Respite Partnership Collaborative Proposers Conference August 30, Sacramento County

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1 Respite Overview Respite Partnership Collaborative Proposers Conference August 30, 2012 Sacramento County Division of Behavioral Health Services

2 What is Respite? Assistance for limited periods of time whether on a planned or unplanned basis For 1. Individuals living in the community experiencing crisis and needing support. 2. Families or caregivers providing support to children or other family members and needing a time out or respite for their child, their family member or themselves

3 Research shows benefits of respite care Respite care has benefits for both the caregiver and the care recipient, i such as reducing stress improving the physical and emotional health of the caregiver and the recipient reduces the likelihood of hospitalization.

4 Types of Respite (not exclusive list) Planned respite/crisis (emergency) respite Peer run respite In-home or facility Foster respite Medical respite Residential respite Volunteer provided

5 Other Considerations for Respite Projects Duration - Day, Weekend, Week, Month Budget Methods for administering service 1. Vouchers 2. Grants 3. Free standing facility 4. Neighborhood home 5. Contracts with Board and Care homes 6. Respite Care agency

6 Research Findings In developed countries, the concept of respite care as an extension of health care service provision is being embraced. The main body of respite care research relates to frail elderly, dementia, Alzheimer's disease, physical disability/ illness or children. Studies examining outcomes and effectiveness of respite services are either scarce or they lack rigor. There is a lack of data to inform development of evidence based policy for provision and planning of respite care services.

7 Target Populations to be Served by Respite Partnership Collaborative Funding Adults/Older Adults in Crisis Seriously Emotionally Disturbed Children- Parents/Caregivers Need Break Adults in Crisis Who Have Dependent Children Specialized or Cultural or Ethnic Population Teens/TAY in Crisis

8 Target Population: Adults/Older Adults in Crisis Adults with mental illness do not necessarily live with caregivers - Respite options need to target t the needs of the individual in crisis. Findings: Introducing a diverse and flexible range of services, particularly those not requiring compulsory admission, showed overall numbers of admissions to hospitals were likely to be reduced. Journal of Psychiatric and Mental Health Nursing, 2009

9 Peer-run Respite Services, A Promising Alternative to Hospitalization There is a growing body of evidence that reveals crisis alternatives can have positive impacts. Alternatives to hospitalization often provide a significant cost savings in addition to having positive impacts on quality of life domains. A 2009 survey indicated that people preferred crisis intervention services including gphone help lines, peer support services and crisis respite. (Lyons, Hopley & Horrocks, 2009) Many states are funding and supporting the development of peer crisis alternatives as part of cost containment and transition to a recovery-oriented system.

10 Respite for Children with Special Needs 14 to 19 % of children in the U.S. have a chronic physical, developmental, behavioral or emotional condition. Oklahoma State University research project found the number of hospitalizations for children decreased as the number of respite days increased. Iowa Respite Child Care Project for families parenting a child with developmental disabilities found when respite care is used, there was a statistically significant decrease in foster care placement. Vermont s respite program for families with children or adolescents with SED found fewer out-of-home placements when respite was used compared to non-users of respite services.

11 Understanding Respite Care Use by Families of Children Receiving Short-term, In-Home Psychiatric Emergency Services Journal of Child and Family Studies, 1998 Many families did not understand what it meant to receive respite care or even that it was available. Families of younger children were more likely to use respite than families with adolescents. Those that used respite services were more likely to have children with a greater number of assessed functional impairments and fewer social supports. Respite care users also reported greater difficulty Respite care users also reported greater difficulty managing their children's behavior.

12 Types of Respite for Transition Age Youth TAY Runaway Shelters Summer Camps Teen Programs Foster Respite - Temporary care of foster youth in a licensed foster home other than where the child has been placed