 Not answered 11 3.0 714 2.3 Problem score - 25.8% 368 30758 Problem score - 20.6% 23 - Did you get enough help from staff to eat your meals? Yes, always 51 13.9 4776 15.5 Yes, sometimes 15 4.1 1485 4.8 No 22 6.0 1266 4.1 I did not need help to eat meals 267 72.6 22315 72.6 Not answered 13 3.5 916 3.0 368 30758 23+ - Did you get enough help from staff to eat your meals? Patients who needed help to eat meals n % n % Yes, always 51 50.5 4776 56.6 * Yes, sometimes 15 14.9 1485 17.6 * No 22 21.8 1266 15.0 Not answered 13 12.9 916 10.8 Problem score - 36.6% 101 8443 Problem score - 32.6% Copyright 2013 Picker Institute Europe. All rights reserved. Page 61

DOCTORS 24 - When you had important questions to ask a doctor, did you get answers that you could understand? Yes, always 201 54.6 18882 61.4 Yes, sometimes 93 25.3 6934 22.5 No 28 7.6 1387 4.5 I had no need to ask 42 11.4 3170 10.3 Not answered 4 1.1 385 1.3 368 30758 24+ - When you had important questions to ask a doctor, did you get answers that you could understand? Patients who had questions to ask a doctor n % n % Yes, always 201 61.7 18882 68.4 * Yes, sometimes 93 28.5 6934 25.1 * No 28 8.6 1387 5.0 Not answered 4 1.2 385 1.4 Problem score - 37.1% 326 27588 Problem score - 30.2% 25 - Did you have confidence and trust in the doctors treating you? Yes, always 267 72.6 24596 80.0 * Yes, sometimes 80 21.7 4860 15.8 * No 17 4.6 927 3.0 Not answered 4 1.1 375 1.2 Problem score - 26.4% 368 30758 Problem score - 18.8% 26 - Did doctors talk in front of you as if you weren t there? * Yes, often 20 5.4 1666 5.4 * Yes, sometimes 76 20.7 5851 19.0 No 267 72.6 22717 73.9 Not answered 5 1.4 524 1.7 Problem score - 26.1% 368 30758 Problem score - 24.4% Copyright 2013 Picker Institute Europe. All rights reserved. Page 62

NURSES 27 - When you had important questions to ask a nurse, did you get answers that you could understand? Yes, always 208 56.5 18651 60.6 Yes, sometimes 105 28.5 7120 23.1 No 17 4.6 1092 3.6 I had no need to ask 36 9.8 3565 11.6 Not answered 2 0.5 330 1.1 368 30758 27+ - When you had important questions to ask a nurse, did you get answers that you could understand? Patients who had questions to ask a nurse n % n % Yes, always 208 62.7 18651 68.6 * Yes, sometimes 105 31.6 7120 26.2 * No 17 5.1 1092 4.0 Not answered 2 0.6 330 1.2 Problem score - 36.7% 332 27193 Problem score - 30.2% 28 - Did you have confidence and trust in the nurses treating you? Yes, always 257 69.8 23087 75.1 * Yes, sometimes 90 24.5 6331 20.6 * No 20 5.4 1015 3.3 Not answered 1 0.3 325 1.1 Problem score - 29.9% 368 30758 Problem score - 23.9% 29 - Did nurses talk in front of you as if you weren't there? * Yes, often 10 2.7 1319 4.3 * Yes, sometimes 81 22.0 4631 15.1 No 272 73.9 24431 79.4 Not answered 5 1.4 377 1.2 Problem score - 24.7% 368 30758 Problem score - 19.3% Copyright 2013 Picker Institute Europe. All rights reserved. Page 63

30 - In your opinion, were there enough nurses on duty to care for you in hospital? There were always or nearly always enough nurses 189 51.4 18154 59.0 * There were sometimes enough nurses 124 33.7 8920 29.0 * There were rarely or never enough nurses 50 13.6 3276 10.7 Not answered 5 1.4 408 1.3 Problem score - 47.3% 368 30758 Problem score - 39.7% Copyright 2013 Picker Institute Europe. All rights reserved. Page 64

YOUR CARE AND TREATMENTS 31 - Sometimes in a hospital, a member of staff will say one thing and another will say something quite different. Did this happen to you? * Yes, often 33 9.0 2092 6.8 * Yes, sometimes 101 27.4 7443 24.2 No 228 62.0 20834 67.7 Not answered 6 1.6 389 1.3 Problem score - 36.4% 368 30758 Problem score - 31.0% 32 - Were you involved as much as you wanted to be in decisions about your care and treatment? Yes, definitely 177 48.1 16804 54.6 * Yes, to some extent 145 39.4 10376 33.7 * No 42 11.4 3069 10.0 Not answered 4 1.1 509 1.7 Problem score - 50.8% 368 30758 Problem score - 43.7% 33 - How much information about your condition or treatment was given to you? * Not enough 82 22.3 5968 19.4 The right amount 279 75.8 24134 78.5 * Too much 1 0.3 219 0.7 Not answered 6 1.6 437 1.4 Problem score - 22.6% 368 30758 Problem score - 20.1% 34 - Did you find someone on the hospital staff to talk to about your worries and fears? Yes, definitely 73 19.8 6777 22.0 Yes, to some extent 104 28.3 6669 21.7 No 54 14.7 4022 13.1 I had no worries or fears 130 35.3 12800 41.6 Not answered 7 1.9 490 1.6 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 65

34+ - Did you find someone on the hospital staff to talk to about your worries and fears? Patients who had worries or fears n % n % Yes, definitely 73 30.7 6777 37.7 * Yes, to some extent 104 43.7 6669 37.1 * No 54 22.7 4022 22.4 Not answered 7 2.9 490 2.7 Problem score - 66.4% 238 17958 Problem score - 59.5% 35 - Do you feel you got enough emotional support from hospital staff during your stay? Yes, always 113 30.7 10758 35.0 Yes, sometimes 76 20.7 5664 18.4 No 39 10.6 2832 9.2 I did not need any emotional support 136 37.0 11049 35.9 Not answered 4 1.1 455 1.5 368 30758 35+ - Do you feel you got enough emotional support from hospital staff during your stay? Patients who needed emotional support n % n % Yes, always 113 48.7 10758 54.6 * Yes, sometimes 76 32.8 5664 28.7 * No 39 16.8 2832 14.4 Not answered 4 1.7 455 2.3 Problem score - 49.6% 232 19709 Problem score - 43.1% 36 - Were you given enough privacy when discussing your condition or treatment? Yes, always 252 68.5 22065 71.7 * Yes, sometimes 82 22.3 5951 19.3 * No 27 7.3 2039 6.6 Not answered 7 1.9 703 2.3 Problem score - 29.6% 368 30758 Problem score - 26.0% Copyright 2013 Picker Institute Europe. All rights reserved. Page 66

37 - Were you given enough privacy when being examined or treated? Yes, always 318 86.4 27184 88.4 * Yes, sometimes 39 10.6 2689 8.7 * No 8 2.2 453 1.5 Not answered 3 0.8 432 1.4 Problem score - 12.8% 368 30758 Problem score - 10.2% 38 - Were you ever in any pain? Yes 234 63.6 19706 64.1 No 125 34.0 10448 34.0 Not answered 9 2.4 604 2.0 368 30758 39 - Do you think the hospital staff did everything they could to help control your pain? Patients who experienced pain n % n % Yes, definitely 146 62.4 13778 69.9 * Yes, to some extent 71 30.3 4588 23.3 * No 17 7.3 1186 6.0 Not answered 0 0.0 154 0.8 Problem score - 37.6% 234 19706 Problem score - 29.3% 40 - How many minutes after you used the call button did it usually take before you got the help you needed? 0 minutes / right away 27 7.3 2496 8.1 1-2 minutes 74 20.1 7045 22.9 3-5 minutes 77 20.9 5371 17.5 More than 5 minutes 53 14.4 3058 9.9 I never got help when I used the call button 2 0.5 261 0.8 I never used the call button 129 35.1 11598 37.7 Not answered 6 1.6 929 3.0 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 67

40+ - How many minutes after you used the call button did it usually take before you got the help you needed? Patients who used the call button n % n % 0 minutes / right away 27 11.3 2496 13.0 1-2 minutes 74 31.0 7045 36.8 3-5 minutes 77 32.2 5371 28.0 * More than 5 minutes 53 22.2 3058 16.0 * I never got help when I used the call button 2 0.8 261 1.4 Not answered 6 2.5 929 4.8 Problem score - 23.0% 239 19160 Problem score - 17.3% Copyright 2013 Picker Institute Europe. All rights reserved. Page 68

OPERATIONS & PROCEDURES 41 - During your stay in hospital, did you have an operation or procedure? Yes 219 59.5 19249 62.6 No 143 38.9 10815 35.2 Not answered 6 1.6 694 2.3 368 30758 42 - Beforehand, did a member of staff explain the risks and benefits of the operation or procedure in a way you could understand? Patients who had an operation/procedure n % n % Yes, completely 164 74.9 15287 79.4 Yes, to some extent 41 18.7 2779 14.4 No 9 4.1 625 3.2 I did not want an explanation 3 1.4 388 2.0 Not answered 2 0.9 170 0.9 219 19249 42+ - Beforehand, did a member of staff explain the risks and benefits of the operation or procedure in a way you could understand? Patients who wanted an explanation about risks and benefits of n % n % operation/procedure Yes, completely 164 75.9 15287 81.1 * Yes, to some extent 41 19.0 2779 14.7 * No 9 4.2 625 3.3 Not answered 2 0.9 170 0.9 Problem score - 23.1% 216 18861 Problem score - 18.0% 43 - Beforehand, did a member of staff explain what would be done during the operation or procedure? Patients who had an operation/procedure n % n % Yes, completely 147 67.1 13880 72.1 Yes, to some extent 48 21.9 3849 20.0 No 17 7.8 849 4.4 I did not want an explanation 5 2.3 507 2.6 Not answered 2 0.9 164 0.9 219 19249 Copyright 2013 Picker Institute Europe. All rights reserved. Page 69

43+ - Beforehand, did a member of staff explain what would be done during the operation or procedure? Patients who wanted an explanation about what would be done during n % n % operation/procedure Yes, completely 147 68.7 13880 74.1 * Yes, to some extent 48 22.4 3849 20.5 * No 17 7.9 849 4.5 Not answered 2 0.9 164 0.9 Problem score - 30.4% 214 18742 Problem score - 25.1% 44 - Beforehand, did a member of staff answer your questions about the operation or procedure in a way you could understand? Patients who had an operation/procedure n % n % Yes, completely 146 66.7 13051 67.8 Yes, to some extent 25 11.4 2803 14.6 No 7 3.2 537 2.8 I did not have any questions 36 16.4 2622 13.6 Not answered 5 2.3 236 1.2 219 19249 44+ - Beforehand, did a member of staff answer your questions about the operation or procedure in a way you could understand? Patients who had an operation/procedure and had questions n % n % Yes, completely 146 79.8 13051 78.5 * Yes, to some extent 25 13.7 2803 16.9 * No 7 3.8 537 3.2 Not answered 5 2.7 236 1.4 Problem score - 17.5% 183 16627 Problem score - 20.1% 45 - Beforehand, were you told how you could expect to feel after you had the operation or procedure? Patients who had an operation/procedure n % n % Yes, completely 108 49.3 10899 56.6 * Yes, to some extent 65 29.7 5274 27.4 * No 46 21.0 2825 14.7 Not answered 0 0.0 251 1.3 Problem score - 50.7% 219 19249 Problem score - 42.1% Copyright 2013 Picker Institute Europe. All rights reserved. Page 70

46 - Before the operation or procedure, were you given an anaesthetic or medication to put you to sleep or control your pain? Patients who had an operation/procedure n % n % Yes 183 83.6 16645 86.5 No 34 15.5 2329 12.1 Not answered 2 0.9 275 1.4 219 19249 47 - Before the operation or procedure, did the anaesthetist or another member of staff explain how he or she would put you to sleep or control your pain in a way you could understand? Patients who had an operation/procedure under anaesthetic n % n % Yes, completely 152 83.1 14101 84.7 * Yes, to some extent 25 13.7 1779 10.7 * No 5 2.7 610 3.7 Not answered 1 0.5 155 0.9 Problem score - 16.4% 183 16645 Problem score - 14.4% 48 - After the operation or procedure, did a member of staff explain how the operation or procedure had gone in a way you could understand? Patients who had an operation/procedure n % n % Yes, completely 130 59.4 12592 65.4 * Yes, to some extent 47 21.5 4321 22.4 * No 39 17.8 1997 10.4 Not answered 3 1.4 339 1.8 Problem score - 39.3% 219 19249 Problem score - 32.8% Copyright 2013 Picker Institute Europe. All rights reserved. Page 71

LEAVING HOSPITAL 49 - Did you feel you were involved in decisions about your discharge from hospital? Yes, definitely 173 47.0 15753 51.2 Yes, to some extent 123 33.4 8777 28.5 No 62 16.8 4687 15.2 I did not need to be involved 7 1.9 1014 3.3 Not answered 3 0.8 527 1.7 368 30758 49+ - Did you feel you were involved in decisions about your discharge from hospital? Patients who wanted to be involved in decisions about their discharge n % n % Yes, definitely 173 47.9 15753 53.0 * Yes, to some extent 123 34.1 8777 29.5 * No 62 17.2 4687 15.8 Not answered 3 0.8 527 1.8 Problem score - 51.2% 361 29744 Problem score - 45.3% 50 - Were you given enough notice about when you were going to be discharged? Yes, definitely 176 47.8 17050 55.4 * Yes, to some extent 142 38.6 9298 30.2 * No 46 12.5 3888 12.6 Not answered 4 1.1 522 1.7 Problem score - 51.1% 368 30758 Problem score - 42.9% 51 - On the day you left hospital, was your discharge delayed for any reason? * Yes 188 51.1 12116 39.4 No 173 47.0 17979 58.5 Not answered 7 1.9 663 2.2 Problem score - 51.1% 368 30758 Problem score - 39.4% Copyright 2013 Picker Institute Europe. All rights reserved. Page 72

52 - What was the MAIN reason for the delay? (Tick ONE only) Patients whose discharge was delayed n % n % I had to wait for medicines 100 53.2 7101 58.6 I had to wait to see the doctor 33 17.6 1626 13.4 I had to wait for an ambulance 15 8.0 1079 8.9 Something else 27 14.4 1510 12.5 Not answered 13 6.9 800 6.6 188 12116 53 - How long was the delay? Patients whose discharge was delayed n % n % Up to 1 hour 16 8.5 1628 13.4 * Longer than 1 hour but no longer than 2 hours 35 18.6 3239 26.7 * Longer than 2 hours but no longer than 4 hours 80 42.6 3999 33.0 * Longer than 4 hours 54 28.7 3004 24.8 Not answered 3 1.6 246 2.0 Problem score - 89.9% 188 12116 Problem score - 84.5% 54 - Before you left hospital, were you given any written or printed information about what you should or should not do after leaving hospital? Yes 229 62.2 20443 66.5 * No 123 33.4 9191 29.9 Not answered 16 4.3 1124 3.7 Problem score - 33.4% 368 30758 Problem score - 29.9% 55 - Did a member of staff explain the purpose of the medicines you were to take at home in a way you could understand? Yes, completely 202 54.9 17785 57.8 Yes, to some extent 50 13.6 3807 12.4 No 24 6.5 1693 5.5 I did not need an explanation 42 11.4 3161 10.3 I had no medicines 39 10.6 3523 11.5 Not answered 11 3.0 789 2.6 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 73

55+ - Did a member of staff explain the purpose of the medicines you were to take at home in a way you could understand? Patients with medicines who needed an explanation of purpose of medicines n % n % Yes, completely 202 70.4 17785 73.9 * Yes, to some extent 50 17.4 3807 15.8 * No 24 8.4 1693 7.0 Not answered 11 3.8 789 3.3 Problem score - 25.8% 287 24074 Problem score - 22.8% 56 - Did a member of staff tell you about medication side effects to watch for when you went home? Patients who were given medicines to take home n % n % Yes, completely 65 20.4 8016 30.3 Yes, to some extent 51 16.0 3856 14.6 No 113 35.5 8077 30.5 I did not need an explanation 85 26.7 6201 23.4 Not answered 4 1.3 296 1.1 318 26446 56+ - Did a member of staff tell you about medication side effects to watch for when you went home? Patients with medicines who needed an explanation of side effects n % n % Yes, completely 65 27.9 8016 39.6 * Yes, to some extent 51 21.9 3856 19.0 * No 113 48.5 8077 39.9 Not answered 4 1.7 296 1.5 Problem score - 70.4% 233 20245 Problem score - 58.9% 57 - Were you told how to take your medication in a way you could understand? Patients who were given medicines to take home n % n % Yes, definitely 176 55.3 15644 59.2 Yes, to some extent 35 11.0 3000 11.3 No 22 6.9 1643 6.2 I did not need to be told how to take my medication 81 25.5 5899 22.3 Not answered 4 1.3 260 1.0 318 26446 Copyright 2013 Picker Institute Europe. All rights reserved. Page 74

57+ - Were you told how to take your medication in a way you could understand? Patients with medicines who needed to be told how to take medication n % n % Yes, definitely 176 74.3 15644 76.1 * Yes, to some extent 35 14.8 3000 14.6 * No 22 9.3 1643 8.0 Not answered 4 1.7 260 1.3 Problem score - 24.1% 237 20547 Problem score - 22.6% 58 - Were you given clear written or printed information about your medicines? Patients who were given medicines to take home n % n % Yes, completely 188 59.1 15353 58.1 Yes, to some extent 39 12.3 3380 12.8 No 34 10.7 2398 9.1 I did not need this 42 13.2 4379 16.6 Don t know / can t remember 9 2.8 657 2.5 Not answered 6 1.9 279 1.1 318 26446 58+ - Were you given clear written or printed information about your medicines? Patients who needed written or printed information about medicines n % n % Yes, completely 188 68.1 15353 69.6 * Yes, to some extent 39 14.1 3380 15.3 * No 34 12.3 2398 10.9 Don't know / Can't remember 9 3.3 657 3.0 Not answered 6 2.2 279 1.3 Problem score - 26.4% 276 22067 Problem score - 26.2% 59 - Did a member of staff tell you about any danger signals you should watch for after you went home? Yes, completely 98 26.6 9701 31.5 Yes, to some extent 57 15.5 4857 15.8 No 124 33.7 8244 26.8 It was not necessary 76 20.7 7131 23.2 Not answered 13 3.5 825 2.7 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 75

59+ - Did a member of staff tell you about any danger signals you should watch for after you went home? Patients who needed to know about danger signals n % n % Yes, completely 98 33.6 9701 41.1 * Yes, to some extent 57 19.5 4857 20.6 * No 124 42.5 8244 34.9 Not answered 13 4.5 825 3.5 Problem score - 62.0% 292 23627 Problem score - 55.4% 60 - Did hospital staff take your family or home situation into account when planning your discharge? Yes, completely 134 36.4 12507 40.7 Yes, to some extent 64 17.4 4485 14.6 No 50 13.6 3790 12.3 It was not necessary 103 28.0 8413 27.4 Don t know / can t remember 8 2.2 862 2.8 Not answered 9 2.4 701 2.3 368 30758 60+ - Did hospital staff take your family or home situation into account when planning your discharge? Patients whose family or home situation needed to be taken into account n % n % Yes, completely 134 50.6 12507 56.0 * Yes, to some extent 64 24.2 4485 20.1 * No 50 18.9 3790 17.0 Don t know / can t remember 8 3.0 862 3.9 Not answered 9 3.4 701 3.1 Problem score - 43.0% 265 22345 Problem score - 37.0% 61 - Did the doctors or nurses give your family or someone close to you all the information they needed to help care for you? Yes, definitely 110 29.9 9821 31.9 Yes, to some extent 68 18.5 4825 15.7 No 82 22.3 5709 18.6 No family or friends were involved 35 9.5 4097 13.3 My family or friends did not want or need information 66 17.9 5420 17.6 Not answered 7 1.9 886 2.9 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 76

61+ - Did the doctors or nurses give your family or someone close to you all the information they needed to help care for you? Patients whose family or friends needed information on how to care for them n % n % Yes, definitely 110 41.2 9821 46.2 * Yes, to some extent 68 25.5 4825 22.7 * No 82 30.7 5709 26.9 Not answered 7 2.6 886 4.2 Problem score - 56.2% 267 21241 Problem score - 49.6% 62 - Did hospital staff tell you who to contact if you were worried about your condition or treatment after you left hospital? Yes 249 67.7 21539 70.0 * No 83 22.6 6067 19.7 Don t know / Can t remember 27 7.3 2378 7.7 Not answered 9 2.4 774 2.5 Problem score - 22.6% 368 30758 Problem score - 19.7% 63 - Did hospital staff discuss with you whether you would need any additional equipment in your home, or any adaptations made to your home, after leaving hospital? Yes 80 21.7 7318 23.8 No, but I would have liked them to 15 4.1 1690 5.5 No, it was not necessary to discuss it 266 72.3 20978 68.2 Not answered 7 1.9 772 2.5 368 30758 63+ - Did hospital staff discuss with you whether you would need any additional equipment in your home, or any adaptations made to your home, after leaving hospital? Patients who required discussion about equipment or home adaptations n % n % Yes 80 78.4 7318 74.8 * No, but I would have liked them to 15 14.7 1690 17.3 Not answered 7 6.9 772 7.9 Problem score - 14.7% 102 9780 Problem score - 17.3% Copyright 2013 Picker Institute Europe. All rights reserved. Page 77

64 - Did hospital staff discuss with you whether you may need any further health or social care services after leaving hospital? (e.g. services from a GP, physiotherapist or community nurse, or assistance from social services or the voluntary sector) Yes 154 41.8 13211 43.0 No, but I would have liked them to 31 8.4 2529 8.2 No, it was not necessary to discuss it 172 46.7 14230 46.3 Not answered 11 3.0 788 2.6 368 30758 64+ - Did hospital staff discuss with you whether you may need any further health or social care services after leaving hospital? (e.g. services from a GP, physiotherapist or community nurse, or assistance from social services or the voluntary sector) Patients who required discussion about further health or social care n % n % Yes 154 78.6 13211 79.9 * No, but I would have liked them to 31 15.8 2529 15.3 Not answered 11 5.6 788 4.8 Problem score - 15.8% 196 16528 Problem score - 15.3% 65 - Did you receive copies of letters sent between hospital doctors and your family doctor (GP)? Yes, I received copies 261 70.9 16996 55.3 * No, I did not receive copies 84 22.8 10367 33.7 Not sure / Don't know 15 4.1 2613 8.5 Not answered 8 2.2 782 2.5 Problem score - 22.8% 368 30758 Problem score - 33.7% 66 - Were the letters written in a way that you could understand? Patients who received copies of letters between the hospital and their GP n % n % Yes, definitely 199 76.2 12725 74.9 * Yes, to some extent 54 20.7 3548 20.9 * No 3 1.1 401 2.4 Not sure / Don't know 0 0.0 129 0.8 Not answered 5 1.9 193 1.1 Problem score - 21.8% 261 16996 Problem score - 23.2% Copyright 2013 Picker Institute Europe. All rights reserved. Page 78

OVERALL 67 - Overall, did you feel you were treated with respect and dignity while you were in the hospital? Yes, always 262 71.2 24250 78.8 * Yes, sometimes 86 23.4 5163 16.8 * No 17 4.6 892 2.9 Not answered 3 0.8 453 1.5 Problem score - 28.0% 368 30758 Problem score - 19.7% 68 - Overall... 0 - I had a very poor experience 7 1.9 265 0.9 1 4 1.1 302 1.0 2 9 2.4 345 1.1 3 12 3.3 570 1.9 4 13 3.5 718 2.3 5 18 4.9 1537 5.0 6 25 6.8 1613 5.2 7 43 11.7 3474 11.3 8 96 26.1 6977 22.7 9 57 15.5 5948 19.3 10 - I had a very good experience 71 19.3 7508 24.4 98 3 0.8 200 0.7 Not answered 10 2.7 1301 4.2 368 30758 68+ - Overall... All valid responses n % n % * 0 - I had a very poor experience 7 1.9 265 0.9 * 1 4 1.1 302 1.0 * 2 9 2.4 345 1.1 * 3 12 3.3 570 1.9 * 4 13 3.5 718 2.3 * 5 18 4.9 1537 5.0 * 6 25 6.8 1613 5.3 7 43 11.7 3474 11.4 8 96 26.1 6977 22.8 9 57 15.5 5948 19.5 10 - I had a very good experience 71 19.3 7508 24.6 Not answered 10 2.7 1301 4.3 Problem score - 24.1% 365 30558 Problem score - 17.5% Copyright 2013 Picker Institute Europe. All rights reserved. Page 79

69 - During your hospital stay, were you ever asked to give your views on the quality of your care? Yes 48 13.0 3713 12.1 * No 288 78.3 23291 75.7 Don't know / Can't remember 26 7.1 3188 10.4 Not answered 6 1.6 566 1.8 Problem score - 78.3% 368 30758 Problem score - 75.7% 70 - Did you see, or were you given, any information explaining how to complain to the hospital about the care you received? Yes 62 16.8 5320 17.3 * No 253 68.8 18789 61.1 Not sure / don t know 42 11.4 5669 18.4 Not answered 11 3.0 980 3.2 Problem score - 68.8% 368 30758 Problem score - 61.1% Copyright 2013 Picker Institute Europe. All rights reserved. Page 80

ABOUT YOU 71 - Who was the main person or people that filled in this questionnaire? The patient (named on the front of the envelope) 305 82.9 25748 83.7 A friend or relative of the patient 16 4.3 1591 5.2 Both patient and friend/relative together 41 11.1 2639 8.6 The patient with the help of a health professional 2 0.5 118 0.4 Not answered 4 1.1 662 2.2 368 30758 72 - Are you male or female? Male 166 45.1 14172 46.1 Female 198 53.8 16146 52.5 Not answered 4 1.1 440 1.4 368 30758 73 - What was your year of birth? Under 20 4 1.1 259 0.8 20-29 15 4.1 1052 3.4 30-39 18 4.9 1486 4.8 40-49 32 8.7 2647 8.6 50-59 45 12.2 4198 13.6 60-69 84 22.8 6515 21.2 70-79 85 23.1 7255 23.6 80-89 62 16.8 5311 17.3 90+ 12 3.3 1272 4.1 Not answered 11 3.0 763 2.5 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 81

74 - Do you have any of the following long-standing conditions? (Tick ALL that apply) Deafness or severe hearing impairment 41 11.1 3758 12.2 Blindness or partially sighted 15 4.1 1477 4.8 A long-standing physical condition 90 24.5 7417 24.1 A learning disability 1 0.3 483 1.6 A mental health condition 10 2.7 1386 4.5 A long-standing illness, such as cancer, HIV, diabetes, chronic heart 120 32.6 8778 28.5 disease, or epilepsy No, I do not have a long-standing condition 147 39.9 11514 37.4 Not answered 33 9.0 2857 9.3 368 30758 75 - Does this condition(s) cause you difficulty with any of the following? (Tick All that apply) Patients with long standing conditions n % n % Everyday activities that people your age can usually do 109 58.0 8967 54.7 At work, in education, or training 25 13.3 2234 13.6 Access to buildings, streets, or vehicles 52 27.7 4338 26.5 Reading or writing 12 6.4 2023 12.3 People s attitudes to you because of your condition 15 8.0 1851 11.3 Communicating, mixing with others, or socialising 28 14.9 3164 19.3 Any other activity 29 15.4 2524 15.4 No difficulty with any of these 60 31.9 4668 28.5 Not answered 5 2.7 866 5.3 188 16387 Copyright 2013 Picker Institute Europe. All rights reserved. Page 82

76 - What is your ethnic group? English/Welsh/Scottish/Northern Irish/British 335 91.0 26211 85.2 Irish 2 0.5 418 1.4 Gypsy or Irish Traveller 0 0.0 32 0.1 Any other White background 7 1.9 620 2.0 White and Black Caribbean 0 0.0 54 0.2 White and Black African 0 0.0 36 0.1 White and Asian 0 0.0 80 0.3 Any other Mixed / multiple ethnic background 0 0.0 32 0.1 Indian 3 0.8 533 1.7 Pakistani 1 0.3 252 0.8 Bangladeshi 0 0.0 86 0.3 Chinese 1 0.3 79 0.3 Any other Asian background 0 0.0 148 0.5 African 4 1.1 262 0.9 Caribbean 3 0.8 280 0.9 Any other Black / African / Caribbean background 0 0.0 23 0.1 Arab 2 0.5 65 0.2 Any other ethnic group 0 0.0 41 0.1 Not answered 10 2.7 1506 4.9 368 30758 77 - What is your religion? No religion 60 16.3 4191 13.6 Buddhist 1 0.3 131 0.4 Christian (including Church of England, Catholic, Protestant, and other 268 72.8 22513 73.2 Christian denominations) Hindu 2 0.5 326 1.1 Jewish 2 0.5 207 0.7 Muslim 5 1.4 658 2.1 Sikh 3 0.8 188 0.6 Other 5 1.4 340 1.1 I would prefer not to say 8 2.2 506 1.6 Not answered 14 3.8 1698 5.5 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 83

78 - Which of the following best describes how you think of yourself? Heterosexual/straight 319 86.7 26039 84.7 Gay/Lesbian 1 0.3 241 0.8 Bisexual 0 0.0 103 0.3 Other 4 1.1 182 0.6 I would prefer not to say 19 5.2 1093 3.6 Not answered 25 6.8 3100 10.1 368 30758 Copyright 2013 Picker Institute Europe. All rights reserved. Page 84

Appendix 2 Questionnaire Copyright 2013 Picker Institute Europe. All rights reserved. Page 86