Preventing Post Traumatic Stress Disorder : the Stress and Wellbeing after Childbirth Study (STRAWB2) Pauline Slade Prof in Clinical Psychology

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1 Obtaining funding from RfPB Preventing Post Traumatic Stress Disorder : the Stress and Wellbeing after Childbirth Study (STRAWB2) Pauline Slade Prof in Clinical Psychology /Consultant Clinical Psychologist

2 The STRAWB2 Team Co investigators Dr Gill Thomson Research Fellow School Community Health and Midwifery UCLAN Dr Steven Lane Lecturer in Medical Statistics University of Liverpool Mrs Maureen Treadwell Research Lead Birth trauma Association Professor Andrew Weeks, Professor in Obstetrics University of Liverpool and Liverpool Women s Hospital Professor Helen Spiby, Professor in Midwifery University of Nottingham Professor Rhiannon Tudor Edwards, Professor in Health Economics University of Bangor Mrs Jenny Butters Community Midwifery Matron, Liverpool Women s Hospital Mrs Sim Steen Expert by Experience Mrs Avril Swan Liverpool Clinical Commissioning Group Ms Steph Griffiths Health Visitor Team Lead Sefton Collaborators Dr Carol Kingdon Research Fellow UCLAN and Liverpool Women s Hospital Ms Afra Qassim Community Development Worker, Merseycare Mrs Cathy Atherton Head of Midwifery Lancashire Teaching Hospitals Trust

3 Overarching Aim To evaluate whether providing self help material can reduce the incidence of clinically significant symptoms of full (diagnostic) and partial (subdiagnostic) post traumatic stress disorder (PTSD) after childbirth Specific research question : Is a programme of identification of women who have experienced their childbirth as traumatic, followed by provision of prevention for post traumatic stress after childbirth clinically effective when compared to usual care and if so what is the cost per case prevented? Aims (1) To train community midwives to administer a simple postnatal screening tool assessing whether women have experienced their childbirth as traumatic. (2) In women who have experienced childbirth as traumatic, to compare the outcomes of those randomised to preventive self help or usual care, in terms of full and partial PTSD at 6-8 weeks postnatally. (3) To investigate women s views on aspects of self help material that are most helpful. (4) To provide a health economic analysis of cost per case (full or partial PTSD) prevented. (5) To develop, if appropriate, a local implementation plan for integration of the training and self help material into the perinatal mental health care pathway. (6)To disseminate the information to care providers nationally to facilitate implementation of preventive care.

4 Time frame and funding 24 months Nov 2016-Oct ,000

5

6 The 10 lessons learnt Take your time- more haste less speed

7 2 Preparatory work is added value for the funder Shows commitment

8 3 Get your team right Use existing relationships where possible ideally where they can be demonstrated to have been effective Economics and CCG representatives of value Liaison meetings- really listen and be prepared to modify

9 4 The importance of Service Users Obtain RDS funding to support service users in assisting in development of the bid. Input- 2 levels

10 5 Demonstrate the importance of the question you want to address. Is the question really important to the NHS? Can it lead to saving money? Quantify this if you can Benefits to multiple audiences

11 6 Simplify Make the design really simple - easy to understand Use Diagrams Make the language and structure of your writing as easy to understand. Simplify the arguments wherever you can.

12 7 Identify the external support you will need to persuade funders that output will be used. Do this early.

13 8 Get to know your funder Referee for them Observe a panel if you can If you can ask people who have been successful with the funder to comment on a draft- really listen and consider the feedback Use feedback on drafts within your organisation

14 9 Liaise early with R and D in the lead trust with the CLRN over service support costs with the Trusts over excess treatment costs

15 Finally Treat submission of a valid application by the deadline date as a success.

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