Patient and Public Voice Assurance Group, Specialised Services APPROVED 20 January 2016 Room 140B Skipton House, 80 London Road, SE1 6LH

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1 Agenda Items Patient and Public Voice Assurance Group, Specialised Services APPROVED 20 January Room 140B Skipton House, 80 London Road, SE1 6LH 1 Welcome from Chair and apologies Present: Jason Stamp - Chair Neeta Mehta individual member Keith Wyncoll individual member Sue Millman- Ataxia UK Terence Lewis individual member Sarah Hutchinson National Voices John James Sickle Cell Society Alice Williams NHS England, Patient and Public Voice Team Nick Meade Genetic Alliance UK John Murray SHCA Suzanna Hopwood Individual member In attendance Fraser Woodward - Head of Communications, Engagement and Partnerships, Specialised Commissioning, NHS England Sara Geater (SG) Senior Engagement Manager, Specialised Commissioning, NHS England Minal Patel - Engagement Manager, Specialised Commissioning, NHS England Stephanie Newman NHS England, Surrey and Sussex Vivienne Eseanobi Business Support Assistant, Specialised Commissioning, NHS England Apologies: Alex Massey Richmond Group Zoe Mulliez Healthwatch England Fiona Marley Head of Highly Specialised Commissioning, NHS England Steve McNeice - individual member 2 Minutes from last meeting Minutes of Last Meeting and November meeting were approved without amendment. 1

2 3 Action log and matters arising An updated action log from December 2015 is attached at the end of these minutes. 4 Update from recent meetings Keith Wyncoll reported that he is involved in group looking at treatment in the European Union. If someone wanted to have specialised treatment in Europe there is a process for that. John James raised an issue re travel to receive specialised treatments NHSE does not reimburse expenses. There was discussion about having a policy around this as part of the suite of generic policies but this is not being taken forward as the information exists elsewhere. It was confirmed that if a person is on a low income you can seek help with travel costs from the provider. The group reflected that patients do not know about that process. Suzanna Hopwood described that for Gender Identity services, the community are involved in delivering training. This is an example of communities acting at the point of delivery. Could that be replicated for other services? 5 Update on recruitment of PPV roles A PPV member is being recruited for the national Collaborative Commissioning Oversight Group Sara and Jane Burbidge are currently putting together an induction programme for all recruited members to provide them with adequate support to understand their role in the specialised commissioning context. Suzanna Hopwood volunteered to be involved in design and / or delivery of training. ACTION: Sara to put Jane and Suzanna in contact There is a need to agree how the people appointed to these roles link with PPVAG. There is a great opportunity to really strengthen assurance of PPV by bringing insight from the various governance groups. ACTION: For discussion at future meeting when reviewing Terms of Reference. 2

3 6 Consultation on clinical policies Policy pipeline 2015/16:Around 90 policies will be going through into next year s prioritisation process. Consultation on first batch will start this week, with consultation launching for new batches every few weeks. The final decisions will be made towards the end of June. Nick Meade reported that as a registered stakeholder of various CRGs, he has received advanced notice of many policies but has not been included in stakeholder testing for several of these policies. ACTION: Sara to provide a status update to Nick regarding the policies he has been contacted about. Nick to provide a list of the relevant policies. /17 policy development An has been sent to all CRG chairs outlining the process for proposing new policies for development. Once proposals are received by the CRG a clinical lead will be identified for each policy. These policies would be put forward for consideration in the 17/18 commissioning round. It is anticipated that the 2017/18 investment decisions will be made in March ACTION: Fraser to circulate the process for proposing new policies to the group Members noted the continuing delay in consulting on revised policies for Individual Funding Requests, In Year Service Developments and Clinically Critically Urgent care, promised for September This ran the risk of entering another financial year without properly assured policies. ACTION: Provide an update on generic policies consultation at February meeting 7 Managing registered stakeholder lists Sara described how, when each CRG was developed, interested groups and individual as were invited to register their interest as stakeholders. Communication with registered stakeholders has been inconsistent and the policy development process has exposed that a notable proportion of contacts are out of date. The communications and engagement team have been working with the central PPP team to develop a Customer Relationship Management (CRM) system which will allow much more effective and targeted communication with the range of stakeholders. It is anticipated that as part of the CRG review there will be a need to revise these lists and 3

4 promote the opportunities being a registered stakeholder will have. There has been considerable effort to make the current lists as clean as possible in order to transfer the data into the new system. 8 Annual report format and content Jason Stamp described that when PPVAG was established it was agreed that the group would produce an annual report. As well as capturing the work of the group it will now serve the purpose of providing contextual information for Jonathan Fielden as he takes up the post of National Director of Specialised Commissioning. Through discussion a number of key points were captured which will be incorporated into the draft. ACTION: The annual report template to be circulated to the group for them to populate. Jason will then draft the report for consideration by the group. 9 AOB: None discussed Date of Next Meeting: 17 February 10:30am 1:00pm Skipton House London 4

5 PPVAG ACTION LOG December 2015 Update Reference (Meeting date that action came from) PPVAG Annual report to be created and circulated for comment. Action Update Due Points raised in meeting discussion will be incorporated March Share Communications and Engagement plan for Collaborative Commissioning at a future meeting and invite presenter to give update to include impacts of devolution Update on CRG review at future meeting and ensure opportunities for early and ongoing engagement of PPV members in the review and beyond Provide update on PSSAG process for engaging patients & Establish process for publication of future minutes with submission of next batch of minutes for publication in New Year Invite new Director of Specialised Commissioning to attend PPVAG meeting Updates on Project Sunlight and the implications for PPVAG to be a regular agenda item until resolved Consider what specific actions could be taken to Gareth Arthur was not able to attend in January and will be invited to attend in February This is likely to commence shortly the review has been delayed to allow Jonathan Fielden to take up post Postponed as Fiona Marley and Steve McNeice unable to attend. Minutes April October have been submitted to top of office, awaiting CEO clearance Jonathan Fielden will attend April meeting A paper updating on project sunlight is going to February Board. This is not specifically about PPVAG but decisions will be relevant to this group. Revise terms of reference to focus on January February February Jan Closed March March 5

6 strengthen assurance role for discussion at next meeting Circulate template for Annual Report for discussion at next meeting Circulate notes from IFR session held with PPVAG in the Summer Set dates for PPVAG for year ahead assurance role Workshopped at January meeting Complete Complete January Close Closed 6