Challenges of evaluating integrated care

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Challenges of evaluating integrated care The implications of new research for managing and avoiding emergency admissions. Welcome Trust Dec 1 st 2014 Martin Bardsley Director of Research Nuffield Trust 04 December 2014

The Nuffield Trust Promote independent analysis and informed debate on healthcare policy across the UK Charitable organization founded in 1940 Formerly a grant-giving organization Since 2008 we have been conducting in-house research and policy analysis Significant interest in uses of data linkage and predictive risk techniques William Morris 1st Viscount Nuffield (1877-1963)

Nuffield work includes studies of. Telehealth and Telecare Whole System Demonstrator in 3 areas National Integrated Care Pilots Partnerships for Older People* Birmingham Own Health Virtual Wards in 4 sites* Marie Curie Nursing Service* NW London Integrated Care Pilot British Red Cross..Care in the Home Not clear what works see Purdy et al (2012) Interventions to Reduce Unplanned Hospital Admission: A series of systematic reviews. Bristol University Final Report)

Background 04 December 2014

Trends in emergency admissions Source: A&E Annual activity statistics, NHS and independent sector organisations in England

By ambulatory care sensitive conditions

Why the current interest in integrated care? Rising levels of chronic disease Ageing population Increasing levels of hospital admissions and readmissions, especially among the elderly and vulnerable, and children Economic hard times, and unsustainable health and social care economies And too often we still do not get it right in terms of care coordination, care planning, communication with families Interest in prevent solutions that reduce the need for hospital admissions

Integration Sara Shaw, Rebecca Rosen and Benedict Rumbold What is integrated care? An overview of integrated care in the NHS Research report. Nuffield Trust June 2011

Integration pioneers leading the way for health and care reform Care Minister announces details of fourteen areas leading the way in delivering better joined up care. Results from these approaches in the pioneer areas include: 2,000 fewer patient admissions over a two and a half year period, achieved through teams of nurses, social workers, occupational therapists and physiotherapists working together to prevent crises Reducing waiting times from eight weeks to 48 hours at physiotherapy services by making professionals work closer together Setting up a crisis house where people who suffer mental health problems can get intensive support

One model..virtual Wards

Rationale for the virtual ward Need to respond to growing needs of people with chronic health problems Emergency admissions have been rising for some time undesirable for patients and costly in terms of acute hospital care. No one explanation for rise in emergency admissions part patients factors, part health systems Aim to develop approaches that are preventive before crises emerge. Needed to identify patients at risk of future admissions Needed a linked process for managing high risk patients in community settings

Virtual Wards = Predictive Model + Hospital-at-Home

Identifying future users of health care Average number of emergency bed days 50 40 30 20 10 0 5 years before Current intensive users, tend to be less intensive users in future years (regression to the mean) 4 years before 3 years before 2 years before 1 year before Intense year 1 year after 2 years after Predictive models attempt to predict intense users here 3 years after 4 years after

GP Practice 1 GP Practice 2 GP Practice 3 GP Practice 4 GP Practice 5 GP Practice 6 GP Practice 7 GP Practice 8 Virtual Ward A Community Matron Nursing complement Health Visitor Ward Clerk Pharmacist Social Worker Physiotherapist Occupational Therapist Mental Health Link Voluntary Sector Link Virtual Ward B Community Matron Nursing complement Health Visitor Ward Clerk Pharmacist Social Worker Physiotherapist Occupational Therapist Mental Health Link Voluntary Sector Link Specialist Staff Specialist nurses Asthma Continence Heart Failure Palliative care team Alcohol service Dietician

Lewis* described the following model of care known as 'virtual wards Each virtual ward is linked to a specific group of GP practices so pop c.30,000 A patient is offered "admission" to a virtual ward if a risk prediction tool identifies him or her as being at high risk of a future emergency hospital admission. Each virtual ward has a capacity for 100 patients, i.e. 100 virtual beds per virtual ward. These are subdivided into five "daily" beds, 35 "weekly" beds and 60 "monthly" beds, reflecting the frequency with which different patients are reviewed on a ward round. Virtual ward staff discuss patients on office-based "ward rounds", participating either in person or by telephone. The virtual ward staff share a common medical record. Systems to alert local hospitals, emergency departments and out-of-hours providers that a patient is on a virtual ward *Lewis GH. Case study: virtual wards at Croydon Primary Care Trust. London: King s Fund; 2006. Available from: http://www.kingsfund.org.uk/search_clicks.rm?id=6746&destinationtype=2&instanceid=349684

Evaluation Methods VW Three pilots sites with different models of VW Retrospective analysis of existing projects Track cohort of specific patients to look at service use over time Exploit existing data through secure data linkage Compare change to matched control group (matched on multiple variable using propensity and prognostic score) Costing service activity and interventions

Prevalence of health diagnoses categories in intervention and control groups 60% 50% 40% 30% 20% 10% 0% Control Intervention

So what did we find 04 December 2014

Virtual Ward patients The virtual ward patients in one site had a mean combined model score of 0.63 compared with score of 0.06 for the rest of the population a higher rate of emergency hospital admissions (2.64 per patient compared with 0.06) more general practice surgery visits (42.99 visits compared with 5.55) more contact with community nurses (68.6 per cent of virtual ward patients had been in contact with community nurses in the year before receiving the intervention compared with 1.0 per cent for the rest of the population) more chronic health problems 2.48 vs 0.07 conditions for the rest of the population more social care services eg 19.3 per cent of virtual ward patients had received home care at some point in the previous twelve months, compared with 0.5 per cent for the rest of the population..

Lengths of stay on the Virtual Wards

Changes in hospital activity

Impact on care use Sample dominated by one site Difficulties in matching to patients with complex health problems (had to use national hospital based models) No evidence of reductions in emergency admissions at 6mnths Indications of possible reductions in OP and elective care

Reality of implementation In largest site the model changed from multidisciplinary case management to standard service delivered by a community matron supported by an administrative assistant Predictive model not used consistently throughout organisational commitment and investment in preventive care for high risk patients but local GPs seemed less visible Long lengths of stay linked with incentives to have 500 patients on VW Large differences between sites in costs of VW itself Two sites still in early stages- and have subsequently developed

General observations on VW There were different 'forms' of virtual ward in this study and we suspect an even wider number of variants in other settings. Our analyses have shown how patients being cared for on virtual wards included some people with serious complex illnesses that have important health service implications. Virtual wards are part of a generic approach to long term care which may be justified in other terms, for example as ways to improve the quality of communication between community health staff, the continuity of care, patient experience or safety. No simple solutions we can take off the shelf Though the evidence was not conclusive, the differential levels of service use in high risk patients suggested that these would provide more fertile ground for interventions aimed at reducing hospital use.

But negative results also found... 04 December 2014

The Partnership for Older People Projects (POPPs) 60m investment by DH with aim to: shift resources and culture away from institutional and hospital-based crisis care 146 interventions piloted in 29 sites. We looked at a subset including Support workers for community matrons Intermediate care service with generic workers Integrated health and social care teams Out-of-hours and daytime response service + 4 different short term assessment and signposting services We recommend expanding the Partnerships for Older People Projects (POPPs) approach to prevention across all local authorities and PCTs.

Impact of eight different interventions on hospital use

And 11 integrated care pilots (all pilots combined n=11,296) Elective admissions & outpatient attendances reduced more quickly for intervention patients than matched controls. However, emergency admissions appeared to have increased more quickly. Emergency admissions A&E attendance Elective admissions Outpatient attendance Difference in difference analysis (individual patient level) Absolute difference (per head) Relative difference p-value 0.02 +2 % 0.03-0.01-1% 0.26-0.04-4% 0.003-0.20-20% <0.001 * * Difference also detected at practice level

Impact of Marie Curie Nursing Service on place of death & hospital use at the end of life 29,538 people who received MCNS care from January 2009 to November 2011 Matching techniques used to select 29,538 individually matched controls from those who died in England from January 2009 November 2011 Matched on demographic, clinical and prior hospital use variables People started receiving MCNS care on average 8 days before death 1. Chitnis, X., Georghiou, T., Steventon, a., & Bardsley, M. J. (2013). Effect of a home based end of life nursing service on hospital use at the end of life and place of death: a study using administrative data and matched controls. BMJ Supportive & Palliative Care, 1 9. doi:10.1136/bmjspcare 2012 000424

Selected observations 1. Recognise that planning and implementing large scale service changes take time 2. Pay attention to the process of implementation as well as outcome. Look for intermediate and proxy outcomes for early change 3. If you want to demonstrate statistically significant change, size and time matter

Recruitment and power 14000 12000 10000 8000 6000 4000 2000 0 Total ICP membership Evaluation cohort Follow up period Aug-11 Sep-11 Oct-11 Nov-11 Dec-11 Jan-12 Feb-12 Mar-12 Apr-12 Number of patients consenting to ICP 100% 80% 60% 40% 20% 0% Date consent given Chance of detecting change at end of month Aug 2011 Sep 2011 Oct 2011 Nov 2011 Dec 2011 Jan 2012 Feb 2012 Mar 2012 Apr 2012 May 2012 Jun 2012 Jul 2012 Aug 2012 Sep 2012 Oct 2012 Data not yet available 25% reduction in 3 months of follow up 25% reduction in 6 months of follow up 10% reduction in 3 months of follow up 10% reduction in 6 months of follow up

More selected observations 4. Define the service intervention clearly and be clear when the model is changed 5. Success or failure will depend on targeting the right people not just volumes. 6. Hospital use and costs are not the only impact measures 7. Carefully consider the best models for evaluation and timescales prospective/retrospective; formative/summative; quant./qualitative

Acknowledgements (Virtual Wards Study) This work was funded by the National Institute for Health Research (NIHR) Service Delivery and Organisation (SDO) programme. Project number 09/1816/1021. The views and opinions expressed here are those of the authors and do not necessarily reflect those of the NIHR SDO programme or the Department of Health. We are grateful to the support and guidance of staff in our three study sites, and in particular our site representatives: Paul Lovell (Devon) David Osborne (Croydon) Seth Rankin (Wandsworth)

www.nuffieldtrust.org.uk Sign-up for our newsletter www.nuffieldtrust.org.uk/newsletter/login.aspx Follow us on Twitter (http://twitter.com/nuffieldtrust) martin.bardsley@nuffieldtrust.org.uk 04 December 2014