Research Nurse to Nurse Researcher

Transcription

1 Research Nurse to Nurse Researcher Jon Hassler-Hurst Lead Paediatric Diabetes Research Nurse Eastern Diabetes Local Research Network

2 Overview Career history Training Diabetes - Research Patient experience Research experience Own account research Multi-Centre RCT Transition to nurse researcher

3 Career History the Early Years Trained as an engineer.. Career change to paediatric nursing Qualified in 1995 Barnet & Edgeware Guys hospital D grade rotation Orthopaedic A&E Recovery PICU

4 Career History the Diabetes Years 1999 Moved to Ipswich Orthopaedic & PAU 2001 Applied for PDSN post 2001 Research post Diabetes Centre University of Cambridge 3 sites initially, 3 more once established Funding changes... Clinical Research

5 Career History the Diabetes Years Clinical and research role Clinical Research Management 2008 Lead nurse for EoE Diabetes New NIHR CRN integrated regional role 100% Research with strong clinical links

6 Diabetes Training Local training Warwick Diabetes Course Motivational interviewing Counselling - Knuston Hall Care of the child with Diabetes - BCU

7 Research Training NIHR provided courses GCP Paediatric communication 1 & 2 Informed consent Paediatric Paediatric research - Advanced Study specific Clinical research lab skills Local labs External provider

8 Effect on Patient Experience Access to research in a DGH Combined visits less time off school Clinical advice from the research nurse Clinical outcomes enhanced Very young children enabled to engage in research Families involved in research events and study design / validation

9 Research Experience Portfolio studies since 2001 NFS, UKGRID, T1DGC, ADDRESS 1 & 2, D-GAP, Pathway to Diagnosis & SCIPI Local studies - Ipswich FACTS 2004 LDI Flare Neuropathy studies* Tropicamide study 2004 * FACTS to 2011* Advice given on commercial study Adult study support Comm / Academic

10 First Taste of Own Research Tropicamide study RCT 0.5% Vs 1% drops Research active Consultant Freedom Trust Support Research and Development assistance Aided by: CTIMP licensed manufacturing pharmacy Funding availability for own account work research account

11 First Taste of Multi-Centre RCT Co-ordination FACTS 2 Ipswich Diabetes education RCT Supportive chief investigator Joint National co-ordination Large budget 250K Responsible for: NIHR portfolio registration EUDRACT - registration Recruitment data submission - NIHR Invoice processing

12 Nurse Researcher Yet?

13 Not Yet... The best was yet to come!

14 Offered funding for an MSc Diabetes Centre research fund - Yr1 Trust education fund underspend - Yr2 Discussed options Academic Research Condition related - passion Combine day job with academia Fit around family commitments DRN supported study leave MSc by research dissertation (min 2, max 3 yrs) Project discussed and agreed Small nerve function in children with and without Diabetes LDI Flare technique Planning started early in 2011

15 Barriers / Challenges No degree... Dip HE APEL entire career! Protocol application Interview with supervisor Accepted...provisos Modules x 2 Critical analysis Statistics Progression boards

16 Go! - Research Application Process Protocol peer review x 2 (student rules) Develop all study paperwork NRES application Ethics committee attended Clarifications made Approval given 17 th May 2012 NHS & University approvals

17 Meanwhile... 2 x Modules completed in 6/12 Progression boards passed Academic writing began in earnest Yes 1 st recruit Oct 2012 Recruitment completed May 2013

18 Results The LDI Flare response differences seen indicate that early small nerve fibre damage is occurring in these children with Type 1 Diabetes It correlates negatively with glycaemic control (HbA1c)?? Plastic?? Poor control correlates with reduced small nerve function

19 Progress to Date Last progression board passed in May Dissertation critical read Sept - Actioned Dissertation completed and submitted 16:00 Oct 2 nd 2013 Await viva date...

20 What Have I Learned? Critical reading & thinking Wider research perspective There is funding available There are many academic paths Pushing the boundaries is worth it You can shape the future I am academically capable Research opens many doors...

21 What Would I Change? Statistics to any other day to Friday pm The recruitment window to summer! Funding availability to nurse education More obvious signposted funding options Recruit nurses Fundholder outreach like the NIHR Provide protected time for academic work

22 Eternally Grateful For... An incredibly research rich workplace The opportunity to progress The encouragement and support given to me The guidance and advice given The flexibility for work / life / academic balance The chance to improve care for children The children and families support An understanding family and colleagues

23 And not forgetting... Headphones!

24 Lunch Anyone?