SickKids Heart Transplant Program and The Labatt Family Heart Centre present

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1 SickKids Heart Transplant Program and The Labatt Family Heart Centre present Caring for Children after a Heart Transplant: A Symposium for Health Professionals Deacon, 5 years Saturday November 15, 2008 Hospital for Sick Children Hollywood Theatre 555 University Avenue Toronto, Ontario M5G 1X8

2 Course Objectives The goal of this program is to educate and inform our community partners who care for paediatric heart transplant patients. The course will provide information on many aspects of follow-up care after heart transplantation including growth and development, behavioural issues, psychosocial concerns, medical issues, immunosuppression, infectious diseases, and research endeavours. It is presented in an interactive format that encourages audience participation including case presentations and lunch time table discussion groups. Program 7:30 Registration and Coffee 8:00 Welcome and Opening Remarks 8:15 Paediatric Heart Transplantation: More than Just Survival 8:45 The Highs and Lows of Immunosuppression 9:45 Nutrition Break 10:15 Is My Child Eating Enough? It s Amazing How Normal Life Can Be Walking, Crawling and Running Is that the RIGHT way? Cases, Questions and Answers 11:30 Transplant S.O.S.: When to Call, What to Ask 12:00 Lunch Networking Tables (see descriptions) 13:30 Keeping Them Out of a Bubble: ID issues Post-Heart Transplant 14:30 Nutrition Break 15:00 Transplant Research 2008: Where We re Headed 15:30 You Ask the Team Panel Discussion Question & Answer Session 16:15 Evaluation and Closing Remarks Who Should Attend? The target audience is interdisciplinary and includes paediatricians, paediatric cardiologists, family doctors, pharmacists, and allied health caregivers including physiotherapists, occupational therapists, nurses, and dietitians amongst others.

3 Lunch Table Topics A sit-down buffet style lunch is included in your registration fee. Interdisciplinary team members will lead discussion at each table on selected topics. Sex, Drugs & Rock and Roll Adolescent Issues Come and explore the challenges that face all of us in caring for the teenage patient with a chronic medical condition. Focus will be on risk-taking behaviours, strategies to deal with non-adherence (a significant cause of death), and transition. Eating, Learning, Playing, Competing Rehab Issues Come and explore the challenges post-transplant including growth, feeding, development, physical fitness and others. Kids will be Kids: Joys and Challenges of Parenting Post-Heart Transplant. Going back to school, making friends, and becoming independent. What strategies work and what resources are needed. Offense Defense Welcome to the Team! Building effective partnerships for transplant care. We would like your input on what you need from us. Asthma or Aspergillosus? Medical concerns when should I worry? Discuss common presenting complaints and how to approach them. You ask the Interprofessional Team! topic and discuss with our team of experts. You pick the CME Certificates of Attendance will be provided on the day. Applications for CME credits have been submitted and are pending approval.

4 Faculty Tina Allain-Rooney, RN, BScN Transplant Research Nurse Samantha Anthony, MSW, RSW, PhD(c) Transplant Social Worker Anita Babu, BSc Phm Transplant Pharmacist Louise Bannister, RD Transplant Dietitian Robin Deliva, BSc PT, MSc Heart/Lung Transplant Physiotherapist Anne I. Dipchand, MD Head, Heart Transplant Program Staff Cardiologist Alison Drabble, RN, BScN Transplant Nurse Paul Kantor, MD Staff Cardiologist Miriam Kaufman, MD Adolescent Medicine Arlette Lefebvre, MD Psychiatrist Kathy Martin, RN, MN, ACNP Advance Practice Nurse Stephanie Miske, BA, BScPt Physiotherapist Seema Mital, MD Staff Cardiologist Nadya Nalli, BSc Phm Transplant Pharmacist Ruta Niedra, MSW, RSW Transplant Social Worker Alaine Rogers, BSc, OT Occupational Therapist Mirna Seifert-Hansen, RN, BScN Transplant Nurse Course Directors Anne I. Dipchand, MD Kathy Martin, RN, MN, ACNP Administrative Support Tracey Clatworthy Michele Wright

5 Hotel A block of rooms has been reserved within easy walking distance of the hospital and many downtown attractions at: Courtyard by Marriott Downtown Toronto 475 Yonge Street Toronto, Ontario M4Y 1X Rates: Single $139, Double $139, Triple $159, Quad $179 (Room rates are subject to applicable federal, provincial, local taxes and fees) Reservations may be made by individual attendees directly with Marriott reservations at by Thursday, October 16, Parking If you are driving to the conference, you may park at the Hospital for Sick Children. The parking entrance is on Elm Street. Bring your parking ticket for validation to receive the discounted rate.

6 Fee (CDN$) Physician $ Allied Health/Trainee $50.00 Includes attendance at all lectures, CME certification (pending), course syllabus, breakfast, breaks and lunch. Registration ONLINE: Secure payment available by credit card. Your payment will be processed and you will receive an immediate receipt. Your registration at the meeting is guaranteed. OFFLINE: Enter your personal information online and a spot will be held pending receipt of your payment. A paper form will be generated to include with your payment with instructions for mail-in or fax registration. You must forward your payment to us by fax (credit card number) or by mail (cheque or credit card number). A receipt will be forwarded to you by mail. Cancellations are subject to an administrative charge. Questions? Contact us at hearttransplant.program@sickkids.ca In loving memory of Bryce Ashlyn Cormier Feb. 8, June 24, 2007

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