Advance Directives: Increase Patient Awareness and Participation in End of Life Issues. Karen Vondruska BSN, RN, OCN

Transcription

1 Advance Directives: Increase Patient Awareness and Participation in End of Life Issues Karen Vondruska BSN, RN, OCN

2 What s the Problem with Dying in America? $$$ The Miracle of Modern Medicine Only 25-30% of Americans have advance directives Emotional and Ethical costs

3 What is the Solution?

4 What s the Problem at Moffitt? Based on random chart audits of 109 established Moffitt Radiation Oncology patients in January 2016, only 23.35% had an advance directive and 22.7% in chart Lack of educational resources Who, when, where? Having the difficult conversation

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6 Start the Conversation

7 What Do Our Nurses Think? Only 33% had some knowledge of AD 72.15% felt only somewhat comfortable discussing AD 16.5% felt dissatisfied with education about AD 16.5% felt it was difficult or vey difficult to fill out AD

8 What Do Our Patients Think? Question 1: knowledge of advance directives Question 2: willingness to complete AD Question 3: how satisfied with education Question 4: difficulty of completing AD

9 Survey Results June 2016: 30.76% no knowledge or some knowledge, 26.15% had AD, 19% not willing, 32.29% somewhat dissatisfied or not at all satisfied with education, 38.45% easy or very easy to fill out August 2016: 48% no knowledge or some knowledge, 39.2% had AD, 7.2% not willing, 3% somewhat dissatisfied or not at all satisfied with education, 40.8% easy or very easy to fill out

10 Surveys Continued November 2016: 39.16% no knowledge or some knowledge 33.82% had AD 8.9% not willing 4.45% somewhat dissatisfied or not at all satisfied 33.82% easy or very easy to fill out

11 Did We Make a Difference? Chart audits in December 2016 showed of 110 patients 56.36% had AD and 30.9% is in the chart. Difference of 33.01% more patients had AD and 8.2% more AD in chart Surveys of nurses in January 2017 showed 99.6% felt very knowledgeable about AD, 91.63% were satisfied with education, 58.31% are very comfortable discussing AD and 100% felt it s easy or very easy to fill out AD

12 Culture Change Healthcare technology is advancing Death is universal and inescapable Uncertainty about end of life care is avoidable Nurses and providers need to be able to have the difficult conversations Education of staff and patients works!

13 Resources Vlug, M.G., de Vet., H.C.W., Pasman, H.R.W., Rurup, M.L, Onwuteaka-Philipsen, B.D. (2011, Vol 14, Num 5). The Development of an Instrument To Measure Factors that Influence Self-Perceived Dignity. Journal of Palliative Medicine. Hatkoff, C., Kula, R., & Levine, Z. (2014, September 23). How to Die in America: Welcome to La Crosse, Wisconsin. Forbes. Downar, J., Luk, T., Sibbald, R.W., et al. Why Do Patients Agree to a Do Not Resuscitate or Full Code Order? Perspectives of Medical Inpatients. J Gen Intern Med 26(6): M Moorman-Journal of aging and health, 2010 jah.sagepub.com Home Healthcare Nurse (2013, April, volume 31, number 4). Study Suggests Earlier Talks Might Contribute to Care Aimed at Easing Suffering. Dow, L., Matsuyama, R., Ramakrishnan, V., Kuhn, L., Lamont, E., Lyckholm, L., & Smith, T. (2010, January 10). Paradoxes in Advance Care Planning: The Complex Relationship of Oncology Patients, Their Physicians, and Advance Medical Directives. Journal of Clinical Oncology. Russell, S. (September 28, 2014). Advanced Care Planning: Whose agenda is it anyway? Palliative Medicine, Pautex, S., Notaridis, G., Derame, L., & Zulian, G. (2009). Preferences of elderly cancer patients in their advance directives. Critical Reviews in Oncology/Hematology, 2010(74), Norals, T. E., & Smith, T. J. (2015). Advance care planning discussions: why they should happen, why they don't, and how we can facilitate the process. Oncology, 29(8), Chicago

14 Study: emergency providers often lack consensus on what patients intend when end-of-life forms come into play. (2015, June). ED Management. 27(6), Yarkony, L. (April 2013). Consider the Conversation: How do we want to end? Caring, 32(4), Buck, H. G., PhD, RN, CHPN, & Fahlberg, B., PhD, MN, BS, RN. (2014). Using POLST to ensure patients' treatment preferences. Nursing 2014, (March), Brinkman-Stoppelenburg, A., AC Rietjens, J., Van Der Heide, A. (2014). The effects of advance care planning on end-oflife care: A systematic review. Palliative Medicine, 28 (8), Wendler, D., PhD, & Rid, A., MD. (march 1, 2011). Systemic Review: The Effect on surrogates of Making Treatment Decisions for Others. Annuals of Internal Medicine, 5(154), McBride, Debra. (May 2010). Patient are more Likely to Choose Comfort Care after Watching Video on End-of Life Options. ONS Connect. Jeong, Dr. Sarah. (July 2014). The Majority of Hospitalized elderly people at high risk of dying have thought about endof-life care, though documentation of preference in medial records may be lacking. Evidence Based Nursing, volume 17, number 3.