An overview of Marie Curie s services

Transcription

1 An overview of Marie Curie s services Marie Curie Cancer Care is a charity dedicated to the care of people with any terminal illness. We provide high quality care and support through the Marie Curie Nursing Service and Marie Curie Helper service, and at our nine Marie Curie Hospices. Our three services: Nursing service Hospice service Helper service T196c

2 Marie Curie Nursing Service The Marie Curie Nursing Service provides high quality care to patients as well as support for their carers and families. Working across the UK, Marie Curie Nurses and Marie Curie Healthcare Assistants make it possible for people to spend their last days at home, rather than in hospital. Planned (full shift or multi-visit) Marie Curie Nurses and Healthcare Assistants provide nursing care, day or night, which is booked in advance. 2 Rapid Response Marie Curie Rapid Response Nurses provide urgent nursing care in patients homes, or advice over the phone, to help patients remain at home without going into hospital. Supported Discharge Marie Curie Health and Personal Care Assistants provide care in patients homes in the first 72 hours after their discharge from hospital. Patients are supported with health and personal care while other services are being arranged.

3 Nursing service Planned (full shift or multi-visit) Our Marie Curie Nurses and Healthcare Assistants deliver full shifts of nursing care overnight or flexible, shorter visits during the day or evening to help patients remain in their own homes. What we offer Our Marie Curie Nurses and Healthcare Assistants provide a full overnight nursing shift, from 10pm to 7am. In areas where we offer a multivisit service, our nurses and healthcare assistants provide shorter periods of care during the day or in the evening according to patients needs. Our Planned nursing care is booked in advance through our Marie Curie referral centre, or in some areas, through local arrangements. Our nurses and healthcare assistants are experienced in caring for people with terminal illnesses and can help them to cope with their symptoms such as nausea, pain or anxiety. They also offer advice and emotional support to family members and carers, such as discussing their concerns about the patient s illness. Our nurses and healthcare assistants make sure that patients are comfortable. They take care of the patients nursing needs, enabling their carers to get some rest. What are the benefits? Our Marie Curie Nurses and Healthcare Assistants work around the clock, often through the night, to enable families and carers to rest, knowing that the person they are caring for is in safe hands. By offering nursing care in the community to terminally ill people in the last stages of their illness, our service can help them achieve their preferred place of care at the end of their lives. An independent study by the Nuffield Trust (November 2012) provides strong evidence that the end of life care provided by our nursing service reduces the need for emergency hospitalisation, allows more people to die at home and cuts hospital costs. This research looked at the experiences of over 29,000 people who received care from our nursing service, comparing their outcomes to a control group of people with similar characteristics who did not receive care from us, but who may have received other nursing care. The research found that more than three quarters of those who received our nursing service died at home, compared to 35 per cent of those who did not receive our service. Read more about the Nuffield Trust study. Where is the service available? Our Planned service covers 94 per cent of the UK. The main Planned service we offer is our full-shift overnight nursing care from 10pm to 7am. In increasing number of areas, we provide a multi-visit service, offering shorter day and evening nursing shifts. Key stats Find out more Watch three Marie Curie Nurses talk about what it is like to be a Marie Curie Nurse what they enjoy about their job and how the care they provide can make a difference to patients and families.

4 Nursing service Rapid Response service We are delivering urgent care at short notice through our Rapid Response service. Our rapid response nurses provide hands-on care to help patients manage at home. They also offer support over the phone to advise carers during a crisis all this to ensure that patients who are cared for at home can avoid going into hospital. What we offer Our Rapid Response service helps prevent unnecessary hospital admissions by providing responsive care and support to terminally ill people in their own homes. During an emergency, just one call to our rapid response team can help patients to stay at home instead of going into hospital. Depending on the situation, our nurses can visit patients at home, or they may provide advice over the phone. Our rapid response nurses can help patients to manage their symptoms at home such as overcoming breathing difficulties, pain or nausea. They can respond quickly to requests for nursing care usually within one hour of a call. Families and carers can also ring our nurses when they need support, advice or just some reassurance. What are the benefits? Patients and their carers can contact our service directly for urgent phone advice or hands-on care. This prevents unnecessary calls to the emergency services and admissions to A&E, particularly in the patients last weeks of life. Patients changing care needs may lead to a crisis and unnecessary hospital admissions. By being responsive to patients needs, our Rapid Response service enables more patients with any terminal illnesses to be cared for in their place of choice at home or in a care home. Our service is typically available out of hours or over the weekend when it is more difficult to get care or support. Where is the service available? Across Lincolnshire Durham, Durham Dales, Darlington, Easington and Sedgefield Greenwich (London) Conwy, Denbighshire, Flintshire and Wrexham Ealing and Hounslow (Greater London) Grampian Dumfries and Galloway County Antrim, County Londonderry, County Tyrone Southern Health and Social Care Trust (Northern Ireland) Key stats Find out more Watch a video to see a rapid response nurse explain her role.

5 Nursing service Supported Discharge service This service provides integrated health and personal care to support patients in the first few days after they are discharged home. We help them and their carers to manage at home while other care services are being arranged. What we offer Our supported discharge service is provided by Marie Curie Health and Personal Care Assistants. It is typically available to patients for up to three days immediately after they are discharged home. In some areas, we can support patients over a seven-day period. Our care assistants provide nursing care and personal care such as helping patients to wash or dress. They can also help with social care small tasks in the house such as loading the washing machine or preparing a simple meal. Our care assistants are available on flexible shifts. They can visit over a three-day period. Each visit may vary in length depending on the patient s individual care requirements. What are the benefits? Our service enables patients to be discharged more quickly from hospital as we can provide them with the care and support that they need at home immediately after their discharge and before other home care services become available. The support we provide can help ease the patient s transition from a healthcare setting to a home environment, helping to prevent unnecessary readmission to hospital. By providing health, personal and social care as one integrated service, we are reducing the need for coordination between services to ensure better continuity of care for patients and their families. Where is the service available? Lothian Glasgow Liverpool Scarborough Perth and Kinross

6 Marie Curie Hospices Marie Curie Hospices provide specialist care and support for people with terminal illnesses and their families. Each hospice offers in-patient and outpatient care as well as a range of day services to help improve people s quality of life and sense of well being. Most Marie Curie Hospices also provide care and support in people s homes. What we offer At each hospice, we have a team of highly experienced staff including doctors, nurses, social workers, counsellors and therapists to meet the individual needs of patients and their families. Services offered at our hospices include medical and nursing care; physiotherapy; occupational therapy; social, practical, psychological, emotional and spiritual support; and complementary therapies. Many people who come to our hospices attend our day services to help them cope with their illness. They can attend for a few hours, or have a full programme of care and activities tailored to their needs, such as physiotherapy, emotional support and practical advice. Patients who need more care and support, such as expert pain relief, can stay at our hospices in-patient facilities or be seen by our staff as an outpatient. Many of our hospices also have community specialist nurses who can visit patients at home to provide assessment, care and advice. Families and carers can also benefit from our hospice services which may include support groups, counselling and bereavement support. What are the benefits? Our hospices offer a supportive and welcoming environment with staff experienced in helping people to live with their illness and improve their quality of life. We offer expert care to patients by helping them manage their symptoms such as pain, breathlessness and nausea. We provide sensitive support practical, social, emotional and spiritual - to patients, families and carers to help take away some of their strain or anxiety. Depending on people s needs, we can offer advice and information, a friendly ear, and support for families before and after bereavement. Our services, such as physiotherapy and occupational therapy, can help patients to stay active and independent for as long as possible. Where are our hospices located? We have nine hospices: Belfast Bradford Cardiff and the Vale (in Penarth) Edinburgh Glasgow Hampstead (in London) Liverpool Newcastle West Midlands (in Solihull) Key stats Find out more You can watch videos of each hospice on our website. Patients and their families as well as hospice staff and volunteers talk about the services our hospices offer. For data on expenditure, funding and number of patients cared for by each hospice, see the hospice key stats below.

7 Hospice key stats: nationwide 2013/ m 64,831 17, The total number of Registered Nurses in Marie Curie s hospices Hospice care data ,266 Marie Curie Hospices provide 228 beds 16.1 days 46% Average percentage of NHS funding to Marie Curie Hospices 21,645 78% 99% Patients who rate their overall experience as good or excellent

8 Hospice key stats: Belfast 2013/14 3.9m 5, Belfast hospice care data 501 5,544 Belfast 18 beds 19 days 48% funding to Belfast hospice 2,359 84% Source:????/xxxxx

9 Hospice key stats: Bradford 2013/14 3.6m 4, Bradford hospice care data Bradford 16 beds 13.9 days 45% funding to Bradford hospice 2,815 81% Source:????/xxxxx

10 Hospice key stats: Cardiff and the Vale 2013/14 4.4m 8,775 2, Cardiff and the Vale hospice care data Cardiff and the Vale 30 beds 14.9 days 35% funding to Cardiff and the Vale hospice 2,069 81%

11 Hospice key stats: Edinburgh 2013/14 5.1m 6,888 5, Edinburgh hospice care data Edinburgh 25 beds 14.9 days 46% funding to Edinburgh hospice 1,421 75% Source:????/xxxxx

12 Hospice key stats: Glasgow 2013/14 5.6m 8,799 4, Glasgow hospice care data 343 2,926 Glasgow 30 beds 16 days 43% funding to Glasgow hospice 3,087 80% Source:????/xxxxx

13 Hospice key stats: Hampstead 2013/14 6m 9, Hampstead hospice care data 424 6,949 Hampstead 34 beds 19.1 days 64% funding to Hampstead hospice 5,224 80% Source:????/xxxxx

14 Hospice key stats: Liverpool 2013/14 6.8m 7, Liverpool hospice care data 587 2,645 Liverpool 30 beds 15.8 days 51% funding to Liverpool hospice 1,886 65%

15 Hospice key stats: Newcastle 2013/14 4.1m 5, Newcastle hospice care data 403 8,142 Newcastle 21 beds 16 days 43% funding to Newcastle hospice 1,671 78%

16 Hospice key stats: West Midlands 2013/14 5.1m 7,170 2, West Midlands hospice care data 403 1,571 West Midlands 24 beds 15.3 days 33% funding to West Midlands hospice 1,122 81% Source:????/xxxxx

17 The Marie Curie Helper service Our Helper service is provided by trained volunteers who visit terminally ill people and their carers to offer companionship and support for up to three hours each week. Helper volunteers do not provide nursing or personal care but they complement the care provided by our Marie Curie Nursing Service and Marie Curie Hospices. What we offer Helper volunteers provide companionship and emotional support, offering a friendly ear and spending time engaging in everyday conversation and activities with the people they are supporting. Our Helper volunteers provide practical support, such as accompanying the terminally ill person to an appointment or a social group. They can help to make a cup of tea and help with small, everyday tasks that can have a positive impact by making things that bit easier for the terminally ill person and their carer. Our service enables carers to take a short break from their caring role, as Helper volunteers are there to provide company to the person they are caring for. What are the benefits? Our service provides terminally ill people and their carers with a dedicated Helper volunteer they can turn to on a regular basis for companionship and support. An independent evaluation by Ipsos Mori (April 2012) found that our Helper service has a positive impact on the emotional well-being of the people they are supporting. Carers reported that the short breaks they could take enabled them to feel less stressed and have greater peace of mind about the wellbeing of the person they cared for. Where is the service available? Our Helper service is being introduced in a growing number of areas across the UK. It is currently available in: Somerset and Bristol East London Nottinghamshire Liverpool Northern Ireland South Wales Fife West Midlands We are also setting up a new service in North London, which will be up and running soon. Helper volunteers can also signpost people to further information on local services, and provide support to families and carers for up to three months after bereavement. Our Helper service supports anyone aged 18 or over with a terminal illness. We can also offer support to carers who are looking after someone with a terminal illness. People can request support from our service directly, or they can be referred by their health or social care professional. Key stats Find out more Watch a video showing a Helper service manager, volunteers and two families sharing their experience of the service. the Helper team: helper@mariecurie.org.uk