Cardiac surgery Patient and family guide

Transcription

1 Cardiac surgery Patient and family guide

2 Table of contents About cardiac surgery 1 What is coronary artery bypass grafting (CABG)? What is heart-valve surgery? Types of heart valves What is TAVR (transcatheter aortic valve replacement)? What is TMR (transmyocardial revascularization)? Diagrams of the heart What are the different approaches to surgery? About your healthcare team Managing your expectations 5 What to expect before surgery What to expect during surgery What to expect after surgery Cardiac surgery quick reference Leaving the hospital (discharge) 11 When can I go home? What can I expect the day I go home? Discharge plan and instructions Returning home 13 How do I take care of my incisions? What can I do during the first two weeks at home? Can I drive? Should I get into a car? Visitors How will I feel emotionally? How can I relax and reduce stress? How do I take care of my pain and discomfort? Cigarettes Healthy food choices Weigh yourself each day Wine and liquor Sexual activity Medicines Your family Education and support 17 Community resources and support groups Journal Page

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4 About cardiac surgery About cardiac surgery What is coronary artery bypass grafting (CABG)? Coronary artery bypass grafting (CABG) is heart surgery that uses alternative (replacement) blood vessels to allow blood to flow around or bypass the clogged coronary (heart) arteries. The bypass creates another path for blood to flow to the heart muscle. The bypass may use one or more of the veins or arteries below: Veins from your leg (saphenous veins) Arteries from your: Chest (internal mammary artery) Arm (radial artery) Stomach (gastroepiploic artery) If your surgeon uses the vein from your leg or an artery from your arm, you will also have an incision (cut) in that area. A connection is made between the major blood vessel of the body (aorta) and an area beyond the blockage. After bypass surgery, more blood and oxygen will be able to flow to the heart muscle. What is heart valve surgery? Heart valve surgery is required when a heart valve cannot open and close correctly. Valve surgery repairs or replaces one or more of the heart valves that control the flow of blood through your heart. In some cases, valve surgery may be done together with other procedures such as bypass. Valve repair can be done by using sutures (stitches), cutting extra tissue on the valve or placing a ring around the opening of the valve. Valve replacement can be done with several different types of valves. After reviewing your medical history, your surgeon will discuss which valve surgery is best for you. Remember, surgery may not be a cure. It s important to commit to behavior changes to gain the most benefits from the procedure. Cardiac surgery Patient and family guide 1

5 The parts of the heart and their role in proper blood flow The two main coronary arteries and their branches supply blood to the heart muscle. Coronary artery The heart has four chambers. Four heart valves open and close to allow blood to flow in one direction. Valves Chambers Types of heart valves A mechanical valve is made from a durable man-made material. It lasts longer than the other types of valves, but you must take medicine (a blood thinner) called warfarin (Coumadin ) for the rest of your life to guard against clotting. An animal tissue valve is made from pig or cow tissue. It may last 10 to 20 years and does not require you to take blood thinners. A human-donor valve is for someone who is suffering from an illness that affects the valve, such as infective endocarditis. A donor valve can be expected to last 10 to 20 years. Blood thinners are not necessary. What is TAVR (transcatheter aortic valve replacement)? TAVR is a procedure for aortic stenosis (a very narrow or small aortic valve). It allows the doctors to replace the aortic valve without a large chest incision and without using a heart-lung machine. A small incision is made in the leg or chest and the artificial valve is guided to the heart within a long tube. X-ray and ultrasound are used to make sure the valve is in the correct position. TAVR is not an option for all patients. Your doctor will tell you if this procedure is right for you. A B The valves of the heart are made up of leaflets. Diagram A shows valve leaflets that are closed to keep blood from going back into a chamber. Diagram B shows valve leaflets that are open to allow blood to flow forward. What is TMR (transmyocardial revascularization)? TMR is used when the usual procedures of bypass, angioplasty (procedure using a balloon and a small tube to open up a blockage) or medicine have been ineffective in controlling angina (chest pain). TMR is an option for patients who have scattered blockages that are difficult to bypass. TMR can improve blood flow by creating 20 to 40 channels (tunnels) in the area of the heart muscle to cause bleeding. The heart muscle absorbs the blood like a sponge. Blood and oxygen are absorbed and this may help with the growth of new blood vessels. 2 Cardiac surgery Patient and family guide

6 About cardiac surgery What are the different approaches to surgery? Traditional or conventional sternotomy: This type of surgery involves an incision made in the center of your chest that runs from below the neck to below the sternum (breastbone) at the end of your rib cage. The breastbone is cut to allow access to the heart. When the surgery is finished, the breastbone is closed using stainless steel wires and sutures (stitches). Mini-sternotomy: This type of incision is smaller than the traditional incision on the breastbone. Minimally invasive: This type of surgery is performed through a smaller incision in the chest. The surgeon does not have to cut the breastbone. Robotic surgery: This surgery uses a computerized robot that has two small instrument arms and a tiny camera, which allows the surgeon to operate through very small incisions between the ribs. With the help of the camera, the surgeon controls the robot arms and surgical instruments and is able to do the heart operation without opening the chest. Endoscopic harvesting: A vessel (a vein or artery) is removed for a bypass graft without making a long incision. Small incisions are made in the arm or leg to allow a thin tube with a small camera to pass through so that the surgeon can see pictures on a screen to remove the vessel. About your healthcare team Members of your cardiac team may include: Surgeon Physician assistants (PAs) Nurses Nurse practitioners (NPs) Intensivist/hospitalist Anesthesiologist Operating room staff Intensive care unit (ICU) staff Respiratory therapists Step-down unit staff Cardiac telemetry staff Case managers Physical therapists Nutrition staff Social worker Your surgeon will recommend the best approach for you, and whether you will require a heart-lung machine to help pump blood and supply oxygen during surgery. Cardiac surgery Patient and family guide 3

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8 Managing your expectations Managing your expectations What to expect before surgery: Some patients are admitted to the hospital the morning of surgery (same-day admission), and others are admitted a day or so before. Preadmission tests/procedures/consults: Your doctor will order a variety of pre-surgery tests, such as: Blood work Chest X-ray EKG (electrocardiogram) Pulmonary function tests Carotid Dopplers Your doctor will tell you if you need an appointment with a pulmonologist or dentist. A pulmonologist is a doctor who specializes in lung diseases. Pre-op medicines: You may be asked to stop or change your medicines before surgery. If you have diabetes and take medicine, talk to your doctor before surgery to see if your medicine needs to be changed. Some medicines, supplements or herbal remedies may affect bleeding. Your doctor may tell you to stop taking the following medicines five to seven days before your surgery: Warfarin (Coumadin ) Vitamin E Aspirin Ibuprofen and other NSAIDs (non-steroidal anti-inflammatory medicines) Herbs and supplements If you re not sure about how to take your medicines, check with your doctor. Consent forms and advance directives: You will be asked to sign two consent forms: A general consent form for treatment A consent form for your surgery Advance directives: An advance directive lets your doctor and hospital staff know about your healthcare choices and medical care decisions. You will be asked to select someone you trust to speak on your behalf if necessary. Cardiac surgery Patient and family guide 5

9 Types of advance directives include: Living will: Written papers expressing your healthcare choices. Healthcare proxy: A written paper that names a person you trust, who knows your healthcare choices and can speak for you if necessary. If you would like more information about advance directives, ask a member of your care team. Patient history/physical exam: A healthcare provider will ask you about your health history and will perform a physical examination before your surgery. Members of your care team will ask about: Your medical background Previous surgeries Medications and allergies You will be asked to provide the name and telephone number of a contact person and the person who will be at home with you after your surgery. Your surgeon will: See you either the evening before your surgery or at a scheduled office visit Discuss surgery risks and benefits with you and your family Encourage you and your family to ask questions and express your concerns Practice relaxation and stress reduction: Rest Meditate Do slow, deep abdominal breathing Talk about your fears with someone you trust Set realistic goals for yourself If you re a spiritual person, use your beliefs to help you relax before and after your surgery The day before surgery: Don t drink, eat food or candy, or chew gum after midnight. The evening before surgery: Take a shower with a special soap you ll be given to clean your skin and to help prevent infections. If you are already in the hospital, ask your family to take home personal items or valuables. The day of your surgery: Be prepared to remove any dentures, jewelry and contact lenses. You may be given medicine to help you relax, resulting in drowsiness and dry mouth. Family and visitors: Your family will be able to wait in the surgical waiting room. If they are not on site, they must leave a telephone number where they can be reached. The surgery may take up to five hours, possibly longer. After three hours, a family member may call the Cardiovascular and Thoracic Surgery office for an update. When the surgery is finished, the surgeon will contact your family and tell them when they may see you in the intensive care unit (ICU). 6 Cardiac surgery Patient and family guide

10 Managing your expectations What can I expect during surgery? A skilled team of healthcare professionals will be caring for you throughout your surgery. You will be greeted by a doctor who will give you anesthesia. The doctor will use special machines to monitor you during your surgery. You will have intravenous lines (IVs), a bladder catheter, drainage tubes, small wires on your chest (pacing wires) and a breathing tube. Once you are asleep, the breathing tube will be placed through your mouth and into your windpipe and then connected to a breathing machine. When you first wake up: Your nurse will be at your bedside. You may still have the breathing tube in your mouth. Your mouth may feel dry and you will not be able to speak or drink. Simply nod yes or no. The breathing tube will be removed once you are fully awake. Pacing wires will allow your surgeon to change your heart rate if needed. What can I expect after surgery? You will: Be monitored closely in the intensive care unit (ICU) with special equipment Sounds such as beeping, bubbling and alarms are common Have frequent chest X-rays, blood tests and EKGs Be weighed each day; the fluids you take in and put out will be measured To prevent post-surgery pneumonia You will be asked to cough and breathe deeply after the breathing tube is removed. Coughing and deep breathing should be done every two hours while you are awake to help keep your lungs clear. You will be given a plastic handheld breathing device called an incentive spirometer. It will help you take deep breaths and keep your lungs clear. Your nurse or respiratory therapist will show you how to use it. A special pillow will help properly support your incision during deep breathing and coughing exercises. Ask your nurse for pain medicine if needed. When will I be transferred out of ICU? As soon as your doctor believes you are medically ready, you ll go to a step-down or cardiac telemetry unit. What will I be able to eat? You ll begin with clear liquids and progress to solid foods depending on how you feel A decreased appetite is normal. For the first two weeks, eat what you want, when you want: But avoid salty foods And, continue to follow any special diet that you were on before surgery. Protein and calories are important as you heal. After your appetite has returned, begin a low-fat, low-cholesterol and low-salt diet. A registered dietitian is available to help you plan a healthy diet. How will I start to move around? You will receive information about walking and exercises. Start by getting out of bed to a chair and progress to walking with help and then alone. Try to gradually increase your daily activity. To prepare for going home, a physical therapist (PT) will evaluate your strength, balance and ability to climb stairs. Cardiac surgery Patient and family guide 7

11 Will I be tired? Yes. It s common and expected to feel tired after surgery. Your healthcare team will help you to balance your rest and activity. How will I feel emotionally? You may cry or find it difficult to concentrate. Anesthesia, pain medicine and lack of sleep are common reasons for these feelings. The more you rest, the better you will feel. What kind of cuts or stitches will I have? Chest incisions (cuts) vary depending on the surgical approach. If you had bypass surgery, you also may have an incision on your arm or leg. If you have a leg incision, keep your leg(s) raised when sitting in a chair. You may have small pieces of tape (Steri-Strips ), sutures or staples along your incision. Your medical team will let you know when the Steri-Strips, stitches or staples can be removed. Will I be able to shower while I am in the hospital? Most cardiac patients are able to shower while in the hospital. Will I be in pain? You may have pain or discomfort. But to help stay as comfortable as possible, work with your healthcare team to plan pain medicine a half hour before performing actions such as coughing and deep breathing, or walking. Be sure to tell your nurse and doctors how you are feeling and ask for pain medicine when you need it. Relaxation exercises can help manage your pain. Want to know more about relaxation exercises? Ask your nurse. 8 Cardiac surgery Patient and family guide

12 Cardiac surgery quick reference The information below may help you and your family better understand what happens after cardiac surgery. Let s work together for your healthy recovery. After surgery You will go from the operating room directly to the ICU where you will be closely monitored. Blood tests, chest X-rays and EKGs are some of the tests that will be done as you recover. Your nurse will ask if you have pain and will provide medicine if you need it. Your breathing tube will be removed when you are able to breathe on your own. Expect to have tubes in your chest for drainage, a tube in your bladder to drain urine, and a tube in your nose or mouth to keep your stomach empty. Catheters (small, thin tubes) will be in your arm and neck to monitor blood pressure and heart activity. Intravenous (IV) lines in your arms will supply fluid and medicine. You will start drinking clear liquids once the breathing tube is removed. You will perform coughing and deep-breathing exercises. You will be shown how to use an incentive spirometer (hand-held breathing exercise device) and a comfort pillow to hold against your incision (cut) during coughing and deep-breathing exercises. The first day after your surgery You may be moved to another room. You may need fewer blood tests. Solid food may be offered. Breathing exercises will continue. If you re up to it, you will be helped to sit in a chair and to walk. Early in the morning, your weight will be taken. Tubes and IVs will be removed as you recover. Pain medicine will be provided as needed. A case manager and physical therapist will discuss your discharge plans. You will leave the hospital when: You can walk at least three times a day. Your doctor believes your blood work, tests, heart rate and rhythm are acceptable. You ve moved your bowels. Your healthcare team agrees on your discharge. Cardiac surgery Patient and family guide 9

13 The second day after your surgery You ll be tired. Work to increase your walking. Don t be shy about asking your nurse for pain medicine if you need it. Nurse practitioners (NPs) or physician assistants (PAs) will be available during daily rounds. Blood work will be done and your weight taken between 5am and 6am. Encourage your family to ask about bringing food from home. Your healthcare team will discuss your discharge plan. The third day after your surgery Blood tests and chest X-rays will continue. In the early morning, your weight will be checked. If you haven t had a bowel movement since surgery, please ask for medicine. Continue your breathing exercises. Try to increase how much you walk. If you re in pain, be sure to ask your nurse for medicine. Expect a nurse practitioner or physician assistant to stop by during daily rounds. A discharge decision will be made after discussion with your surgeon. The third to fourth day after your surgery The nurse practitioner or physician assistant will visit during rounds. A discharge decision will be made after discussion with your surgeon. 10 Cardiac surgery Patient and family guide

14 Leaving the hospital (discharge) A case manager is a registered nurse who will help you and your family with your discharge needs. Your case manager and physical therapist will help you determine which services are right for you. They will also help decide which skills and services you many need after you leave the hospital. Services may include: Nursing care Lab service or blood work Physical therapy Inpatient rehab When can I go home? Discharge is usually within three to four days after surgery. Your discharge plan will be discussed with you and your family. You and your family are encouraged to ask questions. What can I expect the day I go home? You and your family should speak with your nurse to confirm exactly when you will be discharged. Your nurse will explain how you should take your medicines once you re at home. If you are on warfarin (Coumadin ) or another blood thinner, you need to know when you should have your blood drawn and who will be following the results. Please ask your nurse for written patient education about blood thinners. You will be taken to the main entrance of the hospital in a wheelchair. Your ride can meet you with the car at the Sandra Atlas Bass Heart Hospital entrance. Leaving the hospital (discharge) You will be ready to go home when: Your surgeon and healthcare team agree it is safe for you. You have had a bowel movement. You are walking outside your room a few times a day. Cardiac surgery Patient and family guide 11

15 Discharge plan and instructions My medicines and what they are for: My appointment with my surgeon is: My appointment with my cardiologist/internist is: Blood work I may need after discharge (include when and who will follow up with the results): Questions to ask before leaving the hospital: Cardiac surgery Patient and family guide

16 Returning home Within the first few days of your return home, a member of the clinical staff will: Perform an on-site physical exam Talk with you about your medicine and make sure you understand how to take it Answer your questions about your recovery Follow up with your surgeon and primary care doctor about your progress How do I take care of my incisions? Shower daily using warm water and mild soap. You may use a clean washcloth or your hands to lather and wash your incisions. Do not use strong water pressure. Gently rinse your incisions facing the shower spray. Use newly washed towels for drying yourself. Don t use creams, lotions or powders on the incisions. Pat the incisions dry and check for signs of infection before you get dressed. Call the surgeon s office if you experience: Increased redness or tenderness at incision site Drainage that has a foul smell or is a yellow-green color A temperature greater than 101 degrees F What to do during the first two weeks after cardiac surgery: Listen to your body. It will guide you on how much to do. You may feel tired after showering, eating and dressing. So, rest between activities Build up your energy and improve your mood by: Getting up and dressed each day Sitting at the table for meals Slowly increase your activity as long as you feel well; try a little more each day. Do not lift anything heavier than 5 to 10 pounds (such as a bag of sugar or flour) for the next six to eight weeks. Avoid activities that place pressure on your breastbone, such as opening a tight jar, or moving a recliner handle. Returning home Cardiac surgery Patient and family guide 13

17 Can I drive? Should I get into a car? Talk with your surgeon about when it s safe to drive. When riding in a car, place your comfort pillow in front of your chest and fasten your seat belt. Visitors Too many visitors may tire you out and can expose you to colds and viruses. Limit your visitors during recovery. Excuse yourself to rest if you become tired during a visit. How will I feel emotionally? Mood changes are normal during recovery. You may be tearful, feel anxious, fearful or sad. You may have difficulty concentrating or paying attention. These feelings will diminish over time as you recover. How can I relax and reduce stress? Balance activity with rest. Do fun things with your friends and family at home. Use hobbies and crafts to relieve stress and help you to relax. Avoid using alcohol, nicotine and caffeine. How do I take care of my pain and discomfort? You may have pain across your back, shoulders, chest or neck. Learn to tell the difference between surgical/incision pain and chest pain (like angina) that you may have had before surgery. If you have concerns about pain, call your surgeon s office. Muscle aches may accompany increased activity, necessitating: Over-the-counter medicine recommended by your doctor Prescription medicine for more severe pain Taking pain medicine before you go to sleep will help you feel more comfortable. 14 Cardiac surgery Patient and family guide

18 Returning home Cigarettes Stop smoking and avoid as much secondhand smoke as possible. Smoking increases your heart rate, narrows blood vessels and can put the coronary arteries into spasm. For smoking cessation help, call the National Quitline toll free: QUITNOW. Healthy food choices It is especially important during the first two weeks at home to get plenty of protein and eat healthy foods through a diet that includes: Fruits and vegetables Grains Low-fat or non-fat dairy products Fish, legumes (beans, peas or peanuts) and lean protein (chicken and turkey without the skin, egg whites) Do not add salt to your food, and make sure you check food labels for sodium (salt) content Stay away from processed foods such as canned and frozen items, which are high in salt Follow any other dietary restrictions that you may have for other medical conditions Weigh yourself each day Rapid weight gain may be a sign that your body is retaining fluid. Weigh yourself daily on the same scale, at the same time, in the same type of clothes and after you ve moved your bowels. Make sure the scale is on a flat floor surface (not on a rug). Keep a record of your weight. Wine and liquor Don t drink alcohol for the first two weeks at home. It isn t safe to mix medication with alcohol. After two weeks, talk with your doctor about whether you can drink. Sexual activity You may resume sexual relations as soon as you and your partner feel comfortable. Avoid positions that place pressure on your breastbone or upper arm. During recovery, be the less-active partner. Medicines Take only the medicines prescribed for you at discharge. Your doctor will have prescribed a 30-day supply of most of your meds. Consult your family doctor or nurse practitioner before taking medicines you were on before surgery. Blood-thinner medications, such as warfarin (Coumadin ), must be closely monitored. See your family doctor or cardiologist once a week to monitor your blood. Read the warfarin (Coumadin ) patient education material you were given in the hospital for more information. Your family Make communication a priority; talk about your feelings. Listen to each other; offer support. Call your doctor if you gain two or more pounds in one day or three or more pounds within a week. Cardiac surgery Patient and family guide 15

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20 Education and support Education and support are an important part of healing. The information below will help you find recovery support and resources. Community resources and support groups American Heart Association (AHA) heart.org Long Island (516) National (800) Mended Hearts, Inc. (peer-to-peer support) mendedhearts.org Nassau County Chapter 45 (516) Suffolk County Chapter 67 (631) National (888) WomenHeart (The National Coalition for Women with Heart Disease) womenheart.org Long Island (631) or (631) National (877) The Center for Tobacco Control Northwell.edu/stopsmoking (516) or call the National Quitline toll free: (800) QUITNOW Cardiac surgery Patient and family guide 17 Education and support

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26 About Northwell Health Northwell Health is New York State s largest health care provider and private employer, with 21 hospitals and over 500 outpatient practices. We care for more than 1.8 million people annually in the metro New York area and beyond, thanks to philanthropic support from our communities. Our 61,000 employees including 15,000+ nurses and 2,500+ doctors within Northwell Health Physician Partners are working to change health care for the better. We re making breakthroughs in medicine at the Feinstein Institute. We re training the next generation of medical professionals at the visionary Hofstra Northwell School of Medicine and the School of Graduate Nursing and Physician Assistant Studies. And we offer health insurance through CareConnect. For information on our more than 100 medical specialties, visit Northwell.edu. About Cardiovascular Services Northwell Health offers a full spectrum of cardiac care. We specialize in the diagnosis and treatment of heart diseases including heart rhythm abnormalities, heart failure, angioplasty, critical care, and heart and lung surgery. The health system ranks among the best in the region for quality care and superior outcomes in emergency angioplasty and cardiac surgery, which is why more people choose Northwell Health for their cardiac care than any other health system in New York. Our cardiologists and cardiothoracic surgeons see patients at Northwell hospitals and satellite offices throughout Nassau, Suffolk, Queens, Staten Island and Manhattan. For more information about our physicians or services visit Northwell.edu/hearthospital or call (516) 505-HEART. TB 21200b-03-17