LD Care Forum. David welcomed all and advised that Tom Dunkerton s item has been deferred to the next meeting.

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1 Date:, Tuesday 8 th March, 10am 12pm, Room BL1, Linskill Centre LD Care Forum Present: David Robinson (Healthwatch, Chair/LD: North East), Ernie Holden (Parent/Carer), Jill Arkell-Wilson (Parent/Carer), Sue Wood (NTC), Ellen Vick (New Prospects), Joanne Safe (NTC), Maggie Willis (Parent/Carer), Kathleen Ainsley (Parent/Carer), Ron Jobling (Parent/Carer), Barbara Nortyn (EPA Sister/Independent Living), Chris Renforth (ATB/Parent/Carer), Sheila Clapperton (Parent/Carer), Eddie Gorman (Parent/Carer), Lynne Erhorn (Parent/Carer), Heather Riley (Parent/Carer), David & Valda Blewitt (Parent/Carers), Christine Martin (Day Break), Kevin Baldwin (UBU), Kate Langan (UBU), Helen Robson (Parent/Carer), Scott Woodhouse (NTC), Natalie Carr (NTC) Apologies: Claire Easton (Carers Centre), Natalie Parry (Waymarks) Acronyms FSO: Flexible Support Options, CCRG: Cornerstone Carers Reference Group, CHC: Continuing HealthCare CLDT: Community Learning Disability Team, ASC: Adult Social Care, LA: Local Authority, CQC: Care Quality Commission, DBS: Disclosure & Barring Service, NHS: National Health Service, NTC: North Tyneside Council, ATB: All Together Better Item Agenda Items Discussion/Action Lead No. 1. Welcome & Introduction David welcomed all and advised that Tom Dunkerton s item has been deferred to the next meeting. Eddie explained that since he was the carer representative for the Enablement Task & Finish Group he was asked if he wanted to be the carer representative for the new Whole Life Disability Strategic Board. Before agreeing to this, he wanted to check with this group to see if anyone else wanted to be a rep. The group were happy for Eddie to be on the integrated assessment group to lead on this on behalf of the Care Forum. Scott explained that an overarching Whole Life Disability Board had been established and that below this were three workstream groups, these covered 1. Integrated assessment, 2. Value for money and joint commissioning and 3. Impact, standards and performance. 2. Residential & ISL Quality Helen Walton / Teresa Ho ran through presentation they advised they are going to go through results from quality monitoring for last year, the team visited quite a number of different providers, the findings

2 Monitoring were to be presented today. Presentation will be circulated with the minutes. 3. Personal Health Budgets 4. Council Budget Proposals Relating to Learning Disability Services Residential services a range of residential homes were monitored, there has been a change to the monitoring tool from previous years. All providers have packs of information around their scores, they can use this as a comparison to other providers. Ernie asked for details of inspection visits and how they are divided between; Council commissioned services, funded by direct payments and I s. HW/TO to provide this information. Ernie also asked for a WHICH report that clients can use so they can choose which provider they want to go with. The report should show scores for provider head office assessments and aggregated scores for all services for each provider. These WHICH rating tables should be made available to all. Scott to identify who would pick this up. Deferred. Scott ran through presentation target operating model and principles of this. Presentation to be circulated with notes. Ernie requested a catalogue of assistive technology of tools that are available, Scott suggested contacting Tunstall. Sue informed that the tools are moving on so quickly we spend a lot of time keeping up, would be really helpful for forum to hear more from this on social care side. Eddie queried how we manage demand. Scott advised this could relate to new people coming into Adult Social Care or for existing people. Where there are new people it s about the assessment process and how the needs are identified and budget generated to support individuals, also how alternative areas of support are considered. We can also use the likes of Care and Connect to support people at the lower end keep out of the assessment process and signpost / passport people directly to tier 1 services, i.e. community centre s, leisure, groups etc. It s also about how we plan better for people coming into Adult Social Care, i.e. through transitions, from hospital as well as supporting people to come back into North Tyneside from out of area placements. HW/TO SW Ernie asked if visits of new builds are available for parents / carers to come to view and see what is available. Kelly from Home Group confirmed they were happy to do this subject to consent of tenants. Eddie expressed concern around large social care establishments, in his opinion, these feel like institutions. Sue advised of a range of options that will be available on an individual basis, this is different in every case. Also reference to the peer support that comes from people living together or in a

3 scheme where there are a number of self contained units. Scott advised of authorities having the ability to raise an additional 2% council tax, most North East authorities have done this brings in around 1.5 million for North Tyneside, which does not cover the funding gap. All of this was part of the Council s budget setting process. 5. Open Forum Heather Riley referred to minutes from the February Health & Well Being Board meeting. Data was provided by CQC on inspection ratings across local authority areas in the North East. A new methodology for the inspection of Adult Social Care yielded ratings for each local authority area. North Tyneside was showing as the worst performing authority in the region, with over 50% of providers rated as requiring improvement. It was noted that this information is public and the CQC publishes all inspection reports on its website. CQC would be able to provide information on these providers. It was also suggested that the Council s Adult Social Care service be invited to attend the next HWB meeting to discuss this issue, and to explore any action the Council can take to influence improvements through the commissioning of services. The HWB agreed that CQC be asked to provide a list of all providers in North Tyneside that have been rated as requiring improvement or lower, and that Council s Adult Social Care service be asked to attend the next meeting to discuss the situation in North Tyneside. Parents / Carers need to be aware of these providers Scott to action. SW Market position statement for 6-12 units, issues of lumping units together concerns that this is a vulnerable group that could be targeted. UBU advised that this has not been their experience and the communities have welcomed, has been very positive. People seem positive in giving back into community. Comments in Hate Crime meeting re Waterville road suggested that the build will be targeted in this kind of area. Home Group advised they have 8 self contained apartments within a purpose built unit in North Shields, they have never experienced any problems with this over the 17 years is has been in place. Ellen advised the key issue is who lives in them. Dynamics change depending on the people who reside in them. It is important to give choice, flexibility and list what people want.

4 Charlton Court the local residents are against, potential 12 / 16 bedded Home Group have held consultation events to work with community. Ernie advised when we set the forum up, he wanted people to have opportunity to ask questions. We are still awaiting feedback on a number of items. One question was raised about the effect of the Care Act and whether there would be any changes in the eligibility criteria. Joanne Safe reported that most people should not even notice a difference. Joanne circulated two documents Assessment used by Social Workers and Checklist that Social Workers should complete before going to panel. To be circulated with notes. Maggie asked a question regarding cover for Extra Care when people go into hospital. DR said this would be discussed in greater detail at the Steering Group meeting and he would report back. DR Joint commissioning arrangements If health funded who funds carer respite? Health or Social Care? And how is the amount you get decided? Questions for health commissioner re respite forum would have liked a rep to be sent. What is process for challenging outcomes? The outcomes are agreed with the service user and their family, LA have to be able to demonstrate that process has been followed and needs are being met. Need for better documentation management for people to see which version we are talking about Discussion around version control and availability of documents advised that copies of support plans can be requested, but many people still do not know the latest version of their care plan. Council information systems may work fine internally, but external access for clients needs improvement. 6. Summary and Close Mayors listening event on Saturday at Quadrant 12-2, family fun day. Development on Waterville road issue scaling down to 16 flats and 1 or 2 crisis units. Carer views on Waterville Road were sent to Scott and carers have not had any further involvement.

5 Dates and times of future meetings: All 10am 12pm, Linskill Centre. 10 th May th July th September th November 2016