WALES ACCORD FOR SHARING PERSONAL INFORMATION (WASPI): UPDATE. Mandy Collins, Board Secretary. Carol Phillips, Information Governance Manager None

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1 Agenda item: 3.2 INFORMATION MANAGEMENT, TECHNOLOGY & GOVERNANCE COMMITTEE Date of Meeting: Subject: Approved and Presented by: Prepared by: Other Committees and meetings considered at: Considered by Executive Committee on: Mandy Collins, Board Secretary Carol Phillips, Information Governance Manager None Not considered at time of reporting PURPOSE: This report provides an overview of: The work taken forward by the Information Governance Team since the Committee last met to ensure compliance with the WASPI requirements; and Issues for the Committee to be aware of. Approval/ Ratification/Decision Discussion Information THE PAPER IS ALIGNED TO THE DELIVERY OF THE FOLLOWING STRATEGIC OBJECTIVE(S) AND HEALTH AND CARE STANDARD(S): Strategic Objectives: The issues, referenced in the attached paper, have an impact on 1 Information Management, Technology

2 Striving for excellence (delivery) Health and Care Standards: This paper supports Governance, Leadership and Accountability EXECUTIVE SUMMARY: Since the latest report on information sharing agreements submitted to the Committee in April 2017, the Information Governance Team have identified a further eight agreements that require consideration, these include: Information Sharing Protocols (ISPs) Data Disclosure Agreements (DDAs) Details of these eight agreements are set out below, all are under consideration or are in : Hearing Loss (PTHB and third sector); Empower/Spirit Health Diabetes Programme (PTHB and third sector); Multi agency public protection arrangement (MAPPA) (Multi agency); School Child Immunisation Programme (multi agency); Palliative Care for patients (PTHB and third sector organisation); Vaccination invitations to school pupils (Powys County Council); Integrated Autism Service (Powys County Council); and Home Educated Children (Powys County Council) The Committee will wish to note that ISP037- Adult Integrated Assessment which has been created to support the regular sharing of personal information between PTHB and Powys Adults Social Care for the purpose of providing integrated assessment, planning and review arrangements for adults who live in Powys was submitted to the Regional Quality Assurance Group in May 2017 for quality assuring and approval. The regional quality assurance group has a responsibility for ensuring ISP s developed under the WASPI framework are of a suitable quality to be published as good examples. Each group has a chair and terms of reference and largely comprise of representatives of large public sector bodies, such as Health Board, Police, Fire and Local Authorities. It was recommended at the Regional Group that further work be undertaken. Once the further work is complete the ISP will be circulated to members of the Regional Quality Assurance Group for quality checking and approval. A central schedule of agreements is maintained by the Information 2 Information Management, Technology

3 Governance Team and this is attached at Appendix 1 for information. The Committee will wish to note that work has commenced on the development of a web based Information Asset Register. This register will help identify information assets and information flows and support compliance with the WASPI. NEXT STEPS: Work on the Asset Register is a priority for the Information Governance Team. Further updates at the next scheduled meeting of the Committee. 3 Information Management, Technology

4 Appendix 1 Ref Agreement Name Agreement Description Agreement type Who is the agreement with Latest position ISP 001 ISP 002 Infection Programme Infection Control Information sharing where individuals are identified as having an infection within the remit of the WHAIP team. Sharing patient test result data for Powys patients for the purposes of monitoring infection within Powys. PTHB + Public Health Wales (PHW) Wye Vallet T rust+ PTHB 29/6/17 reminder sent requesting update and confirmation of whether agreement required 29/6/17 reminder sent requesting update and confirmation of whether agreement required ISP 003 MSDI Risk Stratification Sharing information for patients identified as having certain health risk factors to support risk profiling. GPs + PTHB update from CT not pursuing ISP 004 Welsh Clinical Portal Sharing pathology information with clinicians treating Powys patients either within Powys or in another HB. PtHB + Cwm Taf Sharing not taking place so not relevant - Project on hold. Diagnostic Reports Service / Shared Electronic Health Record = meeting scheduled 10 February to discuss MOU for all national systems sharing electronic information for direct patient care.

5 ISP 005 Integrated Offender Management IOM Sharing information to enable the IOM Cymru Scheme to deliver a co-ordinated and intensive case management approach in response to the risks and needs of high risk offenders. PTHB / DP Police / Wales Probation 29/6/17 - to mental health to advise if relevant to PTHB ISP 006 Infection Control Sharing patient test result data for Powys patients for the purposes of monitoring infection within Powys. SATH + PTHB 29/6/17 - chase sent for 2017 review ISP 007 Test Results Request and Reporting (TRRR) Sharing pathology information with clinicians treating Powys patients either within Powys or in another HB. PtHB + Hywel Dda no longer required superceded by NIIAS ISP 008 Children + Young People's Partnership Sharing information between a wide range of agencies in Powys for the purposes of delivering services for and in respect of children. PtHB + various Powys agencies no longer required as separate agreements are being developed ISP 009 PCS online online system allowing patient transport bookings to be made using internet technology WAST + PtHB no longer required ISP 010 Reablement Sharing to provide short term support to individuals to retain or regain their independence. PtHB / PCC / Police / CSSIW / WAO / Voluntary / HBs ISP 011 Flying Start delivering services for and in respect of children 0 4 years together with their families and carers, residing within Flying Start identified areas ISP 012 Complex Care Sharing to support Mid and West Wales Health & Social Care Collaborative Complex Needs, Transition and Vulnerable Person Project Various Councils / PtHB / HDdaHB 5 Information Management, Technology

6 ISP 013 Integrated Family Support Services To support a Welsh Government initiative providing support to families affected by substance misuse. PtHB / PCC / various with review ISP 014 MARAC MISP and MOP For cases of domestic abuse that have been assessed as high risk. Police leading multi agency ISP 015 Newborn Bloodspot Screen Services Wales to support the transfer of information from CCH2000 (Child Health system) to Newborn Bloodspot system to identify babies who have not been tested. PtHB + PHW with review ISP 016 Mid Wales Outreach Project (Health & Mobility) to support a combination of practical advice, acting as signposting agency, providing short term loan of equipment and sale of practical aids in order that residents can be fully supported in the home. PtHB / Ceredigion / British Red Cross ISP 017 Lunch & Befriending Clubs Sharing to enable WRVS to provide lunching and befriending services to patients. MOU PtHB v WRVS ISP 018 Sexual Assault Services to develop a regional model for sexual assault services across South, Mid and West Wales to address the acute phase delivered through Sexual Assault Referral Centres initially. PtHB + South Wales Collaborative ISP County - Team Around the Family (TAF) to support early intervention and to reduce the numbers of families developing complex needs PtHB + various ISP 020 Maternity Figures to support the work by PHW to monitor the following: teenage pregnancies, smoking during pregnancy, overweight and obesity, alcohol and drug use by pregnant women, adverse outcomes with associated risk factors MoU PtHB + PHW with review 6 Information Management, Technology

7 ISP 021 ISP 022 ISP 023 Difficulty discharging patients to Neath Port Talbot Joint Inter Agency Monitoring (Concerns/ closures of Care Homes) Care Management Interface to support the discharge of patients to Neath Port Talbot and to address the issues of Neath Social Workers having access to Powys patient notes. Sharing to support joint agency monitoring concerns and closures of Care Homes. Protection of Vulnerable Adults - to support multi agency strategy meetings. PtHB and Neath Port Talbot SS PtHB v PCC PtHB / Adult Social Care PCC / Police / CSSIW ISP 024 ISP 025 ISP 026 ISP 027 Education for Programme Patients Cymru Clinical Instrument Surveillance Programme - Neuraxial Commissioning Activity Validation Invoice validation - Pennine To capture feedback from service users as a result of takin gpart in an EPP course. where individuals are identified as having a procedure utilising instruments / devices currently under the remit of CISP and any complication associated with that procedure to support Finance in monitoring commissioning arrangement invoice validation - Pennine Trust MOU HBs to National EPP PtHB > PHW PtHB + Hereford CCG Pennine Trust + PtHB not required - no EPP in Powys ISP 028 Carewell Carewell Intra GPs x 4 7 Information Management, Technology

8 ISP 029 Shropshire Skin Clinic Treatment at Shropshire Skin Clinic Intra PtHB + SATH ISP 030 invoice validation - Ophthalmic invoice validation - Ophthalmic letter PtHB + NWSSP PCS ISP 031 Invoice Validation RJAH + PTHB ISP 032 invoice validation BPAS NWIS NWIS - await fully signed copy for file Query separate agreement for North Powys with Commissioning ISP 033 DP ASB DP Anti-Social Behaviour Service PCC DPP PTHB + various ISP 034 Virtual Wards Virtual Wards ISP 035 Glan Irfon PCC PTHB + various PCC PTHB + various ISP 036 National Ophthalmology Database Audit (cataracts) not required ISP 037 ISP 038 Adults Integrated Assessment Adults Integrated Assessment PCC PTHB Carbon monoxide - PTHB PHW awaiting national QA approval 8 Information Management, Technology

9 ISP 039 ISP 040 WVT ophthalmology database Cross organsation access to WCP - BWM to Cwmtaf ophthalmology data with BWM and WVT Access protocol PTHB V Cwmtaf WVT + PtHB ISP 041 Section 136 PTHB PCC DPP ISP 042 Pharmacy agreement Pharmacy agreemnent between Llanidloes GP + Dudley Pharmacy not involving PTHB?? not applicable to PTHB ISP 043 Fresh Programme in Powys 10 week programme for overweight children run in leisure centres PTHB PCC PHW Freedom Leisure ISP 044 LIMS Data Migration PTHB PCC PHW Freedom Leisure ISP 045 Talking Therapies Partnership - North Wales ISP 046 ISP 047 ASD information Carbon monoxide - PHW admissions relating to carbon monoxide PTHB PHW ISP 048 CARIS Congenital Anomaly Register & Information Service (Wales) PTHB PHW 9 Information Management, Technology

10 ISP 049 Wales Patient Level Costing Submission patient level costing submissions to WG ISP 050 ICNET Infection Control surveillance Data Processing Agreement ISP 051 Obs Cymru Obestetric Bleeding Strategy for Wales Intra ISP 052 National Prostate Cancer Audit all HBs Baxter Healthcare Corporation C&V, PHW and other Health Boards access to CANISC data MOU PTHB and PHW ISP 053 Hearing Loss release of patient information to Hearing Loss organisation ISP Hearing Loss ISP 054 Diabetes Empower/Spirit health diabetes programme ISP Spirit Health ISP 055 MAPPA multi agency public protection arrangement ISP Multi ISP 056 ISP 057 ISP 058 ISP 059 school child IMMS Palliative Care patients Powys Vaccination Group Integrated Autism Service Palliative Care for patients ISP Multi PTHW and Bracken Trust vaccination invitations to school pupils ISP PTHB and PCC Integrated autism service ISP PTHB and PCC confirmation from PHW not applicable to Powys awaiting final version for sign off 10 Information Management, Technology

11 ISP 060 Home educated children Home educated children - to help identify concerns for those who decline an annual educational visit ISP PTHB and PCC in development sent for signature complete overdue for review not required to confirm if required 11 Information Management, Technology

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