Patient Reported Outcomes: How They Are Changing the Care We Provide to Our Patients

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1 Patient Reported Outcomes: How They Are Changing the Care We Provide to Our Patients Judy Baumhauer MD MPH Professor and Associate Chair of Orthopaedics

2 Disclosure: VP PROMIS Health Organization (PHO)

3 Why Strategy Matters Now Michael E. Porter, Ph.D., and Thomas H. Lee, M.D. N Engl J Med 2015; 372: Providers that organize themselves to improve outcomes and become more efficient in doing so will be rewarded with patients, professional satisfaction, and financial success. They will prosper even if fee-for-service reimbursement lingers for years, because better outcomes will attract more patients and greater efficiency will reduce copayments and improve financial margins. Data is Power

4 One minute in waiting room with ipad 5-10 min $52,000 gait machine

5 If you want to know how your patients are doing.. Just ask them

6 VIDEO

7 Validated Outcomes In Clinical Experience UR VOICE PLATFORM Every Patient, Every Clinic, Every Visit Patient Reported Outcomes

8 Must Have s Validated Instrument Quick Not on the backs of the Clinician Not costly Generalizable and Flexible Viewed in electronic record Searchable

9 PROMIS Patient Reported Outcome Measurement Information System 11-year, $100 million effort by NIH Domain specific not disease specific Standardized across domains with 50=mean score for US population t-score (10pts = 1 standard deviation) Follow patients throughout Health Care System Produces validated data quickly Smart Testing Computer Adapted Technology Item Response Theory

10 Bio Psycho Social

11 0 50 Physical Functioning Item Bank 100 Item 1 Item 2 Item 3 Item 4 Item 5 Item 6 Item 7 Item 8 Item 9 Item n Are you able to get in and out of bed? Are you able to stand without losing your balance for 1 minute? Are you able to walk from one room to another? Are you able to walk a block on flat ground? Are you able to run or jog for two miles? Are you able to run five miles?

12 Institute of Medicine Recommendations

13

14 1,800,000 1,600,000 URMC February April M 1,400,000 1,200,000 1,000, , K 600, , , K Unique Patients Evaluations PROMIS Scores

15 Creating, managing and reporting data has the potential to empower patients, engage and activate them. Does Patient- Generated Data Help? Patients who read their notes, collect personal health data, and maintain a record become more aware of their conditions and behaviors => felt more in control of their care and showed increased participation their treatment recommendations. Leverage Patient experience in shared decision making.

16 Patient Engagement (CG-CAHPS) Know important info medical history 100% & Other Ortho providers 95% 90% 89.3% 85% 82.7% 80% 76.9% 77.5% 75% 10/1/14-3/31/15 4/1/15-9/30/15

17 ** **

18 UR VOICE: Validated Outcomes In Clinical Experience Putting it all together Scheduling HL7 PROMIS PRO Registration Predictive Modeling Package Prep CORE Modeling Example: Factors influencing the need for rehab stay after TJA (PROMIS PF scores, comorbidities, pharma, prior surgery etc.) Interactive Visualization HTML Epic Interconnect Server Epic Hyperspace Epic Chronicles Integration

19

20 How Do We Use The Data?

21 Individual Patient Level 1 st Visit Achilles tendonitis Referral to PT Improved with PT Home PT Program

22 PRO Index Return to work earlier? F/u not needed? PROMIS by app? Home PT save copay

23 Complication?

24 T-Score T-Score T-Score 619 ACL Surgeries Performed by 6 Providers (cross sectional analysis) Pain 95 % CI Group Data for common procedures Function 95% CI Thanks to Owen Papuga PhD and Sports Division Days From Surgery Patients at Each Time Point N1 N2 N3 N4 N5 N6 N7 Function Pain Depression Days from Surgery Depression 95 % CI Days From Surgery

25 T-Score Function Similar Outcomes Similar Costs? PROVIDER A B C D E F Thanks to Owen Papuga PhD and Sports Division Days From Surgery

26 Variation in Surgical Techniques

27 PROMIS PF Foot and Ankle PF score < 29.7 had an 83% probability of meeting MCID; PF score >42 had a 94% probability of failing to meet MCID ROC curves Preop PF predictive of MCID Used 95% Specificity Ho et al. FAI 2016

28 Physical Function TKA and THR and Spinal Fusion and Disc Excision and Spinal Injections and. Change in Physical Function Less Function More Function Less Function MCID= Preoperative Physical Function (T Score) More Function 118 TKA patients Ave. f/u 240 days PF > 44.5 had a 88.1% probability of failing to achieve MCID 13.5 %

29 Bunion Surgery Recovery Curve Predictive Analytics

30

31 Patient s Like You.

32 UR VOICE: Validated Outcomes In Clinical Experience Putting it all together Scheduling HL7 PROMIS PRO Registration Predictive Modeling Package Prep CORE Modeling Example: Factors influencing the need for rehab stay after TJA (PROMIS PF scores, comorbidities, pharma, prior surgery etc.) Interactive Visualization HTML Epic Interconnect Server Epic Hyperspace Epic Chronicles Integration

33 Roadmap to Predictive Modeling: Skilled Nursing Facility Admission Model The URMC Total Joint Bundle Get Data Clean Exploratory Analysis Test Machine Learning Models Model: Web Endpoints for Clinical Use

34 SNF Placement Predictive Modeling GOAL: Use big data techniques to develop a machine learning model to pre-operatively predict which total joint patients will end up going to a SNF Benefits Reduce number of patients that need to go to a SNF by preoperatively identifying effective interventions Better prepare mentally and physically patients for post-surgical outcomes Allow SNFs and the hospital to allocate resources with more advanced notice

35 Epic

36 Epic

37 Barriers Other Quality Measures more important for compliance and reimbursement that PRO IT limitations at other institutions PRO available but might not be viewed or shared by provider with patient Patients question need to fill out Importance of Data not understood by Provider Low Depression scores of concern to providers

38 PROMIS in Clinical Practice Advance Patient Care Engage the Patients Educate patients Share Decision Making with Patients Access cost related to outcomes Allocate patient care resources appropriately (P4P) Common Research outcomes across medicine Assess Population Health UNITE a Health Care System!

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