End of Life Volunteer Companionship Service

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1 End of Life Volunteer Companionship Service

2 Early stages of the initiative The Volunteer department was receiving frequent calls from various Wards in the Trust asking if a volunteer could sit with a dying patient who didn t have family present In October 2011 the VSM was approached by former patient carer who had recently attended an Opcare9 Conference - Optimising care of the dying in the 21 st Century.

3 Taking the idea to the Palliative Care Team The following facts became apparent on meeting with the Palliative Care Team: Approximately 60% of patients spend their last days of life in an acute hospital Aintree University Hospital has approximately 1300 deaths annually Recent VOICES survey of bereaved relatives highlighted that the quality of end of life care for patients in an acute setting falls significantly behind the level of care in other settings e.g. hospice

4 Palliative Care department were really keen to use volunteer support to improve end of life care provided at Aintree Steering Group was formed consisting of: Palliative Care Consultant Clinical Nurse Specialist Palliative Care Patient Carer Representative Voluntary Services Manager Business Case written to secure funding Received funding for the service from Merseyside & Cheshire Cancer Care Network End of Life and Palliative Care Education Group (for all patients at end of life, not just those with Cancer)

5 Moving the project forward Volunteer role description identified 20 suitable volunteers chosen by VSM (17 proceeded) Selected 5 pilot Wards to offer service to Looked at support available for the volunteers Volunteer Manager, P. Care Team, Assistant Clinical Psychologist Identified appropriate training requirements (followed guidance by Merseyside & Cheshire Cancer Care Network) Wrote policies, prepared documentation, set up data base to record findings. Prepared evaluation documentation Set up 3 day Training Course for the volunteers

6 Advertising the service Met with Matrons, Ward Managers and Nursing staff from pilot wards Identified who would make referrals at Ward level Attended Trust Divisional Meetings Prepared promotional materials detailing what the scheme was offering, how to access the service bleep number etc. Informed Medical staff

7 Getting Ready to Start Put together a volunteer resource handbook which included: Procedure for the service Copy of Promotional material circulated Volunteer Role Description Volunteer contact details Reflective Diary Patient data entry form The Trust s bereavement information booklet End of Life the facts booklet Macmillan support Met again with Ward staff on the 5 pilot Wards

8 On 14 th May, 2012 the service was launched on 5 pilot wards from 8.00 am to 8.00 pm Monday to Friday

9 Volunteer Support Put a robust support system in place for volunteers Regular 1:1 meetings with Voluntary Services Manager Monthly meetings with Assistant Clinical Psychologist and 1:1 meetings when required Palliative Care Team on hand for extra support if required Steering Group met on a monthly basis

10 Challenges along the way Initial resistance from Nursing staff Concern from Trust Chaplains about the role Emotional aspect of the role Lack of understanding of the service by Nursing staff Volunteers feeling okay to leave a patient/family at the end of their shift

11 The biggest challenge of all 2012 Media Coverage by Daily Mail re: Liverpool Care Pathway

12 Findings at the end of 3 month pilot Evaluation at ward level showed that staff had faith in the volunteer companions. They found them to be courteous and respectful and felt confident in offering their service to patients and their families Volunteer Companions felt that a number of ward staff did not understand their role. Not all ward staff would encourage volunteer support if the patient had a family member/carer present Evaluation of 3 day volunteer training course was mostly positive but volunteers felt that the session delivered on spirituality did not provide them with enough information to carry out the role Completed family/carer evaluation forms were positive and the first family member to access the service acknowledged the support she had received in a thank you note.

13 Current Status 4 further volunteer training courses have been organised (trained 61 volunteer companions in total) Existing volunteers are acting as mentors and offering support to newly trained volunteer Companions Service is now operational Trust wide (across all 36 Wards) this has gradually expanded as more volunteers have been trained The service is having a significant impact on the quality of end of life service that is delivered within the Trust. 374 patients (or a member of their family) have accessed the service to date

14 Awards & Recognition The service was awarded Runner Up in the Patients Choice Quality Awards 2012 Winner - Trust Excellence awards in the Partnerships category 2013 A number of articles have been published in the local press Published in the Aintree News (internal magazine) May 2013 to mark the service s first birthday Radio Merseyside coverage for the whole of Dying Matters week in May 2013 An End of Life Journal is very interested in publishing the service and an article has been put together, to be submitted in the next few weeks 2 members of the Department of Health, a representative from NESTA, 4 NHS Trusts and 3 Hospices have visited Aintree to discuss the service

15 Looking to the Future To continue to recruit and train volunteers, with a view to expanding the service even further to a 24 hour, seven day service Provide on-going support for volunteer companions Offer support, advice and encouragement to other Trusts/organisations who may wish to set up an EOL volunteer companionship service

16 How people die remains in the memory of those who live on Dame Cicely Saunders, Nurse Physician, Writer and Founder of Hospice Movement ( )

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