1 A HEALTH CARE MODULE: UNDERSTANDING HOSPICE PROVIDED BY: Section 1: 4 Instructor Pages Section 2: 13 Learner Pages Section 3: 3 Miscellaneous Pages In the Know, Inc. May be copied for use within each physical location that purchases this inservice.
2 Inservices For Nursing Assistants Instructions for the Learner If you are studying the inservice on your own, please do the following: Read through all the material. You may find it useful to have a highlighting marker nearby as you read. Highlight any information that is new to you or that you feel is especially important. If you have questions about anything you read, please ask. Take the quiz. Think about each statement and pick the best answer. Check with your supervisor for the right answers. You need 8 correct to pass! Print your name, write in the date, and then sign your name. Keep the inservice information for yourself and turn in the quiz page to no later than. Show your Inservice Club Membership Card to so that it can be initialed. In the Know at with your comments and/or suggestions for improving this inservice. THANK YOU! A Health Care Module: Understanding Hospice We hope you enjoy this inservice, prepared by registered nurses especially for nursing assistants like you. After finishing this inservice, you will be able to: Discuss the basic principles of hospice care and why it can be beneficial as a client nears the end of life. Compare the goals, timeline, and cost difference in caring for a client with hospice to caring for a client in the hospital. Describe the roles of at least five hospice team members. Describe palliative care and how it relates to hospice. Demonstrate your knowledge of the terminally ill in your daily work with hospice clients.
3 YOU ARE THE GUESTHOUSE Inside This Inservice: History of Hospice Care 2 Who Received Hospice Care? Compare Hospice to Hospital Care Meet the Team 5 Choosing Hospice 6 What is Palliative Care? 7 Final Tips for Caring for Hospice Clients Take a minute to jot down a few things you already know about hospice before reading this inservice. Hospice comes from a Latin word that means guesthouse. In the old days, a hospice was a guesthouse available to tired or sick travelers who needed to rest during a long journey. Today, the idea of hospice is not a location but a way to offer compassionate care to people who are nearing the end of their life s journey. As a hospice care worker... you are the guesthouse. In other words, you provide comfort, warmth, safety, and nourishment to people who are sick and in need of rest. Trying to manage a serious illness like cancer, AIDS, lung diseases, heart disease, or Alzheimer s Disease is exhausting. It takes a toll on the client and the family. Most medical care is focused on disease. Doctors diagnose disease, then prescribe medications and treatment to try to get rid of the disease. But, hospice care is different. The focus of hospice is the client and family not the disease. Hospice care is provided by a team of people who have chosen hospice as their specialty and who have been specifically trained to work with dying clients. The main goal of hospice is to help clients live meaningful lives with comfort and dignity for the time that s left them. Here are some facts: Most hospice care is provided in the client's home. Typically, a family member serves as the primary caregiver. Members of the hospice team make regular visits and remain on-call 24/7. Nearly 1.5 million Americans receive hospice care each year. A typical hospice client is 65 years or older. Nearly half of all hospice clients have cancer as a primary diagnosis. Keep reading to learn more about hospice care and the special role someone like you can play in the care and comfort of clients at the end of life In the Know, Inc. May be copied for use within each physical location that purchases this inservice from In the Know. All other copying or distribution is strictly prohibited.
4 2010 In the Know, Inc. Page 2 THE HISTORY OF HOSPICE CARE Hospice belongs to the same family of words as hospitality, host, hostess, hotel and hospital. And what do all these words have in common? They focus on being kind and caring to strangers. This has been the idea behind hospice for centuries. In Medieval times, hospices were usually run by monks. These religious men took in sick, tired or hungry people who had nowhere else to go. People who were dying were treated as honored guests who were on a journey to meet God. If hospice workers were unkind to any guest, they were whipped and made to eat only bread and water for a week! For most of history, families took care of their own loved ones at home from the time they were born until they died. But, in modern times, doctors and hospitals have taken more and more responsibility. Instead of being born at home, most babies are born in a hospital. And, instead of dying at home, most people end their lives in a hospital. "You matter because you are you. You matter to the last moment of your life, and we will do all we can, not only to help you die peacefully, but also to live until you die." ~ Dame Cicely Saunders, founder of Hospice Dr. Cicely Saunders developed what we know as modern hospices in England in the 1940 s. The first hospice in the U.S. opened in 1974 in Connecticut. Today, hospices combine the comforting power of modern medicine with the old fashioned support of caring hospice workers and loving families. WHERE DOES HOSPICE CARE HAPPEN? There are over 3000 hospice programs in the United States. Hospice services are available to people wherever they choose to spend their final days. This includes: PRIVATE HOMES A hospice client may be living at home or in the home of a friend or family member. FREESTANDING HOSPICE FACILITIES Many large hospices have their own facilities where clients come for care. These facilities tend to be located in cities. Remember that not all hospice clients want to die at home. For them, receiving hospice care in a facility might be a better option. HOSPITALS Some hospitals provide hospice care. They may devote a special floor or wing to hospice clients and have a specially trained hospice team. NURSING & ASSISTED LIVING HOMES Hospice care is also provided at some skilled nursing and assisted living facilities. (The facility is considered the client s home.) If the nursing home provides hospice care on a regular basis, it may have its own hospice team. If not, an outside team of hospice workers may visit the client in the nursing home. Grab your favorite highlighter! As you read through this inservice, highlight five things you learn that you didn t know before. Share this new information with your supervisor and co-workers!
5 2010 In the Know, Inc. Page 3 WHO RECEIVES HOSPICE CARE? Before a client receives hospice care, nurses and physicians review the client s disease history, current symptoms and life expectancy. Then, they meet with the client and the family to discuss hospice philosophy and services, pain management and equipment needs. PEOPLE WHO RECEIVE HOSPICE CARE: Are usually in the last six months of their lives. Can be any age... from a child to a senior citizen. Can be of any religion... or of no religion. Have terminal illnesses such as cancer, AIDS, lung diseases, heart disease, nerve disorders or Alzheimer s disease. Often have a friend or family member who helps care for them. Can be wealthy, poor or in between! Remember...it is possible for doctors to be wrong about how long a person has to live. There have been cases of people graduating from the hospice program by getting better! There are also cases of people who live longer than six months while receiving hospice care. Their care doesn t stop just because they ve survived longer than expected! People have the right to change their minds. If they begin hospice care and don t like it or want to try some new cure for their disease, they can be discharged from hospice. Most insurance plans allow people to start hospice again at a later time. No one enjoys experiencing another human die. But, it is possible to see the beauty in the transition. Being present at the death of a loved one or a client can transform people. And, it can transform you too. Have you ever been present with a client or loved one at the exact moment of death? How did you feel? How did the experience change the way to live your own life? Jot down your thoughts here, then discuss your experience with your coworkers. Listen to their stories. Learn how experiencing death changed them, too. WHO PAYS FOR HOSPICE CARE? PRIVATE INSURANCE COMPANIES: Many private insurance companies and HMO s pay for hospice care. MEDICAID: Most states offer Medicaid coverage for hospice care. MEDICARE: Medicare pays for hospice care for people who have a life expectancy of six months or less. COMMUNITY FUNDS & CHARITABLE FOUNDATIONS: Most hospice organizations work hard to find funds to pay for the care of clients who have no health insurance. They don t want to turn anyone away!
6 2010 In the Know, Inc. Page 4 COMPARE HOSPITAL CARE TO HOSPICE CARE 1. When people are admitted to the hospital, care is provided around the clock. And, if patients feel better, they are discharged from the hospital. 2. Hospital care is usually focused on treating a disease. 3. Nurses in the hospital are usually too busy to deal with a patient s emotional pain. 4. Hospital care usually provides services to patients only. 5. Hospital care can be very expensive... costing about $ per day. 6. Families may be restricted from being with their loved one by hospital visiting hours. 7. In the hospital, the goal may be to keep the patient alive even by using machines. 8. Hospital care ends when the patient dies. 1. When people are admitted to hospice, the staff comes and goes as needed. (However, they are available 24 hours a day, 7 days a week.) If a client feels better, the staff visits less often but the client is not discharged. 2. Hospice care is focused on caring for dying individuals and their families. 3. Hospice nurses have special training that helps them deal with a client s emotional pain. 4. Hospice care provides services to clients and their families. 5. Hospice care is usually less expensive... costing about $ per day. 6. Most hospice clients remain at home with their friends and family. 7. A hospice client has already decided not to be kept alive by machines. 8. Hospice care continues for up to one year after the client dies. Physician Assisted Suicide is when a dying person requests the help of a physician to die, usually by means of a lethal dose of medication. Assisted suicide is legal in the Netherlands, Switzerland, Belgium and in three states in the U.S. (Oregon, Washington and Montana). Some people believe that when a person faced with a terminal illness has less than 6 months to live, is unable to have pain control, and is still capable of making sound decisions, then physician assisted suicide should be an option. Others believe that physician assisted suicide is murder and should never be an option. 1. Under what conditions do you think Assisted Suicide should be allowed? 2. Under what conditions do you think Assisted Suicide should not be allowed? Most people agree that hospice care promotes the best possible quality of life for dying clients and their families. 3. How would you feel if a loved one requested your help in committing suicide?
7 2010 In the Know, Inc. Page 5 MEET THE HOSPICE TEAM PHYSICIANS: A hospice physician and a client s family doctor may both be involved in the client s care. They order studies, make diagnoses, prescribe medications, sign insurance papers, certify death and guide the rest of the hospice team. NURSES: Hospice nurses assess a client s condition, give treatments according to doctor s orders, keep the doctor informed about the client s condition and spend time teaching the client, family and other team members. They work hard to control each client s symptoms or pain. Hospice nurses are often on call 24 hours a day. AIDES: Hospice aides help the client with bathing, dressing, basic bedside care and activities of daily living. Aides assist hospice clients to remain as independent as possible for as long as possible. They help transfer clients from bed to chair and keep the client s care area neat and clean. Aides report any changes in the client to the nurse. In some states, hospice aides can be certified to give some medications. SOCIAL WORKERS: Hospice social workers assess a hospice family s basic needs and help them get whatever resources they need. This may include assisting with financial and legal issues. They also provide counseling to help families deal with the anxieties and struggles of losing a loved one. THERAPISTS: Physical therapists help keep hospice clients moving safely through their home or facility. They also teach clients exercises to keep them strong and show families how to perform safe transfers. Occupational therapists work with clients who are having trouble performing daily tasks like brushing their teeth, getting dressed and eating. Speech therapists help clients communicate and also work with clients who are having swallowing problems. The goal is to allow the client to be as independent as possible. CHAPLAINS: Hospice chaplains offer spiritual comfort to the client and family. They don t push any specific religion. Instead, their work is guided by the spiritual preferences of each hospice client. (Hospice clients are not required to see a chaplain, but the service is available to them and to their families.) VOLUNTEERS: Hospice volunteers are an important part of the team. (In fact, Medicare requires hospices to have volunteers.) They are trained individuals who provide important assistance to the hospice family such as sitting with the client, running errands, preparing a meal or providing transportation. BEREAVEMENT COUNSELORS. These counselors teach grieving families how to begin to heal from the loss of their loved one. They offer group support sessions and individual visits for up to one year after the client dies.
8 2010 In the Know, Inc. Page 6 CHOOSING HOSPICE... IT S NOT ABOUT GIVING UP Of the 2.5 million Americans who die each year, nearly 40 percent are under the care of a hospice team. While the number of Americans choosing hospice is on the rise, there are still some barriers that keep many from making the choice: The decision to switch to hospice care can be a difficult one to make for the sick person, his family and his doctor. For some, it feels like giving up, so they refuse hospice. Some physicians don t like to bring up the idea of hospice. (Did you know that in most medical schools, the idea of hospice is never talked about? Remember, doctors are taught to fight disease. So, to them, hospice means they ve lost the battle.) Studies have shown that many doctors overestimate how much time their patients have left to live. For example, the doctor guesses that Mrs. Jones has one year left to live, so she doesn t qualify for hospice. (Her insurance requires that her life expectancy be six months or less.) But, Mrs. Jones dies in just two months without hospice care. Fear of dying...either from the client or from family members...can make it hard to switch to hospice care. Many clients choose hospice when they are so sick that they die within a few days. This doesn t give the hospice team much time to provide the necessary support and counseling to the client or the family. Not enough people know what hospice is all about. That s why it s important to educate people about the benefits of hospice care. Ask your supervisor how you can help spread the word about hospice in your community. REMEMBER: Hospice isn t for everyone. People have the right to decide against hospice care. The important thing is that they understand the services that hospice offers so that they can make the best decision for themselves and/or their loved ones. Currently, about 80 percent of hospice clients are white senior citizens. About 7 percent are African American and the remainder are categorized as Hispanic, Asian and mixed race. So, a future goal across the U.S. is to increase the amount of hospice care provided to minority groups. Why do you think some minority groups may not reach out to Hospice? Some possible reasons may include: lack of access to information about availability, misinformation about what Hospice does, fear of the medical community, and cost. What do you think is the main barrier keeping minorities from choosing Hospice in your community? What can you do to increase awareness in your community? Watching a peaceful death of a human being reminds us of a falling star; one of a million lights in a vast sky that flares up for a brief moment only to disappear into the endless night forever. ~ Elisabeth Kubler-Ross
9 2010 In the Know, Inc. Page 7 PALLIATIVE CARE IS COMFORT CARE WHAT IS PALLIATIVE CARE? Palliative care is also known as comfort care. Palliative care focuses on making a person comfortable by reducing or taking away the symptoms of an illness. For example, Mrs. Potter has cancer. Her most bothersome symptoms are bone pain, shortness of breath and constipation. The palliative care that Mrs. Potter receives includes pain medications, oxygen therapy and treatment for her constipation. None of this medical care will make her cancer go away. Instead, it will help keep her comfortable as her disease progresses. People who choose hospice have made the decision to focus their medical care on comfort rather than cure. Together, the hospice team develops a plan of care for each hospice client. It includes doctor s orders and a plan for what each team member needs to do to help the client and family. A hospice plan of care is very flexible. Depending on a client s symptoms, it may change from day to day. WHY IS PALLIATIVE CARE SO IMPORTANT? If you ask people what they fear most about dying, many will say that they are afraid of being in pain. Controlling pain is a big issue for hospice clients and their families. Hospice workers are experts at controlling pain both with medications and with other non-drug methods. And, every member of the hospice team is involved in managing a client s pain: Doctors prescribe the best pain medication for each hospice client. Nurses observe the client to see if the pain medication is working. They keep in touch with the doctor and the pharmacist. They teach family members how to help reduce their loved one s pain. Aides help manage pain by keeping the client clean, dry and warm. They also help the client get into comfortable positions and report any complaints of pain to the nurse. Therapists help reduce pain by providing the client with necessary equipment such as a cane, a wheelchair, a bedside commode or a trapeze for over the bed. They can also give massages or teach gentle stretching exercises to reduce the pain. Social workers, chaplains and bereavement counselors help reduce the emotional and spiritual pain that comes with dying and with losing a loved one. THE STAGES OF GRIEF Did you know your clients may go through the Stages of Grief as they approach death? Here are the stages: DENIAL: Just after a diagnosis, a client may express, "This can't be happening." Or, "Why me?" ANGER: When denial wears off and reality sets in... anger emerges. If your client is angry. Listen. Be present. Never tell someone the feeling is wrong. BARGAINING: This is the internal struggle, usually between the grieving person and God. "Please God, I will do anything you ask... just let me live." DEPRESSION: When bargaining fails, depression takes over. Depression occurs when the sadness becomes so overwhelming, the person finally surrenders to the grief. ACCEPTANCE: Acceptance happens when the dying client comes to terms with the reality of the situation. Not every dying person will get to this stage. Or, it may occur in their final moments of living. 1. Do you recognize any of these stages in your client? 2. Discuss your observations with your co-workers and supervisor to find out how they handle these types of situations.
10 2010 In the Know, Inc. Page 8 TIPS FOR WORKING WITH HOSPICE CLIENTS FOCUS ON EATING AND NUTRITION SERVE FREQUENT, SMALLER MEALS: Your hospice clients may prefer five or six small meals during the day rather than three big ones. MAKE IT EASY: Keep in mind that it takes less energy to drink than to chew...so try offering liquid food like soup, a milkshake or a supplement like Ensure. (Check with the nurse for the best food choices for each client.) NEVER FORCE A FEEDING: As people near death, the digestive system slows down. This causes clients to lose their appetite. Family members may be concerned when their loved ones don t want to eat. Remind them that forcing food at this point can cause discomfort, choking, vomiting or diarrhea and that it s natural for the client to be eating less. PROVIDE MOUTH CARE: Provide frequent mouth care to keep the mouth fresh and moist. (It can be very painful if the tissues in the mouth become dry.) UNDERSTAND IV S AND TUBE FEEDINGS: Some of your hospice clients may be fed through an IV or a tube that goes directly into the stomach. Be sure you understand what you can and cannot do when it comes to IVs and feeding tubes. When in doubt, ask your supervisor. SWALLOWING PROBLEMS CAN BE FIXED: If a client complains of being hungry, but is having trouble swallowing, notify your supervisor immediately. This problem can be treated. A speech therapist or a dietician may visit the client to determine the best approach to solving the problem. You may be asked to help the family prepare soft or pureed foods for the client. RECOGNIZE AND REPORT CHANGES: A loss of appetite doesn t necessarily mean that the end is near. The client may simply be constipated! Be sure to document when your client has a bowel movement. And, report any change in appetite to the nurse. SIGNS AND SYMPTOMS OF APPROACHING DEATH Some clients may experience some or all of the following symptoms as death nears: Drowsiness: You may see decreased responsiveness and increased sleep. Eventually, the client may become unresponsive. Confusion: Clients may become confused about the date and time, and about people and places. This is most distressing to family members. Withdrawal: You may see a decrease in communication as the client begins to mentally prepare to die. Experts say giving permission to "let go" helps the client die more peacefully. Loss of appetite: The body no longer burns energy, so it no longer needs to replenish its energy reserve. Irregular Breathing: Breathing may become decreased, shallow and noisy. You may hear rattling or gurgling as fluids begin to build up. Loss of bladder or bowel control: The muscles of the pelvis begin to relax and make it impossible to control the bowels and bladder. Describe how you would care for your clients and their family members as you observe each of the above symptoms.
11 2010 In the Know, Inc. Page 9 MORE TIPS FOR WORKING WITH HOSPICE CLIENTS FOCUS ON REST AND ACTIVITY You may find that some clients ask to sit in a chair, then ask to go back to bed, then ask to sit in the chair again...and so on! Please remember that the client may have a symptom of dying called terminal restlessness. Tell the nurse about the problem. There are medications that help relieve this symptom. Remember that moving around can make pain worse. Try to plan activities (such as bathing) for thirty to sixty minutes after your client has taken pain medication. After spending a lot of time lying in bed, your clients may become dizzy when they try to sit up or stand. Guard against falls! You may need a family member to help you transfer the client. If your client is losing strength and needs additional equipment such as a walker or a bedside commode be sure to tell the other members of the hospice team. FOCUS ON BREATHING Many people with a terminal illness experience breathing difficulties, especially shortness of breath. One way to give immediate relief from shortness of breath is to help the person sit up. If the client has a hospital-type bed, raise the head of the bed. Otherwise, place some pillows behind the client s back. This is just a temporary solution! Report any new shortness of breath to your supervisor right away. Some of your hospice clients may be receiving oxygen. Remember to follow oxygen safety rules. Remind the family not to smoke or light candles in the same room as the oxygen. As death approaches, it s common for people to breathe differently. For example, there may be longer and longer pauses between breaths. This can be scary for the family. Help them cope by reminding them that it s normal and that it s not painful. Working with clients in the home often requires coming up with creative solutions to uncommon problems. THE PROBLEM: You are caring for a 56 year old woman with end stage cancer. She has been in bed for nearly a week with weakness, fatigue, decreased appetite and sever pain. This week, she is feeling stronger. She wants to get dressed, go for a walk outside, and then bake some cookies for her granddaughter who is coming for a visit. WHAT YOU KNOW: You know she needs to pace herself. You also know that if she doesn t take advantage of this burst of energy... it may never come again. GET CREATIVE: Think of 3 creative solutions you might suggest to your client to help her be as active as possible and do all the things she wants to do without over-doing it and landing herself back in bed for another week. TALK ABOUT IT: Share your ideas with your co-workers and supervisor and find out how they would solve the problem.
12 2010 In the Know, Inc. Page 10 FINAL TIPS FOR WORKING WITH HOSPICE CLIENTS FOCUS ON SKIN CARE Skin care is very important for hospice clients since they often spend a lot of time in bed or sitting in a chair. This puts them at risk for pressure sores. Help your clients change position frequently and check their skin for reddened areas every day. FOCUS ON THE SENSES As the circulation slows down, there is less blood flow to the feet. Check your clients to make sure their feet aren t cold! (A pair or two of socks might help.) Don t wear strong perfumes when working with hospice clients. Strong smells even pleasant ones can be nauseating to the client. Some clients may enjoy listening to some soft, restful music. Some like to have the TV on. Others prefer silence. Be sensitive to your client s preferences. Some clients may want their curtains opened so they can see outside. Others may want to keep it dark in the room. There is no right or wrong way. Let your clients stay in control over their environment. Remember that hearing is the last sense to go when someone is dying. Remind family members that their loved one can probably hear what they are saying. FOCUS ON PSYCOLOGICAL NEEDS Maintain a positive attitude during your work with hospice clients and their families. (But keep it natural. Don t put on a phony cheerfulness.) If your clients or their family members want to talk about dying, let them know you are there for them. Don t worry about saying exactly the right thing. The most important thing you can do is listen while they express their feelings. Be sure to respect the religious beliefs of your clients even if you disagree with them. Don t share your personal views unless you are asked to do so. If you notice that a client s family members are overwhelmed and exhausted, tell your supervisor. It may be possible to provide the family with respite care (during which the client is placed in a facility for a few days to give the family time to rest). 1. Hospice is not a location. It s a special way of caring for terminally ill clients and their families. 2. Hospice care: Focuses on comfort and dignity. Keeps families together during the difficult time of losing a loved one. Gives people control over their end-of-life care. Saves money. 3. People who choose hospice have made the decision to focus their medical care on comfort rather than cure. 4. Most people fear pain more than anything else. Hospice workers are experts at relieving pain, both with medications and with other non-drug methods. 5. Being a hospice aide is rewarding work that allows you to make a difference in the lives of your clients and their families.
13 2010 In the Know, Inc. Page 11 SOME TIPS JUST FOR YOU! TAKE CARE OF YOURSELF! When you care for dying clients and their family, the focus of care and support is on them. And, it should be! But, you have to remember to take care of yourself, too! Some things you can do are: EAT WELL: Take the time to fix meals at home. Food you prepare yourself at home is lower in sodium, fat and calories. Use the time it takes to cook the meal to reflect on your day and let it all go. Share home cooked meals with your friends and family. It will help you feel more connected to the living after you ve been surrounded by death and dying all day. EXERCISE: It takes a lot of strength and energy to care for a dying client. Exercise can help you build your strength and recharge your energy. Exercise also helps boost your mood. Getting your heart rate up triggers the release of endorphins. These are the feel good chemicals that give you a sense of peace and well-being! RELAX: Stress takes a toll on your body and mind. Its important to take time to relax. Whether you like to take a walk in the park, read a book, or just watch TV... take a little time every day to relax! FEEL: Give yourself permission to feel sad when you lose a client. Denying your feelings will do you no good. It will eventually come out in some other way. It is healthy and normal for you to feel some degree of sadness after a client dies. But, if you feel like you are dwelling on it, or can t shake it off, talk to someone. Your employer may have services available to help you deal with the loss. RE-ENERGIZE: When you begin to feel like you are running out of steam, find a way to re-energize! Take a day or two off if possible, take a short vacation, plan a night out with friends, see a movie, take a bubble bath. Remember you can t give away what you don t have. So, if your energy is low, you can t give the kind of care your client needs and deserves. DON T GET USED TO IT: You may hear that dealing with death gets easier. That you ll get used to it. But, that is just not true. You may become more comfortable with it, but if you ever get used to it, consider changing jobs. You will no longer be an effective caregiver if you become unable to feel and understand the feelings of dying clients and their family members. Now that you ve read this inservice on hospice, take a moment to jot down a couple of things you learned that you didn t know before.
14 Are you In the Know about Hospice? Circle the best choice or fill in your answer. Then check your answers with your supervisor! 1. True or False Hospice is a place where people go to die. EMPLOYEE NAME (Please print): DATE: I understand the information presented in this inservice. I have completed this inservice and answered at least eight of the test questions correctly. EMPLOYEE SIGNATURE: SUPERVISOR SIGNATURE: Inservice Credit: 2. True or False Once the decision is made to use Hospice, that decision cannot be changed. 3. True or False Most Hospice clients are able to remain at home with family and loved ones. 4. True or False A hospice client no longer has a need for a physical therapist. 5. If you ask people what they fear most about dying, many will say that they are most afraid of being: A. Alone B. In pain. C. Hungry. D. Away from home. 6. True or False Bereavement Counselors on the Hospice team may work with family members for up to one year after a client dies. 7. True or False A common sign that a client is approaching death is irregular or noisy breathing. 8. True or False People who are dying move through the stages of grief just as family members do after a loved one is gone. Self Study Group Study 1 hour 1 hour 9. True or False Hearing is usually the last sense to go when someone is dying. 10. Fill in the Blanks File completed test in employee s personnel file. Palliative care is also known as care.
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Caregiver Stress Q: What is a caregiver? A: A caregiver is anyone who provides help to another person in need. Usually, the person receiving care has a condition such as dementia, cancer, or brain injury
End of Life Cindy LaCour Social Work Director Kathy Maher Therapeutic Recreation Director End of Life Sara Teasdale 1884-1933 "There Will Be Rest" "There Will Be Rest" There will be rest, and sure stars
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A special kind of caring You matter to the last moment of your life, and we will do all we can, not only to help you die peacefully, but to live until you die. Dame Cicely Saunders, 1968 Founder of the
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A decision aid for Care for anyone considering hospice You or a loved one have been diagnosed with a serious illness that might not be curable. Many people find this scary or confusing. Some people feel
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Hospice Care for the Person with Cancer Hospice is a special type of care designed to provide comfort, support and dignity to patients with a lifelimiting or terminal illness. For hospice purposes, a life-limiting
Providing Hospice Care in a SNF/NF or ICF/IID facility Education program Insert name of your hospice program Insert your logo Objectives Review the philosophy of hospice care and discuss what hospice care
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Please Note: Talk to your doctor, case manager or healthcare professional to see if these options are right for you and are covered by your health insurance. CHOICES FOR Continued Care The appropriateness
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10: Beyond the caring role This section provides support if you no longer need to give the same level of care to a person with MND or your caring role has come to an end. The following information is a
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Honoring Choices Virginia Planning in Advance for Future Health Care Choices Advance Care Planning Information & Guide Honoring Choices Virginia Imagine You are in an intensive care unit of a hospital.
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Caring in the Last Days of Life Provided by the Metropolitan Palliative Care Consultancy Team (MPaCCS) for Residential Care Facilities This booklet has been compiled to help answer some of the questions
Last Days of Life - Care of the Dying Introduction The Nurses, Doctors and other staff are here to help you work through your worries and concerns and to offer care and support at this sad and challenging
Advance Care Planning Information Booklet Planning in Advance for Future Healthcare Choices www.yourhealthyourchoice.org Life Choices Imagine You are in an intensive care unit of a hospital. Without warning,
The POLST Conversation POLST Script The POLST Script provides detailed information in order to develop comfort and competence when facilitating a POLST conversation. The POLST conversation utilizes realistic
When the need to eat and drink becomes less For relatives and friends - frequently asked questions about appetite and weight loss Because every day matters www.hospiscare.co.uk Why have they stopped eating?
Individualised End of Life Care Plan for the Last Days or Hours of Life Patient name Hospital number Date of birth NHS number Informed by Five Priorities for Care: Recognise, Communicate, Involve, Support,
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What are ADLs and IADLs? Introduction: In this module you will learn about ways you can help a consumer with everyday activities while supporting his/her independence and helping the consumer keep a sense
Last Days of Life: What You Can Expect As a person s body slows down and prepares for death, some physical changes will happen. Each person is different and what happens is not the same for everyone. These
Hospice Ensuring Dignity with Comprehensive Care Cynthia Katzan, MD Visiting Nurse Association of Ohio and HealthNetwork Foundation Scenario 1 Misconceptions about Hospice Hospice is for when you ve given
Form: D-5556 Cardiovascular Intensive Care Unit (CVICU) Information for visitors of the CVICU at Toronto General Hospital Welcome to the Cardiovascular Intensive Care Unit (CVICU). We know this is a difficult
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Advance Care Planning Workbook Making Your Medical Wishes Known Advance Care Planning Workbook 1 munsonhealthcare.org/acp Making Your Medical Wishes Known At any age, a medical crisis could leave someone
HOW DO I KNOW MY LOVED ONE IS READY FOR HOSPICE? Hospice is care for patients with serious, debilitating or terminal diseases. It may be time to consider hospice when the effects of an illness begin to
Patient & Family Guide 2017 Welcome to 8.2 www.nshealth.ca Welcome to 8.2 We are a 37-bed Medical Teaching Unit for patients with many kinds of medical conditions. The members of your healthcare team will
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MAKING YOUR WISHES KNOWN: Advance Care Planning Guide ADVANCE CARE PLANNING The process of learning about the type of medical decisions that may need to be made, considering those decisions ahead of time
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ADVANCE DIRECTIVE PACKET Question and Answer Section Please review the following facts regarding what an Advance Directive is, as well as your right as an adult to create one. If you decide to complete
Unit 301 Understand how to provide support when working in end of life care Supporting information Guidance This unit must be assessed in accordance with Skills for Care and Development s QCF Assessment
Hospice Care: Comfort and Compassion When It s Needed Most When it comes to creating memories and sharing in significant life events, the family is the focal point for commemoration and celebration. We
877.809.5515 www.knowingmore.com email@example.com A Patient Rights Module: THE PATIENT BILL OF RIGHTS 1998-2011 May be copied for use within each physical location that purchases this inservice. Inservices
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Dear Family Caregiver, Yes, you. If you re wondering whether the term caregiver applies to you, it probably does. A caregiver is anyone who helps an aging, ill, or disabled family member or friend manage
Hospice Care in Merrillville, IN Harbor Light Hospice s central mission in and the neighboring areas is to increase ease of access to reliable end-of-life care and other quality services for patients who
WHEN IS IT TIME? to consider Hospice Care Illnesses can seem to come out of nowhere, or they come and stay like uninvited guests. Either way, hearing the words terminal illness is never easy, but knowledge
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Promise #1: We will initiate the conversation The Advance Care Planning Initiative at Saint Joseph Mercy Health System is dedicated to Julie MacDonald, whose inspirational leadership and vision serve as
Palliative and Hospice Care In the United States Jean Root, DO Hello. My name is Jean Root. I am an Osteopathic Physician who specializes in Geriatrics, or care of the elderly. I teach and practice Geriatric
A Guide to Your Child s Hospital Stay Thank you for choosing Blank Children s Hospital for your child s care. Our mission is to provide the Best Outcome, Every Patient, Every Time. As a parent or caregiver
93 National advance care planning day April 16th is national advance care planning day in Canada: a day to reflect on what gives your life meaning, your values, and your wishes for your care at the end
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Understanding Hospice Care What is Hospice Care? We take care of patients and families facing serious illness, so they can focus on living well. Quality of Life We are committed to the belief that there