Patient Empowerment Project Leeds, UK

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Elfrieda Kennedy
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Representative Chris Bridle: Engagement Lead Sue

1 Patient Empowerment Project Leeds, UK Mark Fuller: Public Health Clinical Lead Tricia McKinney: Patient Representative Chris Bridle: Engagement Lead Sue Wilkinson: Commissioning and Development Manager February 2015

2 Project feedback video

3 Case study one: 54 year old man Presenting issues Goals Outcomes No money History of depression Problematic alcohol use Recently rehoused Considering payday loan Only one set of clothes Socially isolated Get more clothes Make friends Access free food Reduce his alcohol consumption Return to work as an electrician Referred to Pay as You feel café Decided not to take out payday loan Halved alcohol consumption Seeking employment Improved mood

4 Case study two: 56 year old female Presenting issues Goals Outcomes Long term depression/anxiety Lives alone and socially isolated Recent bereavement Financial difficulties History of unemployment To manage her mental health Get back into employment Access bereavement support Supported to attend mental health appointment Information about bereavement service Attended local job centre Linked with local Healing Centre

5 Leeds where are we?

6 The story so far - why?

7 The story so far - why? What do healthcare professionals in Leeds want? Better knowledge of local voluntary and community services Better signposting and connecting to local voluntary and community services Better proactive self care management through patient empowerment

8 Social Prescribing (community referral) Links people to non-medical sources of support and activities in the community that they might benefit from Asset Based Community Development (ABCD) Identifying and mobilising individual and community assets

9 Connecting patients to services Healthy living services Psychological therapies Housing Community and activity groups Adult Social Care PEP patients Debt management Domestic violence Benefit agencies Drug and alcohol services Advocacy services

10 Aim of the PEP To improve the wider health and wellbeing of patients by providing a referral route between GP practices and local voluntary sector organisations, activities, groups and services

11 Patient empowerment model

The engagement process The Commissioning Cycle Analyse and plan JSNA Needs and aspirations Priority setting Patient experience Design pathways Focus groups/workshops Engage VCF sector

12 The engagement process The Commissioning Cycle Analyse and plan JSNA Needs and aspirations Priority setting Patient experience Design pathways Focus groups/workshops Engage VCF sector Experience-based design Specify & procure Involvement in contracting Involvement in scoring and interview process Deliver and improve Patient experience User-led audits Mystery shopping

13 Engagement Process Initial engagement Voluntary, community and faith (VCF) sector Patients, carers and the public Primary care What did people say? It s a good idea! VCF must be involved Consider paying volunteers Provide support outside traditional working hours Don t duplicate what s already there Don t make people wait too long

14 Engagement Process Recommendations: Incentivise champions Develop resources to support referral Voluntary sector role in the development of the project Monitor outcomes and evidence success Avoid duplication Motivate patients Short waiting times Involve patient in procurement process

15 Engagement Process Patient leader to ensure that the voice of patients, carers and the public is taken into consideration when decisions are made that affect patient care Recruited through the engagement Sits on strategic steering group Involved in contracting, procurement and monitoring Asked to be objective, passionate about improvement, and champion the patient (VCF) voice

16 Who could benefit? Disadvantaged Long term health problems Vulnerable Depression Socially isolated Recently bereaved Marginalised Mild-moderate anxiety The list is endless

17 Procurement process Patient representative member of procurement team Consortia of local voluntary sector organisations appointed:

18 Marketing

19 Patient empowerment project evaluation

20 Early Evaluation January referrals so far % Male referrals >75 16% age not known 12% % % Female referrals >75 10% % age not known 7% % %

Early Evaluation January 2015 Those assessed by PEP are those

care system (Shortened Warwick Edinburgh Mental Well-being scale

reviewed to date show a meaningful positive change as an early

changes in levels of self-efficacy to self manage long term

21 Early Evaluation January 2015 Those assessed by PEP are those patients that offer the biggest challenge to the health and social care system (Shortened Warwick Edinburgh Mental Well-being scale [SWEMWBS] and EQ5D self-reported health status scores) Those reviewed to date show a meaningful positive change as an early indicator for the impact of PEP on mental well-being Positive changes in levels of self-efficacy to self manage long term conditions. Patients enabled to consider helpful routines, coping strategies and activities

22 Project Learning Better knowledge of the procurement process Keep an open mind More engagement with practices during model development Adapting principles from other successful projects Involve a patient leader much earlier Exciting to see the impact on patients Learning continues as we go...!

23 What do general practitioners say? As a doctor I now have two prescriptions available to me: medical and social

24 What do patients say? I m learning some really useful stuff, I ve made some friends and it s like holistic therapy The woods walk was brilliant. According to my doctor I m only supposed to be able to walk a few hundred yards but I kept going all afternoon. I had a really good day.

25 What do patients say? You've been absolutely fantastic; I don't know what I'd have done without you Thank you for all the help, I've hit rock bottom and you are the only one that's helped me

26 Contact details Dr Mark Fuller GP Clinical Lead for Public Health Chris Bridle Patient Engagement Lead Tricia McKinney Patient Representative Sue Wilkinson Commissioning and Development Manager

27 Time for questions

DEVELOPMENT STANDARDS FOR INTEGRATED WELLNESS SERVICES. May 2012

DEVELOPMENT STANDARDS FOR INTEGRATED WELLNESS SERVICES. May 2012 DEVELOMENT STANDARDS FOR INTEGRATED WELLNESS SERVICES May 2012 1 1. INTRODUCTION This development tool aims to support commissioners and providers to work towards the provision of a local integrated wellness