Support services for patients with secondary breast cancer.

Size: px
Start display at page:

Download "Support services for patients with secondary breast cancer."

Transcription

1 Sheffield Teaching Hospitals NHS Foundation Trust Support services for patients with secondary breast cancer. Secondary breast cancer pledge: working together to improve secondary breast cancer services Working together to improve secondary breast cancer services in your hospital COOL119_Western park booklet.indd 1 30/11/ :31

2 The Breast Team at Weston Park Hospital are already proud of the care they provide for Secondary Breast Cancer patients but recognise that there are always improvements that can be made and are committed to ensuring that the service given to patients is the best it can be. It has been a very positive experience working in partnership with our patients in developing this Pledge and we are looking forward to continuing to work together in the future to provide an excellent service. The Breast Care Team Your care at Weston Park Hospital 3 Our Clinical Nurse Specialist Service 4 What is a Holistic Needs Assessment? 4 When can I see my breast clinical nurse specialist key worker? 5 Your healthcare team 7 Your treatment and care 7 Other services your CNS can help you access 9 The Hospital Palliative Care Team 10 St Luke s Community Team 11 The Clinical Trials Team 12 Do your bit 13 We re working on it 13 Other support organisations 14 Breast Cancer Care 14 Breast Cancer Now 15 Weston Park Hospital Whitham Road Sheffield S10 2SJ Phone: COOL119_Western park booklet.indd 2 30/11/ :31

3 YOUR CARE AT WESTON PARK HOSPITAL We re working hard to make sure you are happy with the treatment and support you receive. However, we know from national research that sometimes people with secondary breast cancer don t receive the support and care they need, and that the way services are organised and delivered can sometimes be confusing and difficult to find your way around. That s why we re working with Breast Cancer Now and Breast Cancer Care on our Secondary Breast Cancer Pledge. The Pledge gives patients the opportunity to speak up about what matters most to patients about your local service and help improve these things. Where we could do better With most things there s room for improvement, and services for people with secondary breast cancer are no different. That s why we ve asked our patients to fill in surveys and talked to them about their experiences to help us understand what is important for them. This booklet tells you what you can expect from Weston Park Hospital as well as the improvements we are making. It is based on both national guidelines and what Weston Park Hospital patients have told us needs to be improved. Not all the improvements suggested can be done overnight, so on page 13 you ll see a list of what we re working on at Weston Park Hospital in the long term. Talk to us You ve probably got your own ideas on what would improve your care. If you have, let us know. By telling us what you want, you ll be helping to develop and improve the services we offer to patients with secondary breast cancer. Secondary Breast Cancer Pledge 3 COOL119_Western park booklet.indd 3 30/11/ :31

4 OUR CLINICAL NURSE SPECIALIST SERVICE The breast cancer Clinical Nurse Specialist (CNS) team at Weston Park are nurses who specialise in breast cancer nursing and palliative care. They work as part of a team helping to support people who have secondary breast cancer. This means the primary cancer in your breast has spread to another part of your body. When secondary breast cancer is diagnosed it can be a difficult time for you and your family. The CNS Team can offer a range of help and support during this time and in the future. Our team also provides an outreach service at Chesterfield Royal Hospital. You will be introduced to a named Clinical Nurse Specialist who will act as your keyworker Your Clinical Nurse Specialist keyworker is: Name Phone Your keyworker can support you by: Providing emotional support and time to talk over your concerns and worries Giving support to your family or carers Providing information and advice about your treatment Providing information and advice about any troublesome symptoms that you may have Providing information for children Helping you to identify sources of practical help Carrying out the assessment and management of mild to moderate lymphoedema Identifying other specialised professionals who may be able to give further support to you Acting as a link between hospital and home Referring patients who live outside of Sheffield to appropriate specialists who can support them locally Offering a holistic needs assessment 4 Secondary Breast Cancer Pledge COOL119_Western park booklet.indd 4 30/11/ :31

5 What is a holistic needs assessment? A holistic needs assessment gives you the opportunity to talk about your concerns with your CNS. This can be physical, emotional, family or social, religious or spiritual, treatment related, or any other worries you may have. A holistic needs assessment helps your key worker to help you. If you would like to book an appointment for a holistic needs assessment please talk to your key worker. Additionally you can use your my patient record from your resource pack to discuss any concerns with your CNS at your clinic appointment. When can I see my breast clinical nurse specialist key worker? The Breast Clinical Nurse Specialist (CNS) support service can be provided face to face or on the phone. If you are attending Weston Park Hospital you can see the Breast CNS in clinic, on the ward or when you attend for treatment. If you are attending Chesterfield Royal hospital you can see your Breast CNS in the Thursday clinic. You can ring the CNS Team to arrange to see them or ask one of the nurses or radiographers looking after you to contact them. Sometimes your key worker CNS may not be able to see you when you attend your clinic appointment. If this happens, you can ring them if you want to talk with them. You can also make an appointment to see your key worker outside of the clinic. You can contact the breast CNS team on the following number: If a nurse from the breast CNS team is not available when you ring please leave a message and they will return your call as soon as possible. Secondary Breast Cancer Pledge 5 COOL119_Western park booklet.indd 5 30/11/ :31

6 Your breast CNS team are here to provide you with a full range of help and support throughout your illness. 6 Secondary Breast Cancer Pledge COOL119_Western park booklet.indd 6 30/11/ :31

7 Your healthcare team You will receive a multidisciplinary team approach to your care, which means that all healthcare professionals who contribute to the medical and nursing management of your care meet regularly to discuss your situation, so that you receive the best care for you. Your team includes members of the oncology and palliative care teams to ensure all aspects of your care are considered. To make sure you get consistent care between the hospital and community services, communication between the hospital-based team and your GP (local doctor) will be as efficient as possible. Your GP will be informed and kept up to date about your condition and will be able to provide support and care when appropriate. You can decide whether you get copies of letters sent to your GP about your treatment. Sometimes when you attend clinic you may be assessed by one of our chemotherapy nurses or pharmacists. You can ask to see your breast CNS key worker if you wish. Your treatment and care You will be given timely information on all aspects of your treatment and care both verbally and in writing. This includes a care plan and information about the purpose of your treatment, the side effects, and the potential impact on your wellbeing. When any new treatment is proposed, you ll get written information about its potential benefits, risks and side-effects, with time to decide whether you want it. Any treatment you have will be explained to you beforehand and you can ask questions. Your information needs should be assessed on a regular basis and updated information provided about your diagnosis, test results and treatment plan, whenever any of these change. Support should be provided alongside all information given. Your Breast CNS can put you in touch with different members of our multi-disciplinary team who can offer you additional support (please see page 9). Secondary Breast Cancer Pledge 7 COOL119_Western park booklet.indd 7 30/11/ :31

8 All the information you get should be right for you, whether that means it is in Braille, recorded, or in your chosen language. Your healthcare team will talk to you clearly and sensitively, using words you understand. You will have access to all appropriate treatments and where appropriate, be made aware of the availability of clinical trials for which you may be eligible before treatment is started or changed. You can be as involved as you want to be in decisions about your care and treatment. However much involvement you d like, your options will be clearly explained and you ll get the time, information and support you need to make your decision. You can expect to be treated somewhere clean and safe. Some medicines you might be taking could interact with your treatment. Tell your consultant about any medicines you are taking, including complementary medicines. Your treatment plan has been designed specifically for you. If you have any concerns, please discuss these with the team caring for you before stopping or changing your agreed treatment plan. If you do decide to stop treatment, you can do so at any time and your decision will always be respected. You can ask for a second opinion about your diagnosis and treatment. If you want a second opinion, you can talk to your clinical nurse specialist about how to do this. 8 Secondary Breast Cancer Pledge COOL119_Western park booklet.indd 8 30/11/ :31

9 Your Breast CNS can link you to a wide range of services, depending on your needs and wishes Oncologist (early appointment) Clinical Psychologist Social Worker/ Occupational Therapist/ Physio Charities such as Willow Foundation Discharge liaison Benefits Adviser Genetics Living with Secondary Breast Cancer meet-ups Lymphoedema service GP/District Nurse Complementary Therapies Hospital specialist palliative care team Bereavement services for relatives Community specialist palliative care team Chaplain Cancer Support Centre Secondary Breast Cancer Pledge 9 COOL119_Western park booklet.indd 9 30/11/ :31

10 The Hospital Palliative Care Team The Specialist Palliative Care Team can see people on the ward or in the Outpatient Department in one of the Consultant Palliative Care clinics. They also work closely with the Community Palliative Care services and can help refer onto this service. Palliative Care can be provided alongside treatment, not just towards the end of an illness. Your Breast CNS Team works closely with the Palliative Care Team and they can refer you if they feel input from the Specialist Palliative Care Team would be helpful. The Specialist Palliative Care Team can support you at any stage of your illness. Palliative Care aims to improve the quality of life of people (including carers) affected by serious illness, by paying attention to physical, psychological, social and spiritual concerns. At Weston Park Hospital the Specialist Palliative Care Team is made up of doctors and nurses who work in partnership with your Oncologist, Breast CNS and the ward team to support you with symptom control, emotional concerns and help with planning for the future. 10 Secondary Breast Cancer Pledge COOL119_Western park booklet.indd 10 30/11/ :31

11 St Luke s Community Team St Luke s Community Team work across the whole of Sheffield. They take their specialist palliative care knowledge and expertise out into the community, and they are part of a wider team of doctors, nurses, therapists and healthcare professionals. The service operates 7 days a week and provides same day face-to-face assessment and interventions for patients and their families requiring urgent assistance. The team works closely with patients and families and visits them in their own homes, including residential and nursing homes, throughout their illness to enable them to have the best possible quality of life, relief from symptoms and flexible choices about where they are looked after. Each patient has their own designated community specialist palliative care nurse, who assesses both the patient s and family s needs and can provide highly specialised knowledge, support and advice to them and other health care professionals caring for them. They also provide emotional and psychological support to patients and their families and can give home-based access to other St Luke s services depending on their individual needs. The Community Team works in partnership with GPs, district nurses, hospital consultants, specialist hospital nurses and other health professionals to develop tailor-made programmes of care that meet the individual needs of each of their home-based patients. They are unable to provide intensive home nursing or help with daily physical care, but if a patient requires this level of nursing, they can help organising this through the District Nurse or Sheffield s city-wide intensive home nursing service. Secondary Breast Cancer Pledge 11 COOL119_Western park booklet.indd 11 30/11/ :31

12 The Clinical Trials Team We are fortunate in Sheffield to have the Cancer Clinical Trials Centre within Weston Park Hospital; a renowned centre of excellence for cancer research which includes a dedicated research team and a bespoke treatment suite for new therapies. We are involved in local, national and international cancer research in order to develop more effective cancer treatments for patients. These include new medications and methods for performing surgery and giving radiotherapy, along with new drugs to combat side effects of treatment. All the treatments you receive now are due to previous research. The success of our research depends upon the willingness of patients to enter into research studies. We have numerous trials open at Weston Park and they may offer additional treatment options during your cancer therapy. Although trials are not for everyone we firmly believe it is your right to be informed of opportunities that may be available to you. If you wish to know more or are interested in participating in a clinical trial then we encourage you to discuss this further with your cancer physician who will be able to put you in touch with the research team. If you decide to have a clinical trial treatment you will be allocated a research nurse to support you. While you are on a trial you won t see your breast CNS key worker as much. However, they will still be available to you if you need them and you can phone them on their usual number. Your breast CNS will re-connect with you when your trial treatment is completed. 12 Secondary Breast Cancer Pledge COOL119_Western park booklet.indd 12 30/11/ :31

13 We re working on it Secondary Breast Cancer patients at Weston Park Hospital spotted these areas where we could do better. Here s what we plan to do and when. What you told us You wanted more information about talking to children and dependents You wanted more information about Clinical Trials You wanted to be told about Palliative Care Services You were concerned that GPs did not refer patients for scans/ investigations early enough You wanted ongoing opportunities to feed back your views on our services What we re doing about it We are producing information packs so we can let you know about services for your children and carers We do talk to you about this, but we are going to regularly check back with you that your information needs in this area are met We have included a section in our new booklet to help remind you about our Clinical Trials at Weston Park Hospital We will ensure we introduce Palliative Care Services to you when we initially meet you and will include a section in our new leaflet to explain what Palliative Care is and how we work as a team with you We are working with our Oncology Consultant Team on an education package/ secondary breast cancer awareness poster for GPs to raise awareness of secondary breast cancer signs and symptoms A CNS will attend a Living with Secondary Breast Cancer meet-up at least once a year to actively seek feedback from patients. At other times, or if you don t attend, you can give any comments or suggestions directly to your CNS When we re aiming for Dec 2017 Feb 2018 Dec 2017 Dec 2017 Oct Dec 2018 June 2018 Secondary Breast Cancer Pledge 13 COOL119_Western park booklet.indd 13 30/11/ :31

14 Other support organisations Weston Park Cancer Information and Support Centre 23 Northumberland Road Sheffield S10 2TX Breast Cancer Care Free helpline Monthly Living with Secondary Breast Cancer meet-ups Cavendish Centre for Cancer Care Lymphoedema information and support network Chesterfield Royal Hospital Ashgate Hospice www. ashgatehospicecare.org.uk Nenna Kind complementary therapies and benefits advice Secondary Breast Cancer Pledge COOL119_Western park booklet.indd 14 30/11/ :32

15 Breast Cancer Care We are the only UK wide charity providing care, information and support to people affected by breast cancer. We know that after a diagnosis of secondary breast cancer, nothing is ever the same again. That s why we provide specialist support and information services for people who have been told their cancer can no longer be cured. Our clinical expertise and emotional support network help people find a way to live with secondary breast cancer, making the most of every day. Across the UK we give people the chance to meet regularly with others with a secondary breast cancer diagnosis face to face or online to share experiences and support. Our information is used in breast care units across the UK, including our Secondary Breast Cancer Resource Pack. We provide opportunities for secondary breast cancer nurses to develop their skills and share best practice and we press for improvement at all levels of the NHS and government. To find out more visit breastcancercare.org.uk/secondaries or call our free Helpline for support and information on Breast Cancer Now We re Breast Cancer Now, the UK s largest breast cancer charity and we re dedicated to funding research into this devastating disease. At our heart we have a clear aim: to make sure that, by 2050, everyone who develops breast cancer will live. But it s only by standing together with all those affected by the disease, and speaking together with one clear voice, that we ll make it happen. Right now, people all across the UK are giving their time to make sure our work can continue whether that s raising money, increasing awareness, making their voices heard or improving the way our society views and responds to breast cancer. And the more people who join us, the sooner we ll stop women dying. To find out more, go to breastcancernow.org Secondary Breast Cancer Pledge 15 COOL119_Western park booklet.indd 15 30/11/ :32

16 Breast Cancer Now Ibex House Minories London EC3N 1DY breastcancernow.org Breast Cancer Now is a charity registered in England & Wales ( ), Scotland (SC045584) and the Isle of Man (1200). Breast Cancer Care Chester House 1 3 Brixton Road London SW9 6DE breastcancercare.org.uk Breast Cancer Now is a charity registered in England & Wales ( ) and Scotland (SC038104). COOL119_Western park booklet.indd 16 30/11/ :32

Neuro-Oncology Multi Disciplinary Team Patient Information

Neuro-Oncology Multi Disciplinary Team Patient Information Neuro-Oncology Multi Disciplinary Team Patient Information Introduction This booklet is for people who have been diagnosed with brain or spinal tumours. It tells you about your regional neuro-oncology

More information

University College Hospital. The lung cancer multidisciplinary team. Information for patients and carers

University College Hospital. The lung cancer multidisciplinary team. Information for patients and carers University College Hospital The lung cancer multidisciplinary team Information for patients and carers 2 If you would like this document in another language or format, or require the services of an interpreter,

More information

Skin Cancer Multi Disciplinary Team Patient Information

Skin Cancer Multi Disciplinary Team Patient Information Skin Cancer Multi Disciplinary Team Patient Information Introduction This booklet is for people who have been diagnosed with skin cancer. It tells you about the skin cancer multidisciplinary team (MDT)

More information

An introduction to the multi-disciplinary team for bowel and anal cancer

An introduction to the multi-disciplinary team for bowel and anal cancer An introduction to the multi-disciplinary team for bowel and anal cancer Providing support for patients and their families at the Royal Sussex County Hospital An introduction to the Multidisciplinary team

More information

Colorectal Cancer Multi Disciplinary Team Patient Information

Colorectal Cancer Multi Disciplinary Team Patient Information Colorectal Cancer Multi Disciplinary Team Patient Information Introduction This booklet is for people who have been diagnosed with colorectal cancer (cancer of the colon and rectum which is part of your

More information

Guy s, King s and St Thomas cancer services The Cancer Outpatient Clinic Your cancer of unknown primary (CUP) team

Guy s, King s and St Thomas cancer services The Cancer Outpatient Clinic Your cancer of unknown primary (CUP) team Guy s, King s and St Thomas cancer services The Cancer Outpatient Clinic Your cancer of unknown primary (CUP) team When we have been able to find cancer but not the original site, we call this cancer of

More information

Colorectal Multi Disciplinary Team

Colorectal Multi Disciplinary Team Colorectal Multi Disciplinary Team Patient Information Introduction This booklet is for people who have been diagnosed with Colorectal Cancer. There are many people involved in providing cancer health

More information

NHS CANCER SERVICES FOR CHILDREN

NHS CANCER SERVICES FOR CHILDREN NHS CANCER SERVICES FOR CHILDREN 2 NHS cancer services for children WHAT YOU CAN EXPECT When you ve heard that your child has cancer, there s a lot to take in. It can feel overwhelming, and be difficult

More information

Hepato-Pancreatobiliary Cancer Multi Disciplinary Team Patient Information

Hepato-Pancreatobiliary Cancer Multi Disciplinary Team Patient Information Hepato-Pancreatobiliary Cancer Multi Disciplinary Team Patient Information Introduction This booklet is for people who have been diagnosed with hepato-pancreatobiliary (HPB) cancers which include cancer

More information

Countess Mountbatten House. Information for patients, families and carers

Countess Mountbatten House. Information for patients, families and carers Countess Mountbatten House Information for patients, families and carers Contents About the service 3 The inpatient unit 5 The Hazel Centre 7 The chaplaincy service 9 The hospital palliative care team

More information

About me. This page was updated by. Date (dd/mm/yy) Name. has been diagnosed with. My home address. My date of birth is (dd/mm/yy) My NHS number is

About me. This page was updated by. Date (dd/mm/yy) Name. has been diagnosed with. My home address. My date of birth is (dd/mm/yy) My NHS number is About me This page was updated by Date (dd/mm/yy) Name has been diagnosed with My home address My date of birth is (dd/mm/yy) My NHS number is My hospital number is The hospital I go to is My contact at

More information

University College Hospital. The Myeloma Cancer Multi-Disciplinary Team. University College Hospital Macmillan Cancer Centre

University College Hospital. The Myeloma Cancer Multi-Disciplinary Team. University College Hospital Macmillan Cancer Centre University College Hospital The Myeloma Cancer Multi-Disciplinary Team University College Hospital Macmillan Cancer Centre 1 Contents Page 1. Introduction 2 2. Medical teams 3 3. Key Worker 3 4. Clinical

More information

Guy s, King s and St Thomas cancer services The Cancer Outpatient Clinic Your haemato-oncology team Information for patients with myeloma

Guy s, King s and St Thomas cancer services The Cancer Outpatient Clinic Your haemato-oncology team Information for patients with myeloma Guy s, King s and St Thomas cancer services The Cancer Outpatient Clinic Your haemato-oncology team Information for patients with myeloma Welcome to Guy's and St Thomas' NHS Foundation Trust. Your doctor

More information

Introduction to the lung cancer multi disciplinary team (MDT)

Introduction to the lung cancer multi disciplinary team (MDT) Royal Berkshire NHS Foundation Trust London Road Reading Berkshire RG1 5AN 0118 322 51111 (Switchboard) www.royalberkshire.nhs.uk This document can be made available in other languages and formats upon

More information

Hospital Specialist Palliative Care Service

Hospital Specialist Palliative Care Service Hospital Specialist Palliative Care Service What is palliative care? Palliative care is an approach that aims to improve the quality of life for patients facing a serious illness and their familes, through

More information

Community Mental Health Teams (CMHTs)

Community Mental Health Teams (CMHTs) Community Mental Health Teams (CMHTs) Community Mental Health Teams (CMHTs) support people living in the community who have complex or serious mental health problems. Different mental health professionals

More information

Information for patients with gynaecological cancer. Departments of gynaecology, oncology and gynaecological oncology

Information for patients with gynaecological cancer. Departments of gynaecology, oncology and gynaecological oncology Information for patients with gynaecological cancer Departments of gynaecology, oncology and gynaecological oncology This booklet gives further information about cancers of the female reproductive system

More information

University College Hospital. The Specialist Centre for Head and Neck Cancer. Information for patients and carers

University College Hospital. The Specialist Centre for Head and Neck Cancer. Information for patients and carers University College Hospital The Specialist Centre for Head and Neck Cancer Information for patients and carers 1 Contents Page (s) 1. Introduction 2 2. Head and Neck Cancer Service at University 2 College

More information

6: What care is available?

6: What care is available? 6: What care is available? This section identifies and explains the types of care on offer at end of life and who is involved. The following information is an extracted section from our full guide End

More information

Gynaecology Oncology Multi-Disciplinary Team (MDT) Information for patients and relatives

Gynaecology Oncology Multi-Disciplinary Team (MDT) Information for patients and relatives University Teaching Trust Gynaecology Oncology Multi-Disciplinary Team (MDT) Information for patients and relatives Brooke Building Gynaecology 0161 206 5224 All Rights Reserved 2017. Document for issue

More information

Job Description. Job title: Uro-Oncology Clinical Nurse Specialist Band: 7

Job Description. Job title: Uro-Oncology Clinical Nurse Specialist Band: 7 Job Description Job title: Uro-Oncology Clinical Nurse Specialist Band: 7 Department: Cancer Services Hours: 37.5 (min 22.5 hrs) Reports to: Lead Nurse for Cancer We are a pioneering research active organisation

More information

Marie Curie Northern Ireland Patient Guide

Marie Curie Northern Ireland Patient Guide Marie Curie Northern Ireland Patient Guide Date of Issue: November 2014 Review date: November 2017 Contents 1. Introduction 1 2. Respect for patient s rights 3 3. What you can expect from our staff and

More information

End of life care. Patient Guide

End of life care. Patient Guide 8 End of life care Patient Guide What happens? There is a point for many in the brain tumour journey when either the disease no longer responds to treatment, or you have had all treatment that is available

More information

SCOTTISH WIDOWS CARE

SCOTTISH WIDOWS CARE SCOTTISH WIDOWS CARE SCOTTISH WIDOWS CARE There when you need us for more than just financial help SCOTTISH WIDOWS CARE WHAT IS SCOTTISH WIDOWS CARE? By selecting Scottish Widows Protect you are giving

More information

Greater Manchester Neuro-Rehabilitation Services information for patients and carers

Greater Manchester Neuro-Rehabilitation Services information for patients and carers THIS BOOKLET IS BEING TRIALLED Greater Manchester Neuro-Rehabilitation Services information for patients and carers Greater Manchester Neuro-Rehabilitation Services gmnrodn@srft.nhs.uk All Rights Reserved

More information

CARE OF THE DYING IN THE NHS. The Buckinghamshire Communique 11 th March The Nuffield Trust

CARE OF THE DYING IN THE NHS. The Buckinghamshire Communique 11 th March The Nuffield Trust CARE OF THE DYING IN THE NHS The Buckinghamshire Communique 11 th March 2003 The Nuffield Trust Everyone should be able to expect a good death and to exert control, as far as possible, over the process

More information

An introduction to the multi-disciplinary team for breast cancer

An introduction to the multi-disciplinary team for breast cancer An introduction to the multi-disciplinary team for breast cancer Providing support for patients and their families at the Royal Sussex County Hospital We would like to introduce you to the multi-disciplinary

More information

Supporting people who need Palliative and End of Life Care in the Community. Giving people a choice

Supporting people who need Palliative and End of Life Care in the Community. Giving people a choice Supporting people who need Palliative and End of Life Care in the Community Giving people a choice Introduction People who are terminally ill or at the end of their life need excellent nursing and medical

More information

Hospice Care. Information for Patients, Families and Carers

Hospice Care. Information for Patients, Families and Carers Hospice Care Information for Patients, Families and Carers Our thanks go to the patients and family members who have contributed to this publication. Registered Scottish Charity No. SC012372 Rhona M Baillie

More information

End of Life Care Strategy

End of Life Care Strategy End of Life Care Strategy 2016-2020 Foreword Southern Health NHS Foundation Trust is committed to providing the highest quality care for patients, their families and carers. Therefore, I am pleased to

More information

Job Description. Job title: Gynae-Oncology Clinical Nurse Specialist Band: 7. Department: Cancer Services Hours: 30

Job Description. Job title: Gynae-Oncology Clinical Nurse Specialist Band: 7. Department: Cancer Services Hours: 30 Job Description Job title: Gynae-Oncology Clinical Nurse Specialist Band: 7 Department: Cancer Services Hours: 30 Reports to: Lead Nurse for Cancer We are a pioneering research active organisation and

More information

FULL TEAM AHEAD: UNDERSTANDING THE UK NON-SURGICAL CANCER TREATMENTS WORKFORCE

FULL TEAM AHEAD: UNDERSTANDING THE UK NON-SURGICAL CANCER TREATMENTS WORKFORCE FULL TEAM AHEAD: UNDERSTANDING THE UK NON-SURGICAL CANCER TREATMENTS WORKFORCE DECEMBER 2017 Publication date 04/12/17 Registered Charity in England and Wales (1089464), Scotland (SC041666) and the Isle

More information

My treatment plan booklet

My treatment plan booklet Oesophago-gastric service My treatment plan booklet Information for patients, relatives and carers Details about me Name: Address: Date of birth: Telephone number: NHS Number: Emergency contact details

More information

DRAFT Optimal Care Pathway

DRAFT Optimal Care Pathway DRAFT Optimal Care Pathway 1. Introduction... 3 1.1 Background... 3 1.2 Intent of the Optimal Care Pathways... 3 1.3 Key principles of care... 3 2. Steps in the care of patients with x cancer... 4 Step

More information

Health and care services in Herefordshire & Worcestershire are changing

Health and care services in Herefordshire & Worcestershire are changing Health and care services in Herefordshire & Worcestershire are changing An update on a five year plan to provide safe, effective and sustainable care in our area www.yourconversationhw.nhs.uk Your Health

More information

MY CROHN S AND COLITIS CARE YOUR GUIDE

MY CROHN S AND COLITIS CARE YOUR GUIDE MY CROHN S AND COLITIS CARE YOUR GUIDE Sometimes living with IBD is frustrating but having the right information and support has helped me to feel more in control of my life. Melissa, 44 Diagnosed with

More information

Serious Medical Treatment Decisions. BEST PRACTICE GUIDANCE FOR IMCAs END OF LIFE CARE

Serious Medical Treatment Decisions. BEST PRACTICE GUIDANCE FOR IMCAs END OF LIFE CARE Serious Medical Treatment Decisions BEST PRACTICE GUIDANCE FOR IMCAs END OF LIFE CARE Contents Introduction... 3 End of Life Care (EoLC)...3 Background...3 Involvement of IMCAs in End of Life Care...4

More information

Learning from the National Care of the Dying 2014 Audit. Dr Bill Noble Medical Director, Marie Curie Cancer Care

Learning from the National Care of the Dying 2014 Audit. Dr Bill Noble Medical Director, Marie Curie Cancer Care Learning from the National Care of the Dying 2014 Audit Dr Bill Noble Medical Director, Marie Curie Cancer Care MARIE CURIE Major UK end of life charity Major service provider Network of 2000 Nurses caring

More information

Community Specialist Palliative Care Team

Community Specialist Palliative Care Team Community Specialist Palliative Care Team Call Us: 020 8102 5383 Call us: 020 8102 5383 Welcome to Pembridge We take a holistic, compassionate approach to improving quality of life for our patients and

More information

TOPIC 9 - THE SPECIALIST PALLIATIVE CARE TEAM (MDT)

TOPIC 9 - THE SPECIALIST PALLIATIVE CARE TEAM (MDT) TOPIC 9 - THE SPECIALIST PALLIATIVE CARE TEAM (MDT) Introduction The National Institute for Clinical Excellence has developed Guidance on Supportive and Palliative Care for patients with cancer. The standards

More information

Coming out of hospital

Coming out of hospital factsheet Coming out of hospital This factsheet applies to England only. carersuk.org factsheet Deciding to care or continue caring for someone who is coming out of hospital and who can no longer care

More information

Pay for a. Day. Help support people at the Marie Curie Hospice, Edinburgh by paying for 24 hours of care on a day of your choice.

Pay for a. Day. Help support people at the Marie Curie Hospice, Edinburgh by paying for 24 hours of care on a day of your choice. Pay for a Day Help support people at the Marie Curie Hospice, Edinburgh by paying for 24 hours of care on a day of your choice. Every day matters The Marie Curie Hospice, Edinburgh is here for people living

More information

Community Palliative Care Service for Western Sydney. Information for clients

Community Palliative Care Service for Western Sydney. Information for clients Community Palliative Care Service for Western Sydney Information for clients Who we are Silver Chain Group is a not-for-profit organisation and the largest provider of community-based palliative care services

More information

Health and social care professionals programme. A short guide

Health and social care professionals programme. A short guide Health and social care professionals programme A short guide Health and social care professionals The health and social care professionals programme, funded by our committed partners Royal Mail and The

More information

Framework for Cancer CNS Development (Band 7)

Framework for Cancer CNS Development (Band 7) Framework for Cancer CNS Development (Band 7) Opening Statement This framework provides a common understanding of the CNS role across the London Cancer Alliance and will be used to support the development

More information

A guide to Health Select/Health Select 6

A guide to Health Select/Health Select 6 Private healthcare insurance A guide to Health Select/Health Select 6 Put your health first with private healthcare insurance from AXA PPP healthcare healthcare Nothing is more important than your health

More information

End of Life Care in the Acute Hospital Setting. Dr Adam Brown Consultant in Palliative Medicine

End of Life Care in the Acute Hospital Setting. Dr Adam Brown Consultant in Palliative Medicine End of Life Care in the Acute Hospital Setting Dr Adam Brown Consultant in Palliative Medicine Learning objectives Understanding a patient's priorities for end of life care How to work with the 5 priorities

More information

Caring for you at Hospice and Home.

Caring for you at Hospice and Home. Caring for you at Hospice and Home www.saintcatherines.org.uk CONTENTS Introduction 1 Where it all began 2 Services 3 5 In-Patient Unit Outpatients Clinic Day Hospices Physio and Occupational Therapy Lymphoedema

More information

LEADERS IN ONCOLOGY CARE at London Bridge Hospital

LEADERS IN ONCOLOGY CARE at London Bridge Hospital LEADERS IN ONCOLOGY CARE at London Bridge Hospital London Bridge Hospital is a trading name of HCA International Limited. Registered in England and Wales No. 03020522. Registered address: 242 Marylebone

More information

HSF Assist Providing support and advice when it is most needed

HSF Assist Providing support and advice when it is most needed HSF Assist Providing support and advice when it is most needed Welcome to HSF Assist An Employee Assistance Programme from HSF health plan HSF Assist is a proactive resource that helps you with day-to-day

More information

Referral & Admission Policy & Procedure (CL025)

Referral & Admission Policy & Procedure (CL025) WILLEN HOSPICE Referral & Admission Policy & Procedure (CL02) Approved By Senior Management Team Date of Approval January 2017 Author(s) & Role(s) S.Leverett, Senior Sister Review Date January 2020 Amendment

More information

The following staff are involved in your friend or relatives care. Their names and contact details are below.

The following staff are involved in your friend or relatives care. Their names and contact details are below. The Orchard Clinic The Royal Edinburgh Hospital: An information guide for relatives and carers Useful contacts for you The following staff are involved in your friend or relatives care. Their names and

More information

A Career in Palliative Medicine in the West Midlands

A Career in Palliative Medicine in the West Midlands A Career in Palliative Medicine in the West Midlands What is Palliative Medicine? Palliative medicine is the active holistic care of patients with advanced life limiting illness. The job involves symptom

More information

At the heart of our community

At the heart of our community At the heart of our community St. Gemma s Hospice Strategy 2011 2016 Mission Statement St. Gemma s provides compassionate and skilled specialist palliative care of the highest quality, both in the Hospice

More information

Continuing NHS Healthcare for Adults in Wales. Public Information Leaflet

Continuing NHS Healthcare for Adults in Wales. Public Information Leaflet Continuing NHS Healthcare for Adults in Wales Public Information Leaflet June 2014 Printed on recycled paper Print ISBN 978 1 4734 1510 2 Digital ISBN 978 1 4734 1508 9 Crown copyright 2014 WG22137 What

More information

Module 2 Excellence in practice

Module 2 Excellence in practice Module 2 Excellence in practice This module sets out the key skills required by specialist nurses caring for patients with metastatic breast cancer. It also examines key interventions undertaken by nurses

More information

A Family Companion. to the Together for Short Lives Core Care Pathway for Children with Life-limiting and Life-threatening Conditions

A Family Companion. to the Together for Short Lives Core Care Pathway for Children with Life-limiting and Life-threatening Conditions A Family Companion to the Together for Short Lives Core Care Pathway for Children with Life-limiting and Life-threatening Conditions Third edition, 2014 www.togetherforshortlives.org.uk A Family Companion

More information

Discharge from hospital

Discharge from hospital Page 1 of 9 Discharge from hospital for patients, carers and relative Introduction Welcome to our Trust. This leaflet is about planning to leave hospital (also known as discharge from hospital). Please

More information

Woking & Sam Beare Hospices

Woking & Sam Beare Hospices Woking & Sam Beare Hospices Introduction Woking Hospice was set up 20 years ago. From that early beginning, it has developed to become a local centre of excellence, as is the case with all Hospices in

More information

National Cancer Patient Experience Survey National Results Summary

National Cancer Patient Experience Survey National Results Summary National Cancer Patient Experience Survey 2015 National Results Summary Introduction As in previous years, we are hugely grateful to the tens of thousands of cancer patients who responded to this survey,

More information

SERVICE SPECIFICATION

SERVICE SPECIFICATION SERVICE SPECIFICATION Service Rotherham Hospice Lead Gail Palmer Provider Lead Paula Hill / Mike Wilkerson Period 21 st July 2010 20 th July 2013 1. Purpose This specification describes the services which

More information

Hospice Isle of Man Education Prospectus 2018

Hospice Isle of Man Education Prospectus 2018 Hospice Isle of Man Education Prospectus 2018 Leading the Way in Palliative Care Introduction The need for palliative and end of life care is changing, with increasing demands and complexity for patients

More information

Service Mapping Report

Service Mapping Report Service Mapping Report Background and purpose One of the roles of the Southern Melbourne Integrated Cancer Service (SMICS) is to map cancer services provided to adults by Bayside Health, Cabrini Health,

More information

Perceptions of the role of the hospital palliative care team

Perceptions of the role of the hospital palliative care team NTResearch Perceptions of the role of the hospital palliative care team Authors Catherine Oakley, BSc, RGN, is Macmillan lead cancer nurse, St George s Hospital NHS Trust, London; Kim Pennington, BSc,

More information

EONS Clinical travel Grant 2016 report from Charlotte Weston, Breast Clinical Nurse Specialist, The Royal Marsden NHS Foundation Trust

EONS Clinical travel Grant 2016 report from Charlotte Weston, Breast Clinical Nurse Specialist, The Royal Marsden NHS Foundation Trust EONS Clinical travel Grant 2016 report from Charlotte Weston, Breast Clinical Nurse Specialist, The Royal Marsden NHS Foundation Trust For the European Oncology Nursing Society, EONS, travel grant 2016

More information

JOB DESCRIPTION. Consultant in Palliative Medicine GENERAL

JOB DESCRIPTION. Consultant in Palliative Medicine GENERAL JOB DESCRIPTION JOB TITLE DEPARTMENT REPORTS TO ACCOUNTABLE TO Consultant in Palliative Medicine Medical Team Lead Consultant Director of Patient Care GENERAL ellenor is a specialist palliative care provider

More information

Having a sentinel lymph node biopsy and wide excision for melanoma

Having a sentinel lymph node biopsy and wide excision for melanoma Having a sentinel lymph node biopsy and wide excision for melanoma This leaflet has been given to you to help answer questions you may have about sentinel lymph node biopsy and wide excision. It explains

More information

Specialist renal multidisciplanary

Specialist renal multidisciplanary Specialist renal multidisciplanary team (SMDT) The specialist centre for kidney cancer at the Royal Free is an expert centre which leads and coordinates the care of people with kidney cancer. Patients

More information

Community pharmacy and palliative care

Community pharmacy and palliative care 8 This module is also online at pharmacymagazine.co.uk CPD MODULE module 261 Community pharmacy and palliative care Contributing author: Louise Baglole, healthcare/ pharmacy consultant and medical writer

More information

Referral Handbook A guide to referral criteria for St Ann s Hospice services

Referral Handbook A guide to referral criteria for St Ann s Hospice services Referral Handbook A guide to referral criteria for St Ann s Hospice services Inpatient Care Day Therapy Community Support St Ann s Hospice St Ann s Road North, Heald Green, Cheadle, Cheshire SK8 3SZ Tel:

More information

top Tips guide To supportive and palliative

top Tips guide To supportive and palliative top Tips guide To supportive and palliative care meetings Patients value care that is high quality and co ordinated. Efficient meetings in a Primary Care setting are of great importance in ensuring that

More information

North Central London Sustainability and Transformation Plan. A summary

North Central London Sustainability and Transformation Plan. A summary Sustainability and Transformation Plan A summary N C L Introduction Hospitals, local authorities, GPs, commissioners, and mental health trusts across north central London have all come together to transform

More information

End of Life Care Strategy PROUD TO MAKE A DIFFERENCE

End of Life Care Strategy PROUD TO MAKE A DIFFERENCE End of Life Care Strategy 2017-2019 PROUD TO MAKE A DIFFERENCE Background Sheffield Teaching Hospitals NHS Trust is committed to delivering high quality care to patients and those identified as important

More information

Sutton Homes of Care Vanguard Programme

Sutton Homes of Care Vanguard Programme Sutton Homes of Care Vanguard Programme An Innovative End of Life Care model for care homes Kings Fund Conference 6 th December 2016 Corinne Campion, Clinical Nurse Specialist, Supportive Care Home Team

More information

Meeting people s needs A Wales Cancer Alliance Policy Paper Summer 2017

Meeting people s needs A Wales Cancer Alliance Policy Paper Summer 2017 Meeting people s needs A Wales Cancer Alliance Policy Paper Summer 2017 Meeting people s needs: overview More work needs to be done to meet the needs of patients, both as they undergo treatment for cancer

More information

August Planning for better health and care in North London. A public summary of the NCL STP

August Planning for better health and care in North London. A public summary of the NCL STP August 2017 Planning for better health and care in North London A public summary of the NCL STP Planning for better health and care in North London North London NHS organisations are working together with

More information

Care and Treatment Review: Policy and Guidance

Care and Treatment Review: Policy and Guidance Care and Treatment Review: Policy and Guidance With policy and guidance on Care, Education and Treatment Reviews for children and young people Easy Read Version 2017 1 Contents Foreword from Gavin Harding...

More information

SELF ASSESSMENT REPORT (MULTI-DISCIPLINARY TEAM)

SELF ASSESSMENT REPORT (MULTI-DISCIPLINARY TEAM) SELF ASSESSMENT REPORT (MULTI-DISCIPLINARY TEAM) Network Trust MDT MDT Lead Clinician MCCN WIRRAL UNIVERSITY TEACHING Wirral Breast MDT (11-2B-1) - 2011/12 Miss M Callaghan Compliance Self Assessment BREAST

More information

Hospice Care for anyone considering hospice

Hospice Care for anyone considering hospice A decision aid for Care for anyone considering hospice You or a loved one have been diagnosed with a serious illness that might not be curable. Many people find this scary or confusing. Some people feel

More information

General Information about radiotherapy

General Information about radiotherapy Department Radiotherapy General Information about radiotherapy Information for patients Introduction This information sheet is a general guide to radiotherapy. The treatment and side-effects you have from

More information

CCG: CO01 Access and Choice Policy

CCG: CO01 Access and Choice Policy Corporate CCG: CO01 Access and Choice Policy Version Number Date Issued Review Date V2 21 January 2016 January 2018 Prepared By: Consultation Process: NECS Commissioning Manager CCG Head of Corporate Affairs.

More information

An overview of Marie Curie s services

An overview of Marie Curie s services An overview of Marie Curie s services Marie Curie Cancer Care is a charity dedicated to the care of people with any terminal illness. We provide high quality care and support through the Marie Curie Nursing

More information

End of Life Care Policy. Document author Assured by Review cycle. 1. Introduction Purpose Scope Definitions...

End of Life Care Policy. Document author Assured by Review cycle. 1. Introduction Purpose Scope Definitions... End of Life Care Policy Board library reference Document author Assured by Review cycle P011 Lead Nurse Quality and Standards Committee 3 Years Contents 1. Introduction...3 2. Purpose...3 3. Scope...3

More information

Your life Your health Your benefits. Aon. Effective from 1 October bupa.co.uk

Your life Your health Your benefits. Aon. Effective from 1 October bupa.co.uk Designed for Arranged and provided by Your life Your health Your benefits Aon Effective from 1 October 2015 bupa.co.uk This is page 1 of 8 which should be read together in full. These pages are for the

More information

CARERS WELCOME PACK COMMUNITY MENTAL HEALTH DIVISION

CARERS WELCOME PACK COMMUNITY MENTAL HEALTH DIVISION CARERS WELCOME PACK COMMUNITY MENTAL HEALTH DIVISION Contents WELCOME CARE, TREATMENT AND SUPPORT FOR SERVICE USERS CARER S SUPPORT NATIONAL AND LOCAL CARERS SERVICES CARING IN A CRISIS INFORMATION SHARING

More information

The Newcastle upon Tyne Hospitals NHS Foundation Trust. Named Key Worker for Cancer Patients Policy

The Newcastle upon Tyne Hospitals NHS Foundation Trust. Named Key Worker for Cancer Patients Policy The Newcastle upon Tyne Hospitals NHS Foundation Trust Named Key Worker for Cancer Patients Policy Version No.: 4 Effective 07 December 2017 From: Expiry Date: 07 December 2020 Date Ratified: 17 October

More information

Caring for patients. Information for carers

Caring for patients. Information for carers Caring for patients Information for carers Caring for patients A carer is someone of any age, who, without payment, provides help and support to a partner, child, relative, friend or neighbour, who could

More information

Continuing Healthcare - should the NHS be paying for your care?

Continuing Healthcare - should the NHS be paying for your care? Continuing Healthcare - should the NHS be paying for your care? This factsheet explains when it is the duty of the NHS to pay for your social care. It covers what NHS Continuing Healthcare is, who is eligible,

More information

A Guide to Our Services

A Guide to Our Services A Guide to Our Services Welcome to Saint Francis Hospice At Saint Francis Hospice, we are dedicated to providing people with a life-limiting illness the high quality and expert care and support they deserve,

More information

Care and Social Services Inspectorate Wales. Care Standards Act Inspection Report. Glan-yr-Afon Nursing Home

Care and Social Services Inspectorate Wales. Care Standards Act Inspection Report. Glan-yr-Afon Nursing Home Care and Social Services Inspectorate Wales Care Standards Act 2000 Inspection Report Glan-yr-Afon Nursing Home Glan yr Afon Lane Fleur-de-Lys Blackwood NP12 3WA Type of Inspection Focused Date of inspection

More information

Palliative Care: Audit Tool for Adult Care Homes

Palliative Care: Audit Tool for Adult Care Homes Palliative Care: Audit Tool for Adult Care Homes 2011-2012 Publication code: HCR-0412-056 Name of Care Service: Address: Date of Use: Reason for audit tool being used: This audit tool is assist the Professional

More information

The sarcoma multi-disciplinary team

The sarcoma multi-disciplinary team http://www.londonsarcoma.org/ Information for patients and carers The sarcoma multi-disciplinary team University College London Hospitals NHS Foundation Trust 2 Contents An introduction to The London Sarcoma

More information

Calderdale and Huddersfield NHS Foundation Trust End of Life Care Strategy

Calderdale and Huddersfield NHS Foundation Trust End of Life Care Strategy Calderdale and Huddersfield NHS Foundation Trust End of Life Care Strategy 2016-2017 Contents Acknowledgements Subject Page Number 1. Introduction 4 2. Vision 5 3. National policy Context 5-6 4. Local

More information

Dermatology Patient Information Leaflet

Dermatology Patient Information Leaflet The role of the skin cancer nurse specialist and the multi-disciplinary team Dermatology Patient Information Leaflet What is a skin cancer nurse specialist? A skin cancer nurse specialist is an experienced,

More information

HSF Assist HSF Assist Providing support and advice when it is most needed

HSF Assist HSF Assist Providing support and advice when it is most needed HSF Assist HSF Assist Providing support and advice when it is most needed Welcome to your HSF Assist range of services HSF Assist provides you with unlimited access to a variety of assistance helplines

More information

ANSWERS TO QUESTIONS YOU MAY HAVE

ANSWERS TO QUESTIONS YOU MAY HAVE ANSWERS TO QUESTIONS YOU MAY HAVE What is Better Care Together really all about? Better Care Together is about ensuring that health and social care services in Leicester, Leicestershire and Rutland are

More information

Care Programme Approach (CPA)

Care Programme Approach (CPA) Care Programme Approach (CPA) The Care Programme Approach (CPA) is a package of care that may be used to plan your mental health care. This factsheet explains what CPA is, when you should get and when

More information

Connected Palliative Care Partnership End of Year Report

Connected Palliative Care Partnership End of Year Report where everyone matters Sandwell and West Birmingham Hospitals NHS Trust Connected Palliative Care Partnership End of Year Report 2016 2017 Sandwell and West Birmingham Clinical Commissioning Group Contents

More information

Continuing Healthcare - should the NHS be paying for your care?

Continuing Healthcare - should the NHS be paying for your care? Continuing Healthcare - should the NHS be paying for your care? This factsheet explains when it is the duty of the NHS to pay for your social care. It covers what NHS Continuing Healthcare is, who is eligible,

More information

What are they? The number or people living with cancer will double to four million by

What are they? The number or people living with cancer will double to four million by What are they? Clinical Nurse Specialists (CNSs) are dedicated to a particular area of nursing; caring for patients suffering from long-term conditions and diseases such as cancer. Macmillan funds Cancer

More information