Impact of a psychoeducational program on three types of caregiver burden among spouses

Size: px
Start display at page:

Download "Impact of a psychoeducational program on three types of caregiver burden among spouses"

Transcription

1 RESEARCH ARTICLE Impact of a psychoeducational program on three types of caregiver burden among spouses Marie Y. Savundranayagam 1,y, Rhonda J. V. Montgomery 1z, Karl Kosloski 2x and Todd D. Little 3ô 1 Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, P.O. Box 786, Milwaukee, WI, USA 2 Department of Gerontology, University of Nebraska at Omaha, 6001 Dodge St., Omaha, NE, USA 3 Department of Psychology, Director, Quantitative Training program, Scientific Director, Research, Design, and Analysis Unit, Schiefelbusch Institute for Life Span Studies, University of Kansas, 1415 Jayhawk Blvd. Lawrence, KS, USA Correspondence to: M. Y. Savundranayagam, maries@uwm.edu y Assistant Professor. z Professor and Helen Bader Endowed Chair in Applied Gerontology. Professor. ô Professor and Reynolds Professor of Public Affairs and Community Service. Purpose: The purpose of this study was to investigate the extent to which a psychoeducational intervention called Powerful Tools for Caregivers (PTC) influences burden of spouse caregivers. Specifically, this study examined whether spouse caregivers who attended PTC exhibited reductions in stress burden, relationship burden, and objective burden compared to a comparison group. Design and Methods: The 6 week intervention used a self-efficacy framework to train caregivers to focus on self-care, communicate effectively, and manage emotions. This quasi-experimental study included 115 participants from the PTC group and 95 participants from a comparison group. Assessments were completed before and after the intervention for the PTC group and within a 6 week time period for the comparison group. Results: Analyses using structural equation modeling showed that participants in the PTC group reported significantly lower levels of stress and objective burden than the comparison group. There were no group differences in relationship burden. Implications: The findings indicate that PTC can be an effective resource for reducing psychological distress and objective burden among spouses caring for disabled partners. Copyright # 2010 John Wiley & Sons, Ltd. Key words: caregiver intervention; psychoeducational; relationship burden; objective burden History: Received 12 January 2010; Accepted 26 March 2010; Published online in Wiley InterScience ( DOI: /gps.2538 Introduction The distressing impact of caregiving on mental and physical health is notable in spouses/partners. Compared to other family members, spouses perform more personal care tasks (Marks et al., 2002) and receive less help (Bedard, Kuzik, Chambers, Molley, Dubois & Lever, 2000). Spouses, especially wives, tend to be the last to relinquish care to professionals and experience more negative effects from caregiving than other family caregivers (Young and Kahana, 1989; Seltzer and Li, 2000). Psychoeducational programs are one of the most common types of interventions that address caregiver well-being (Sörensen et al., 2002). Many vary in content and format, and have multifaceted curricula offered in 2 3 hours sessions over 4 6 weeks. They cover topics on caregiving roles, care contexts, and skill building. They frequently include group activities that normalize caregiving experiences and build a support

2 M. Y. Savundranayagam et al. network among participants (Sörensen et al., 2002; Gallagher-Thompson and Coon, 2007). Although benefits of psychoeducational programs are widely touted, there is limited evidence to support positive caregiver outcomes. This may reflect a dearth of welldesigned studies and the diversity among caregivers in their need for different types of psychoeducational programs (Gallagher-Thompson and Coon, 2007; Selwood et al., 2007). If psychoeducational programs are to be made widely available, it is important to document their benefits and the segments of the caregiver population that are most apt to benefit from them. The purpose of this study was to assess the impact of a widely used psychoeducational intervention called Powerful Tools for Caregivers (PTC) on spouse caregivers of persons with chronic illnesses (Schmall et al., 2000). PTC is grounded in a self-efficacy model and teaches caregivers to engage in self-care by managing their emotions, communicating effectively, and enhancing their decision-making skills. The premise of PTC is that increased self-efficacy will promote the use of coping behaviors that will, in turn, enhance self-care and well-being among caregivers (Bandura, 1986; Zeiss et al., 1999). PTC was originally targeted to caregivers of persons with Alzheimer s disease, stroke, and Parkinson s disease (Kuhn et al., 2003; Boise et al., 2005) but was expanded to other caregivers because self-care needs were relevant. Previous studies using pre-post designs to assess PTC s impact on spouses and adult-children have documented improvements in self-efficacy, more positive views about the caregiver role, increases in self-care behaviors and decreases in depression, anger, and guilt (Kuhn et al., 2003; Boise et al., 2005). Although Boise et al. (2005) did not examine differences between spouses and adult-children, Kuhn et al. (2003) reported an increase in self-efficacy among both groups, but found that only adult-children reported taking time for themselves and decreases in depressive symptoms. A more recent study of adult-children and spouses who completed PTC documented fewer health risk behaviors and more self-care behaviors (Won et al., 2008). Only one study examined the hypothesized link between improved self-efficacy and self-care and found that spouses and adult-children who increased selfefficacy over the course of PTC showed increases in self-care and reductions in health risk behaviors (Savundranayagam and Brintnall-Peterson, 2010). While encouraging, previous studies have not included comparison or control groups, making it difficult to interpret differences over time. Attending to the plight of caregivers by inquiring about their distress could produce salutary effects in the absence of programmatic effects. Moreover, previous studies did not directly examine hypothesized links between increased self-efficacy, changed behaviors, and more distal caregiver outcomes such as caregiver burden. Examining PTC s influence on burden is important because it is an outcome that is typically assessed in caregiver interventions and therefore, allows for comparisons of this intervention with other psychoeducational interventions (Hebert et al., 2003). The current study employed a quasi-experimental comparison group design to assess the impact of PTC on three types of burden: stress burden (tension and anxiety stemming from the caregiver role), relationship burden (extent to which the caregiver perceives the care-receiver to be overly demanding and manipulative), and objective burden (infringement of caregiver role on other aspects of caregivers lives) (Montgomery et al., 2000). Using multiple forms of burden as outcomes is more informative than using a summary burden score (Gaugler et al., 2000) to assess an intervention s impact because an intervention may differentially affect each type of burden. What is unknown is whether PTC s curriculum would lead to decreases in each type of burden. It is hypothesized that PTC empowers caregivers by teaching them coping skills, reframing difficult caregiving situations, and encouraging self-care. In turn, caregivers effectively using these coping behaviors will experience less burden. Specifically, PTC should affect stress burden because the curriculum teaches stress management techniques and fosters the creation of mutually supportive groups. PTC should influence relationship burden because it covers ways to understand carereceivers needs via improved communication skills. Finally, PTC should affect objective burden because it teaches caregivers how to find and request help, and to take time for other aspects of their lives. This study was guided by the model depicted in Figure 1. We hypothesized that mean scores for stress burden, relationship burden, and objective burden would be significantly lower in PTC participants than in comparison group participants after controlling for the autoregressive paths for each type of burden. METHOD Study design and sample A pre-post comparison group design was used to assess the impact of PTC on 115 spouses, who were recruited from PTC classes offered in eight states (California,

3 Impact of Powerful Tools for Caregivers on Burden Stress Stress Participants share their action plans with the group and report on their progress in subsequent sessions. They receive encouraging feedback on the implementation of action plans from the group (Schmall et al., 2000). Group Propensity score Relationship Objective Illinois, Iowa, Montana, North Carolina, Oregon, Washington, and Wisconsin) between April 2007 and December Only 22% of PTC participants withdrew from the study and were excluded from analysis because they did not receive the intervention. Reasons for dropout included declining caregiver or care-receiver health and nursing home placement of care-receivers. The comparison group included 95 spouse caregivers from the League of Experienced Family Caregivers (LEFC), which is a registry of family caregivers who volunteer to share information about their caregiving experiences. Most LEFC members are identified when they seek services or information from provider organizations. Like PTC participants, LEFC members have self-identified as caregivers needing assistance. Intervention: Powerful Tools for Caregivers Relationship Objective Figure 1 Hypothesized Model. Note: Controlling for variables in SEM requires direct paths (not shown) from control measures to each latent construct in the model. PTC consists of six, 2.5 hours sessions that are conducted weekly by two class leaders. The first session addresses caregiving challenges and self-care. The second week concerns effective stress management, including ways to change negative self-talk to positive self-talk and ways to use relaxation activities daily. In week 3, participants learn and practice effective communication skills. Week 4 emphasizes assertive communication in challenging situations such as dealing with other family members. In week 5, participants learn to listen and identify ways to deal with emotions such as guilt. The last session addresses emotions during life changes and how to manage tough decisions. A unique component of PTC is creating weekly action plans that focus on practicing the powerful tool/skill taught in each session. Data collection Data collection for PTC and comparison group participants occurred over a period of 21 months. Data were collected from both groups at two points in time by the research team and not by class leaders. PTC participants completed an initial questionnaire before session one and a follow-up questionnaire after session six. Data for LEFC members were drawn from questionnaires completed when they enrolled in LEFC and follow-up questionnaires administered 6 weeks later. Questionnaires included items about demographic information on caregivers and their spouses with chronic illnesses, the care-receiver s functional status and problem behaviors, and caregiver burden. Measures Caregiver burden. Burden was measured using the Montgomery et al. (2000) burden measure. Respondents indicated the extent to which an aspect of their life changed due to caregiving by using a response set ranging from 1 (not at all) to 5 (a great deal). Stress burden included five items measuring the affect component of burden such as anxiety and depression. Cronbach s alpha for stress burden was.91 and.93 for PTC and comparison groups, respectively. Relationship burden included five items assessing the extent to which caregivers perceived care-receivers behavior as manipulative and overly demanding. Cronbach s alpha for relationship burden was 0.87 and 0.89 for PTC and comparison groups, respectively. Objective burden included six items assessing the extent to which care demands infringed upon time or privacy that caregivers had for themselves and others. Cronbach s alpha was 0.92 and 0.90 for PTC and comparison groups, respectively. Covariates. Eight variables reflecting characteristics of caregivers and care-receivers were included as covariates because previous studies have identified them as factors related to burden (Pinquart and Sorensen, 2003). The five variables pertaining to caregivers characteristics are gender, education level, employment status, health, and length of caregiving (Table 1).

4 M. Y. Savundranayagam et al. Table 1 Sample characteristics PTC (N ¼ 115) Comparison group (N ¼ 95) Caregiver average age and range 71 (30 89 years) 65 (33 90 years) Care-receiver average age and range 75 (39 97 years) 70 (37 93 years) Caregiver gender Male 21.7% 25.3% Female 78.3% 74.7% Caregiver ethnicity White 95.0% 94.0% African American 2.0% 0.0% Hispanic 2.0% 2.0% Other 1.0% 4.0% Caregiver s level of education a Grades % 1.1% Grades % 3.3% High school graduate 29.6% 18.7% Some college or associate/technical degree 37.4% 31.9% Bachelor s degree (BS, BA, etc.) 19.1% 28.6% Graduate degree or above 10.4% 16.5% Caregiver employment Full-time 4.5% 13.6% Part-time 8.0% 9.1% Retired but working part-time 0.9% 8.0% Fully retired 68.8% 40.9% Homemaker 13.4% 18.2% Unemployed 0.9% 1.1% Other 3.6% 9.1% Caregiving length a Less than 6 months 6.2% 0.0% 6 12 months 8.8% 3.3% months 18.6% 3.3% 25 months to less than 5 years 32.7% 26.4% 5 years or more 33.6% 67.0% Caregiver health (mean, standard deviation) a 3.98 (0.69) 3.60 (0.84) Care-receiver s condition b Alzheimer s disease or related dementia 57.4% 51.6% Heart disease 27.8% 18.9% Stroke 23.5% 27.4% Parkinson s disease 13.0% 9.5% Cancer 11.3% 9.5% Endocrine problem (diabetes, hypothyroid) 6.1% 10.5% Multiple Sclerosis 5.2% 15.8% Respiratory problem 1.7% 6.3% Other c 27.0% 17.9% Care-receiver s Living Arrangement Lives alone in his/her own home 1.7% 1.1% Lives in household with caregiver 89.6% 89.4% Lives in a group environment with assistance (not nursing home) 3.5% 2.1% Lives in a nursing home 5.2% 7.4% Care-receiver s problem behaviors (mean, standard deviation) 1.66 (0.47) 1.70 (0.48) Care-receiver s functional decline (mean, standard deviation) a 2.45 (0.78) 2.95 (0.74) PTC ¼ Powerful Tools for Caregivers group a p < 0.05 (indicates a statistically significant difference between groups). b Care-receiver may have more than one illness condition. c Other category, created from write-in responses, included the following conditions: vision problems (e.g., macular degeneration), hearing problems, mood disorders, digestive diseases, spinal cord injuries, and neuropathy. Caregiver health was measured with a single item asking participants to rate their health using a five point scale. Length of caregiving was measured using five categories: less than 6 months, 6 12 months, months, 25 months to less than 5 years, and 5 years or more. Measures about living arrangement, functional decline, and problem behaviors of care-receivers were also included as covariates (Table 1). Functional status was measured with seven items from the Katz Index of Activities of Daily Living (ADL) scale (McKhann et al., 1984) and nine items from the Instrumental Activities

5 Impact of Powerful Tools for Caregivers on Burden of Daily Living (IADL) scale (Lawton and Brody, 1969). Participants chose a number from 1 (needs no help) to 4 (cannot do it at all) to describe their spouse s need for assistance. Cronbach s alpha was 0.94 for PTC and comparison groups. The Problem Behavior (PB) scale (Pearlin et al., 1990) was used to assess problem behaviors. This scale included 15 items measuring difficult behaviors exhibited by people with dementia and the work such behaviors required of caregivers. Caregivers rated how frequently they dealt with problematic behaviors using the response categories: 0 days, 1 2 days, 3 4 days, 5 or more days. Examples include number of days the carereceiver became restless, suspicious, and irritable. Cronbach s alpha was 0.78 and 0.80 for PTC and comparison groups, respectively. Data analyses procedures Structural equation modeling (SEM) using LISREL 8.8 was employed to assess PTC s impact on burden because SEM corrects for measurement error, tests complex models, and explicitly estimates the correlation between independent variables (Rigdon, 2001). Before conducting the SEM analysis, propensity scores were created and included as covariates in the final analyses. Propensity score analysis. The potential for selection bias is a limitation of quasi-experimental studies that include a comparison group that is not selected through randomization. Differences observed in characteristics of PTC and comparison groups at baseline could influence the outcome variable. For example, female caregivers may be less likely to be employed and also less likely to report being burdened. The inclusion of covariates, therefore, is designed to control for pre-existing differences between PTC and comparison groups in demographic characteristics that might affect the results validity. The propensity score method balances a set of multiple observed covariates between two groups (Rosenbaum and Rubin, 1983, 1984) by using logistic regression to estimate the probability (propensity score) of belonging to the PTC group given those covariates. Given any value of the propensity score, the PTC and comparison groups will have the same joint distribution in all observed covariates that were used to estimate the propensity score (Rosenbaum and Rubin, 1983; 1984; Rubin, 1997). This method provides a mechanism for assessing whether or not both groups are comparable with respect to the observed covariates after the regression adjustment has been made. The following covariates were included in a logistic regression that predicted classification into treatment status (PTC or comparison): caregiver gender, caregiver education, caregiver employment status, caregiver health, length of caregiving, living arrangement of care-receiver, carereceiver s functional decline, and problem behaviors. The propensity score was used as a covariate in the SEM analyses comparing PTC and comparison groups. Measurement model. All constructs, except for group and the propensity score, were composed of multiple indicators. The respective indicators for all types of burden included three random parcels with items corresponding to each measure. These parcels contain approximately equal common factor variance (Little et al., 2002). The scale for these constructs was set using the effects-coded method, where the indicator loadings average 1.0 (Little et al., 2006). The error covariances between corresponding time 1 and 2 indicators were freely estimated. Group (a dummy coded latent variable where PTC ¼ 0 and comparison group ¼ 1) and the propensity score were single indicator constructs, which were locally identified by setting the error variance of the indicator to 0 and leaving the factor loading to be estimated. SEM analysis was conducted using the variance covariance matrix. Table 2 reports the relationships between indicators and their respective constructs. All indicators loaded significantly onto their corresponding constructs. The amount of variance in each indicator that was accounted for by its latent construct ranged from 0.56 to All measured variables were grand-mean centered prior to analyses. Covariate adjusted test of mean differences between groups. A single group SEM model with a dummy coded latent variable representing both groups was used to perform a covariate controlled test of mean differences in the groups. Time 2 variables were predicted from all control variables and the dummy coded group variable. We estimated the correlation between group and the time 1 variables. The significant regression path from the group variable to the time 2 latent constructs reflects the unique mean difference of groups after controlling for the other effects. The covariate adjusted test was done as a single-group latent variable regression test of the differences at time 2 controlling for the other variables in the model. Nested models. Nested models were created by placing constraints on previous models. This study used the model trimming approach, which begins with a

6 M. Y. Savundranayagam et al. Table 2 Loading and intercept values, residuals, and R 2 values for indicators in hypothesized model Equated estimates Standardized Indicator Loading (SE) Intercept (SE) Loading u R 2 Stress Burden Time 1 Stress1a 0.95 (0.02) 0.00 (0.02) Stress1b 1.02 (0.02) 0.00 (0.02) Stress1c 1.04 (0.03) 0.00 (0.03) Stress Burden Time 2 Stress2a 0.95 (0.02) 0.00 (0.02) Stress2b 1.02 (0.02) 0.00 (0.02) Stress2c 1.04 (0.03) 0.00 (0.03) Relationship Burden Time 1 Relationship1a 0.92 (0.03) 0.01 (0.03) Relationship1b 1.07 (0.03) 0.00 (0.02) Relationship1c 1.02 (0.03) 0.01 (0.02) Relationship Burden Time 2 Relationship2a 0.92 (0.03) 0.01 (0.03) Relationship2b 1.07 (0.03) 0.00 (0.02) Relationship2c 1.02 (0.03) 0.01 (0.02) Objective Burden Time 1 Objective1a 0.98 (0.02) 0.00 (0.02) Objective1b 1.01 (0.02) 0.00 (0.02) Objective1c 1.01 (0.02) 0.00 (0.02) Objective Burden Time 2 Objective2a 0.98 (0.02) 0.00 (0.02) Objective2b 1.01 (0.02) 0.00 (0.02) Objective2c 1.01 (0.02) 0.00 (0.02) Each indicator is a random parcel created from the respective measure. just-identified model with equal numbers of known variances/covariances relative to unknown parameters (Kline, 1998). Based on modification indices, paths were removed from the hypothesized model until there was a significant chi-square difference signifying that the more parsimonious model provided the best fit to the data. Evaluating model fit. Maximum likelihood estimation was used because it yields optimal parameter estimates with continuous multivariate normally distributed variables (Jöreskog and Sörbom, 1993). Model fit was evaluated by: chi-square goodness-of-fit index, Bentler-Bonett Non-Normative fit index (NNFI), root mean square error of approximation (RMSEA), and comparative fit index (CFI). Results Characteristics of study samples The demographic characteristics of both groups were generally comparable (Table 1). The average age of caregivers was 71 years in the PTC group and 65 years in the comparison group. The majority of caregivers were wives who comprised 78% of the PTC group and 75% of the comparison group. In both groups, most participants were retired or homemakers and almost 90% of care-receivers lived in the same household as their caregivers. The average age of care-receivers was 75 for the PTC group and 70 years for the comparison groups. According to caregiver self-report assessments, over 80% of care-receivers had cognitive or memory problems, with over half being diagnosed with probable Alzheimer s disease or dementia. Differences were observed between both groups on four characteristics. PTC participants had less time in the caregiving role. Although about a third of caregivers in both groups (PTC ¼ 33%; comparison ¼ 26%) had provided care for 2 5 years, almost twice as many comparison group participants (67%) than PTC participants (34%) had provided care for five or more years. The average score for self reported health was higher for PTC participants than comparison participants. PTC participants were less educated and were caring for persons with less functional decline than comparison group participants. The inclusion of propensity scores in the analysis reduces the potential impact of these differences on the observed outcomes. The fit of the logistic regression model was good (C statistic ¼0.863) and there was no evidence of heteroscedastic error (Hosmer Lemeshow statistic p ¼ 0.669). As noted above, propensity scores were

7 Impact of Powerful Tools for Caregivers on Burden Table 3 Statistics for comparison of nested models Model x 2 df p RMSEA (90% CI) NNFI CFI Dx 2 Ddf p Measurement model < (0.0; 0.073) Hypothesized model < (0.035; 0.06) <0.05 Final model < (0.034; 0.06) >0.05 included as covariates in the SEM analysis to control for these differences. The correlations for the manifest variables in the hypothesized model are available upon request. reported significantly lower levels of stress burden and objective burden than comparison group participants. Contrary to our hypothesis, there were no group differences for relationship burden. Impact of PTC on burden Table 3 reports key findings for nested models and includes indices of model fit for analyses of stress burden, relationship burden, and objective burden. The chi-square difference test between measurement and hypothesized structural models indicated a significant loss in fit. When the non-significant path between group and relationship burden at time 2 was removed, the chi-square difference between measurement and final models indicated no significant loss in fit. Results from the final model are shown in Figure 2. It is important to reiterate that the findings reflect the unique effects of group assignment on stress and objective burden at time 2, after controlling for propensity and burden scores at time 1. We retained non-significant correlations between latent constructs to provide less biased estimates of predicted paths. As predicted, group was a significant predictor of stress and objective burden (standardized coefficient ¼ 0.14 and 0.12, p < 0.05, respectively). PTC participants.68 Group Propensity score Stress Relationship Objective Stress Relationship Objective Figure 2 Final Model. Note: All parameter estimates are standardized and significant, unless otherwise stated. Controlling for variables in SEM requires direct paths (not shown) from control measures to each latent construct in the model Discussion PTC was developed to promote caregivers well-being by equipping them with knowledge and skills to cope with their roles. Results from previous studies of PTC that have used a pre-post design have documented improvement in self-efficacy and self-care among participants. The current study s findings add to, and strengthen in three ways, the evidence that affirms PTC s merits. First, we used a quasi-experimental study design that included a comparison group and analyses procedures that controlled for differences between treatment and comparison groups to provide stronger evidence of PTC s merits. Second, by focusing on distal outcomes of caregiver burden, this study demonstrated that PTC s benefits extend beyond influencing selfefficacy and self-care to improvements in more global indicators of well-being. Third, the findings advance our understanding of types of burden that PTC influences. The mixed results regarding the impact of PTC on burden raise questions about which aspects of PTC s curriculum are linked with decreases in objective burden and stress burden, and why PTC did not affect relationship burden. Although speculative, an examination of PTC s content affords plausible hypotheses that might account for the mixed results. PTC participation may have led to less stress burden because many elements of the curriculum targeted stress management. The curriculum was purposefully designed to enhance self-efficacy by providing caregivers with permission to engage in self-care and tools for acting on this permission. In session two, PTC s curriculum helps caregivers to identify and manage stress. Participants also learned stress management and relaxation techniques during each session and were encouraged to practice them between sessions using action plans (Savundranayagam and Brintnall- Peterson, 2010).

8 M. Y. Savundranayagam et al. Objective burden occurs when caregiving responsibilities leave individuals with little time for themselves or other aspects of their lives (Montgomery et al., 2000), making them feel trapped in their caregiver role. The segments of PTC s curriculum that focus on giving permission for self-care, communication, and implementation of action plans may lead to reduced objective burden. PTC participants were given permission to seek help and taught how to communicate with family members and professionals about caregiving issues. They were taught how to request and access help. With newly acquired skills and greater knowledge of services, caregivers are more apt to use assistance from others and thereby reduce the responsibilities that they had previously viewed as an infringement on their time and relationships with other family members. Unlike the positive link between PTC participation and stress and objective burden, PTC participation did not influence relationship burden. There are two plausible explanations for this finding. First, PTC s curriculum does not include extensive content that is directly focused on the caregiver care receiver relationship. PTC s content on communication is focused primarily on communication with professionals and other family members, which is qualitatively different from communication issues involving care receivers, especially those with dementia who comprised over half of the study sample. PTC s curriculum does not include information about or demonstrate intensive skills that are often required to communicate with persons with dementia. It is therefore not surprising that relationship burden would not be directly affected by PTC. A second plausible explanation involves the fact that most PTC participants in this study were long-term caregivers. Almost two thirds (66.3%) of PTC participants provided care for over 2 years. Half of these participants provided care for more than 5 years. Caregiving is a journey of constant change and variable length. More intense responsibilities fall on caregivers at later phases of this journey, when care receivers are more dependent. Not all caregivers are willing or able to continue as caregivers when responsibilities become increasingly demanding. Long-term caregivers tend to be the most committed and, as a group, more homogenous. They may have low levels of relationship burden that cannot realistically be lowered by any intervention. Consequently, the absence of a link between PTC participation and relationship burden may reflect the generally low level of relationship burden reported by study participants, which left little room for improvement. Perhaps caregivers who Key Points This study is the first to employ a quasiexperimental design to examine the impact of Powerful Tools for Caregivers on multiple dimensions of burden among spouses. Spouse caregivers who took Powerful Tools for Caregivers reported less stress burden and less objective burden compared to caregivers from a comparison group. experience strained relationships with care receivers tend to opt out of the caregiving role and are less likely to seek help or enroll in psychoeducational groups. Limitations and future research The findings from this study are encouraging in that they demonstrate the potential for psychoeducational programs to address stress burden and objective burden. The study s strengths include using a comparison group, propensity scores to control for potential baseline group differences, and SEM to simultaneously assess PTC s impact on three types of burden. However, the lack of random assignment to treatment and comparison groups leaves open the potential for selection bias and the possibility that there were differences in unobserved factors that might influence the outcomes. The field would benefit from a study that employed a randomized control group design. Future research is needed on characteristics of caregivers who are likely to benefit the most from PTC. It is well-known that there are significant differences in the caregiving experience for spouses and adultchildren. Future research could also benefit from expanding the sample to be more culturally diverse. Finally, most PTC participants provided care for two or more years, reflecting the prevailing pattern of service use among spouses who generally do not seek help early in their caregiving journey. These long-term caregivers may also experience lower levels of relationship burden. Future studies could attempt to include individuals in earlier phases of caregiving and then examine the impact of PTC on different types of burden. Conflicts of interest None declared.

9 Impact of Powerful Tools for Caregivers on Burden Acknowledgements This research was supported by a grant to the first author from the Hartford Foundation s Geriatric Social Work Faculty Scholars program and a grant to the second author from the Helen Bader Foundation. The authors are grateful to the class leaders who taught the psychoeducational intervention and to all participating caregivers. The authors also acknowledge Dr. Vicki Schmall for her insightful feedback on earlier versions of the manuscript. Correspondence concerning this article should be addressed to Marie Y. Savundranayagam, Helen Bader School of Social Welfare, University of Wisconsin Milwaukee, P.O. Box 786, Milwaukee, WI maries@uwm.edu REFERENCES Bandura A The explanatory and predictive scope of self-efficacy theory. J Soc Clin Psychol, 4(3): Bédard M, Pedlar D, Martin NJ, et al Burden in caregivers of cognitively impaired older adults living in the community: methodological issues and determinants. Int Psychogeriatr, 12: Boise L, Congleton L, Shannon K Empowering family caregivers: The powerful tools for caregiving program. Educ Gerontol, 31: Gallagher-Thompson D, Coon DW Evidence-based psychological treatments for distress in family caregivers of older adults. Psychol Aging, 22(1): Gaugler JE, Kane RA, Langlois J Assessment of family caregivers of older adults, In RL, Kane RA Kane (Eds.) Assessing older persons: Measures, meaning and practical applications. (pp ). Oxford University Press: New York. Hebert R, Levesque L, Vezina J, et al Efficacy of a psychoeducative group program for caregivers of demented persons living at home: a randomized controlled trial. J Gerontol: series B: Psychol Sci Soc Sci, 58B(1), S Jöreskog K, Sörbom D LISREL 8: Structural equation modeling with SIMPLIS command language. Lawrence Erlbaum: Hillsdale, NJ. Kline RB Principles and practice of structural equation modeling. Guilford: New York. Kuhn D, Fulton B, Edelman P Powerful tools for caregivers: improving self-care and self-efficacy of family caregivers. Alzheimer s Care Q, 4: Lawton MP, Brody EM Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologia, 9: Little TD, Cunningham WA, Shahar G, et al To parcel or not to parcel: exploring the question, weighing the merits. Struct Equ Modeling: a Multidisciplinary J, 9(2): Little TD, Slegers DW, Card NA A non-arbitrary method of identifying and scaling latent variables in SEM and MACS models. Struct Equ Modeling, 13: Marks N, Lambert J, Choi HJ Transitions to caregiving, gender, and psychological well-being: a prospective US national study. J Marriage Fam, 64: McKhann G, Drachman D, Folstein M, et al Clinical diagnosis of Alzheimer s disease. Neurology, 34(939): 944. Montgomery RJV, Borgatta EF, Borgatta ML Societal and family change in the burden of care, In WT, Liu H Kendig (Eds.) Who should care for the elderly? An east-west value divide. (pp ). World Scientific: New Jersey. Pearlin LI, Mullan JT, Semple SJ, et al Caregiving and the stress process: an overview of concepts and their measures. Gerontologist, 30: Pinquart M, Sorensen S Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. J Gerontol, Series B: Psychol Sci Soc Sci, 58: P112 P128. Rigdon EE Structural equation modeling In Marcoulides, (Ed.), Modern methods for business research. (pp ). Erlbaum: Mahway, NJ Rosenbaum PR, Rubin DB Assessing sensitivity to an unobserved binary covariate in an observational study with binary outcome. J R Stat Soc, Series B, 45: Rosenbaum PR, Rubin DB Reducing bias in observational studies using subclassification on the propensity score. J Am Stat Assoc, 79(387): Rubin DB Estimating causal effects from large data sets using propensity scores. Ann Intern Med, 127(Part 2): Savundranayagam MY, Brintnall-Peterson M Testing self-efficacy as a pathway that supports self care among dementia family caregivers in a psychoeducational intervention. J Fam Soc Work, 13(2): Schmall VL, Cleland M, Sturdevant M The Caregiver Help Book (use in the Powerful Tools for Caregiving). Oregon, Oregon Gerontological Association: Legacy Health System. Seltzer MM, Li LW The dynamics of caregiving: transitions during a three-year prospective study. Gerontologist, 40: Selwood A, Johnston K, Katona C, et al Systematic review of the effect of psychological interventions on family caregivers of people with dementia. J Affect Disord, 101: Sörensen S, Pinquart M, Duberstein P How effective are interventions with caregivers? An updated meta-analysis. Gerontologist, 42(3): Won CW, Fitts SS, Favaro S, et al Community-based powerful tools intervention enhances health of caregivers. Arch Gerontol Geriatr, 46(1): Young RF, Kahana E Specifying caregiver outcomes: gender and relationship aspects of caregiving strain. Gerontologist, 29: Zeiss A, Gallagher-Thompson D, Lovett S, et al Self-efficacy as a mediator of caregiver coping: development and testing of an assessment model. J Clin Geropsychol, 5(3):

Testing Self-Efficacy as a Pathway That Supports Self-Care Among Family Caregivers in a Psychoeducational Intervention

Testing Self-Efficacy as a Pathway That Supports Self-Care Among Family Caregivers in a Psychoeducational Intervention Journal of Family Social Work, 13:149 162, 2010 Copyright # Taylor & Francis Group, LLC ISSN: 1052-2158 print=1540-4072 online DOI: 10.1080/10522150903487107 Testing Self-Efficacy as a Pathway That Supports

More information

The Role of Religious Coping in Alzheimer s Disease Caregiving

The Role of Religious Coping in Alzheimer s Disease Caregiving The Role of Religious Coping in Alzheimer s Disease Caregiving Grace Jeongim Heo University of Pittsburgh Pittsburgh, PA Statement of the Research Problem Alzheimer s Disease (AD) and other dementias are

More information

Enhancing Quality of Life of Families Who Use Adult Day Services: Short- and Long-Term Effects of the Adult Day Services Plus Program

Enhancing Quality of Life of Families Who Use Adult Day Services: Short- and Long-Term Effects of the Adult Day Services Plus Program The Gerontologist Vol. 46, No. 5, 630 639 Copyright 2006 by The Gerontological Society of America Enhancing Quality of Life of Families Who Use Adult Day Services: Short- and Long-Term Effects of the Adult

More information

Background. Population/Intervention(s)/Comparison/Outcome(s) (PICO) Interventions for carers of people with dementia

Background. Population/Intervention(s)/Comparison/Outcome(s) (PICO) Interventions for carers of people with dementia updated 2012 Interventions for carers of people with dementia Q9: For carers of people with dementia, do interventions (psychoeducational, cognitive-behavioural therapy counseling/case management, general

More information

Care costs and caregiver burden for older persons with dementia in Taiwan

Care costs and caregiver burden for older persons with dementia in Taiwan Care costs and caregiver burden for older persons with dementia in Taiwan Li-Jung Elizabeth Ku Department of Public Health, College of Medicine, National Cheng Kung University, Tainan, Taiwan 2017/4/28

More information

Running Head: READINESS FOR DISCHARGE

Running Head: READINESS FOR DISCHARGE Running Head: READINESS FOR DISCHARGE Readiness for Discharge Quantitative Review Melissa Benderman, Cynthia DeBoer, Patricia Kraemer, Barbara Van Der Male, & Angela VanMaanen. Ferris State University

More information

Evidence profile: caregiver support

Evidence profile: caregiver support Integrated care for older people (ICOPE) Guidelines on community-level interventions to manage declines in intrinsic capacity Evidence profile: caregiver support Scoping question: Does respite care or

More information

Adam Kilgore SOCW 417 September 20, 2007 ANNOTATED BIBLIOGRAPHY OF RESEARCH ARTICLE CRITIQUES

Adam Kilgore SOCW 417 September 20, 2007 ANNOTATED BIBLIOGRAPHY OF RESEARCH ARTICLE CRITIQUES ANNOTATED BIBLIOGRAPHY OF RESEARCH ARTICLE CRITIQUES Adams, K. B., Matto, H. C., & Sanders, S. (2004). Confirmatory factor analysis of the Geriatric Depression Scale. The Gerontological Society of America,

More information

Measuring self-efficacy for caregiving of caregivers of patients with palliative care need: Validation of the Caregiver Inventory

Measuring self-efficacy for caregiving of caregivers of patients with palliative care need: Validation of the Caregiver Inventory Measuring self-efficacy for caregiving of caregivers of patients with palliative care need: Validation of the Caregiver Inventory Doris YP LEUNG, PhD, Assistant Professor, The Nethersole School of Nursing,

More information

FUNCTIONAL DISABILITY AND INFORMAL CARE FOR OLDER ADULTS IN MEXICO

FUNCTIONAL DISABILITY AND INFORMAL CARE FOR OLDER ADULTS IN MEXICO FUNCTIONAL DISABILITY AND INFORMAL CARE FOR OLDER ADULTS IN MEXICO Mariana López-Ortega National Institute of Geriatrics, Mexico Flavia C. D. Andrade Dept. of Kinesiology and Community Health, University

More information

POSITIVE ASPECTS OF ALZHEIMER S CAREGIVING: THE ROLE OF ETHNICITY

POSITIVE ASPECTS OF ALZHEIMER S CAREGIVING: THE ROLE OF ETHNICITY POSITIVE ASPECTS OF ALZHEIMER S CAREGIVING: THE ROLE OF ETHNICITY by Kang Sun M.D., Beijing Medical University, 1998 Submitted to the Graduate Faculty of The Graduate School of Public Health in partial

More information

CARING for a disabled older person is one of the most

CARING for a disabled older person is one of the most Journal of Gerontology: SOCIAL SCIENCES 1998, Vol. 53B, No. 5, S267-S277 Copyright 1998 by The Gemntological Society of America Stress Reduction for Family Caregivers: Effects of Adult Day Care Use Steven

More information

Critical Review: What effect do group intervention programs have on the quality of life of caregivers of survivors of stroke?

Critical Review: What effect do group intervention programs have on the quality of life of caregivers of survivors of stroke? Critical Review: What effect do group intervention programs have on the quality of life of caregivers of survivors of stroke? Stephanie Yallin M.Cl.Sc (SLP) Candidate University of Western Ontario: School

More information

George A. Zangaro. TriService Nursing Research Program Final Report Cover Page. Bethesda MD 20814

George A. Zangaro. TriService Nursing Research Program Final Report Cover Page. Bethesda MD 20814 TriService Nursing Research Program Final Report Cover Page Sponsoring Institution Address of Sponsoring Institution USU Grant Number HU0001-09-1-TS16 USU Project Number N09-C10 TriService Nursing Research

More information

Essential Skills for Evidence-based Practice: Strength of Evidence

Essential Skills for Evidence-based Practice: Strength of Evidence Essential Skills for Evidence-based Practice: Strength of Evidence Jeanne Grace Corresponding Author: J. Grace E-mail: Jeanne_Grace@urmc.rochester.edu Jeanne Grace RN PhD Emeritus Clinical Professor of

More information

Long-Stay Alternate Level of Care in Ontario Mental Health Beds

Long-Stay Alternate Level of Care in Ontario Mental Health Beds Health System Reconfiguration Long-Stay Alternate Level of Care in Ontario Mental Health Beds PREPARED BY: Jerrica Little, BA John P. Hirdes, PhD FCAHS School of Public Health and Health Systems University

More information

A Media-Based Approach to Planning Care for Family Elders

A Media-Based Approach to Planning Care for Family Elders A Media-Based Approach to Planning Care for Family Elders A Small Business Innovation Research Grant from the National Institute on Aging Grant #2 R44 AG12883-02 to Northwest Media, Inc. 326 West 12 th

More information

Aging and Caregiving

Aging and Caregiving Mechanisms Underlying Religious Involvement & among African-American Christian Family Caregivers Michael J. Sheridan, M.S.W., Ph.D. National Catholic School of Social Service The Catholic University of

More information

CRITICALLY APPRAISED PAPER (CAP) FOCUSED QUESTION

CRITICALLY APPRAISED PAPER (CAP) FOCUSED QUESTION CRITICALLY APPRAISED PAPER (CAP) FOCUSED QUESTION What is the effectiveness of a stress management program to address the occupational needs of caregivers for older adults? López, J., Crespo, M., & Zarit,

More information

Aging in Place: Do Older Americans Act Title III Services Reach Those Most Likely to Enter Nursing Homes? Nursing Home Predictors

Aging in Place: Do Older Americans Act Title III Services Reach Those Most Likely to Enter Nursing Homes? Nursing Home Predictors T I M E L Y I N F O R M A T I O N F R O M M A T H E M A T I C A Improving public well-being by conducting high quality, objective research and surveys JULY 2010 Number 1 Helping Vulnerable Seniors Thrive

More information

Predicting use of Nurse Care Coordination by Patients in a Health Care Home

Predicting use of Nurse Care Coordination by Patients in a Health Care Home Predicting use of Nurse Care Coordination by Patients in a Health Care Home Catherine E. Vanderboom PhD, RN Clinical Nurse Researcher Mayo Clinic Rochester, MN USA 3 rd Annual ICHNO Conference Chicago,

More information

Working Paper Series NEGATIVE AND POSITIVE CAREGIVING EXPERIENCES: A CLOSER LOOK AT THE INTERSECTION OF GENDER AND RELATIOSHIPS*

Working Paper Series NEGATIVE AND POSITIVE CAREGIVING EXPERIENCES: A CLOSER LOOK AT THE INTERSECTION OF GENDER AND RELATIOSHIPS* 1 Bowling Green State University The Center for Family and Demographic Research http://www.bgsu.edu/organizations/cfdr Phone: (419) 372-7279 cfdr@bgsu.edu Working Paper Series 2011-07 NEGATIVE AND POSITIVE

More information

An Assessment Of The Quality Of Life Of HIV/AIDS Patients And Their Families In Ghana During the Scale Up of Delivery of Antiretroviral Treatment

An Assessment Of The Quality Of Life Of HIV/AIDS Patients And Their Families In Ghana During the Scale Up of Delivery of Antiretroviral Treatment An Assessment Of The Quality Of Life Of HIV/AIDS Patients And Their Families In Ghana During the Scale Up of Delivery of Antiretroviral Treatment J.Amponsah 2, C. Machingauta 3, B. Ocran 2, S. A. Addo

More information

MY CAREGIVER WELLNESS.ORG. Caregiver Wellness. Summary of Study Results. Dr. Eboni Ivory Green 3610 D O D G E S T R E E T, O M A H A NE 68131

MY CAREGIVER WELLNESS.ORG. Caregiver Wellness. Summary of Study Results. Dr. Eboni Ivory Green 3610 D O D G E S T R E E T, O M A H A NE 68131 MY CAREGIVER WELLNESS.ORG Caregiver Wellness Summary of Study Results Dr. Eboni Ivory Green 2010 3610 D O D G E S T R E E T, O M A H A NE 68131 Introduction Purpose of the Study An estimated 2.6 million

More information

Palomar College ADN Model Prerequisite Validation Study. Summary. Prepared by the Office of Institutional Research & Planning August 2005

Palomar College ADN Model Prerequisite Validation Study. Summary. Prepared by the Office of Institutional Research & Planning August 2005 Palomar College ADN Model Prerequisite Validation Study Summary Prepared by the Office of Institutional Research & Planning August 2005 During summer 2004, Dr. Judith Eckhart, Department Chair for the

More information

A STRUCTURAL EQUATION MODEL OF THE DETERMINANTS OF HEALTH CARE IN THE SURVEYED HOUSEHOLDS IN RURAL AREA OF DHARWAD DISTRICT, KARNATAKA STATE, INDIA

A STRUCTURAL EQUATION MODEL OF THE DETERMINANTS OF HEALTH CARE IN THE SURVEYED HOUSEHOLDS IN RURAL AREA OF DHARWAD DISTRICT, KARNATAKA STATE, INDIA ORIGINAL ARTICLE A STRUCTURAL EQUATION MODEL OF THE DETERMINANTS OF HEALTH CARE IN THE SURVEYED HOUSEHOLDS IN RURAL AREA OF DHARWAD DISTRICT, KARNATAKA STATE, INDIA Javali Shivalingappa B 1 1 Reader &

More information

Critique of a Nurse Driven Mobility Study. Heather Nowak, Wendy Szymoniak, Sueann Unger, Sofia Warren. Ferris State University

Critique of a Nurse Driven Mobility Study. Heather Nowak, Wendy Szymoniak, Sueann Unger, Sofia Warren. Ferris State University Running head: CRITIQUE OF A NURSE 1 Critique of a Nurse Driven Mobility Study Heather Nowak, Wendy Szymoniak, Sueann Unger, Sofia Warren Ferris State University CRITIQUE OF A NURSE 2 Abstract This is a

More information

Evaluation of the Threshold Assessment Grid as a means of improving access from primary care to mental health services

Evaluation of the Threshold Assessment Grid as a means of improving access from primary care to mental health services Evaluation of the Threshold Assessment Grid as a means of improving access from primary care to mental health services Report for the National Co-ordinating Centre for NHS Service Delivery and Organisation

More information

Group-Based Interventions for Caregivers of Individuals with Chronic Health Conditions. Kelly Valdivia, BA and Stacy A.

Group-Based Interventions for Caregivers of Individuals with Chronic Health Conditions. Kelly Valdivia, BA and Stacy A. Group-Based Interventions for Caregivers of Individuals with Chronic Health Conditions Kelly Valdivia, BA and Stacy A. Ogbeide, MS Introduction and Presentation Overview Why focus on caregiving? More than

More information

CAREGIVING COSTS. Declining Health in the Alzheimer s Caregiver as Dementia Increases in the Care Recipient

CAREGIVING COSTS. Declining Health in the Alzheimer s Caregiver as Dementia Increases in the Care Recipient CAREGIVING COSTS Declining Health in the Alzheimer s Caregiver as Dementia Increases in the Care Recipient National Alliance for Caregiving and Richard Schulz, Ph.D. and Thomas Cook, Ph.D., M.P.H. University

More information

An Overview of Ohio s In-Home Service Program For Older People (PASSPORT)

An Overview of Ohio s In-Home Service Program For Older People (PASSPORT) An Overview of Ohio s In-Home Service Program For Older People (PASSPORT) Shahla Mehdizadeh Robert Applebaum Scripps Gerontology Center Miami University May 2005 This report was produced by Lisa Grant

More information

Gender and Relationship Differences in Caregiving Patterns and Consequences Among Employed Caregivers 1

Gender and Relationship Differences in Caregiving Patterns and Consequences Among Employed Caregivers 1 Copyright 1997 by The Cerontological Society of America The Cerontologist Vol. 37, No. 6, 804-816 Gender and relationship differences in caregiving (i.e., for a spouse, parent, parent-in-law, other relative,

More information

Appendix. We used matched-pair cluster-randomization to assign the. twenty-eight towns to intervention and control. Each cluster,

Appendix. We used matched-pair cluster-randomization to assign the. twenty-eight towns to intervention and control. Each cluster, Yip W, Powell-Jackson T, Chen W, Hu M, Fe E, Hu M, et al. Capitation combined with payfor-performance improves antibiotic prescribing practices in rural China. Health Aff (Millwood). 2014;33(3). Published

More information

Statistical Portrait of Caregivers in the US Part III: Caregivers Physical and Emotional Health; Use of Support Services and Technology

Statistical Portrait of Caregivers in the US Part III: Caregivers Physical and Emotional Health; Use of Support Services and Technology Statistical Portrait of Caregivers in the US Part III: Caregivers Physical and Emotional Health; Use of Support Services and Technology [Note: This fact sheet is the third in a three-part FCA Fact Sheet

More information

Long-Term Services & Supports Feasibility Policy Note

Long-Term Services & Supports Feasibility Policy Note Long-Term Services and Supports Feasibility Study Department of Political Science, College of Social Sciences University of Hawai i - Mānoa Policy Note 7 Long-Term Services & Supports Feasibility Policy

More information

2013 Workplace and Equal Opportunity Survey of Active Duty Members. Nonresponse Bias Analysis Report

2013 Workplace and Equal Opportunity Survey of Active Duty Members. Nonresponse Bias Analysis Report 2013 Workplace and Equal Opportunity Survey of Active Duty Members Nonresponse Bias Analysis Report Additional copies of this report may be obtained from: Defense Technical Information Center ATTN: DTIC-BRR

More information

INDEPTH Scientific Conference, Addis Ababa, Ethiopia November 11 th -13 th, 2015

INDEPTH Scientific Conference, Addis Ababa, Ethiopia November 11 th -13 th, 2015 The relationships between structure, process and outcome as a measure of quality of care in the integrated chronic disease management model in rural South Africa INDEPTH Scientific Conference, Addis Ababa,

More information

Carers Checklist. An outcome measure for people with dementia and their carers. Claire Hodgson Irene Higginson Peter Jefferys

Carers Checklist. An outcome measure for people with dementia and their carers. Claire Hodgson Irene Higginson Peter Jefferys Carers Checklist An outcome measure for people with dementia and their carers Claire Hodgson Irene Higginson Peter Jefferys Contents CARERS CHECKLIST - USER GUIDE 1 OUTCOME ASSESSMENT 1.1 Measuring outcomes

More information

CRITICALLY APPRAISED PAPER (CAP)

CRITICALLY APPRAISED PAPER (CAP) CRITICALLY APPRAISED PAPER (CAP) FOCUSED QUESTION What is the impact of assistive technology and home modification interventions on ADL and IADL function in individuals aging with an early-onset long-term

More information

This is an electronic reprint of the original article. This reprint may differ from the original in pagination and typographic detail.

This is an electronic reprint of the original article. This reprint may differ from the original in pagination and typographic detail. This is an electronic reprint of the original article. This reprint may differ from the original in pagination and typographic detail. Author(s): von Bonsdorff, Mikaela; Leinonen, Raija; Kujala, Urho;

More information

KEY FINDINGS from Caregiving in the U.S. National Alliance for Caregiving and AARP. April Funded by MetLife Foundation

KEY FINDINGS from Caregiving in the U.S. National Alliance for Caregiving and AARP. April Funded by MetLife Foundation KEY FINDINGS from Caregiving in the U.S. National Alliance for Caregiving and AARP April 2004 Funded by MetLife Foundation Profile of Caregivers Estimate that there are 44.4 million American caregivers

More information

Department of Nursing

Department of Nursing Department of Nursing Faculty Professors Cho, Won Jung, Ph.D. (Yonsei University, 1983) Professor; Health behavior, Family nursing, Primary health care Kim, Cho Ja, Ph.D. (Yonsei University, 1983) Professor;

More information

Policy Clarification for Caregiver Services and Respite Options for Families of Older Adults

Policy Clarification for Caregiver Services and Respite Options for Families of Older Adults Bulletin December #07-25-08 20, 2007 Minnesota Department of Human Services P.O. Box 64941 St. Paul, MN 55164-0941 OF INTEREST TO County Directors Social Services Supervisors and Staff Health Plans Area

More information

Burden and Coping Methods among Care Givers of Patients with Chronic Mental Illness (Schizophrenia & Bpad)

Burden and Coping Methods among Care Givers of Patients with Chronic Mental Illness (Schizophrenia & Bpad) IOSR Journal of Nursing and Health Science (IOSR-JNHS) e-issn: 2320 1959.p- ISSN: 2320 1940 Volume 5, Issue 5 Ver. IV (Sep. - Oct. 2016), PP 43-47 www.iosrjournals.org Burden and Coping Methods among Care

More information

EVALUATING CAREGIVER PROGRAMS Andrew Scharlach, Ph.D. Nancy Giunta, M.A., M.S.W.

EVALUATING CAREGIVER PROGRAMS Andrew Scharlach, Ph.D. Nancy Giunta, M.A., M.S.W. EVALUATING CAREGIVER PROGRAMS Andrew Scharlach, Ph.D. Nancy Giunta, M.A., M.S.W. Paper Prepared for the Administration on Aging 2003 National Summit on Creating Caring Communities Overview of CASAS FCSP

More information

Effect of DNP & MSN Evidence-Based Practice (EBP) Courses on Nursing Students Use of EBP

Effect of DNP & MSN Evidence-Based Practice (EBP) Courses on Nursing Students Use of EBP Effect of DNP & MSN Evidence-Based Practice (EBP) Courses on Nursing Students Use of EBP Richard Watters, PhD, RN Elizabeth R Moore PhD, RN Kenneth A. Wallston PhD Page 1 Disclosures Conflict of interest

More information

A Study on Physical Symptoms and Self-Esteem in accordance to Socio-demographic Characteristics - Centered around elderly residents of nursing homes -

A Study on Physical Symptoms and Self-Esteem in accordance to Socio-demographic Characteristics - Centered around elderly residents of nursing homes - , pp.37-41 http://dx.doi.org/10.14257/astl.2015.101.09 A Study on Physical Symptoms and Self-Esteem in accordance to Socio-demographic Characteristics - Centered around elderly residents of nursing homes

More information

Gender differences among Canadian spousal caregivers at the end of life

Gender differences among Canadian spousal caregivers at the end of life Health and Social Care in the Community (2009) 17(2), 159 166 doi: 10.1111/j.1365-2524.2008.00813.x Blackwell Publishing Ltd Gender differences among Canadian spousal caregivers at the end of life Kevin

More information

Table 1. Summary of works on the Caregivers Reaction Assessment instrument

Table 1. Summary of works on the Caregivers Reaction Assessment instrument Table 1. Summary of works on the Caregivers Reaction Assessment instrument Study Sample size Care-receiver Caregiver Mean age (yrs) Female (%) Spouse (%) Anal. Model Factor structures Given, et al., 1992

More information

Work-Family Conflict, Perceived Organizational Support and Professional Commitment: A Mediation Mechanism for Chinese Project Professionals

Work-Family Conflict, Perceived Organizational Support and Professional Commitment: A Mediation Mechanism for Chinese Project Professionals Article Work-Family Conflict, Perceived Organizational Support and Professional Commitment: A Mediation Mechanism for Chinese Project Professionals Junwei Zheng 1 and Guangdong Wu 2, * 1 Faculty of Civil

More information

EVIDENCE shows that the stressful demands of caregiving

EVIDENCE shows that the stressful demands of caregiving Journal of Gerontology: SOCIAL SCIENCES 2004, Vol. 59B, No. 3, S138 S145 Copyright 2004 by The Gerontological Society of America Can Culture Help Explain the Physical Health Effects of Caregiving Over

More information

Physician Use of Advance Care Planning Discussions in a Diverse Hospitalized Population

Physician Use of Advance Care Planning Discussions in a Diverse Hospitalized Population J Immigrant Minority Health (2011) 13:620 624 DOI 10.1007/s10903-010-9361-5 BRIEF COMMUNICATION Physician Use of Advance Care Planning Discussions in a Diverse Hospitalized Population Sonali P. Kulkarni

More information

The Role of Supervisor Relationship Quality in Managing Work-Family Outcomes

The Role of Supervisor Relationship Quality in Managing Work-Family Outcomes H O G A N R E S E A R C H D I V I S I O N The Role of Supervisor Relationship Quality in Managing Work-Family Outcomes Heather Bolen Hogan Assessment Systems Michael Litano & Debra Major Old Dominion University

More information

Barriers & Incentives to Obtaining a Bachelor of Science Degree in Nursing

Barriers & Incentives to Obtaining a Bachelor of Science Degree in Nursing Southern Adventist Univeristy KnowledgeExchange@Southern Graduate Research Projects Nursing 4-2011 Barriers & Incentives to Obtaining a Bachelor of Science Degree in Nursing Tiffany Boring Brianna Burnette

More information

A REVIEW OF NURSING HOME RESIDENT CHARACTERISTICS IN OHIO: TRACKING CHANGES FROM

A REVIEW OF NURSING HOME RESIDENT CHARACTERISTICS IN OHIO: TRACKING CHANGES FROM A REVIEW OF NURSING HOME RESIDENT CHARACTERISTICS IN OHIO: TRACKING CHANGES FROM 1994-2004 Shahla Mehdizadeh Robert Applebaum Scripps Gerontology Center Miami University March 2005 This report was funded

More information

RESEARCH OBJECTIVE(S) To examine the effects of AAT on agitation and depression among nursing home residents with dementia

RESEARCH OBJECTIVE(S) To examine the effects of AAT on agitation and depression among nursing home residents with dementia CRITICALLY APPRAISED PAPER (CAP) Majic, T., Gutzmann, H., Heinz, A., Lang, U. E., & Rapp, M. A. (2013). Animal-assisted therapy and agitation and depression in nursing home residents with dementia: A matched

More information

Go With The Flow: The Use of Movement Meditation to Reduce Simulation Anxiety in Nursing Students

Go With The Flow: The Use of Movement Meditation to Reduce Simulation Anxiety in Nursing Students Go With The Flow: The Use of Movement Meditation to Reduce Simulation Anxiety in Nursing Students Angela Mulcahy, RN, MS, CMSRN, PhD(c) Kevin Gosselin, Ph.D. Brian Holland, Ph.D., RN Alison Pittman, RN,

More information

Results from the Green House Evaluation in Tupelo, MS

Results from the Green House Evaluation in Tupelo, MS Results from the Green House Evaluation in Tupelo, MS Rosalie A. Kane, Lois J. Cutler, Terry Lum & Amanda Yu University of Minnesota, funded by the Commonwealth Fund. Academy Health Annual Meeting, June

More information

Confirmatory factor analysis of the Maslach Burnout Inventory among Florida nurses

Confirmatory factor analysis of the Maslach Burnout Inventory among Florida nurses International Journal of Nursing Studies 39 (2002) 785 792 Confirmatory factor analysis of the Maslach Burnout Inventory among Florida nurses Jason W. Beckstead* College of Nursing, University of South

More information

A Journey from Evidence to Impact

A Journey from Evidence to Impact 1 TRANSITIONAL CARE MODEL A Journey from Evidence to Impact Mary D. Naylor, Ph.D., RN Marian S. Ware Professor in Gerontology Director, NewCourtland Center for Transitions and Health University of Pennsylvania

More information

Informal care and psychiatric morbidity

Informal care and psychiatric morbidity Journal of Public Health Medicine Vol. 20, No. 2, pp. 180-185 Printed in Great Britain Informal care and psychiatric morbidity Stephen Horsley, Steve Barrow, Nick Gent and John Astbury Abstract Background

More information

Scottish Hospital Standardised Mortality Ratio (HSMR)

Scottish Hospital Standardised Mortality Ratio (HSMR) ` 2016 Scottish Hospital Standardised Mortality Ratio (HSMR) Methodology & Specification Document Page 1 of 14 Document Control Version 0.1 Date Issued July 2016 Author(s) Quality Indicators Team Comments

More information

A Journey from Evidence to Impact

A Journey from Evidence to Impact 1 TRANSITIONAL CARE MODEL A Journey from Evidence to Impact Mary D. Naylor, Ph.D., RN 2015-2016 UCSF Presidential Chair Marian S. Ware Professor in Gerontology Director, NewCourtland Center for Transitions

More information

Much caregiver research has been devoted to describing

Much caregiver research has been devoted to describing Clinical Scholarship The Influence of Caregiver Mastery on Depressive Symptoms Paula R. Sherwood, Barbara A. Given, Charles W. Given, Rachel F. Schiffman, Daniel L. Murman, Alexander von Eye, Mary Lovely,

More information

The past 2 decades have seen a tremendous growth in

The past 2 decades have seen a tremendous growth in Caregiver Attitudes and Hospitalization Risk in Michigan Residents Receiving Home- and Community-Based Care Lisa R. Shugarman, PhD,* Amna Buttar, MS, MBBS, Brant E. Fries, PhD, Tisha Moore, BA, # and Caroline

More information

kaiser medicaid uninsured commission on

kaiser medicaid uninsured commission on kaiser commission on medicaid and the uninsured Who Stays and Who Goes Home: Using National Data on Nursing Home Discharges and Long-Stay Residents to Draw Implications for Nursing Home Transition Programs

More information

Stressors Associated with Caring for Children with Complex Health Conditions in Ohio. Anthony Goudie, PhD Marie-Rachelle Narcisse, PhD David Hall, MD

Stressors Associated with Caring for Children with Complex Health Conditions in Ohio. Anthony Goudie, PhD Marie-Rachelle Narcisse, PhD David Hall, MD Ohio Family Health Survey sponsored research Stressors Associated with Caring for with Complex Health Conditions in Ohio Anthony Goudie, PhD Marie-Rachelle Narcisse, PhD David Hall, MD i What is the Ohio

More information

7-A FIRST. The Effect of a Curriculum Based on Caring on Levels of Empowerment and Decision-Making in Senior BSN Students

7-A FIRST. The Effect of a Curriculum Based on Caring on Levels of Empowerment and Decision-Making in Senior BSN Students 7-A FIRST The Effect of a Curriculum Based on Caring on Levels of Empowerment and Decision-Making in Senior BSN Students Karen Johnson, PhD, RN has been a nurse educator for over 25 years. Her major area

More information

Caregivers at Risk?: Changes in Leisure Participation

Caregivers at Risk?: Changes in Leisure Participation Journal of Leisure Research Copyright 2001 2001, Vol. 33, No. 1, pp. 32-55 National Recreation and Park Association Caregivers at Risk?: Changes in Leisure Participation Nicole J. Dunn, M.A. and Laurel

More information

ELDERLY RESIDENTS, hospitalized in

ELDERLY RESIDENTS, hospitalized in J Nurs Care Qual Vol. 24, No. 4, pp. 332 339 Copyright c 2009 Wolters Kluwer Health Lippincott Williams & Wilkins Coordinating the Roles of Nursing Home Staff and Families of Elderly Nursing Home Residents

More information

Quality Of Life, Spirituality and Social Support among Caregivers of Cancer Patients

Quality Of Life, Spirituality and Social Support among Caregivers of Cancer Patients IOSR Journal of Electrical and Electronics Engineering (IOSR-JEEE) e-issn: 2278-1676,p-ISSN: 2320-3331, Volume 10, Issue 6 Ver. I (Nov Dec. 2015), PP 11-15 www.iosrjournals.org Quality Of Life, Spirituality

More information

Revista Publicando, 5 No 16. (1). 2018, ISSN

Revista Publicando, 5 No 16. (1). 2018, ISSN Studying the effect of systemic thinking and positive thinking on nursing decisionmaking processes in hospitals of Tehran University of Medical Sciences Nader Shahamat 1, Nazafarin Hosseini 2, Parvin Razmjooei

More information

Caregivers of Lung and Colorectal Cancer Patients

Caregivers of Lung and Colorectal Cancer Patients Caregivers of Lung and Colorectal Cancer Patients Audie A. Atienza, PhD Behavioral Research Program National Cancer Institute National Institutes of Health On behalf of the Caregiver Supplement Working

More information

Role Play as a Method of Improving Communication Skills of Professionals Working with Clients in Institutionalized Care a Literature Review

Role Play as a Method of Improving Communication Skills of Professionals Working with Clients in Institutionalized Care a Literature Review 10.1515/llce-2017-0002 Role Play as a Method of Improving Communication Skills of Professionals Working with Clients in Institutionalized Care a Literature Review Tomáš Turzák Department of Education,

More information

The Life-Cycle Profile of Time Spent on Job Search

The Life-Cycle Profile of Time Spent on Job Search The Life-Cycle Profile of Time Spent on Job Search By Mark Aguiar, Erik Hurst and Loukas Karabarbounis How do unemployed individuals allocate their time spent on job search over their life-cycle? While

More information

A comparison of two measures of hospital foodservice satisfaction

A comparison of two measures of hospital foodservice satisfaction Australian Health Review [Vol 26 No 1] 2003 A comparison of two measures of hospital foodservice satisfaction OLIVIA WRIGHT, SANDRA CAPRA AND JUDITH ALIAKBARI Olivia Wright is a PhD Scholar in Nutrition

More information

Summary of Findings. Data Memo. John B. Horrigan, Associate Director for Research Aaron Smith, Research Specialist

Summary of Findings. Data Memo. John B. Horrigan, Associate Director for Research Aaron Smith, Research Specialist Data Memo BY: John B. Horrigan, Associate Director for Research Aaron Smith, Research Specialist RE: HOME BROADBAND ADOPTION 2007 June 2007 Summary of Findings 47% of all adult Americans have a broadband

More information

Online Interventions for Dementia Family Caregivers: What We Know/What Next?

Online Interventions for Dementia Family Caregivers: What We Know/What Next? Online Interventions for Dementia Family Caregivers: What We Know/What Next? Olimpia Paun, PhD, PMHCNS-BC Rush University College of Nursing Chicago, Illinois, USA Mastery over Dementia (MoD) Self-paced,

More information

Differences of Job stress, Burnout, and Mindfulness according to General Characteristics of Clinical Nurses

Differences of Job stress, Burnout, and Mindfulness according to General Characteristics of Clinical Nurses , pp.191-195 http://dx.doi.org/10.14257/astl.2015.88.40 Differences of Job stress, Burnout, and Mindfulness according to General Characteristics of Clinical Nurses Jung Im Choi 1, Myung Suk Koh 2 1 Sahmyook

More information

Gender Differences In Adult Child Caregiving Patterns: Associations With Care-Recipients' Physical And Mental Health And Cognitive Status

Gender Differences In Adult Child Caregiving Patterns: Associations With Care-Recipients' Physical And Mental Health And Cognitive Status Yale University EliScholar A Digital Platform for Scholarly Publishing at Yale Public Health Theses School of Public Health January 2013 Gender Differences In Adult Child Caregiving Patterns: Associations

More information

Reghuram R. & Jesveena Mathias 1. Lecturer, Sree Gokulam Nursing College, Venjaramoodu, Trivandrum, Kerala 2

Reghuram R. & Jesveena Mathias 1. Lecturer, Sree Gokulam Nursing College, Venjaramoodu, Trivandrum, Kerala 2 Original Article Abstract : A STUDY ON OCCURRENCE OF SOCIAL ANXIETY AMONG NURSING STUDENTS AND ITS CORRELATION WITH PROFESSIONAL ADJUSTMENT IN SELECTED NURSING INSTITUTIONS AT MANGALORE 1 Reghuram R. &

More information

University of Groningen. Caregiving experiences of informal caregivers Oldenkamp, Marloes

University of Groningen. Caregiving experiences of informal caregivers Oldenkamp, Marloes University of Groningen Caregiving experiences of informal caregivers Oldenkamp, Marloes IMPORTANT NOTE: You are advised to consult the publisher's version (publisher's PDF) if you wish to cite from it.

More information

Measuring the relationship between ICT use and income inequality in Chile

Measuring the relationship between ICT use and income inequality in Chile Measuring the relationship between ICT use and income inequality in Chile By Carolina Flores c.a.flores@mail.utexas.edu University of Texas Inequality Project Working Paper 26 October 26, 2003. Abstract:

More information

The Impact of Scholarships on Student Performance

The Impact of Scholarships on Student Performance Research Brief The Impact of Scholarships on Student Performance Introduction This brief examines the number, nature, and dollar amount of scholarships awarded by CCSF from 2005 through 2007. In addition,

More information

CHAPTER 5 AN ANALYSIS OF SERVICE QUALITY IN HOSPITALS

CHAPTER 5 AN ANALYSIS OF SERVICE QUALITY IN HOSPITALS CHAPTER 5 AN ANALYSIS OF SERVICE QUALITY IN HOSPITALS Fifth chapter forms the crux of the study. It presents analysis of data and findings by using SERVQUAL scale, statistical tests and graphs, for the

More information

Effect of a self-management program on patients with chronic disease Lorig K R, Sobel D S, Ritter P L, Laurent D, Hobbs M

Effect of a self-management program on patients with chronic disease Lorig K R, Sobel D S, Ritter P L, Laurent D, Hobbs M Effect of a self-management program on patients with chronic disease Lorig K R, Sobel D S, Ritter P L, Laurent D, Hobbs M Record Status This is a critical abstract of an economic evaluation that meets

More information

IMPACT OF PHYSICAL THERAPY ON BURDEN OF CAREGIVERS OF INDIVIDUALS WITH FUNCTIONAL DISABILITY

IMPACT OF PHYSICAL THERAPY ON BURDEN OF CAREGIVERS OF INDIVIDUALS WITH FUNCTIONAL DISABILITY 108 IMPACT OF PHYSICAL THERAPY ON BURDEN OF CAREGIVERS OF INDIVIDUALS WITH FUNCTIONAL DISABILITY Anushree Narekuli*, Kavitha Raja**, Senthil Kumaran D*** ABSTRACT Advances in medical science have resulted

More information

Effective Communication Between Elders and Providers

Effective Communication Between Elders and Providers Effective Communication Between Elders and Providers JOYCELYN DORSCHER MD ASSOCIATE DEAN FOR STUDENT AFFAIRS AND ADMISSIONS ASSOCIATE PROFESSOR, DEPARTMENT OF FAMILY MEDICINE UND SCHOOL OF MEDICINE AND

More information

Interventions to help the family cope

Interventions to help the family cope Family issues and sexual problems in cardiovascular disease Interventions to help the family cope Anna Strömberg, RN, PhD, NFESC, FAAN Professor and head of Division of Nursing, Department of Medical and

More information

CARING for a disabled older adult can be a highly

CARING for a disabled older adult can be a highly Casado, B., & Sacco, P. (2012). Correlates of caregiver burden among family caregivers of older Korean Americans. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 67(3),

More information

Sources of Work-Family Conflict in the Accounting Profession. William R. Pasewark Texas Tech University Ralph E. Viator Texas Tech University

Sources of Work-Family Conflict in the Accounting Profession. William R. Pasewark Texas Tech University Ralph E. Viator Texas Tech University BEHAVIORAL RESEARCH IN ACCOUNTING Volume 18, 2006 pp. 147 165 Sources of Work-Family Conflict in the Accounting Profession William R. Pasewark Texas Tech University Ralph E. Viator Texas Tech University

More information

Identifying Research Questions

Identifying Research Questions Research_EBP_L Davis_Fall 2015 Identifying Research Questions Leslie L Davis, PhD, RN, ANP-BC, FAANP, FAHA UNC-Greensboro, School of Nursing Topics for Today Identifying research problems Problem versus

More information

Factors influencing patients length of stay

Factors influencing patients length of stay Factors influencing patients length of stay Factors influencing patients length of stay YINGXIN LIU, MIKE PHILLIPS, AND JIM CODDE Yingxin Liu is a research consultant and Mike Phillips is a senior lecturer

More information

Statistical Analysis Plan

Statistical Analysis Plan Statistical Analysis Plan CDMP quantitative evaluation 1 Data sources 1.1 The Chronic Disease Management Program Minimum Data Set The analysis will include every participant recorded in the program minimum

More information

Factors affecting Job Involvement in Taiwanese Nurses: A Structural Equation Modeling Approach

Factors affecting Job Involvement in Taiwanese Nurses: A Structural Equation Modeling Approach International Journal of Health Research and Innovation, vol. 3, no. 2, 2015, 1-12 ISSN: 2051-5057 (print version), 2051-5065 (online) Scienpress Ltd, 2015 Factors affecting Job Involvement in Taiwanese

More information

Evidence Tables and References 6.4 Discharge Planning Canadian Best Practice Recommendations for Stroke Care Update

Evidence Tables and References 6.4 Discharge Planning Canadian Best Practice Recommendations for Stroke Care Update Evidence Tables and References 6.4 Discharge Planning Canadian Best Practice Recommendations for Stroke Care 2011-2013 Update Last Updated: June 21, 2013 Table of Contents Search Strategy... 2 What existing

More information

Evidence Based Practice. Dorothea Orem s Self Care Deficit Theory

Evidence Based Practice. Dorothea Orem s Self Care Deficit Theory Evidence Based Practice Dorothea Orem s Self Care Deficit Theory Self Care Deficit Theory Theory Overview The question What is the condition that indicates that a person needs nursing care? was the basis

More information

Summer Huntley-Dale, PhD, RN Assistant Professor Western Carolina University

Summer Huntley-Dale, PhD, RN Assistant Professor Western Carolina University Summer Huntley-Dale, PhD, RN Assistant Professor Western Carolina University Purpose Research Questions and Hypotheses Theoretical Framework Methodology Results, Findings and Implications Generalizations

More information

Gender And Caregiving Network Differences In Adult Child Caregiving Patterns: Associations With Care-Recipients Physical And Mental Health

Gender And Caregiving Network Differences In Adult Child Caregiving Patterns: Associations With Care-Recipients Physical And Mental Health Yale University EliScholar A Digital Platform for Scholarly Publishing at Yale Public Health Theses School of Public Health January 2015 Gender And Caregiving Network Differences In Adult Child Caregiving

More information

Older Persons, and Caregiver Burden and Satisfaction in Rural Family Context

Older Persons, and Caregiver Burden and Satisfaction in Rural Family Context Indian Journal of Gerontology 2007, Vol. 21, No. 2. pp 216-232 Older Persons, and Caregiver Burden and Satisfaction in Rural Family Context B. Devi Prasad and N. Indira Rani Department of Social Work Andhra

More information