Communication The Essence of the Palliative Approach

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Communication The Essence of the Palliative Approach Dr Joy Percy Palliative care Physician Palmerston Nth Hospital Overview Identify difficult conversations and why they are difficult Generic communication skills Specific difficult conversations Talking about dying Communicating with our medical colleagues How hard is it for you? What is a difficult conversation? What is it that makes it difficult? Difficult conversations Upsetting/bad news to be told Strong emotions are present You feel out of your depth Think of the most challenging difficult conversation you have had What are some of the things that made it difficult for you Taken off your guard not prepared 1

Communication skills Evidence Good communication skills can facilitate difficult conversations Communication skills do not reliably improve with experience alone [Cantwell and Ramirez 1997] Skills can be acquired and retained with appropriate teaching [Finset et al,2003 Kurtz et al, 2003] Many complaints by patients reflect a perceived failure of effective communication [DOH 2000] Complaints (Health Care Commission report 2007) How do we communicate? 1. Safety of clinical practice 2. Poor communication 3. Ineffective clinical practices 4. Poor handling of complaints 5. Discharge and co-ordinatioin of care 6. Lack of dignity and respect 7. Poor attitudes 8. Failure to follow consent procedures 9. Poor environments, poor hygiene 10. Disputes about clinical records Non-verbal communication Verbal communication Facilitating behaviour Inhibiting behaviour Non-verbal communication Body Language Body language Personal space Touch Eye contact Facial Expression Gestures Posture 2

Body Language Verbal Communication Questions Open - broad Open - directive/focused Directive Closed Leading Multiple Facilitating behaviour Listening Silences Acknowledgement Encouragement Picking up Cues Reflection Clarification Empathy Facilitating behaviour Summarising Educated guesses Checking Negotiation Pauses Minimal prompts Appropriate reassurance Exploring Listening Pauses and Silences 3

Pauses and Silences 1. For how long does a doctor let a patient speak before interrupting? 18 seconds Picking up Cues 2. How long would a patient usually speak if not interrupted? 2 minutes Facts about Cues Facilitative questions linked to cues increase the probability of further cues Open questions when linked to a cue are 4.5 times more likely to lead to a disclosure Facilitating first patient cue is important 20% drop in patient cues if first cue is not faciltated Scenario 48year old patient with Ca Pancreas Told by oncologist last week that there are no further treatment options Admitted to hospice with intractable vomiting Much improved with anti-emetics via S/D Told she can go home that day She looks sad What do you do or say? Useful starting phrases I m wondering How would it be. Can you tell me. It seems like I can t know how you are feeling but You appear to be.. What are you Responding appropriately to cues shortens consultation time Oncologists that responded to >90% of informational cues had 20% shorter consultation times Butlow et al 2002 Drs who responded to at least one emotional cue had shorter consultation times GP consultations shortened by 12.5% Surgeon consultations by 10.7% Levinson et al 2000 4

Difficult conversations Talking about dying Talking to the doctor Key Communication Skills in Difficult Situations Be non-judgmental. Show warmth Be empathetic and show respect Pick up on cues Silences- allows both parties to think Listening - active skill requiring concentration When should we talk about dying? Quiz A. With all pts/carers with a life limiting illness of 6-12mths B. Change in condition or perception of change C. Treatment decisions to be made D. Requests or expectations inconsistent with clinical judgement E. Disease specific treatment not working or related complications of it F. At referral to palliative care services Communicating about dying Be prepared to discuss with carers, family and/or the patient the following: That death is expected The dying process The plan of treatment and care Focus group discussions I found that the nurses and doctors were approachable and they always told us what to expect or what was happening. I remember the day my father died the staff were in and out all the time. They explained everything and tried to stay with us. I found them all friendly and willing to take some time to talk to us as a family 5

Focus group discussions When I approached the nurses to say or ask anything I got the impression they were busy. Nobody explained how things were progressing. I mean we weren t kept informed about daily events. It came as quite a shock to me when I became aware that my wife had only about 2 days to live. I knew this would happen of course but I didn t realize she was as near to dying as she was at that time The SPIKES Tool W F Baile, R Buckman et al 2005 S etting up the interview - preparation P erception of the patient/carers I nvitation to patient/carer to give information K nowledge - giving information to patient/carer E motions -address with empathy S trategy - summary of information and discuss plan Preparation is vital Prepare yourself knowledgeable, rehearse, consider likely questions, professional support (medical, nursing). Prepare the setting privacy, sit down, try and establish a rapport, allow enough time Prepare the patient/family assess the patient/family s understanding of the situation. Things you could say Despite all of the treatment and interventions Fred s condition is continuing to deteriorate We can be wrong, but in our best judgement we believe her life is coming to an end We think its appropriate at this time to shift the focus of care. The care Because time is short we think its very important that family are contacted/advised Getting the best out of your doctor! What is it that makes it difficult? Upsetting/bad news to be told Strong emotions are present You feel out of your depth Taken off your guard not prepared 6

SBAR Tool Christie P, Robinson H (2009) Using a framework for good communication to improve quality of information at handover. Nursing Times; 105: 47, Situation Background Assessment Recommendation Situation Who you are Where you are telephoning from The patient s name What is the main problem? (This is the most important aspect to attract the other person s attention immediately) Background Assessment Date of admission and diagnosis Relevant past medical history and treatment to date (It is imperative that this is brief, succinct and relevant) State your assessment of the patient (For example, vital signs, modified early warning score (MEWS), level of consciousness, acute confusion, medication, resuscitation status) Recommendation Explain what you need Be specific about your request and the timeframe Ask if there is anything else you can do before the other staff member arrives Document the call including date, time and who you spoke to If you are worried and do not receive the response you need you may need to escalate to a more senior clinician Communication structures Structure 1 Doctor: Hi this is Matt, the surgical F1, you are bleeping me. Nurse: Hello, this is staff nurse on Rose ward. Can you come and review a patient of mine please? Doctor: What is the problem? Nurse: His blood pressure is low. Doctor: What is it? Nurse: 88/45. Doctor: What was it before? Nurse: Not sure, let me go and get his charts. It was 135/70. Doctor: What did the patient come in with? Nurse: Hold on, let me get my handover sheet - he had a small bowel resection three days ago. Doctor: What are his other vital signs? Nurse: Hold on, I will just have a look - his temperature is 38.6ºC, pulse is 122/min, respirations 26/min, SpO 2 93% on air. Doctor: What is his urine output? Nurse: Not sure, let me go and get his fluid balance charts. Sorry, can t find it. Doctor: What medications is he on? Nurse: Let me go and get his prescription chart. Doctor: Don t worry, I will wander up later and review him. 7

Communication structures Structure 2 Doctor: Hi this is Matt, the surgical F1, you are bleeping me. Nurse Situation: Hi, this is Sue, staff nurse on Rose Ward. I am contacting you regarding a Mr Smith who has suddenly become hypotensive. BP is 88/45. Background: He had a small bowel resection three days ago and is receiving IV fluids at 125ml/hr. This man is normally fit and well with no relevant past medical history. Assessment: His airway is patent, respirations 26/min. SpO 2 93% on air. I have started him on 6L oxygen and his SpO 2 has come up to 98%. Pulse is regular, rate 120/min, BP was 135/70 earlier, now 90/40. He is cool peripherally with a capillary refill of four seconds. His urine output has also dropped, over the past three hours 35ml, 20ml, 10ml. At the moment he is alert and complaining of abdominal pain. He has also been vomiting. Temperature is 38.7. I think he is septic, possibly abdominal. Recommendation: I need you to come and see this patient now. Doctor: OK, I am on my way Nurse:Is there anything I can do before you get here? Doctor: Can you give stat bolus of 500ml normal saline (trust patient group directive 1013) and organise an ECG. Nurse: OK, see you in a minute. Negotiating What have you learnt today? Take Home Messages Write down 2 take home messages from today Practice Facilitating behaviour Listening actively Pauses and silences Picking up cues and exploring them Utilise Spikes tool for breaking bad news Use SBAR for handover Thankyou for listening 8