The Carer Support Needs Assessment Tool (CSNAT) intervention. Professor Gunn Grande
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1 The Carer Support Needs Assessment Tool (CSNAT) intervention Professor Gunn Grande
2 Background Numerous government policies and national guidelines have repeatedly highlighted the need to support and address carers needs. There has been little guidance on how this can be best achieved, nor any recognition that assessing and addressing carer support needs in a systematic way entails a change in practice. Our work on developing, trialling and currently, implementing the CSNAT intervention seeks to address these gaps.
3 Carer Support Needs Assessment Tool (CSNAT) Enabling carers to care (co-worker role) Knowing who to contact when concerned Understanding the patient s illness Knowing what to expect in the future Managing symptoms and giving medicine Talking to the patient about their illness Equipment to help care for the patient Providing personal care for the patient Direct support for carers (client role) Own physical health concerns Dealings with their own feelings and worries Beliefs or spiritual concerns Practical help in the home Financial, legal or work issues Having time for themselves in the day Overnight break from caring
4 Your support needs We would like to know what help you need to enable you to care for your relative or friend, and what support you need for yourself. For each statement, please tick the box that best represents your support needs at the moment. Do you need more support with No A little more Quite a bit more Very much more understanding your relative s illness? having time for yourself in the day It s opened up conversations in a different way, it s not just ticking boxes it s what comes out of that
5 The CSNAT intervention. refers to the integration of the CSNAT (the 14 tool domains) into a person-centred process of assessment and support (the CSNAT approach).
6 5 stages CSNAT Approach Shared review Introduction Shared action plan Carer consideration of needs Assessment conversation
7 Programme of research and implementation CSNAT development: listening to 75 bereaved carers CSNAT validation: survey of 225 current carers Pilot intervention: CSNAT within hospice home care practice Feasibility work for a trial in hospice home care Stepped wedge cluster trials: in UK and Australia Wider implementation: 36 sites delivering palliative care CSNAT in hospital discharge: qualitative exploratory study Hospice case study: organisational & facilitation processes
8 The challenge of implementation An evidence - based intervention for carers Seeking to integrate into everyday practice Not an external intervention Two dimensions: Establishing comprehensive carer assessment and support as routine Change to carer-centred approach
9 World wide
10 References website: Ewing G, Austin L and Grande G. The role of the Carer Support Needs Assessment Tool (CSNAT) in palliative home care: qualitative study of practitioners perspectives of its impact and mechanisms of action. Palliat Med Apr;30(4): Grande GE, Austin L, Ewing G, O'Leary N, Roberts C. Assessing the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in palliative home care: a stepped wedge cluster trial. BMJ Supportive & Palliative Care doi: /bmjspcare Published Online First 30 December 2015 Ewing G, Austin L, Diffin J, Grande G (2015). Developing a person-centred approach to carer assessment and support. British Journal of Community Nursing; 20(12): Aoun SM, Grande G, Howting D, Deas K, Toye C, Troeung L Stajduhar K Ewing G.. The Impact of the Carer Support Needs Assessment Tool (CSNAT) in Community Palliative Care Using a Stepped Wedge Cluster Trial. PLoS One 2015; 10(4):e Aoun S, Toye C, Deas K, Howting D, Ewing G, Grande G et al. Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice. Palliat Med 2015, Vol. 29(10) Aoun S, Deas K, Toye C, Ewing G, Grande G, Stajduhar K. Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trial. Palliat Med February 2, 2015, doi: / Ewing G, Brundle C, Payne S, Grande G. The Carer Support Needs Assessment Tool (CSNAT) for Use in Palliative and End-of-life Care at Home: A Validation Study. J Pain Symptom Manage 2013: 46: Ewing G, Grande GE. Development of a Carer Support Needs Assessment Tool (CSNAT) for end of life care practice at home: a qualitative study. Palliat Med 2013; 27:
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