Consumer Co-creation in Health: Patient Reported Outcomes and Experience Measures Dr Tina Janamian

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2 Consumer Co-creation in Health: Patient Reported Outcomes and Experience Measures Dr Tina Janamian National Manager, Research, Innovation and Development Australian General Practice Accreditation Limited (AGPAL) Quality Innovation Performance (QIP) and QIP Consulting

3 Consumer value co-creation in health

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5 Benefits of consumer co-creation Increased efficiencies in health services Improved health outcomes Increased trust in the health care team Reduced health care costs to the patient and the health system Increased patient satisfaction and compliance with treatment regimens Value can be co-created for the individual, clinical practices, health care organisations and providers, and government

6 Opportunities Patient Centred Health Care Home model ideal opportunity to embed consumer/patient value co-creation approaches across our health system Set up engagement structure, platforms and opportunities for consumers/patients to meaningfully engage and co-create health Build capacity of those involved to contribute through these structures to help patients be active partners in their care and to co-create health Meaningful measurements of consumer experience (PREMs) and health outcomes (PROMs) are essential building blocks for providing patient and family centred care

7 Consumer health co-creation embedded across entire health care system Patient-centred outcomes and experiences Macrosystem National initiatives, policies, and incentives Macro-level infrastructure Government led changes to health systems to encourage and facilitate self-management, consumer co-creation Mesosystem Support of microsystems PHNs to drive consumer health co-creation - education, training, PREMs and PROMs Strengthen interface between microsystems to provide coordinated, accessible, comprehensive patientcentred care Patient centeredness, selfcare system Giving people with longterm conditions the skills, confidence and support to self-manage Individual caregiver and patient system Education and family engagement strategies Clinical microsystem Helping clinicians to develop the skills, knowledge and attitude to support and motivate people with long-term conditions

8 Benefits for using PREMs and PROMs Health care recipients Have their symptoms better monitored Ensure voice their is heard Involved in decision making and developing care plans Opportunity to communicate with the health care provider Improved outcomes Health care provider Inform treatment options Improve ability to detect worsening of symptoms Provide information that may have otherwise been missed Reduce drop out or treatment non-compliance Enhance shared decision making Put health outcomes at the heart of decision-making Improve patient outcomes Health services and system Improve quality of services Evaluate efficacy, effectiveness, and cost-effectiveness of healthcare services and programs

9 Key considerations can become barriers PROMs and PREMs must be driven and embedded at different points across health care system Meaningful measures to consumers and clinicians Adequate education / information provision to allow all to understand purpose of PROMs and PREMs Provide preferences for completion of questionnaires Not burdensome or duplicative: aim for high response rates Develop systems /processes to use results to improve individual patient care, inform local service improvement Feedback provided following survey on how information contributes to their individual care or health service in general Support principles of coordinated care

10 Example of utilising the Patient Participation in Care (PPiC) tool in Australian general practice: using PREMs and PROMs for chronic disease

11 Steps to building a culture for co-creating value 1. Identify key stakeholders and increase their willingness to engage 2. Identify and support new co-creation champions 3. Set up platforms purposefully designed to engage individuals more co-creatively

12 Six steps to building a culture for co-creating value 8, Expand the circle of stakeholders and joint value creation opportunities 5. Engage stakeholders across private, public, and social sectors to expand benefit for all 6. Deepen the impact and enable the viral spread of win more-win more value creation