The Peninsula Network Site Specific Group For Urological Cancer

Transcription

1 The Peninsula Network Site Specific Group For Urological Cancer Network Annual Report June 2015 Acting Chair: Rob Mason Date Approved: 2 nd June 2015

2 Annual report of the Network Site Specific Group for Urological Cancer 14-1C-104g Agreement cover sheet The annual report of the Network Site Specific Group for urological cancer has been agreed on behalf of group members by: Name Role Date Mr Rob Mason Acting Chair of Urology NSSG 2 nd June 2015 This annual report relates to the period from April 2014 to May 2015 and is compiled to give an overview of the outcomes, achievements and challenges of the Peninsula Cancer Network Site Specific Group for Urological Cancer

3 1. Introduction The Peninsula Urology Network Site Specific Group (NSSG) is being re-established, not having met for several years due to a national cut-back in network support. Peninsula Cancer Network Manager and Administrative Support have been funded for an initial year by the South West Strategic Clinical Network (SWSCN) and a bid for future funding across participating trusts is expected to be approved by mid Despite the large geographical area covered by the NSSG, the group works very well together and is setting up a strong clinical focus. Members are keen to share the outcomes of good practice and local developments which will enable the group to develop effective clinical pathways of care. 2. Network Configuration 14-1C-101g The Peninsula Urology network covers the total catchment population (1.718m) of the following organisations: Organisation Referring CCG Plymouth Hospital NHS Trust NEW Devon CCG Northern Devon Healthcare NHS Trust NEW Devon CCG Royal Cornwall Hospitals NHS Trust Kernow CCG South Devon Healthcare NHS South Devon & Torbay CCG Royal Devon & Exeter NHS NEW Devon CCG Taunton and Somerset NHS Somerset CCG Yeovil District Hospital NHS Somerset CCG Note: NEW Devon CCG (Northern, Eastern and Western Devon CCG) 3. Network Group Membership 14-1C-102g The Urology NSSG membership is comprised of clinicians, nurses and diagnostic staff representing the MDTs at the above organisations together with nominated user representatives. 4 Terms of Reference 14-1C-102g The Urology NSSG Terms of Reference were adopted by the members present at the meeting held 22 nd April The final document has been posted on the network website: 5 Meetings 14-1C-103g The first meeting of the new NSSG was held on 22 nd April 2015 and attended by a wide representation of clinical and diagnostic members. A further meeting has been scheduled for 18 th November This will be a full day meeting, with break-out sessions to review current patient pathways. Copies of the notes of the meetings and supporting documents can be found on the Peninsula Cancer Network website at:

4 Meeting Attendance 2014/ C-102g, 14-1C-103g Organisation First Name Surname Job Title Northern Devon Healthcare Martin Moody Lead Cancer Clinician Present NHS Trust Plymouth Hospitals NHS Trust Vanessa Wilcox Clinical Nurse Specialist Present Plymouth Hospitals NHS Trust Andrew Dickinson Consultant Urologist Apologies Plymouth Hospitals NHS Trust Paul Hunter- Lead Cancer Clinician Apologies Campbell Royal Cornwall Hospitals NHS Mark Mantle Lead Cancer Clinician Present Trust Royal Devon & Exeter NHS Jane Billing Clinical Nurse Specialist Present Royal Devon & Exeter NHS Malcolm Crundwell Lead Cancer Clinician Present Royal Devon & Exeter NHS Karen Green Clinical Nurse Specialist Present Royal Devon & Exeter NHS Denise Sheehan Consultant Oncologist Present Royal Devon & Exeter NHS Claire Turner Clinical Nurse Specialist Present Royal Devon & Exeter NHS Carole Brewer Consultant Clinical Apologies Geneticist South Devon Healthcare NHS Rob Mason Lead Cancer Clinician Present (Acting Chair) South Devon Healthcare NHS Anna Lydon Consultant Clinical Present Oncologist South Devon Healthcare NHS Gillian Dell Macmillan Urology Present Oncology CNS Taunton & Somerset NHS Nick Burns-Cox Consultant Urologist Apologies Taunton & Somerset NHS Julia Pollard Clinical Nurse Specialist Apologies Peninsula Research Network Wendy Cook Clinical Research Delivery Apologies Manager Peninsula Cancer Network Liz Boylan Peninsula Cancer Present Network Manager Peninsula Cancer Network Sue Buddin PCN Admin Support Present Additional potential members March 2015 Northern Devon Healthcare NHS Trust Tracey McBride Clinical Nurse Specialist Northern Devon Healthcare NHS Trust Cath Dring Clinical Nurse Specialist Plymouth Hospitals NHS Trust Frances McCormick Consultant Histopathologist Plymouth Hospitals NHS Trust Esther McLarty Consultant Urology Surgeon Plymouth Hospitals NHS Trust Paul McInerney Consultant Urologist Plymouth Hospitals NHS Trust Salvatore Natale Ass. Specialist in Urology Plymouth Hospitals NHS Trust Jane Ripley Clinical Nurse Specialist Plymouth Hospitals NHS Trust Henry Sells Consultant Urologist Plymouth Hospitals NHS Trust Anna Wilson Clinical Nurse Specialist

5 Royal Cornwall Hospitals NHS Trust Robert Cox Consultant Urologist Royal Cornwall Hospitals NHS Trust Wendy Meyers Clinical Nurse Specialist Royal Cornwall Hospitals NHS Trust Deborah Victor Clinical Nurse Specialist Royal Devon & Exeter NHS Richard Guinness Consultant Radiologist Royal Devon & Exeter NHS Sally Harris Clinical Nurse Specialist Royal Devon & Exeter NHS Denis Kinsella Consultant Radiologist Royal Devon & Exeter NHS Paul McCullagh Consultant Histopathologist Royal Devon & Exeter NHS John McGrath Consultant Urologist Royal Devon & Exeter NHS Mark Stott Consultant Urologist South Devon Healthcare NHS Doretta Boone Urology Nurse Practitioner South Devon Healthcare NHS Anne Caroll Nurse Specialist Urology South Devon Healthcare NHS Anne Leitch Nurse Specialist Urology South Devon Healthcare NHS James McDermott Consultant Urologist South Devon Healthcare NHS Linda Welsh Prostate Specialist Urologisty Taunton & Somerset NHS Mohini Varughesi Research Subspecialty Lead Copies of all minutes sent to: Charlotte Overney Lead Cancer Nurse / Cancer Manager (ND) Sian Dennison Lead Cancer Nurse / Cancer Manager (PHT) Kathryn Radcliffe Senior Matron (RCHT) Tina Grose Lead Cancer Nurse (RDE) Fran Lowery Cancer Cluster Manager (RDE) Sam Brenton Lead Cancer Nurse / Matron (SD) Emma Wheatfill Cancer Manager (SD) 6. Clinical Guidelines 14-1C-105g, 14-1C-106g, 14-1C-107g, 14-1C-108g, 14-1C-109g Current clinical guidelines, particularly those for prostate cancer need to be updated. 7. Pathways 14-1C-111g, 14-1C-112g, 14-1C-113g, 14-1C-114g, 14-1C-115g A full day workshop has been arranged for 18th November, where break-out sessions will be held to review kidney, bladder, prostate, testicular and penile cancer pathways. In the interim NICE guidelines have been adopted by the Urology NSSG. 8. Audit 14-1C-117g There will be a review of brachytherapy implants led by the Consultant Clinical Oncologist, Anna Lydon. Data available from the national prostate cancer audit will be used to baseline the audit. 9. Patient Representation 14-1C-102g, 14-1C-116g A minimum of two user representatives will be invited to join the NSSG as co-opted members, preferably one for each type of urological cancer. 10. Survivorship 14-1C-116g Now labelled Living With and Beyond Cancer and sponsored by Macmillan Cancer Support. The programme was devised to improve outcomes for patients and support practitioners in taking the actions necessary to drive improved cancer outcomes whilst reducing the numbers of follow-up appointments.

6 Support centres have been/are being established in Exeter (Force), Plymouth (Mustard Tree) and Truro (The Cove) that offer support and promote self-management to those with cancer, their families and carers. 11. Research and Clinical Trials 14-1C-118g The group discuss recruitment into clinical trials at each NSSG meeting, a report highlighting the current and proposed recruitment status of each MDT was circulated to the group in April The Cancer Research Network transitioned in April 2014 into fifteen local research networks, aligned with the Academic Health Service Network. The new South West Peninsula Cancer Research Network (PCRN) was set up to include: Royal Cornwall Hospitals NHS Trust Plymouth Hospital NHS Trust Northern Devon Healthcare NHS Trust South Devon Healthcare NHS Royal Devon & Exeter NHS Taunton and Somerset NHS Yeovil District Hospital NHS The new PCRN will: Track EOI return rates Identify and promote new studies Identify blocks to recruitment and escalate Coordinate regional meetings, forums, workshops and share good practice Attend and support NSSG meetings by providing recruitment data and trials information Support Peer Review The Peninsula is supported by: Duncan Wheatley, Clinical Specialty Lead - duncan.wheatley@rcht.cornwall.nhs.uk Wendy Cook, Research Delivery Manager wcook1@nhs.net Ann Courtman, Administrator ann.courtman@nhs.net Dr Mohini Varughese, Subspecialty Lead mohini.varughese@tst.nhs.uk Latest recruitment data and overview of studies currently open can be found in The Urology SSG Research Report April 2015 on the network website: BLADDER Study Trust Recruitment 14:15 (ODP) Recruitment (EDGE-SWP) Hyperthermia for intermediate risk bladder cancer (HIVEC II) Plymouth Hospitals 2 4 The PHOTO Trial Royal Devon and Exeter Hospital 7 8 POUT South Devon Healthcare 2 Royal Cornwall Hospitals 3 Taunton and Somerset 0 North Devon District 2

7 PROSTATE Study Trust Recruitment 14:15 (ODP) Recruitment (EDGE-SWP) UK Genetic Prostate Cancer Study Royal Devon and Exeter North Devon District Hospital Taunton and Somerset 9 77 Yeovil District Hospital 9 38 Royal Cornwall Hospitals 6 77 South Devon Hospitals 2 72 Plymouth Hospitals 1 76 STAMPEDE South Devon Hospitals Royal Devon and Exeter Taunton and Somerset North Devon District Hospital 2 23 Yeovil District Hospital 1 4 RAPPER Taunton and Somerset 22 Royal Devon and Exeter 13 South Devon Hospitals 10 Plymouth Hospitals 3 RADICALS Royal Devon and Exeter 9 46 Yeovil District Hospital 5 5 Taunton and Somerset 4 31 Plymouth Hospitals 3 19 Royal Cornwall Hospitals 2 13 North Devon District Hospital 1 3 South Devon Hospitals 0 17 IMPACT Royal Devon and Exeter 9 34 Plymouth Hospitals 2 9 Royal Cornwall Hospitals 0 South Devon Hospitals 0 PROMIS Taunton and Somerset COMPARe Yeovil District Hospital 3 6 Royal Cornwall Hospitals 2 3 SAPROCAN Royal Devon and Exeter 1 1 South Devon Hospitals 1 1 PROMPTS Royal Devon and Exeter 2 4 North Devon District Hospital 0 NCRN452 Plymouth Hospitals Taunton and Somerset South Devon Hospitals 8 20 North Devon District Hospital 5 8 CANTATA Royal Devon and Exeter 3 3 South Devon Hospitals 0 NCRN2630 Taunton and Somerset 4 An evaluation of a prostate cancer survivorship care programme Royal Cornwall Hospitals 69 AZD081 in metastatic castrate resistant prostate cancer Royal Devon and Exeter 0 Plymouth Hospitals 1 South Devon Hospitals 0

8 RENAL Study Trust Recruitment 14:15 (ODP) Recruitment (EDGE-SWP) STAR Royal Cornwall Hospital 3 3 Royal Devon and Exeter 2 3 Yeovil District Hospital 1 1 Taunton and Somerset 0 Pazopanib in patients with renal cancer South Devon Hospital 1 1 A-PREDICT Plymouth Hospitals 3 6 TESTES Study Trust Recruitment 14:15 (ODP) Recruitment (EDGE-SWP) Leeds Testicular Cancer Study Royal Cornwall Hospitals Royal Devon and Exeter 2 2 UK Genetics Testicular Cancer Plymouth Hospitals 26 Royal Devon and Exeter 92