Many Faces of Caregiving Study

Size: px
Start display at page:

Download "Many Faces of Caregiving Study"

Transcription

1 Many Faces of Caregiving Study made possible by MassMutual Financial Group 2014 Christine Carroll CHANGING THE CONVERSATION ABOUT CAREGIVING - EASTERSEALS.COM

2 Easter Seals and Caregiving Easter Seals is changing the national conversation about caregiving by raising awareness and interest around an experience that has become the new normal for 66 million Americans of all ages. Many people don t selfidentify as caregivers, but they are or will be one day. Easter Seals provides supports and counsel to caregivers letting them know they aren t alone in what can be a challenging yet rewarding experience. Because Americans are living longer today, the face of caregiving is changing. More of us are taking on this enormous responsibility of caregiving at much younger ages - often while still needing to work, care for other family members and ourselves. Whether you re a young newlywed taking care of your husband who was injured in war, a son or daughter taking care of your aging or ailing parents, a sibling helping your brother or sister with Down syndrome, or a parent taking care of a child with autism or other disabilities, Easter Seals has and will continue to be there by your side. There are only four kinds of people in the world: Those who have been a caregiver; those who currently are caregivers; those who will be caregivers and those who will need a caregiver. Easter Seals is committed to a holistic approach to the caregiving experience, providing valuable services and supports, offering rewarding education/training opportunities, playing a leadership role in the public policy arena at the national, state, and local level, as well as contributing to the research agenda. Thanks to the generosity of MassMutual Financial Group and their more than 14-year commitment to Easter Seals and the families we serve, we ve set out to discover a little more about the broad spectrum of today s caregivers through the Easter Seals Many Faces of Caregiving Study. - First Lady Rosalynn Carter

3 Key Findings & Takeaways Younger Than You May Think One-third of Millennial and GenX respondents identify themselves as caregivers many individuals between the ages of 25 and 45 are already serving in this role. - More than half of Millennial (67%) and GenX (55%) caregiver respondents report providing care on a daily basis. One million new caregivers are now providing care for post-9/11 veterans; many with 50+ years of caregiving ahead of them.* Millennial caregivers are 18% more likely to ask for help than their GenX counterparts. Overall, the percentage of younger caregivers in the Many Faces of Caregiving Study by Easter Seals reinforces data from other studies including the Caregiver Action Network (CAN)** survey showing 36% of consumers ages are currently serving as caregivers. We re Not Ready[to Care] The Many Faces of Caregiving Study shows the general public is not prepared to either be a caregiver or to need care. 70% of respondents admit to having concerns about taking on a caregiving role 71% of respondents have not yet had the critical conversation with their families and loved ones about the future as it relates to their medical planning, although 15% are planning to 73% have not yet talked to their loved ones about the future as it relates to financial planning and retirement, although 12% are planning to 37% of respondents admitted to being not quite ready or not ready for handling a projected caregiving role (men 33% and women 42%) There is clearly a need to increase efforts to help people understand and plan for caregiving and to support those who are caregivers. The need for additional preparation is not only for those yet to embark upon their caregiving journey. Only 47% of caregivers surveyed are very satisfied with the care they are currently providing to their loved ones. Perception vs. Realities of Caregiving We often think of caregivers as women, but the Many Faces of Caregiving Study showed us that just as many men (34%) as women are stepping up to the plate to provide care. What s different is the roles and tasks performed. While there is a misconception that most caregivers provide care due to physical conditions, such as preparing a home for wheelchair access, the reality is 77% of caregivers provide care for emotional and mental health conditions, memory problems or dementia. - Caregivers may need further education about signs to watch for that someone is in emotional pain and might need help: personality change, agitation, withdrawal, poor self-care, and hopelessness. Learn more about the Simone Family and their story at easterseals.com.

4 Challenges Yield Rewards Caregivers identify the top three ways their lives are negatively impacted by the act of caring for a loved one: 1. Less time for self 2. Increased anxiety/stress and poor sleep 3. Financial impact Respondents also reported less time with friends, less time to exercise, and less time with children/family Even when given the opportunity, 13% of respondents weren t able to identify a negative consequence of caregiving Gender Differences Male respondents reported to be smoking more than female respondents and are more likely to only provide financial support in their caregiving role For women, anxiety/stress is much higher at 17% than male respondents Women also reported having less time for myself and admitted to unhealthy eating - both with a 10% differential compared to men It s important to note, most respondents identified their top three positive and beneficial outcomes from their caregiving experiences, particularly: 1. Developing closer relationships 2. Having a good sense of self 3. Enjoying time spent with those for whom they re providing care Investing in Care 85% of caregivers provide care at least several times a week, 59% of which provide care at least daily. 59% of respondents have been providing care for less than three years so they are fairly new to the caregiving role, however, depending upon circumstances may be in this role for the duration of their life. Worth Planning For 60% of all respondents cited financial planning as a helpful tool as they planned for the future. Here s a couple of things to keep in mind: - It s never too early to start making financial plans for the future. - Conversations about finances may be challenging, but if done with compassion might open up a new level of your relationship. - If your loved one is not receptive to financial assistance, you may consider hiring a professional to provide support and guidance sometimes finances are easier to discuss with non-family members.

5 Easter Seals Advocates for Caregivers Easter Seals has been an instrumental voice in helping create federal programs that increase access to respite and transportation, two areas caregivers often identify as their primary needs. Easter Seals knows that educating the public about care needs and planning will not be effective if there is not a system of supports available when people need them. Financing and availability of long-term services and supports (LTSS) such as in-home care, respite, adult day services, personal attendants, assistive technology and more remains a barrier for many people. In order to access these services, the only options right now are to impoverish yourself to qualify for Medicaid, purchase long-term care insurance that many can t afford or for which they do not qualify or pay directly out-of-pocket which most people cannot sustain and may led to enrollment in Medicaid once resources are depleted. Our country s LTSS system is also not integrated with our acute care system. Until very recently, there hasn t been an incentive to provide networks of LTSS providers to coordinate services. It may be difficult for consumers to find the options available in their communities and learn how to coordinate the need for services like physical therapy and other medical care. As our Medicaid and broader healthcare system are evolving, there is a need to support the development of comprehensive networks of LTSS service providers and to develop solutions, which integrate acute care through these networks. In addition, those programs that do exist to help caregivers need to be responsive to a variety of relationships that caregivers have with the people for whom they care. Right now there is not consistency among public programs about who qualifies as a caregiver and definitions vary in their inclusiveness of different kinds of family and other relationships. Where to Go for Help More than half (52%) of Many Faces of Caregiving Study respondents indicated it would be helpful to understand more about the resources available to them. Easterseals.com has caregiving information designed to support caregivers throughout the lifespan regardless of the stage at which you are providing care, with tips on how to better plan for the future. Our partner, MassMutual Financial Group, offers resources and approaches to financial planning for all stages of caregiving. Visit massmutual.com to learn more. Methodology Impulse Research conducted an online survey with a random sample of 1043 Millennials, men and women ages in January The overall sampling error rate for this survey is +/-3% at the 95% level of confidence. Additional Resources Caring for Military Families: The Elizabeth Dole Foundation ( * RAND Study ( * * CAN Study (

Discussion Panel: Underserved Caregivers Supporting Special Populations.

Discussion Panel: Underserved Caregivers Supporting Special Populations. Discussion Panel: Underserved Caregivers Supporting Special Populations #CareAdvocate @NA4Caregiving Moderator: Rick Greene, MSW Executive Advisor National Alliance for Caregiving #CareAdvocate @NA4Caregiving

More information

AARP Family Caregiving Survey: Caregivers Reflections on Changing Roles

AARP Family Caregiving Survey: Caregivers Reflections on Changing Roles AARP Family Caregiving Survey: Caregivers Reflections on Changing Roles Laura Skufca AARP Research November 2017 https://doi.org/10.26419/res.00175.001 About AARP AARP is the nation s largest nonprofit,

More information

Dear Family Caregiver, Yes, you.

Dear Family Caregiver, Yes, you. Dear Family Caregiver, Yes, you. If you re wondering whether the term caregiver applies to you, it probably does. A caregiver is anyone who helps an aging, ill, or disabled family member or friend manage

More information

Cultivating Empathy. iround for Patient Experience. Why Empathy Is Important and How to Build an Empathetic Culture. 1 advisory.

Cultivating Empathy. iround for Patient Experience. Why Empathy Is Important and How to Build an Empathetic Culture. 1 advisory. iround for Patient Experience Cultivating Empathy Why Empathy Is Important and How to Build an Empathetic Culture 2016 The Advisory Board Company advisory.com 1 advisory.com Cultivating Empathy Executive

More information

Let s talk about Hope. Regional Hospice and Home Care of Western Connecticut

Let s talk about Hope. Regional Hospice and Home Care of Western Connecticut Let s talk about Hope Regional Hospice and Home Care of Western Connecticut Hospice is about hope. There are many aspects of hope in the care Regional Hospice and Home Care of Western CT provides. Hope

More information

Benefits Of Hiring A Home Care Agency

Benefits Of Hiring A Home Care Agency Preserving Dignity Through Independence at Home Benefits Of Hiring A Home Care Agency Are you noticing changes in your aging parents that make you concerned about their safety at home? Are they chronically

More information

AARP Family Caregiver Survey: Holiday Stressors and Emotions

AARP Family Caregiver Survey: Holiday Stressors and Emotions AARP Family Caregiver Survey: Holiday Stressors and Emotions Laura Skufca AARP Research December 2017 https://doi.org/10.26419/res.00185.001 About AARP AARP is the nation s largest nonprofit, nonpartisan

More information

Personal Caregiver Survey Adapted from Washington State s Personal Family Caregiver Survey (http://www.aasa.dshs.wa.gov/)

Personal Caregiver Survey Adapted from Washington State s Personal Family Caregiver Survey (http://www.aasa.dshs.wa.gov/) Personal Caregiver Survey dapted from Washington State s Personal Family Caregiver Survey (http://www.aasa.dshs.wa.gov/) This Survey is for unpaid primary caregivers of a family member or close friend

More information

Is It Time for In-Home Care?

Is It Time for In-Home Care? STEP-BY-STEP GUIDE Is It Time for In-Home Care? Helping Your Loved Ones Maintain Their Independence and Quality of Life 2015 CK Franchising, Inc. Welcome to the Comfort Keepers Guide to In-Home Care Introduction

More information

Common Questions Asked by Patients Seeking Hospice Care

Common Questions Asked by Patients Seeking Hospice Care Common Questions Asked by Patients Seeking Hospice Care C o m i n g t o t e r m s w i t h the fact that a loved one may need hospice care to manage his or her pain and get additional social and psychological

More information

In Solidarity, Paul Pecorale Second Vice President

In Solidarity, Paul Pecorale Second Vice President Caregiving Guide Dear NYSUT Member: On behalf of the NYSUT officers and Board of Directors, we are proud to provide you with this publication, Caregiving Guide. In addition to providing information, referral

More information

Wellness along the Cancer Journey: Caregiving Revised October 2015

Wellness along the Cancer Journey: Caregiving Revised October 2015 Wellness along the Cancer Journey: Caregiving Revised October 2015 Chapter 4: Support for Caregivers Caregivers Rev. 10.8.15 Page 411 Support for Caregivers Circle Of Life: Cancer Education and Wellness

More information

Is It Time for In-Home Care?

Is It Time for In-Home Care? STEP-BY-STEP GUIDE Is It Time for In-Home Care? Helping Your Loved Ones Maintain Their Independence and Quality of Life 2015 CK Franchising, Inc. Welcome to the Comfort Keepers Guide to In-Home Care Introduction

More information

Nebraska Lifespan Respite Caregiver Survey

Nebraska Lifespan Respite Caregiver Survey Nebraska Lifespan Respite Caregiver Survey Welcome to the Nebraska Lifespan Caregiver Survey! Respite is planned or emergency care provided to a child or adult with special needs in order to provide temporary

More information

Overview. Caregiverosis. The Caregiving Role. The Caregiving Role 3/20/2013. The Dementia Care Triad: Understanding the Partnership

Overview. Caregiverosis. The Caregiving Role. The Caregiving Role 3/20/2013. The Dementia Care Triad: Understanding the Partnership Overview The Dementia Care Triad: Understanding the Partnership Christine J. Jensen, Ph.D. Alzheimer s Association Education Conference Brazos Valley, Beaumont, & Houston, Texas March 2013 1 Study of Caregiver

More information

Patient survey report Survey of adult inpatients 2016 Chesterfield Royal Hospital NHS Foundation Trust

Patient survey report Survey of adult inpatients 2016 Chesterfield Royal Hospital NHS Foundation Trust Patient survey report 2016 Survey of adult inpatients 2016 NHS patient survey programme Survey of adult inpatients 2016 The Care Quality Commission The Care Quality Commission is the independent regulator

More information

TO HELP EASE DECISION MAKING IN THE FUTURE ADVANCE CARE PLANNING TOOLKIT

TO HELP EASE DECISION MAKING IN THE FUTURE ADVANCE CARE PLANNING TOOLKIT TO HELP EASE DECISION MAKING IN THE FUTURE ADVANCE CARE PLANNING TOOLKIT Advance Care Planning Toolkit Your health care decisions are important. Providing Patient Centered Care is the guiding principle

More information

The Important Role of Family Caregivers in Washington State s Long-Term Services and Supports System

The Important Role of Family Caregivers in Washington State s Long-Term Services and Supports System The Important Role of Family Caregivers in Washington State s Long-Term Services and Supports System Bea Rector, Director The Growing and Changing Nature of Family Caregiving November 29, 2017 Washington

More information

INTEGRATION OF PRIMARY HEALTH CARE NURSE PRACTITIONERS INTO EMERGENCY DEPARTMENTS

INTEGRATION OF PRIMARY HEALTH CARE NURSE PRACTITIONERS INTO EMERGENCY DEPARTMENTS INTEGRATION OF PRIMARY HEALTH CARE NURSE PRACTITIONERS INTO EMERGENCY DEPARTMENTS Section I Facilitators Reasons for integrating the Nurse Practitioner into the Emergency Department 1. Please consider

More information

Hospice Care in Glen Allen, VA

Hospice Care in Glen Allen, VA Hospice Care in Glen Allen, VA Hospice Community Care of Virginia s mission in Glen Allen, VA is to promote the availability and access to the best end-of-life care services possible. When choosing Hospice

More information

Patient and Family Caregiver Engagement The Change Foundation

Patient and Family Caregiver Engagement The Change Foundation Patient and Family Caregiver Engagement The Change Foundation Presented by: Christa Haanstra Stephanie Hylmar Jeff Junke Catherine Monk-Saigal The Change Foundation v June 7, 2016 Presentation Overview

More information

Key Relationships with People Living with Dementia Current Relationship (n=140) Demographics

Key Relationships with People Living with Dementia Current Relationship (n=140) Demographics Following the 2011 National Alzheimer s Project Act (NAPA) law, the federal government published the first National Alzheimer s Plan in 2012 with annual updates and recommendations thereafter. The federal

More information

A Family Caregiver s Guide to Hospital Discharge Planning

A Family Caregiver s Guide to Hospital Discharge Planning A Family Caregiver s Guide to Hospital Discharge Planning What Is It? Who Does It? When Should It Happen? What Will Insurance Pay For? What Else Should You Know? A Publication of the National Alliance

More information

Choosing Choosing Choosing Guide to Choosing a Nursing Home Choosing Choosing Choosing

Choosing Choosing Choosing Guide to Choosing a Nursing Home Choosing Choosing Choosing Choosing Choosing Choosing Guide to Choosing a Nursing Home Choosing Choosing Choosing To help you make important decisions for yourself or someone you care for. This official government booklet explains:

More information

Care for ALL. Endowment Campaign

Care for ALL. Endowment Campaign Care for ALL Endowment Campaign There are certain things that should be available for everyone, and one of them is the opportunity to have a decent death. We feel that everyone has the right to die with

More information

of American Entrepreneurship: A Paychex Small Business Research Report

of American Entrepreneurship: A Paychex Small Business Research Report 2018 Accelerating the Momentum of American Entrepreneurship: A Paychex Small Business Research Report An analysis of American entrepreneurship during the past decade and the state of small business today

More information

How We Know What Residents Really Want OCTOBER 26, 2011 ARKANSAS

How We Know What Residents Really Want OCTOBER 26, 2011 ARKANSAS How We Know What Residents Really Want OCTOBER 26, 2011 ARKANSAS Mary Tellis-Nayak RN, MSN, MPH Vice President of Quality Initiatives mary@myinnerview.com 773-942-7525 Outline» What do Arkansas residents

More information

Understanding Your Options for Care. in a Nursing Home or Assisted Living Facility

Understanding Your Options for Care. in a Nursing Home or Assisted Living Facility Understanding Your Options for Care in a Nursing Home or Assisted Living Facility 2017 Please keep in mind that the following information does not substitute for the advice of an attorney. To discuss your

More information

Six Tips for Defusing Family Disagreements About Care

Six Tips for Defusing Family Disagreements About Care SOMERVILLE CAMBRIDGE ELDER SERVICES Your Local Age Info Center Explore What s Possible Winter 2018 Six Tips for Defusing Family Disagreements About Care By Carolynn Nagao-Marcotte Differences of opinion

More information

Evaluation Report. Healthy IDEAS for Caregivers of People with Dementia in Maine

Evaluation Report. Healthy IDEAS for Caregivers of People with Dementia in Maine Evaluation Report Healthy IDEAS for Caregivers of People with Dementia in Maine Prepared by: Julie Fralich Stuart Bratesman Mark Richards Susan Payne Muskie School of Public Service University of Southern

More information

Hospice Care in Merrillville, IN

Hospice Care in Merrillville, IN Hospice Care in Merrillville, IN Harbor Light Hospice s central mission in and the neighboring areas is to increase ease of access to reliable end-of-life care and other quality services for patients who

More information

RESPITE REBATE PROGRAM

RESPITE REBATE PROGRAM RESPITE REBATE PROGRAM Frequently Asked Questions What is a caregiver? You may be a wife, husband, mother, father, daughter, or son and a caregiver. A caregiver is the primary person or persons responsible

More information

Ministry of Health Patients as Partners Provincial Dialogue Report

Ministry of Health Patients as Partners Provincial Dialogue Report Ministry of Health Patients as Partners 2017 Provincial Dialogue Report Contents Executive Summary 4 Introduction 6 Balanced Participation: Demographics and Representation at the Dialogue 8 Engagement

More information

Dreaming of Life. What is a CAREGIVER? 3/31/2016. Just when we think we have it all figured out

Dreaming of Life. What is a CAREGIVER? 3/31/2016. Just when we think we have it all figured out The Journey of Caring for the Caregiver: The Sandwich Generation Presented by: Tracy Ketzeback, MSW, LSW Nola Varilek, Community Outreach Dreaming of Life Just when we think we have it all figured out

More information

Introduction. Please tell us about yourself. 1. What is your zip code? 2. What is your race or ethnic group? (Select all that apply.

Introduction. Please tell us about yourself. 1. What is your zip code? 2. What is your race or ethnic group? (Select all that apply. Introduction Evaluation of the Lifespan Respite Care Program IRB Protocol.: X091222018 Explanation of Procedures: Greetings! Please reply to questions about your experience with respite services as a family

More information

A Care Plan Guide. (Simple Steps To Caring For Your Loved Ones)

A Care Plan Guide. (Simple Steps To Caring For Your Loved Ones) A Care Plan Guide (Simple Steps To Caring For Your Loved Ones) The personal journey as a caretaker can be very rewarding yet overwhelming at times. When we are instantly put into a situation of caring

More information

Who are caregivers? What is caregiving? Webster s Dictionary persons who provide direct care to another individual

Who are caregivers? What is caregiving? Webster s Dictionary persons who provide direct care to another individual Presented at SaddleBrooke, April 5, 2013 by: Carol Wilson Director of Independent Living Services Pinal Gila Council for Senior Citizens Area Agency on Aging, Region V Who are caregivers? Webster s Dictionary

More information

Illinois Governor s Office of Health Innovation and Transformation

Illinois Governor s Office of Health Innovation and Transformation 1 Illinois Governor s Office of Health Innovation and Transformation Medicaid Managed Care Conference October 21, 2014 Michael Gelder, Senior Health Policy Advisor to Governor Pat Quinn Executive Director,

More information

The Community Crisis House model

The Community Crisis House model An evaluation of Wales first crisis house If it had not been for the Crisis House staff I honestly don t think I would still be here. I can t thank you enough for all your help. I now feel that I actually

More information

How the GP can support a person with dementia

How the GP can support a person with dementia alzheimers.org.uk How the GP can support a person with dementia It is important that people with dementia have regular checkups with their GP and see them as soon as possible if they develop any health

More information

Statewide Implementation of BRI Care Consultation by Six Ohio Alzheimer s. Association Chapters

Statewide Implementation of BRI Care Consultation by Six Ohio Alzheimer s. Association Chapters Statewide Implementation of BRI Care Consultation by Six Ohio Alzheimer s David Bass, PhD Salli Bollin, LISW Cheryl Kanetsky, LSW, MBA Jennifer Miller, LSW Branka Primetica, MSW Marty Williman, RN, BSN

More information

ICAN3 SURVEY: LIFE OF A SANDWICH GENERATION CAREGIVER

ICAN3 SURVEY: LIFE OF A SANDWICH GENERATION CAREGIVER All rights reserved. ICAN3 SURVEY: LIFE OF A SANDWICH GENERATION CAREGIVER Prepared for The Alzheimer's Foundation of America (AFA) and sponsored by Forest Pharmaceuticals, Inc. Presented by Harris Interactive

More information

Caregiver s journey map

Caregiver s journey map * Caregiver s journey map Supporting those with Alzheimer s and other dementias *AgingWell Hub, co-founded with Philips, is a cross sector collaborative of the Global Social Enterprise Initiative (GSEI)

More information

Oncology Pharmacy Services

Oncology Pharmacy Services Oncology Pharmacy Services Your partner in patient-centered care Supporting you and your patients You want to focus on patient care, not paperwork. So you need an oncology pharmacy that does more than

More information

Transition of Care Guide

Transition of Care Guide Transition of Care Guide If you received treatment for a mental health condition while in high school or before, there are several things you can do to continue to stay healthy while transitioning to and

More information

Questionnaire on family experiences of ICU quality of care

Questionnaire on family experiences of ICU quality of care Questionnaire on family experiences of ICU quality of care (name of actual ICU) 1 This questionnaire is about experiences that you and your family member (the patient) had during his or her stay in the

More information

Easter Seals Serving DC MD I VA 1420 Spring Street, Silver Spring, MD

Easter Seals Serving DC MD I VA 1420 Spring Street, Silver Spring, MD For nearly 100 years Easter Seals has been answering the call of the nation s most vulnerable populations, providing a wide range of programs to support people of all ages. Easter Seals Serving DC I MD

More information

Identify the methods used to obtain informed consent using Good Clinical Practice (GCP) Recognize the informed consent as an ongoing interactive

Identify the methods used to obtain informed consent using Good Clinical Practice (GCP) Recognize the informed consent as an ongoing interactive Identify the methods used to obtain informed consent using Good Clinical Practice (GCP) Recognize the informed consent as an ongoing interactive process between the patients and the clinician Only those

More information

Tools for Better Health. Referral Toolkit. Health Care Providers

Tools for Better Health. Referral Toolkit. Health Care Providers Tools for Better Health Referral Toolkit Health Care Providers A guide to working with providers to establish a referral system for evidence-based self-management programs. Table of Contents How to Use

More information

Indiana Association For Home and Hospice Care, Inc.

Indiana Association For Home and Hospice Care, Inc. Indiana Association For Home and Hospice Care, Inc. Using CAHPS to Improve Customer Service May 2012 Presented by: Eileen M. Freitag Director of Strategic & Organizational Consulting Fazzi Associates,

More information

GROUP LONG TERM CARE FROM CNA

GROUP LONG TERM CARE FROM CNA GROUP LONG TERM CARE FROM CNA Valdosta State University Voluntary Plan Pays benefits for professional treatment at home or in a nursing home GB Table of Contents Thinking Long Term in a Changing World

More information

Survey of adult inpatients in the NHS, Care Quality Commission comparing results between national surveys from 2009 to 2010

Survey of adult inpatients in the NHS, Care Quality Commission comparing results between national surveys from 2009 to 2010 Royal United Hospital, Bath, NHS Trust Survey of adult inpatients in the NHS, Care Quality Commission comparing results between national surveys from 2009 to 2010 Please find below charts comparing the

More information

HEALTHIER YOU! Set Your Sights on a. Living Courageously Healing the Whole Self Building Better Boundaries and much more...

HEALTHIER YOU! Set Your Sights on a. Living Courageously Healing the Whole Self Building Better Boundaries and much more... Set Your Sights on a HEALTHIER YOU! Wellness Services at Jefferson Center 2018 Summer Classes July August September Living Courageously Healing the Whole Self Building Better Boundaries and much more...

More information

Are There Hospice Patients Living in Your Home Health Agency?

Are There Hospice Patients Living in Your Home Health Agency? Are There Hospice Patients Living in Your Home Health Agency? July 10, 2012 Presented by: Cindy Campbell, RN, BSN Associate Director, Operational Consulting Fazzi Associates 243 King Street, Suite 246

More information

TAKEAWAYS FROM THE MITEL BUILD A BETTER MEETING CHALLENGE. 10 Common Misconceptions About Meetings

TAKEAWAYS FROM THE MITEL BUILD A BETTER MEETING CHALLENGE. 10 Common Misconceptions About Meetings TAKEAWAYS FROM THE MITEL BUILD A BETTER MEETING CHALLENGE 10 Common Misconceptions About Meetings The Mitel Build a Better Meeting Challenge Between January 11 and April 30, 2016, more than 1,000 people

More information

A conversation with Judith Walzer Leavitt Make Room for Daddy: The Journey from Waiting Room to Birthing Room

A conversation with Judith Walzer Leavitt Make Room for Daddy: The Journey from Waiting Room to Birthing Room A conversation with Judith Walzer Leavitt Author of Make Room for Daddy: The Journey from Waiting Room to Birthing Room Published June 21, 2009 $35.00 hardcover, ISBN 978-0-8078-3255-4 Q: Why have men

More information

GERIATRIC SERVICES CAPACITY ASSESSMENT DOMAIN 4 ALTERNATE LIVING ARRANGEMENTS

GERIATRIC SERVICES CAPACITY ASSESSMENT DOMAIN 4 ALTERNATE LIVING ARRANGEMENTS GERIATRIC SERVICES CAPACITY ASSESSMENT DOMAIN 4 ALTERNATE LIVING ARRANGEMENTS Table of Contents Introduction... 2 Purpose... 2 Serving Senior Medicare-Medicaid Enrollees... 2 How to Use This Tool... 2

More information

HCAHPS: Background and Significance Evidenced Based Recommendations

HCAHPS: Background and Significance Evidenced Based Recommendations HCAHPS: Background and Significance Evidenced Based Recommendations Susan T. Bionat, APRN, CNS, ACNP-BC, CCRN Education Leader, Nurse Practitioner Program Objectives Discuss the background of HCAHPS. Discuss

More information

Improving End of Life Care in Long Term Care Facilities: Perspectives of Healthcare Providers

Improving End of Life Care in Long Term Care Facilities: Perspectives of Healthcare Providers Improving End of Life Care in Long Term Care Facilities: Perspectives of Healthcare Providers Christine Beck, MD CCFP MSc Department of Family Medicine Dalhousie University January 15, 2010 NELS Work In

More information

The Patient Experience at Florida Hospital Learning Module for Students

The Patient Experience at Florida Hospital Learning Module for Students The Patient Experience at Florida Hospital Learning Module for Students 1 Introduction Adventist Health System and its East Florida Region hospitals welcome the privilege to provide a wellrounded learning

More information

Preadmission Screening for Medicaid Certified Nursing Facilities. Department of Human Services Med-QUEST Division 2016

Preadmission Screening for Medicaid Certified Nursing Facilities. Department of Human Services Med-QUEST Division 2016 Preadmission Screening for Medicaid Certified Nursing Facilities Department of Human Services Med-QUEST Division 2016 1 Agenda History Specialized Services Hawaii s Revised Level I Screening Tool Level

More information

Excerpts Regarding Respite Care from:

Excerpts Regarding Respite Care from: Excerpts Regarding Respite Care from: ADHS/DBHS Clinical Guidance Documents Practice Improvement Protocols & TITLE XIX CHILDREN S BEHAVIORAL HEALTH ANNUAL ACTION PLAN * November 1, 2004 to October 31,

More information

For the Lifespan: The Caregiver Guide Module 12 Legal and Financial Matters: What You Need to Know

For the Lifespan: The Caregiver Guide Module 12 Legal and Financial Matters: What You Need to Know For the Lifespan: The Caregiver Guide Module 12 Legal and Financial Matters: What You Need to Know Objectives After completing this module, participants will be able to: Understand more about estate planning.

More information

Sustaining the practice

Sustaining the practice Linda O. Nichols, PhD Jennifer Martindale-Adams, EdD Caregiver Center VA Medical Center Memphis American Society on Aging Annual Meeting Rosalynn Carter Institute Workshop Going to Scale in Provision of

More information

The Way Forward. Towards Recovery: The Mental Health and Addictions Action Plan for Newfoundland and Labrador

The Way Forward. Towards Recovery: The Mental Health and Addictions Action Plan for Newfoundland and Labrador The Way Forward Towards Recovery: The Mental Health and Addictions Action Plan for Newfoundland and Labrador 2 Table of Contents Introduction... 2 Background... 3 Vision and Values... 5 Governance... 6

More information

Home Care in Germany - Between Strain and Strength

Home Care in Germany - Between Strain and Strength Home Care in Germany - Between Strain and Strength 6th International Carers Conference September 3-6, 2015 Gothenburg, Sweden Beate Bestmann, Elisabeth Wüstholz, Frank Verheyen Introduction 2,5 million

More information

Caregiver Stress. F r e q u e n t l y A s k e d Q u e s t i o n s. Q: Who are our nation's caregivers?

Caregiver Stress. F r e q u e n t l y A s k e d Q u e s t i o n s. Q: Who are our nation's caregivers? Caregiver Stress Q: What is a caregiver? A: A caregiver is anyone who provides help to another person in need. Usually, the person receiving care has a condition such as dementia, cancer, or brain injury

More information

Edinburgh Carer survey 2017

Edinburgh Carer survey 2017 Edinburgh Carer survey 2017 Summary report March 2018 1. Introduction 1.1 Background VOCAL - The Voice of Carers Across Lothian - commissioned Scotinform to undertake its biennial survey of carers in

More information

Edwin Walker. Deputy Assistant Secretary for Aging

Edwin Walker. Deputy Assistant Secretary for Aging Edwin Walker Deputy Assistant Secretary for Aging Family Caregiving: Who needs care? By 2020, there will be more than 77 million people over the age of 60 in the United States. o As many as two-thirds

More information

Caregiver Support Programs

Caregiver Support Programs Caregiver Support Programs ONE CALL. HOME CARE FOR LIFE. An Array of Caregiver Support Options Even the most loving and devoted caregiver needs respite time. A friendly, knowledgeable VNA professional

More information

Abstract Development:

Abstract Development: Abstract Development: How to write an abstract Fall 2017 Sara E. Dolan Looby, PhD, ANP-BC, FAAN Assistant Professor of Medicine, Harvard Medical School Neuroendocrine Unit/Program in Nutritional Metabolism

More information

Summary Report of Findings and Recommendations

Summary Report of Findings and Recommendations Patient Experience Survey Study of Equivalency: Comparison of CG- CAHPS Visit Questions Added to the CG-CAHPS PCMH Survey Summary Report of Findings and Recommendations Submitted to: Minnesota Department

More information

Stress-Busting Program. An Evidence-Based Program for Family Caregivers

Stress-Busting Program. An Evidence-Based Program for Family Caregivers Stress-Busting Program An Evidence-Based Program for Family Caregivers Presenters Sharon Lewis, RN, PhD, FAAN Debbie Billa, BA WellMed Charitable Foundation San Antonio, Texas Objectives 1. Describe the

More information

For More Information

For More Information C O R P O R A T I O N CHILDREN AND FAMILIES EDUCATION AND THE ARTS ENERGY AND ENVIRONMENT HEALTH AND HEALTH CARE INFRASTRUCTURE AND TRANSPORTATION INTERNATIONAL AFFAIRS LAW AND BUSINESS NATIONAL SECURITY

More information

Hospice Care For Dementia and Alzheimers Patients

Hospice Care For Dementia and Alzheimers Patients Hospice Care For Dementia and Alzheimers Patients Facing the end of life (as it has been known), is a very individual experience. The physical ailments are also experienced uniquely, even though the conditions

More information

Patient Experience Report: Patient Transport Service NHS South Essex CCG

Patient Experience Report: Patient Transport Service NHS South Essex CCG Patient Experience Report: Patient Transport Service NHS South Essex CCG Author: Tessa Medler, Patient Experience Facilitator Rebecca Aldous, Patient Experience Assistant Report Period: st to the 8 th

More information

To apply or not? Factors important to job seekers

To apply or not? Factors important to job seekers To apply or not? Factors important to job seekers March 2018 The Pittsburgh metro area labor market features a variety of opportunities, with more than 178,000 unique job postings in 2017 across more than

More information

Participant Satisfaction Survey Summary Report Fiscal Year 2012

Participant Satisfaction Survey Summary Report Fiscal Year 2012 Participant Satisfaction Survey Summary Report Fiscal Year 2012 Prepared by: SPEC Associates Detroit, Michigan www.specassociates.org Introduction Since 2003, Area Agency on Aging 1-B (AAA 1-B) 1 has been

More information

Hidden. Heroes. America s Military Caregivers. Rajeev Ramchand Terri Tanielian

Hidden. Heroes. America s Military Caregivers. Rajeev Ramchand Terri Tanielian Hidden Heroes America s Military Caregivers Rajeev Ramchand Terri Tanielian Who is caring for disabled veterans? What resources are available to caregivers? Where are there gaps? 2 Methods and approach

More information

Caregivers and Digital Health: A Survey of Trends and Attitudes of Massachusetts Family Caregivers

Caregivers and Digital Health: A Survey of Trends and Attitudes of Massachusetts Family Caregivers Caregivers and Digital Health: A Survey of Trends and Attitudes of Massachusetts Family Caregivers June 27, 2017 info@massincpolling.com MassINCPolling.com @MassINCPolling 11 Beacon St Suite 500 Boston,

More information

CENTACARE. Aged Care

CENTACARE. Aged Care CENTACARE Aged Care At Centacare we re all about providing quality and caring support, that lets a person live their life the way they want to. With choice, flexibility and a dedicated team, Centacare

More information

Family and Friends Council Education Day June 8, 2016 Circle of Care Caring for the Caregiver

Family and Friends Council Education Day June 8, 2016 Circle of Care Caring for the Caregiver Family and Friends Council Education Day June 8, 2016 Circle of Care Caring for the Caregiver Together we improve the well-being of the people we serve CAREGIVING MAP PRVHC - Unit clerk - Resident care

More information

V. NURSING FACILITY RESIDENT PROFILE KEY POINTS

V. NURSING FACILITY RESIDENT PROFILE KEY POINTS KEY POINTS As people age they are more likely to endure greater acute illness, such as, heart disease, stroke, cancer and advanced dementia. These illnesses and other factors cause limitations in Activities

More information

Commonwealth Respite & Carelink Centre

Commonwealth Respite & Carelink Centre Commonwealth Respite & Carelink Centre Southern Region A Service for Carers Urgent Respite (24 Hours) Carelink Information Service (Business Hours) Overview The Commonwealth Respite and Carelink Centre

More information

Patient Payment Check-Up

Patient Payment Check-Up Patient Payment Check-Up SURVEY REPORT 2017 Attitudes and behavior among those billing for healthcare and those paying for it CONDUCTED BY 2017 Patient Payment Check-Up Report 1 Patient demand is ahead

More information

Statistical Portrait of Caregivers in the US Part III: Caregivers Physical and Emotional Health; Use of Support Services and Technology

Statistical Portrait of Caregivers in the US Part III: Caregivers Physical and Emotional Health; Use of Support Services and Technology Statistical Portrait of Caregivers in the US Part III: Caregivers Physical and Emotional Health; Use of Support Services and Technology [Note: This fact sheet is the third in a three-part FCA Fact Sheet

More information

Standards of Behavior

Standards of Behavior S A R A S OTA M E M O R I A L H E A LT H C A R E S Y S T E M We are TEAM SMH and these are our Quality & Safety I support Sarasota Memorial s efforts to provide a safe workplace and environment for high

More information

The Patient Experience Consumer Study 2018: Insights and Opportunities for Action April 26, Improving the Patient Experience

The Patient Experience Consumer Study 2018: Insights and Opportunities for Action April 26, Improving the Patient Experience The Patient Experience Consumer Study 2018: Insights and Opportunities for Action April 26, 2018 Improving the Patient Experience Defining Patient Experience - The Beryl Institute Who We Are The Beryl

More information

Copyright American Psychological Association INTRODUCTION

Copyright American Psychological Association INTRODUCTION INTRODUCTION No one really wants to go to a nursing home. In fact, as they age, many people will say they don t want to be put away in a nursing home and will actively seek commitments from their loved

More information

Mission Statement. Dunes Hospice, LLC 4711 Evans Avenue, Valparaiso, Indiana Ͷ (888)

Mission Statement. Dunes Hospice, LLC 4711 Evans Avenue, Valparaiso, Indiana Ͷ (888) Mission Statement The valued mission of is to be the premier provider of spiritual, emotional and physical care during the end-of-life journey. We are committed to serve with honor, dignity, and above

More information

Caregiver Chronicles

Caregiver Chronicles Caregiver Chronicles June 2017 ARE A AGENCY ON A GING OF DA NE CO U NTY 2 8 6 5 N SHERMAN AV E, M A D I S O N, W I 5 3 7 04 608-261- 9930 H T T P S : / / A A A. D C D H S. C O M / Did you know that the

More information

10 Things to Consider When Choosing a Home Care Agency

10 Things to Consider When Choosing a Home Care Agency 10 Things to Consider When Choosing a Home Care Agency Introduction Diminishing health and frailty are not popular topics of conversation for obvious reasons. But then these are not areas of life we can

More information

Center for Health Care Strategies, Inc. From the Beneficiary Perspective: Core Elements to Guide Integrated Care for Dual Eligibles IN BRIEF

Center for Health Care Strategies, Inc. From the Beneficiary Perspective: Core Elements to Guide Integrated Care for Dual Eligibles IN BRIEF CHCS Center for Health Care Strategies, Inc. From the Beneficiary Perspective: Core Elements to Guide Integrated Care for Dual Eligibles Technical Assistance Brief December 2010 By Alice Lind and Suzanne

More information

ADULT LONG-TERM CARE SERVICES

ADULT LONG-TERM CARE SERVICES ADULT LONG-TERM CARE SERVICES Long-term care is a broad range of supportive medical, personal, and social services needed by people who are unable to meet their basic living needs for an extended period

More information

Liverpool Heart and Chest Hospital

Liverpool Heart and Chest Hospital Liverpool Heart and Chest Hospital Mental capacity and consent to treatment in patients with vascular dementia: a comparison of capacity assessments made in an acute setting vs. those made in the patients

More information

National Hospice and Palliative Care OrganizatioN. Facts AND Figures. Hospice Care in America. NHPCO Facts & Figures edition

National Hospice and Palliative Care OrganizatioN. Facts AND Figures. Hospice Care in America. NHPCO Facts & Figures edition National Hospice and Palliative Care OrganizatioN Facts AND Figures Hospice Care in America 2017 Edition NHPCO Facts & Figures - 2017 edition Table of Contents 2 Introduction 2 About this report 2 What

More information

Patient survey report Survey of adult inpatients in the NHS 2010 Yeovil District Hospital NHS Foundation Trust

Patient survey report Survey of adult inpatients in the NHS 2010 Yeovil District Hospital NHS Foundation Trust Patient survey report 2010 Survey of adult inpatients in the NHS 2010 The national survey of adult inpatients in the NHS 2010 was designed, developed and co-ordinated by the Co-ordination Centre for the

More information

Barriers & Incentives to Obtaining a Bachelor of Science Degree in Nursing

Barriers & Incentives to Obtaining a Bachelor of Science Degree in Nursing Southern Adventist Univeristy KnowledgeExchange@Southern Graduate Research Projects Nursing 4-2011 Barriers & Incentives to Obtaining a Bachelor of Science Degree in Nursing Tiffany Boring Brianna Burnette

More information

Provider Selection Guide Provider Interview Questions

Provider Selection Guide Provider Interview Questions New Mexico Developmental Disabilities Supports Division Provider Selection Guide Provider Interview Questions These interview questions are provided in order to assist you to make informed decisions when

More information

Produced by The Kidney Foundation of Canada

Produced by The Kidney Foundation of Canada 85 PEACE OF MIND You have the right to make decisions about your own treatment, including the decision not to start or to stop dialysis. Death and dying are not easy things to talk about. Yet it s important

More information